madamemcweed

Mariah

My saga of mmj, doctors, & chronic, life threatening illnesses. My life is governed by Murphy's Law. Follow at your own risk. I am not a doctor.

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Heads up, California peeps! This gorgeous piece was STOLEN from my fav glass shop @thecavesmokeshop in Walnut Creek. Anyone with info, please DM them immediately!! See @thecavesmokeshop for more details. Let’s help get this piece back where it belongs. #stolen #thief #help #art #bornthisway #invisibleillness #progress #healing #chronicillness #medicine #dysautonomia #gastroparesis #HSD #hypermobile #california #queer #girlswhosmokeweed #weedismedicine #legalize #pot #ganja #ganjagirl #mmj #marijuana #medicalmarijuana #stoner #high #cannabis #cannabiscommunity
I finally broke down and ordered tube pads. The gauze just wasn’t cutting it anymore. I finally washed and dried a few (picture 2) and put my first one on today. My belly is so happy (picture 3). I can’t believe I waited three months to order these. Thanks @tubiewhoobies for such awesome tubie pads. I love mine, especially the moon ones. #tubie #tubiewhoobies #moon #belly #bodypositive #bornthisway #invisibleillness #progress #healing #chronicillness #medicine #dysautonomia #gastroparesis #HSD #hypermobile #california #queer #girlswhosmokeweed #weedismedicine #legalize #pot #ganja #ganjagirl #mmj #marijuana #medicalmarijuana #stoner #high #cannabis #cannabiscommunity
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Something slipped inside when I was going to the bathroom this morning, so I am in a great deal of pain. Cuddling with Alice on the couch, listening to @anthonybourdain extol the virtues of Quebec. Someday I will stay with my husband at Le Chateau Frontenac. Someday. Until then, I’ll watch @partsunknowncnn to see the beauty in the world. #pain #belly #cnn #cat #catsofinstagram #bornthisway #invisibleillness #progress #healing #chronicillness #medicine #dysautonomia #gastroparesis #HSD #hypermobile #california #queer #girlswhosmokeweed #weedismedicine #legalize #pot #ganja #ganjagirl #mmj #marijuana #medicalmarijuana #stoner #high #cannabis #cannabiscommunity
I started a new medication from my neurologist, Florinef or fludricortisone, to help with all the third spacing of my fluids. It definitely has some serious side effects for me, but it is absolutely helping keep me properly hydrated. Gonna give it a little bit longer to see if my body will adapt, but we will probably be having a cost/benefits conversation with my neurologist and GIs to see if there is anything we can do to mitigate the side effects. I’m only on half the recommended dose, and the side effects are pretty intense. I generally don’t tolerate steroids well, but this is a slightly different type of steroid, so my neurologist thought it might be different enough to tolerate. The increased quality of life is amazing, but the side effects are dangerous. Hopefully we can figure it out. #steroids #hydrate #water #port #selfie #bornthisway #invisibleillness #progress #healing #chronicillness #medicine #dysautonomia #gastroparesis #HSD #hypermobile #california #queer #girlswhosmokeweed #weedismedicine #legalize #pot #ganja #ganjagirl #mmj #marijuana #medicalmarijuana #stoner #high #cannabis #cannabiscommunity
I met the pelvic pain specialist and the pelvic floor therapist already this week. I have no other identifiable pain generators in my pelvis, to pelvic congestion, nothing else they can see on imaging. I do have very minor pelvic floor dysfunction, my muscles don’t quite relax all the way, but it’s minor and not the cause of my extreme issues. I have a couple exercises to work on, so this should disappear with hard work and the correct exercises. Everything has paved the way for today’s appointment, which is my first consult with my gynecological surgeon. Both providers previously mentioned gave the go ahead for a hysterectomy. My geneticist also considers it appropriate, which is probably helping to fast track this. Below is a little history. . . My period started as a belated 11th birthday present that nobody wants. By twelve they were extremely painful. By 13, I was missing school every month from the pain and vomiting and debilitating headaches. I started birth control around the age of 16. I was able to function some, but my weight quickly rose. I weighed around 140 when I started BC. I tried almost everything out there. Depo provera, the patch, the rings, low hormones, high hormones, ones where you only have your period quarterly, like a lousy magazine. I did not try the implant or an IUD, but now that we know I have a connective tissue defect, those are very unsafe options. I stopped all birth control 4 years ago, because I was unable to afford to get a pelvic exam and a refill prescription. You should never, ever stop meds without talking to a doctor. When I finally stopped the birth control, I was rapidly approaching 300 pounds. Everything was ok for a while, then I slowly started losing the weight. Then it melted rapidly as my period started deeply aggravating my other conditions. I triggered my gastroparesis into a permanent flare and everything has been down hill since. Many of us are really hoping that permanently stopping my periods will allow us to get more control of the rest of my conditions. Hopefully the surgeon will listen and can teach us even more. #bornthisway #invisibleillness #progress #healing #chronicillness #medicine #surgery
I’m finally feeling well enough to read for pleasure*, thank you feeding tube. This new book just keeps blowing my mind. * - most people probably wouldn’t generally consider the books I choose to be “pleasure reading”, but I grew up in a library and like to learn #book #bookstagram #reading #learning #books #bornthisway #invisibleillness #progress #healing #chronicillness #medicine #dysautonomiawarrior #gastroparesis #HSD #hypermobile #california #queer #girlswhosmokeweed #weedismedicine #legalize #pot #ganja #ganjagirl #mmj #marijuana #medicalmarijuana #stoner #high #cannabis #cannabiscommunity
Time for a gastroparesis food experiment. Terpenes are comprised of hydrocarbons and are found in nearly all plants, including cannabis and food spices. Since volatile compounds can pass from some things, like orange peel, lavender, vanilla, into sugar, I am wondering if some of the terpenes cross over. Black pepper contains high levels of myrcene, which is a terpene. Myrcene is also found in cannabis and strains high in myrcene are helpful for anxiety. I am wondering if I can use sugar to extract the myrcene from black pepper and then use that sugar in another experiment. Guess we are gonna find out. #food #terpenes #foodscience #thanksaltonbrown #sugar #invisibleillness #chronicillness #dysmotility #endometriosis #dysautonomia #gastroparesis #POTS #hypermobile #california #queer #girlswhosmokeweed #weedismedicine #legalize #pot #pothead #ganja #ganjagirl #420 #medicalmarijuana #mmj #marijuana #stoner #high #cannabis #cannabiscommunity
Surgery with a connective tissue defect is no joke. I had toe surgery 5 years ago to remove a pyogenic granuloma. It didn’t heal correctly (swipe left), so I am headed to another podiatrist (my fifth) for a consult to get this corrected. We now know why it failed and how to decrease the likelihood of failure for this surgery. Fingers crossed this won’t be too awful. Podiatrist 1 retired, the second is 3500 miles away, the third is 2500 miles away, and the fourth is a two hour drive away, which would just be too far to drive after surgery. #toes #surgery #podiatry #podiatrist #uglytoe #invisibleillness #chronicillness #dysmotility #endometriosis #dysautonomia #gastroparesis #POTS #hypermobile #california #queer #girlswhosmokeweed #weedismedicine #legalize #pot #pothead #ganja #ganjagirl #420 #medicalmarijuana #mmj #marijuana #stoner #high #cannabis #cannabiscommunity
I have a neurology appt. in a couple hours and should be getting ready, but who can say no to such a cute cuddle bug. My nausea is intense today, so it’s gonna be a rough morning until I can smoke after I see my doctor. Gastroparesis is awful. Gonna stick to formula for a few days and hopefully I will feel better so we can celebrate a 9 year old’s birthday. (Aaahh! Last one before double digits!!) #cat #catsofinstagram #cats #cuddle #furbaby #invisibleillness #chronicillness #dysmotility #endometriosis #dysautonomia #gastroparesis #POTS #hypermobile #california #queer #girlswhosmokeweed #weedismedicine #legalize #pot #pothead #ganja #ganjagirl #420 #medicalmarijuana #mmj #marijuana #stoner #high #cannabis #cannabiscommunity
I made @altonbrown ‘s bouillabaisse for my guests today with lobster stock I made yesterday. It came out amazingly. So thrilled. My guests loved it and I think my husband licked his bowl. First attempt was a smashing success and I will absolutely be making it again. Thanks @sunhfish for having such utterly impeccable seafood. Made with opah, halibut, and lobster since I need to learn more about mussels. I could only eat the seafood parts and not the rest of the soup, but I enjoyed what I ate and my house smells like France. #heaven #france #food #foodporn #dinner #invisibleillness #chronicillness #dysmotility #endometriosis #dysautonomia #gastroparesis #POTS #hypermobile #california #queer #girlswhosmokeweed #weedismedicine #legalize #pot #pothead #ganja #ganjagirl #420 #medicalmarijuana #mmj #marijuana #stoner #high #cannabis #cannabiscommunity
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