I met the pelvic pain specialist and the pelvic floor therapist already this week. I have no other identifiable pain generators in my pelvis, to pelvic congestion, nothing else they can see on imaging. I do have very minor pelvic floor dysfunction, my muscles don’t quite relax all the way, but it’s minor and not the cause of my extreme issues. I have a couple exercises to work on, so this should disappear with hard work and the correct exercises. Everything has paved the way for today’s appointment, which is my first consult with my gynecological surgeon. Both providers previously mentioned gave the go ahead for a hysterectomy. My geneticist also considers it appropriate, which is probably helping to fast track this. Below is a little history. .
My period started as a belated 11th birthday present that nobody wants. By twelve they were extremely painful. By 13, I was missing school every month from the pain and vomiting and debilitating headaches. I started birth control around the age of 16. I was able to function some, but my weight quickly rose. I weighed around 140 when I started BC. I tried almost everything out there. Depo provera, the patch, the rings, low hormones, high hormones, ones where you only have your period quarterly, like a lousy magazine. I did not try the implant or an IUD, but now that we know I have a connective tissue defect, those are very unsafe options. I stopped all birth control 4 years ago, because I was unable to afford to get a pelvic exam and a refill prescription. You should never, ever stop meds without talking to a doctor. When I finally stopped the birth control, I was rapidly approaching 300 pounds. Everything was ok for a while, then I slowly started losing the weight. Then it melted rapidly as my period started deeply aggravating my other conditions. I triggered my gastroparesis into a permanent flare and everything has been down hill since. Many of us are really hoping that permanently stopping my periods will allow us to get more control of the rest of my conditions. Hopefully the surgeon will listen and can teach us even more. #bornthisway #invisibleillness #progress #healing #chronicillness #medicine #surgery