#youdontlooksick

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Today has been a weird one. I’ve been in so much pain (day 3 period = horrific endo agony) but managed to keep on top of it with painkillers. Been in that functioning but not quite functioning properly state of opiate induced fuzziness. Since getting home I tidied our room and dusted and hoovered up and now I’m absolutely knackered. Anyone else find you’re managing okay and then it just smacks you in the face? Well and truly out of spoons 🥄 ❌ • • • #endometriosis #endometriosisawareness #endowarrior #endosisters #1in10 #invisibleillness #youdontlooksick #fightlikeagirl #pcos #cysters #chronicillness #chronicpain #spoonie #chroniclife #chronicallyfabulous #mentalhealth #depression #anxiety #endosucks #endogal #ibs #pelviccongestionsyndrome #pcs #pcos #polycysticovariansyndrome #endostrong #pelvicpain #chronicpainwarrior
Because 'DUH' everything taste better when it's in a Disney mug 😋💕 . This mug makes me miss Disney!! Oh how wish I was back at my happy place!!! Need another trip soon 😊
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Please remember: You DO make a difference. It IS all worthwhile. YOU are loved. Your smile is a symbol of HOPE ♡
What a month! I've left the house 3 times. That's a lot for me. Once to participate in a research study at Stanford and twice for events at my son's school. Yesterday was his last day of school, and because I was too sick to go to his very first day, I made sure I was there for the last. Heck, I was even able to do my hair and makeup again! We went for ice cream, something I haven't done in years. I was only out for about an hour, and I definitely felt it. Unfortunately, my sensory issues were triggered and I had a small movement disorder episode in public. I don't think anyone even noticed but the episode made me feel so ill that I had to go home right away. I slept for 11 hours straight, which is actually less than normal. I usually need 12-18 hours. Maybe the Plaquenil is finally starting to make a difference after 3 months, fingers crossed! I know that for many with this debilitating disease, leaving the house once a month or even year isn't possible. I think of those patients when I am able to be out and about. I treasure this time, no matter how brief or difficult. I take as many photos as possible and I smile in all of them. I want my family to have as many pictures of me looking "normal," as they can. I want my son to look back and see that, even though Mommy was sick, she did everything she could, when she was able, to participate in life and give him as "normal" a life as possible. Yesterday, I had a fleeting reminder of my life before I got so sick. A tiny glimpse at what my life as a healthy mom would be like, and it was so bittersweet. I can only hope that ME/CFS researchers make a breakthrough, in the very near future, so that I might be able to get my life back while I still have my youth and before my son is grown. #chronicfatigue #cfsme #myalgicencephalomyelitis #mecfs #chronicfatiguesyndrome #cfids #pwme #cfidsme #invisibleillness #chronicillness #chronicallyill #canyouseemenow #potsie #spoonie #dysautonomia #chronicpain #spooniewarrior #youdontlooksick #chronicillnesswarrior #dystonia #posturalorthostatictachycardiasyndrome #tooyoungtobesick #fibromyalgia #fibro #autoimmunity #autoimmunedisease #dystoniamovesme #chargie #mecfsawareness
Don't be so hard on yourself....love yourself instead 💕 Happy Friday!!!
Finally getting back into my routine after traveling the past couple weeks. Whenever I get out of my routine my migraines hit. The past few weeks haven’t been good in that respect but I don’t let that get me down and enjoy the situation regardless 🙌🏼 it’s so important to recognize migraine triggers so that you can be prepared when one hits! No one wants to be miserable, so it’s important to plan and prepare - I knew I would get several over my vacation so I made sure I carried around my medicine everywhere I went👌🏼 what are some tips you have for fellow migraineurs? • Breakfast this morning consisted of potatoes, 2 eggs with everything but the bagel seasoning, & strawbs 🍓 so simple & so delicious 😋 #migraineawareness #breakfastlover
#youdontlooksick 🎗️ Je n'ose pas trop poster de photos en ce moment. Niveau douleurs je suis sur un gros mieux. Mais même si beaucoup savent que la maladie n'est pas écrit sur la tronche ou ne se définit pas par le fait de faire la gueule tous le temps, j'ai un peu peur du jugement qu'on pourrait avoir quand au fait que je "n'ai pas l'air malade" tout en étant en arrêt maladie. Voici quelques souvenirs de mon premier campement médiéval de l'année. Le dernier ayant été en septembre dernier alors que je n'étais vraiment pas au top, j'ai un peu angoissée. Gérer la fatigue des transports avec tout mon matériel, le lever très tôt, la chaleur ou l'humidité, la nuit en campement, le froids, la douleur du réveil... Samedi s'est très bien passé. Départ 6h pour aller tous installer le campement pour 8h. Les démonstrations d'armure. Les copains, la vie de camp. La fête dans le Bourdeau le soir. Je me suis effondrée de fatigue à minuit mais après une super journée. Sauf que vu que j'allais plutôt bien depuis mon retour de la mer, je n'ai pas senti le contrecoup qui a été violent ! Allergies, froid et fatigue... Et PAF (Et pas FAT) . Quand ton corps est aussi fatigué que le mien actuellement, ça ne fait pas de cadeau. J'ai passé la journée du lendemain dans le brouillard et à dormir. C'est là aussi qu'on se rends compte d'à quel point le corps est affaiblit, par l'endo et aussi par ce cercle vicieux du repos qui fait perdre beaucoup d'énergie et de masse musculaire.
⭐️Never let the things you cannot do prevent you from doing that things that you can⭐️ . . Having a chronic illness changes your life in so many ways that you’re never prepared for. In many cases, we find ourselves unable to do many things that we were once able to do with no problem. It’s understandable if you become frustrated and feel a sense of grieving for your “old life” - we’ve all been there. I’ve been there. 🙋🏼‍♀️ . . But we can’t allow this grief to force us to lose sense of who we truly are inside - despite our situation. I can no longer run the way I used to so I take barre classes now. It’s all about finding a new normal and embracing the amazing things that make us who we are. 💁🏼‍♀️ . . You’re all amazing and beautiful and you are not your illness - remember that! 😊😊😊
Good morning world. What a beautiful sunny day you are today! . I'm really glad it's Friday, it's been a really difficult week; I've had some really tough things going on at work while at the same time battling some difficult #Gastroparesis , #IntestinalDysmotility and #EDS /#ChronicPain problems. . I realise I haven't posted about how my appointment with #ProfessorAziz went.. . The short(ish!) version is that it was brilliant. He did a physically exam (something UCLH never did in the beginning), really thoroughly read (and kept) the notes I brought, explaining current problems, and he typed *so*many notes while we talked (UCLH also never did this which explains why all my letters contradicted each other). . I've got a busy few months ahead of me, with a lot of tests in my future. Rather than just going straight for fitting me with a #pegj , he's actually trying to figure out *why* some of the things are happening. My gastric emptying study stands, thankfully - I really wasn't keen on the idea of going through that again. . Some of the new tests include a transit study, where I swallow a capsule with a tracker in it and they retrieve the data a few days later (so cool!!), and some scans, and a likely rather undignified test to assess the state of the muscles in my pelvic floor as Prof thinks that the #EhlersDanlos may be causing some mischief there. . Once all that's happened, I'll then get passed on to the Nutrition team who will then figure out how to stop me from losing more weight, and who knows, maybe even put some back on! I've got to sort I'm hoping for a #pegj now as it will also help with the #Gastroparesis symptoms. . Phew! Long post! If you're still reading after all that, Happy Friday! ☺️🌞🌸 . #HappyFriday #SummerMorning #SunnyDay #BlueSkies #BlueSkyMorning #SummerDay #SunnyFriday #ThankGoodnessItsFriday #NearlyTheWeekend #LifeWithChronicHealthProblems #ChronicPain #InvisibleDisability #InvisibleIllness #YouDontLookSick #HiddenDisability #EhlersDanlos #EhlersDanlosType3 #EDSType3 #GastroparesisSucks #SevereIntestinalDysmotility #Dysautonomia q
Assuming is for assholes, don’t be an asshole #youdontlooksick
WHY NOT YOU?! WHY NOT NOW?! . Don't be like me and wait till an illness strikes to start taking care of yourself. . I got too busy being a wife, a mom, a woman with a career that I never thought to take care of me as well. I made every single excuse!!! . It wasn't until being faced with an illness that I took it seriously. It could've been too late for me. But I was willing to give it everything I had to fight, to get as healthy I could. . As I looked at my broken down body, it wasn't about getting skinny. It was becoming the best mom I could be for my boys. They became my reason! . Working out was never my thing and especially after getting sick. But I found a way to move my body that I enjoyed so I kept going. I had to learn as I went. . I get asked all the time how I can do this living with fibro and chronic fatigue. There is no magic secret...but I can help you learn. You gotta work and if you're willing to do it then let's chat more.
💕Sometimes just being there to listen when we have a high pain day is all we need. . #understanding #chronicpainawareness #chronicpainwarrior #chronicpain #crps #migraine #endometriosis #ms #eds #youdontlooksick #invisibleillness #fibromyalgia 🎗
Not only is it the first day of summer ☀️ but apparently it’s also #NationalSelfieDay 📸 . How am I the last person to find out about this? 🤷🏼‍♀️ . I guess I’ll spend it with a little limited time magic of me working at Epcot tonight. 🤦🏼‍♀️ Happy first day of summer everyone - enjoy your self-ie! 🤣
Ain't no flare stopping this Fibro Princess 👸 from participating in #nationalselfieday 📸💜 #igotthis #makingfibrolookgood
It’s #NationalSelfieDay . I’m sure most view this as a self-indulgent “holiday” (can’t say I totally disagree), but I also believe there is #empowerment in the “age of the selfie” We shouldn’t be afraid to be proud, to have #selfrespect , to show #selflove , or to simply just want to feel good about ourselves. Mine are usually whatever silly, spontaneous thing I’m doing (or industry #swag I’m wearing) at the time, but every year I take a “This is ___” #selfie on my bday. Sometimes I post it. Sometimes I don’t. Sometimes I just look to see how I’ve changed - both inside & out. This (sorta) #TBT is what I took at the end of my bday. While I planned it to just be a #thisis37 photo, it ended up as more. You see, 2018 hasn’t been the kindest to me. On top of my regular chronic health struggles, Jan & Feb brought me (and my dog!) a bad case of pneumonia. Then early March, I took a fall down a flight of stairs that resulted in the worst concussion I’ve ever had (I’ve had quite a few). I was down for the count for the first 3+ months of the year. I had to sacrifice work, events, travel... not great for an #entrepreneur . I couldn’t even stay in my own home for a bit bc I needed help taking care of myself. Come April, I went on a glorious cruise. I knew it was a risk bc of the #concussion , but it was a surprise gift planned & paid for, so I wasn’t going to miss it. While I had an amazing time, the change of environment (land to air to sea) combined with the strain I put on my body with our adventurous excursions resulted in a serious of events that ended our blissful vacation in stress & illness that took over a week for body to overcome. That brings us to this day - my birthday, April 17. I was supposed to have been on work travel (obviously that didn’t happen), so hadn’t planned to celebrate. The day before, I felt up to trying to enjoy it after all. In just 24 hrs, I had a lineup of friends/gatherings filling day and night. I was exhausted by the end, but I took a pic. I’m still on an uphill battle, but this reminds me that it’s been a damn tough year, but I’m a hell of a lot tougher. And I have people who show up and who care about me unconditionally. #summerofselfcare
A year ago today this kid graduated! And now I can't believe he just finished his first full year of college. . This kid of mine has been through struggles. Being diagnosed with A.D.D in 2nd grade, wasn't easy on either of us. There were plenty of frustrated blowouts between us. And also lots of yelling, crying, and hugging. Just trying to understand it all. . It's never easy when your child thinks they're dumb because they're not like other kids. To see them cry thinking they'll never make it. He was trying so hard to learn what he needed to and I was busy learning how to help him. . I became this kids biggest advocate. I fought tooth and nail for him all the way!!! There wasn't anything I wasn't going to do to make sure he knew that he could do it, we just had to tweak it. . So imagine my surprise when he tells me that he wants to become a psychologist to help other kids just like him. So they can learn the tools he used to succeed. My heart was full!! . I'm beyond proud of the man he is becoming. And I know he's going to do some great things in this world and pay it forward!!! . Looking forward to his 2nd year of college!
Another 3 minute thought! Bwah haha. Yep, I've been sick so long I thought it was 8/2018!? Nope, 6/2018😂 #ourtribecalledlove #nomusicnolife #toosad #youdontlooksick #dyingisnofun #medicalanomaly #tiredoffighting
Hooked up to this obnoxious device again!! Does anyone else have problems getting results from the prep needed for the #pillcam #endoscopy ? I have serious #motility issues and sometimes, no matter how much golytely, Miralax, or mag citrate I get down, nothing happens except severe bloating and vomiting. I refuse to ever drink golytely again! I have to constantly do pillcams and colonoscopies over because my #gut and motility have a mind of their own. I swear my gut seems like it falls asleep sometimes and doesn't want to work properly! I hope I have good results this time but I'm not counting on it!🤢🤢😔😔😡😡 #crohns #disease #crohnsdisease #chronic #illness #chronicallyill #chronicpain #chronicallyfabulous #spoonie #crohnie #spoonie #warrior #fighter #vape #mod #tank #ejuice #cloudsbitch #instavape #girlswhovape #makeup #coffee #chocolate #youdontlooksick #ibd #resection
Alisha 1-bath 0!!! 💪After a big day yesterday which involved another trip to Birmingham I’m broken today 😴but I’ve managed a bath so thats a win! ✅🛁Remember that what’s an achievement for someone else may not be the same you! No matter how small the win is, it’s still a win! 🎉🎊Weather that’s making a cup of tea, ☕️getting out of bed🛏 you have done it! Loadsa love!❤️❤️#chronicfatiguesyndrome #meawarness #fibromyalgia #invisibleillness #invisibledisability #youdontlooksick #winning #awinsawin #chronicpain #chronicillness
Today is a new day..... Hold that head up high and conquer the day!! You got this 💕
If you’re always trying to be normal, you’ll never know how amazing you can be - Maya Angelou 🤪 . . Happy #ThrowbackThursday friends! Let’s make it a great one! 💜
It’s taken me a long time to share this. In 2015, I was rather sick because my internal organs decided that eating themselves and inflaming was fun. 2 surgeries, 2 ER visits and 2 rather long hospital stays, followed by 3 years of feeling awful. What I am sharing is me at my most sick and about 129 pounds...and now. We are never sure of my weight because of the edema and I fluctuate 15-25 pounds up and down. The scale says 155. When I take the lasix, I am about 137. So why the photo? Because I look pretty good for my age, health, and fact that I haven’t been able to work out until very recently, yet I walk around the house moo-ing and making whale sounds. So here’s my new fancy blue bikini, and the beginning of me feeling better about me. #hips #bodypositive #autoimmunedisease #youdontlooksick
Living with a #chronicillness , especially one in that #youdontlooksick , it can be hard to explain to family, friends and ones that care how you feel sometimes when they ask everyday. One of the best and easiest ways to get that across is called #thespoontheory . You will still get asked a lot about #howyoufeeltoday , but they will have a better understanding when all they keep hearing is “I’m alright.” #apsawareness #apslife #apswarrior #autoimmune #autoimmunediseaseawareness #chronicpain #amputee #amputeelife #spoonie #spooniewarrior #spoonielife #bringawareness #bethelight #showyoucare
Morning everyone! I really struggled to wake up and get out of bed today. I’ve no enthusiasm and I could have happily just slept all day I think. My period is well and truly here so I imagine that that’s what most of the issue is 🙄😂 my uterus feels so sore 😩👋🏻 #endometriosis #endometriosisawareness #endowarrior #endosisters #1in10 #invisibleillness #youdontlooksick #fightlikeagirl #pcos #cysters #chronicillness #chronicpain #spoonie #chroniclife #chronicallyfabulous #mentalhealth #depression #anxiety #endosucks #endogal #ibs #pelviccongestionsyndrome #pcs #pcos #polycysticovariansyndrome #endostrong #pelvicpain #chronicpainwarrior
Infusion night. . You should never view your challenges as a disadvantage. Instead, it's important for you to understand that your experience facing and overcoming adversity is actually one of your biggest advantages. - Michelle Obama . #cvid #commonvariableimmunedeficiency #pi #primaryimmunedeficiency #infusion #cuvitru #shire #zebra #zebrastrong #invisibleillness #chronicillness #spoonie #doihaveenoughspoons #youdontlooksick #dontjudgeme #adayinmyshoes #ibs #arthritis #spinalstenosis #degenerativediscdisease #bulgingdiscs #interstitialcystitis #sinustachycardia #anemia #vitaminddeficiency
These gummies are my favorite CBD therapy I have tried so far! They help me to not need opioid pain meds, they make me feel like I have more energy, and just generally make me feel so much better! I love them!❤❤❤ My Crohns is unmanaged at the moment because I had an allergic reaction to Entyvio. Prepping tonight for another pill cam tomorrow. Cross your fingers that it works this time.🤞🤞🤞😡😡😡🤢🤢🤢#crohns #disease #crohnsdisease #chronic #illness #chronicallyill #chronicpain #chronicallyfabulous #spoonie #crohnie #spoonie #warrior #fighter #vape #mod #tank #ejuice #cloudsbitch #instavape #girlswhovape #makeup #coffee #chocolate #youdontlooksick #ibd #resection #cbd #edibles #gummies
It took 3 runs on the packaging to get it just right. Third time’s the charm on Ted’s signature green.
Words cannot express my gratitude for all the messages I've gotten of support 💕. . While it's never easy dealing with this disease....being humbled that's it's progressively getting worse, is never what you want to hear when you've been trying so hard to stop it. . So I'm taking time to collect my thoughts and figure out where I go from here so I can come back stronger than before.
A health update: The past two years I have struggled with my breathing. It's always shallow, I never feel like I'm getting enough air, and occasionally I have an episode that lasts a few hours where It gets *extremely* hard to breathe. My throat and chest get tight and I think I'm having either a heart attack or panic attack, and I try to suck in air but it feels restricted. I usually just try to stay calm until it passes. I have told countless doctors about this issue and they all blew me off, until I saw my allergist. Finally I was sent to an ear, nose, and throat doctor, and to my great relief discovered that this issue is NOT in my head. I have vocal cord dysfunction, so my vocal cords are inflammed, spasming, and closing when they shouldn't, making it so I have little space to breathe. While it sounds a little scary it's overall safe, minus a small chance I may pass out (which i already do because of my blood pressure). I am actually relieved, not just because I found an answer to a long standing problem but because it is FIXABLE. I start therapy soon to teach my muscles and vocal chords how to breathe again, and I am just SO excited. I am wondering how much better I'll feel when I can breathe properly. I have said it many times and will never stop saying it: IF YOU THINK SOMETHING IS WRONG WITH YOUR HEALTH, KEEP PUSHING FOR AN ANSWER! Be the hero that stands up for yourself. Even when you're told it's nothing. Even when you're told it's in your head. You KNOW your body. Listen to it, trust your instincts, and push your medical providers to figure. It. Out. Everyone, and I mean everyone, deserves to be at their best level of health. I know it feels impossible and beyond frustrating- my other more serious illnesses have put me through much worse than this present issue. But the answers are worth it. YOU are worth it. #chronicillnesswarrior #youdontlooksick #disability #chronicillness #health
To me, this #CBD #oil is very good!! It does come from the cannibas plant, which makes it better than CBD oil from the hemp plant. CBD oil from the hemp plant has done nothing for my Crohns but because this has a very small amount of THC, it works better. At least for me. The best CBD therapy I have ever had is gummies. I'll post those next. #crohns #disease #crohnsdisease #chronic #illness #chronicallyill #chronicpain #chronicallyfabulous #spoonie #crohnie #spoonie #warrior #fighter #vape #mod #tank #ejuice #cloudsbitch #instavape #girlswhovape #makeup #coffee #chocolate #youdontlooksick
Truly had the day from hell today. 🤦🏼‍♀️❌ I woke up with a migraine 🤯 - dealt with that using rizatriptan, ibuprofen and paracetamol. My periods arrived a full week early, I clearly don’t have a regular cycle. My hormones must be all over the place because I’ve had hot flush after hot flush to the point I needed to tie my hair up as it was WET. My endometriosis pains have kicked in cause of my period. I’ve been starving all day and my blood sugars must have been low cause I’ve been shaky. This bath is the best thing that’s ever happened to me. Goodbye Wednesday you’ve been a bitch 👋🏻👋🏻👋🏻 • • • #endometriosis #endometriosisawareness #endowarrior #endosisters #1in10 #invisibleillness #youdontlooksick #fightlikeagirl #pcos #cysters #chronicillness #chronicpain #spoonie #chroniclife #chronicallyfabulous #mentalhealth #depression #anxiety #endosucks #endogal #ibs #pelviccongestionsyndrome #pcs #pcos #polycysticovariansyndrome #endostrong #pelvicpain #chronicpainwarrior
🐶The best therapist has fur and four legs🐶 . . Logan can be crazy - and I mean CRAZY - but whenever I’m sick he is by my side. He watches over me and offers the best snuggles in the world! . . Take a moment today to do a shoutout to your furry therapist - even if it’s not a dog! 💜
Enough said......💕
Current state of play.... hand on strike... #hadenoughnow #agony #fibromyalgia #angry #fibromyalgiaawareness #youdontlooksick
Holy sh*t wat een avond.💥Ik was er bij en hoe! Bey & Jay hebben me laten huilen, shaken, schreeuwen, dansen, gillen én springen! Ik voelde me een avond normaal, even niet beperkt (ondanks de pijnstillers en het stomme rugkussen). Was het heel slim? Misschien niet. Had ik daarna f**king veel pijn, hell yeah. Maar wat een heerlijke avond!⚡️ Er zijn niet heel veel dingen die ik nog kan doen door mijn rug. Festivals zitten er niet in, hele nachten dansen ook niet en front row staan bij Beyoncé helaas ook niet meer. En ik moet zeggen dat ik gisteren het uren in de rij wachten met de hele Beyhive (en @ryantino ) echt heb gemist! Maar ik ben zo dankbaar dat ik hier nog van kan genieten. En hoe fijn is het dat je een avond uit kunt gaan en letterlijk kunt doen wat je therapeut zegt dat je moet doen: elke 15 min afwisselen van houding. 👯‍♀️ #fangirl #otr2 #beyoncé #jayz #beyhive4life #glitterromy #chronischepijn #onzichtbaarziek #chronischevemoeidheid #chronischmoe #rugpijn #youdontlooksick #spoonielife
One of my best friends just told me that it’s okay to have a bad day .. really it’s been a little over a bad week.. I’ve been stressed and too much stress has been causing this flare up and definitely has my body out of whack... bare with me because i can’t wait to move again ❤️ #chronicpainlife #scleroderma #danceteacher #youdontlooksick #dance #sclerodermaawareness #chronicillness #sclerodancer #chronicillnessawareness #sclerodermawarrior #spoonielife #dancer #autoimmunedisease #lungdisease #dancelife #dance #connectivetissuedisease #fightlikeru #lungs #systemicsclerosis #pulmonaryhypertension #pulmonaryfibrosis #invisibleillness #spoonie #sclerostrong #collagen #chronicpain #chronicfatigue
👊🏼We have many Days we Simply just Manage our Illness. We have Good Days Sprinkled 🤗 here & there that Remind Us of What Remission feels Like. 💁🏻‍♀️Then, there are those Days when We Wanna just Throw in the Towel! 😩🤬🤦🏻‍♀️ #LiveWithGuts Warriors & Never Quit!!! 👊🏼👊🏼👊🏼💜💜 💜 👊🏼👊🏼👊🏼💜💜 *We’re in This Together!🙏🏼#Warrior #Tuesday #Repost #tuesdaymotivation #AutoimmuneDisease #autoimmune #Spoonie #AutoimmuneAwareness #autoimmunewarrior #Autoimmuneillness #chronicillness #Fighter #chronicillnesswarrior #invisibleillness #NeverQuit #invisibledisease #Inspire #Wellness #chronicdisease #keepfighting #Advocate #youdontlooksick #Blessed 📷: @colitisfighter @livewithguts1 www.LiveWithGuts.com 💫
I was left bitter and relationships/dating were nonnegotiable 🙅🏾‍♀️ wasn’t doing it and wasn’t letting anyone get close. In the midst of all this i learned to re-love myself and take no shit from anyone putting me in circumstances i didn’t need to be in. Currently dating again and it’s going well, I’ve been up front with my condition and it’s been going quiet well 😊 hope each of you that have stopped dating or are fearful find love soon ❤️ you deserve it. #chronicpainlife #scleroderma #danceteacher #youdontlooksick #dance #sclerodermaawareness #chronicillness #sclerodancer #chronicillnessawareness #sclerodermawarrior #spoonielife #dancer #autoimmunedisease #lungdisease #dancelife #dance #connectivetissuedisease #fightlikeru #lungs #systemicsclerosis #pulmonaryhypertension #pulmonaryfibrosis #invisibleillness #spoonie #sclerostrong #collagen #chronicpain #chronicfatigue
Fate whispered to the warrior: “you cannot withstand this storm.” The warrior whispered back: “I am the storm.” 💪🏽❤️ 📷 @empty_nest_photos (literally the bomb 😎) #thisisms
In the bed. Watching The Staircase On #Netflix . On pain meds and anti spasmatics but being free of pain is no where in sight. I am having clenching gut pain, like someone has their hands around my intestines and they are tightening and twisting. TONS of blood too! I've been feeling ok the past few days and now I'm going to get behind on my working outside, trying to clean up, mow, and landscape. Uuuggghhh! This disease pisses me off! 😠😠😠😡😡😡😠😠😠 #crohns #disease #crohnsdisease #chronic #illness #chronicallyill #chronicpain #chronicallyfabulous #spoonie #crohnie #spoonie #warrior #fighter #vape #mod #tank #ejuice #cloudsbitch #instavape #girlswhovape #makeup #coffee #chocolate #youdontlooksick #pain
As a chronic illness warrior, I don't think you'll ever be prepared to hear the words, "You're illness is progressing at a rapid rate!" . Here I am trying to exercise and eat properly to feel better living with this disease and I'm getting worse!!! What kind of shit is that?! How is that even fair??? . I'm broken! I'll never be normal. My body has let me down!!! I held my end of the bargain. But for what...THIS!! . Until now, I always believed I could stay ahead of this illness! Feeling good most of the time, hardly any flares and I would be fine. Today I learned I learned I was too optimistic. . I didn't ask for this disease. I don't want it!!!! Life isn't fair sometimes. . Today I'll grieve my news, tomorrow and the next will be another day. I will figure out how to fight back harder and kick fibro's ass and I WILL NOT ALLOW IT TO WIN!!!!
Breakfast meds for the boy #chronicillness #youdontlooksick 2nd August 2017
Last September we went to see the Seahawks vs 49ers opening game. Once in a lifetime. My daughter was struggling to walk due to her MS and an usher physically stopped her thinking she was drunk. Word to the wise NEVER touch or judge another person when you don’t know; especially when her mom will take you down! #flashbackfriday #seahawks #mssucks #donttouch #centurylinkfield #onceinalifetime #seattleseahawks #openinggame #youdontlooksick #imnotdrunkihavems #relivingthepast @seahawks
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