Wishing the Happiest of Birthdays to my mommy dearest 💕🎂🎉🎁🎈
Beyond blessed and grateful to have this extraordinary pillar of strength as my mom. For it was her own struggle with cancer that showed me how to fight an illness with such strength, tenacity and grace.
Je t'aime à la lune et retour maman (I love you to the moon and back mommy!)
My magnificent beast. My life line to the outside world. The one and only that can save my life; he helps bring me peace, solice and calm in my life 24/7, brings a smile to my life and laughter to my belly constantly with his antics. His beauty is inside and out. I love you Odin! Thank you for doing all you do for me! #servicedogs #spoonielife #greatdanesinservice
Who says mobility aids can’t be fashionable accessories? 💁🏻♀️
• 📷: @alexstead
Out for a walk by myself for the first timein a long time. Made it 11 minutes (on what should be a 2 minute walk) before my hands swelled and I got dizzy. Break time!
Living with chronic nerve pain is a very hard challenge, especially when you have a major setback and have to do almost everything with crutches and it just seems to get worse... no matter what treatments you get.
But even with all the daily challenges I’m trying to maintain a healthy state of mind and hope that someday soon I can dance around again🌞 .
To everybody out there going trough similar things, don’t let anything hold you back🖤
#nevergiveup #spoonielife #nervedamage #carcrash #rockon #amsterdam #gymtime #EvenWithCrutchesIRock
RAISE YOUR HANDS if you're ready to take on Monday and ready to kick ass!!!!! LET'S GO 🔥🔥🔥🔥
Behind de scene... 🎬🎬🎬
🔸 🔸 🔸 🔸 🔸 🔸
Suksesnya mudik kemarin ga lepas dari drama2 kecil yang muncul tak terduga.
Energi drained lah...
Sesak napas lah...
Sakit kepala lah...
Nyeri sendi lah...
Lutut ngadat lah... Badan seringnya off lah...
Sariawan meluas lah...
Muncul ruam lah...
Dan lain-lain... Dan lain-lain...
Alhamdulillah, semua itu bisa diredakan dengan minum obat dan istirahat yang cukup, serta support dari keluarga. Daaannn... sangat sangat sangat teralihkan oleh rasa SYUKUR dan BAHAGIA bisa berkumpul dengan orang tua, keluarga besar, dan orang-orang tersayang. Juga jalan-jalan tentunyaaaa... 😁
Tanpa semua usaha itu tidak akan ada jepretan memori ceria dan konyol untuk dikenang 😁😊
Eventhough you have multiple painful condition, try to live your life to the fullest. Enjoy every moment. Keep the faith n stay strong... 😉😊
#notetoself #reminder #dailystruggle #lifetimebattle #spoonielife #storyofmylife
❤️🙌🏻Gracias😍🙏🏼... no tengo palabras para agradecer todos los Directs, comentarios, y mensajes por facebook que he recibido tras el post de ayer. GRACIAS por los ánimos, y por el cariño que recibo cada día ❤️ en momentos así, no me siento sola, aún en la oscuridad, y eso es gracias a vosotros. Hay cosas que no tienen precio, y no hay manera de describir cuán importante puede llegar a ser en la vida de una persona. Pero cada palabra que me dedicáis me llega, las leo... y muchas de esas palabras me estremecen por que se que también afrontáis el mismo dolor que yo. Somos fuertes, somos valientes. Y seguimos aquí. Hoy me encuentro mejor, no tan bien como el día de la foto, pero “estoy trabajando en ello” 😅 gracias una vez más a cada uno de vosotros. Espero que tengáis un lunes hermoso y sin dolor. ❤️💪🏻.
#cefaleas #migraña #missmigraines #presionatmosferica #pontevedra #galicia #migraines #dolordecabeza #migrañas #dolorcronico #chronicpain #spoonielife
thank you 😊
Yesterday our family said goodbye to our sweet Daisy. ❤️ You were the sweetest girl and we will miss you. We are heartbroken. 💔
Fun fact: We live in a world made for the able bodied and the neurotypical. If you are either of those things then you have a special kind of privilege that means society says you deserve to exist. Another fun fact - a pretty messed up one that I've only ever told my mum: when I was a kid, I was afraid being killed by any doctor I saw, because I was sick- and I thought sick children were dealt with in the same way as a sick dog- being put down. There were many times I tried to hide how much pain I was in because I was scared that I would be deemed "too sick to have a life worth living" and just killed so my parents could replace me with a new, HEALTHY daughter. As utterly messed up as that thought is, it comes from the underlying, unspoken belief in society that if you are disabled, your quality of life is automatically not good enough in order for your life to be meaningful.
Well I don't know about you, but I reckon this disabled, chronically ill, neurodivergent, atypical, mentally ill, impaired, disordered girl is doing some pretty meaningful things in her life. And that's without the support of society. Imagine what girls like me will be able to do once we change the world's view of disability?
Can't wait to find out.
Till then, we keep on fighting 🥄
(and that's the end of tonight's political rantings I hope you all have a blessed evening)
A big day means a disgruntled body tonight. Tucked up with the electric blanket warming and soothing. Podcasts playing to pass some time while symptoms are shouting for attention.
Do you turn to podcasts for distraction/entertainment/education? Or audiobooks? Does your library give you free access with Borrowbox or Overdrive? Or do you have an Audible membership?
I write about podcasts and audiobooks on my website . Link in bio.
Thinking of all of you who are tucked up in your beds waiting for symptoms to quieten down. This picture was late afternoon today as the winter sun was low in the sky lighting the treetops.
Lots of love and energy to you all, Claire xoxox
If you find my posts helpful please tag some friends who would also enjoy my account 💗. Come visit me at www.chroniclifehacks.com for ideas to make your days with chronic illness more enjoyable.
The fewer "spoons" you have in a day the more you have to pick and choose what you'll accomplish. Sometimes that means not fixing things you could otherwise fix. Sometimes that means not cleaning a mess that is gnawing at the back of your head screaming "clean me!" Sometimes it means not following certain dreams, taking certain paths, or making certain commitments.
I am an acheiver. I set goals and then I crush them. That's been me for a very long time. I was the one setting the curve in a lot of my classes. I was the kid who worked ahead my school books and had most of the work for the year completed by December. I put myself through school while volunteering and helping raise my step kids then started my own business. I made honor roll in elementary school, High school, and graduated university with distinction.
I see potential and opportunity everywhere. I'm highly creative and love to challenge myself to new projects. My mind swirls with ideas for my writing blog, my creative writing, my coaching work, and my freelancing career. I'm often thinking of fundraisers I'd like to create, books I'd like to write, and crafts to make gifts for others.
What I've had to learn through my illness, though, is that I simply cannot do it all. It hurts to give up certain projects or not follow through on things I know could be great. But sometimes there are no other options. Sometimes you just need to decide which one or two paths to take and give yourself a break when it comes to the rest of it.
#eds #ehlersdanlos #ehlersdanlossyndrome #hypermobility #hypextension #hypermobile #kneebrace #blessed #zebra #zebrastrong #zebralife #spoonielife #spoonie #chronicillness #chronicpain #chronicillness #chronicpain #spoonie #spoonielife #heds
• FEST & FEJRING • 💋🥂🇩🇰🎵
Så fik vi fejret min mor, og den røde læbestift og min nye kjole så dagens lys😘 Det var en aften fuld af musik og sang og gode ord, som det altid er til min mors og fars fester. Både til latter og til at fælde en tåre - noget, jeg er meget taknemmelig for at få med i livet🎵♥️
Klarede det bemærkelsesværdigt godt og fik taget ganske tilpas med medicin undervejs. Optrådte med en hjemmespundet medley både med hverdagshelten og Livatøsen, som lagde alle ned med sin velsignelsessang. Søs og jeg lavede også et nummer, som hun havde kreeret - godt gjort @tanjastroeier
😃👌🏻♥️ Og så ku’ jeg heller ikke lade være med lige at synge en af deres gamle sange senere. Den smukke færøske kædedans fik min sidste energi, og vi sagde tak for i aften💃🏻😍 .
Lørdag var det mors rigtige føsda🇩🇰 og søndag tog vi hjem igen, hvor de andre to tog til endnu en familieføsda uden mig, for skal også passe lidt på mig selv😅 I morgen er det så dimission👩🏻🎓🥂🍾🇩🇰 Håber du havde en dejlig weekend♥️
🇩🇰🎵♥️ #mymomsbirthday #newdress #singing #music #love #spoonielife #tiredbutblessed #worthit #thankyouforthemusic #grateful #sofiessofa