#myastheniagravis

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#MGAwareness With movement, an electrical signal moves along the motor nerve cell membrane. This signal is known as an action potential. When the action potential reaches the tail end of the motor nerve, also known as the motor nerve axon terminal, a chemical known as acetylcholine is released and travels across the space between the nerve and muscle. This space is called a synapse.  On the muscle side of the synapse lie acetylcholine receptors. Once acetylcholine binds to the receptors, muscle contraction can occur. In #MyastheniaGravis (MG), proteins produced by the immune system called antibodies lessen the electrochemical signaling between nerves and muscle.  With repetitive movement, despite acetylcholine release from nerve endings, less of the acetylcholine can be utilized by muscle. This is because antibodies either block, bind or change the post-synaptic acetylcholine receptor. As a result, the patient experience more weakness with repetitive movement or as the day progresses. Repetitive nerve stimulation testing, also known as Jolly test, is used to graphically demonstrate what is occurring at the neuromuscular junction in myasthenia gravis (MG). #DrDeeMD @myasthenia_gravis_awareness @myastheniaorg
Hi 👋🏼 This is Christina. June Myasthenia Gravis Awareness Month I will be working with @endmuscledisease today by taking over the page and sharing my personal struggle with this disease. I will share my story with posts and in stories today. Pop on over to say hi and also to read and support other warriors who have to live with this disease - Christina . Photo credit: @lovethreefold . . . . . . #endmuscledisease #teammgcantstopme #mgcantstopme #myastheniagravis #chronicillness #mglifestory #icandoanythingwithmg #fumg
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Hi, my name is Kristeen, I was diagnosed only 4 years ago at 22, I just turned 27 last week. I’ll never forget the events leading up to my diagnosis and the actual diagnosis. They were the scariest moments of my life. I was used to living an active lifestyle and my whole world got turned upside down. The first 2 years of being diagnosed were the toughest to get through... medication on top of medication until I was taking well over 15 pills a day. Prednisone made me huge and I wasn’t happy with my appearance or anything about myself. I felt like there was no hope for me and MG was defeating me. I even contemplated taking my own life. But, the more I looked into MG on Instagram the more people I came across, people who had this and were not letting it rule them. They were taking life by the horns and living through it. I spoke with so many people, got so much advice, and I realized I didn’t want to be this person that only dwelled in the negative things this disease brought me. I could use my experience & my struggle for something so much more, I wanted to be inspirational, just like all those people were for me. From that moment I worked hard to be uplifting for myself and others who have been diagnosed, I made it a goal to live healthy & be happy. I was determined to do what I could to get off these drugs (safely) & change. Luckily, only 2 years to the day after I was diagnosed I was officially in remission. Since then I have worked to be healthy from the inside out, I finally worked up the courage to join Crossfit - which I never thought I would be able to do again, and now my life feels whole. I have found my new normal. I know at any moment it could change and I could be symptomatic again, but everything I’ve learned this past 4 years has shown me there are ways to live with it & still be healthy (inside & out). MG can not rule you or define you unless you allow it to, and I hope to keep being a voice for people and letting them know that there is balance with living with MG. We just have to be willing to find it. - Kristeen Monroy @kristeen_nicholee #myastheniagravis #mgstrong #wearemg #snowflakewarrior #storytime #crossfit #smile #mgawareness #mgfa
June is Myasthenia Gravis awareness month just one of the chores associated with the disease. Until there is a cure. #myastheniagravis #nocure #awareness #mgstrong #fighter
Remember to rest often. A break can sometimes be a life saver, in the case of someone with MG that can literally be true. #BaileyTheMGSuperDog #MGSnowflakes #MGAwarenessMonth #myastheniagravis
I heard it is National Adopt a Cat month....soooo, this is my brother. I don’t know WHO put him in this basket for sale, but...(swipe to see the truth). #innocent #ididntdoit #notme #wasntme #adoptacat #adoptacatmonth #nationaladoptacatmonth #pibblelove #siblinglove #siblings #brotherforsale #megaesophagus #megaesophaguspup #megaesophagusdog #myastheniagravis #funny #lovemybrother #justkidding #adoptdontshop
Hello everyone! My name is Christina. My personal Instagram account is @countrycashmere and I am very open with my personal struggle on that page. I’m 52 years old and it has been quite the journey to be where I am today living with MG. I was recently diagnosed with Myasthenia Gravis ‪on December 22nd‬ of 2017. For some years my body would do something that would catch my attention. It would happen so quickly that I thought I imagined it. My left leg would buckle randomly, sleeping A LOT, falling going up stairs, bad brain fog and then I began losing all sense of balance when working out at the gym. My doctors pinned most of those symptoms on PTSD / C-PTSD and viral infections. But I knew there was something more. Then last summer new symptoms began in June. My body felt like it literally fell apart. Now I was stumbling and falling, vertigo, double vision, drooping eyes, and sleeping the days away. I told my husband one night “I know my body and this is no infection or virus. Something is very wrong.” After several few neurologist appointments and an ER visit we finally found some success with a neurophysiologist in Chicago. She performed an Single Fibre EMG. Later on that night She phoned at 8:30pm‬ confirming what I had been thinking for months! I was officially diagnosed with Myasthenia Gravis. I’m going to take a break to take a quick nap now so my symptoms will not be as pronounced later and it will be easier to talk in the stories and writing posts describing what my the MG journey has looked like since and part of what my day looks like now. . . . #endmuscledisease #myastheniagravis #teammgcantstopme #mgcantstopme
Thank you our running friend @corretitia for participating in this 😉✌💪😊 *** An overview of MG awareness: June is Myasthenia Gravis Awareness Month, a month that is set aside each year to raise awareness of the chronic autoimmune neuromuscular disorder that affects millions of people. Myasthenia Gravis, which means “Grave Muscular Weakness”, is a condition that affects voluntary muscle groups and causes waves of weakness. It is caused by a breakdown of communication between the nerves and the muscles. This condition can cause weakness in the appendages, chronic muscle fatigue, garbled speech, and limited facial expressions among other symptoms. The condition is caused by genetic factors in most cases but can also be caused by antibodies blocking muscle receptors or an oversized thymus gland in children. Certain medications, illness, stress, and fatigue can worsen Myasthenia Gravis. This is why people who suffer from this condition are warned to stay away from people who they know have a respiratory illness or infection and manage any type of stress. Physical activity and eating a well balanced diet can lessen the effects of Myasthenia Gravis. The Myasthenia Gravis Foundation of America says that symptoms of MG start to appear between the ages of twenty and thirty in females and between fifty and sixty in male. This month is meant to raise awareness of this condition because not a lot of people know about it. #Run4ABetterYou #MG #MyastheniaGravis #run #corre #courir #lauf #運行 #trčanje #koşmak #Kör #lopen #रन #corsa #走る #실행 #اجراکن #пробег #correr #ejecutar #اركض #running #runningman #runninggirl #runners #runningshoes 🏃‍♀️🏃‍♂️💪
Selamat siang dok! Selamat hari Sabtu! Mumpung lagi weekend, ayo coba dijawab soalnya, dan beri penjelasannya ya dok! Tag / share ke teman mu agar sama-sama menambah ilmu. Untuk jawaban dan pembahasan dari soal ini, ada di account line@ kami ya dok. Account line@ : @sec2504o (pake @) Atau klik link di bio profile kami Selamat belajar! #soal #ukmppd #dokter #learn #medical #medicine #soaljawab #jawabsoal #jawabsoalan #kedokteran #kedokteranumum #ujian #ujianukmppd #latihansoal #latihansoalukmppd #ujiannasional #fakultaskedokteran #fakultaskedokteranumum #disfagia #dysphagia #myastheniagravis #esofagealweb #zenkerdiverticulum #achalasia #karsinomaesofagus
Calling it a night tired but got all them done ✅✅✅ Awareness ribbon order is ready for my sister @eumikadbodygriffin It’s always a pleasure to make them for you #myastheniagravis #myastheniagravisawareness #awareness #awarenessmonth #awarenessribbon #karlysbowtique Orders yours ahead I have every color
June is Myasthenia Gravis Awareness Month. Watch as I share how I live with Myasthenia. And subscribe for Support. 😍Thank You😍Subscribe to The Morning Talk with Lenora  for more conversations. #BlackGirlMagic #naturalhair #naturals #blackgirlsrock #AfricanAmericanswithMG #picoftheday #instagood   #Myastheniagravis #hiphoplife   #hiphop   #urbanwear #streetstyle #swagger #swag #clothing #fashion   #streetwear #chronicillness #YouTube #themorningtalkwithlenora #instagramers #rap #mg #youtuber #rapculture   #fashionaddict
#Repost @meridithshae (@get_repost ) Thank you for sharing! 💖 ・・・ How timely to have Executive Director, Allison Foss, of Myasthenia Gravis Association find me through one of my articles I’ve written for @themightysite during June, Myasthenia Gravis Awareness month! Thanks for everything you do in Kansas City, and looking forward to bringing more awareness around MG in STL! ❄️💉💙 #myastheniagravis #invisibledisease #themighty #blogger #advocacy #spoonie #raredisease
Представляете! А я ведь несколько лет была косоглазая🙄😲 Красотка ещё та😂 И как раз, этот период косоглазия пришелся на учебу в университете. Как я комплексовала. Проблема ещё в том, что глаз не просто косил в одну сторону. А зрачки гуляли в разные стороны. И жили своей жизнью😁 У меня были специальные очки с затемненными стеклами. Но, они спасали только от посторонних глаз. А к сожалению, от двоения не помогали. И вот однажды, мне так это всё надоело. Я просто залепила один глаз пластырем и поехала по делам😂 Кстати, всё таки, в этом плане, мы русские более закомплексованные. Я когда нашла группу миастеников в фейсбуке. Увидела, что американцы вообще не парятся. Ходят спокойно и косые, кривые и полные от гормональных препаратов. И носят обычные повязки на глазах, как у пиратов. Представляю, если я завтра в такой выйду. Столько косых взглядов будет😂😂😂 #goodnight #myastheniagravis #миастения
Our latest Focus on MG is hitting mailboxes now, join our mailing list to receive our MG newsletters, emails blasts and other updates from the MG Community. You can also find and read an electronic version of all the #MGFA past Focus on MG newsletters online via the “About Us” page. http://www.myasthenia.org/AboutMGFA/FocusonMGNewsletter.aspx 💌 Visit www.myasthenia.org, and go to the “Contact Us” page to subscribe. #myastheniagravis #mgstrong #mgawareness #wearemg #newsletters #information #community #mgcantstopme #flashbackfriday #fbf
Thank you our running friends @marcos_prado78 @19savage80 For your participation 😉💪🏃‍♂️👍 *** An overview of MG awareness: June is Myasthenia Gravis Awareness Month, a month that is set aside each year to raise awareness of the chronic autoimmune neuromuscular disorder that affects millions of people. Myasthenia Gravis, which means “Grave Muscular Weakness”, is a condition that affects voluntary muscle groups and causes waves of weakness. It is caused by a breakdown of communication between the nerves and the muscles. This condition can cause weakness in the appendages, chronic muscle fatigue, garbled speech, and limited facial expressions among other symptoms. The condition is caused by genetic factors in most cases but can also be caused by antibodies blocking muscle receptors or an oversized thymus gland in children. Certain medications, illness, stress, and fatigue can worsen Myasthenia Gravis. This is why people who suffer from this condition are warned to stay away from people who they know have a respiratory illness or infection and manage any type of stress. Physical activity and eating a well balanced diet can lessen the effects of Myasthenia Gravis. The Myasthenia Gravis Foundation of America says that symptoms of MG start to appear between the ages of twenty and thirty in females and between fifty and sixty in male. This month is meant to raise awareness of this condition because not a lot of people know about it. #Run4ABetterYou #MG #MyastheniaGravis #run #corre #courir #lauf #運行 #trčanje #koşmak #Kör #lopen #रन #corsa #走る #실행 #اجراکن #пробег #correr #ejecutar #اركض #running #runningman #runninggirl #runners #runningshoes 🏃‍♀️🏃‍♂️💪
This day 6 years ago today was almost my last. After surgery (thymectomy) the hospital without listening to @bd078912 caused me to stop breathing and had to bring me back to life. One of the biggest struggles with Myasthenia Gravis is the lack of knowledge hospital staff and doctors have on treatment and care of MG patients. Morphine is potentially deadly for MG patients especially after thoracic surgery, I learned the hard way. It took a bit but luckily I was pulled through. Gods hand held me strong. #myastheniagravis #myastheniagravisawareness #mgwhat #mgcantstopme #thymectomy #God
So far so good. Trying out these new B-12 supplements. Feeling like a little energizer bunny 🐰 #naturesplus #myastheniagravis #lowenergy
Is Friday Introductions still a thing? I say, sure it is! . I’m a part time artist and full time community support specialist. Somewhere in there I also find time to be a #Myastheniagravis and rare disease/disability awareness advocate. . It’s been almost a year since my husband and I packed up our truck (and our dog) to move from Columbia, SC to the beautiful PNW. . 50% of my weekends are taken up by myasthenia gravis treatments, and the other half you’re likely to find us up in the San Juan Islands with family. This photo is from our favorite place to hike, Mountain Lake on Orcas Island. . Fun fact: today I’m launching the third annual art + handmade auction benefitting the Myasthenia Gravis Foundation of America. I also went to bed at 8:30 last night because planning and organizing events is tiring 😉😂💕
👉🏼👉🏼Swipe For Carlene’s story.. ❄️⠀⠀⠀⠀⠀⠀⠀⠀⠀ No matter how many of these i read they get me every single time. I love that no matter what all these people go through they all find the strength to be positive & live life to their fullest. This beautiful woman is no different. 😍💙 ⠀⠀⠀⠀⠀⠀⠀⠀⠀ Please take a moment to read her story! ❄️ ⠀⠀⠀⠀⠀⠀⠀⠀⠀ #myastheniagraviswarrior #myastheniagravis #myastheniagravisawareness #snowflakewarrior #teamMGcantstopme #mgisme #facesofMG #weareMG #MGfamily #MGstrong #musclemovementfoundation #mmf #spoonie #chronicillness #invisibleillness #invisibleillnesswarrior #mgfa #endmuscledisease
Have been struggling for good workouts lately. Weakness and pain getting in my head. Been struggling with 405 just even for a single again. 4 months ago I was on my way back to 500. This is the MG roller coaster. Yesterday I wanted 365 x5. When that went ez I thought I might as well try 405 to see how it felt. Had a ton of inspiration and motivation from the Dog Pound. So I finished with 405 x 5. Unexpected but excited to feel like everything going in the right direction. #squats #workout #myastheniagravis #mgwhat #myastheniagravisawareness #mgcantstopme #endmuscledisease #mentoring @bd078912
Hey everyone! My name is Olivia, I’m 22 years old, and I have myasthenia gravis. I started having symptoms at age 15, but wasn’t diagnosed until I was 18. One day I was in a canoe while on vacation and all of a sudden I started having a hard time paddling and my neck kept falling backwards. Confused, I got myself back to the dock and tried to get out of the canoe, but my legs wouldn’t move. I yelled for my parents and they got me out and my symptoms were gone after a few minutes. I shrugged it off, but little did I know it was my first symptom of myasthenia gravis. Over the next few years my worst symptoms were not being able to smile, difficultly lifting my legs and getting up and down stairs, occasional difficulty with swallowing, and getting out of breath any time I would over exert myself. My eyes didn’t actually droop and I didn’t have double vision until the day I was diagnosed, so they had a difficult time figuring out what was wrong. Unfortunately in my young life and the last 7 years I’ve also been diagnosed with neurocardiogenic syncope, lupus, gastroparesis, I’ve had meningitis and a TIA. It’s been a crazy ride, but somehow I find ways to stay positive and get through it. I’ve been on every medicine you can possibly imagine for it and not much has worked. IVIG was the most helpful, but I can’t get it anymore because of the meningitis and TIA, so for right now I take mestinon, imuran, and prednisone and I’ve been stable. Fortunately, I’ve never gone into a crisis 🤞🏼 I will share more of my journey in the story today 💙 Stay strong ❄️ If anyone ever has any questions or needs someone to talk to I’m always here 🤗 @oliviagenevievetruncale #MuscleMovementFoundation #EndMuscleDisease #TeamMGCANTSTOPME #MGCANTSTOPME #MyastheniaGravis
Strength. I’m always mulling this word over and over in my mind. Strength comes in many forms and is also shown in many capacities. I thought of strength in more in a physical capacity in the past. One way was that I discovered strength training with weights and I’ll be honest. It felt good. Strong. Beautiful. In Control. ✒️📜 . Strength is not on the outside. It is inside. Sheer determination and will. Strength is my faith. My family. Friends. Medical personnel. Love. Devotion. Passion. Hobbies. Curiosity. Laughter and tears. ✒️📜 . It’s also just trying. And again. And yet again. In this photo I was sitting trying my best to sort books with my MG “symptoms” Well my arms were not working well and I came across a childhood poem book of mine and it opened to one of my favorite pages. Okay. Problem here. No hands currently working. Nobody to ask for help. Feet! I could use my toes as a temporary bookmark till I shimmied over to get what I needed. And it worked! ✒️📜 . I incorporated the reality of this picture with different images that have been popping up in my dreams lately. From my Daydreaming. Dreams during the night. My stories. Showing you what exists in my worlds. Even if it involves using one’s own feet! 😆 . . . . . #myastheniagravis #asecondofwhimsey #mglifestory #motionphotography #visualstoryteller #bevisuallyinspired #booksbooksbooks #cptsdlifestory #moodmagic #momentsofmine #visualsmovement #countrycashmere #wondermore #enter_imagination #countrycashmerelife #bookworms #cinemagraph #countrycashmerecreative #myeverydaymagic #inspiremyinstagram #movingimages #seek_inspire_create #createtoexplore #untoldvisuals #mode_emotive #theinstarebellion #ourwhimsicaldays #make_more_magic #whimsicalwonderfulwild
Thank you our running friends @marionrun @kristofferseneven For your participation 😉😊💪🏃‍♀️🏃‍♂️ *** An overview of MG awareness: June is Myasthenia Gravis Awareness Month, a month that is set aside each year to raise awareness of the chronic autoimmune neuromuscular disorder that affects millions of people. Myasthenia Gravis, which means “Grave Muscular Weakness”, is a condition that affects voluntary muscle groups and causes waves of weakness. It is caused by a breakdown of communication between the nerves and the muscles. This condition can cause weakness in the appendages, chronic muscle fatigue, garbled speech, and limited facial expressions among other symptoms. The condition is caused by genetic factors in most cases but can also be caused by antibodies blocking muscle receptors or an oversized thymus gland in children. Certain medications, illness, stress, and fatigue can worsen Myasthenia Gravis. This is why people who suffer from this condition are warned to stay away from people who they know have a respiratory illness or infection and manage any type of stress. Physical activity and eating a well balanced diet can lessen the effects of Myasthenia Gravis. The Myasthenia Gravis Foundation of America says that symptoms of MG start to appear between the ages of twenty and thirty in females and between fifty and sixty in male. This month is meant to raise awareness of this condition because not a lot of people know about it. #Run4ABetterYou #MG #MyastheniaGravis #run #corre #courir #lauf #運行 #trčanje #koşmak #Kör #lopen #रन #corsa #走る #실행 #اجراکن #пробег #correr #ejecutar #اركض #running #runningman #runninggirl #runners #runningshoes 🏃‍♀️🏃‍♂️💪
Giving up doesn’t always mean outwardly admitting defeat or even retreating and walking away (though sometimes that is exactly the right choice too). Sometimes we give up on something that is far more deeply painful and wrenching than the failure of others and institutions meant to help us. When we fight ceaselessly to be believed, to be seen, to be heard, to be validated and treated as worthy, the doubt creeps in. What I resent most about what healthcare has stolen from me and from my daughter is not only time, but belief and faith in myself. I have proven to myself that I can walk straight into my fears, heart and arms open time and time again despite how recklessly those I have surrendered to have indelibly harmed me. I have proven I can endure the unfathomable and unbearable; what I said I can’t do, I have done quietly and mostly alone. I have proven I am dogged and intellectually curious enough to find answers that many lauded professionals could not and did not possess the decency or bravery to admit, “I don’t know.” I have proven to myself that even the callous trivializations, mean spirited minimizing, mockery, and ignorance of those who have not understood my health struggles will not silence or shame me. I have proven to myself that even despite the lies I have listened to about myself and the lies that I have told myself, I am open to trying to change; to unlearning. I have proven to myself I am more than the defeat and the smell of rubbing alcohol and rhythmic purring of machines; the taste of saline, the robotic hum of shifts and appointments and insurance and policies and procedures. I am more than my grief and my anger and my shame. I am more than illness and the time it has taken from me. I only have to let the soft animal of my body�love what it loves. Somewhere deep within me, there is still a very small sacred space where defeat hasn’t taken over. I can’t see it but I know it’s there. I choose to live. #chronicillness #healing #invisibleillness #disability #hope #myastheniagravis #lymedisease #neuropathy #cfsme #sphincterofoddidysfunction #pancreatitis #wearemg #cvid #immunodeficiency #worthy #selfportrait
Giving up doesn’t always mean outwardly admitting defeat or even retreating and walking away (though sometimes that is exactly the right choice too). Sometimes we give up on something that is far more deeply painful and wrenching than the failure of others and institutions meant to help us. When we fight ceaselessly to be believed, to be seen, to be heard, to be validated and treated as worthy, the doubt creeps in. What I resent most about what healthcare has stolen from me and from my daughter is not only time, but belief and faith in myself. I have proven to myself that I can walk straight into my fears, heart and arms open time and time again despite how recklessly those I have surrendered to have indelibly harmed me. I have proven I can endure the unfathomable and unbearable; what I said I can’t do, I have done quietly and mostly alone. I have proven I am dogged and intellectually curious enough to find answers that many lauded professionals could not and did not possess the decency or bravery to admit, “I don’t know.” I have proven to myself that even the callous trivializations, mean spirited minimizing, mockery, and ignorance of those who have not understood my health struggles will not silence or shame me. I have proven to myself that even despite the lies I have listened to about myself and the lies that I have told myself, I am open to trying to change; to unlearning. I have proven to myself I am more than the defeat and the smell of rubbing alcohol and rhythmic purring of machines; the taste of saline, the robotic hum of shifts and appointments and insurance and policies and procedures. I am more than my grief and my anger and my shame. I am more than illness and the time it has taken from me. I only have to let the soft animal of my body�love what it loves. Somewhere deep within me, there is still a very small sacred space where defeat hasn’t taken over. I can’t see it but I know it’s there. I choose to live. #chronicillness #healing #invisibleillness #disability #hope #myastheniagravis #lymedisease #neuropathy #cfsme #sphincterofoddidysfunction #pancreatitis #wearemg #cvid #immunodeficiency #worthy #selfportrait
👉🏼👉🏼Swipe For Retha’s story.. ❄️⠀⠀⠀⠀⠀⠀⠀⠀⠀ I’ve followed this girl since the beginning of my diagnosis. She was one of the first people not in the U.S. that i came across & i was totally obsessed with her little pups she posted lol But i have seen her go through so many more things than MG & even Chemo & she still powers through everyday and sets goals to achieve. She is one motivated & strong woman! 💙 ⠀⠀⠀⠀⠀⠀⠀⠀⠀ Please take a moment to read her story! ❄️ ⠀⠀⠀⠀⠀⠀⠀⠀⠀ #myastheniagraviswarrior #myastheniagravis #myastheniagravisawareness #snowflakewarrior #teamMGcantstopme #mgisme #facesofMG #weareMG #MGfamily #MGstrong #musclemovementfoundation #mmf #spoonie #chronicillness #invisibleillness #invisibleillnesswarrior #mgfa #endmuscledisease
"Health coaches are in the best position to support people in making the behaviour changes that will make the biggest impact on reversing chronic disease." --Chris Kresser Working as a nurse in a health center, I see individuals on a daily basis suffering from acute and chronic illness. And what is the first form of treatment? Medication. Don't get me wrong, sometimes medicaton may be the only option. But most often there can be other solutions. Diet and lifestyle are often an afterthought and often then, not even addressed. Most individuals would rather take a medication once, twice, or up to six times a day, instead of taking the time to address their diet and lifestyle. Natural health and conventional medicine are both beneficial to society. We need natural health professionals to address/troubleshoot symptoms to prevent/control illness. We need conventional health professionals to provide medications, life-saving procedures and surgeries. My goal as a Natural Health Consultant is to encourage individuals to begin to understand their own bodies, to take action in their health, and become their own advocates. Comment below if you're ready to take that step👇🏻
Manchmal ist es schon #seltsam . #menschen , für die man einiges getan hat,sortieren einen aus. Man weiß nicht #warum Man denkt, man kommt damit klar- aber dem ist nicht so. Ich hoffe so sehr in diesem #speziellen #fall auf #karma , denn dann #karmaisabitch . #brownhair #greeneyes #berlin #myastheniagravis
Okay last one y’all I’m tired...oh yeah June is Myasthenia Gravis awareness month 😆 #myastheniagravis #nationalselfieday
Thank you to everyone who commented & messaged me directly regarding my posts😃😃 Myasthenia Gravis can be a hideous illness at times & it can break you physically & mentally 😢 Personally in some respects it’s been a bit of a blessing in disguise as it has taught me not to worry about things that I use to worry about. Look after yourselves, do NOT feel ashamed to ask for help. MG can & will take you in some dark paths if you are not careful. Thank you @endmuscledisease for allowing me to tell my story. Stay strong XX 💪🏻💪🏻💪🏻 #myastheniagravisawarenessmonth #myastheniagravis #autoimmunedisease #autoimmunewarrior #staystrong #focused #motivation
Thank you to everyone who commented & messaged me directly regarding my posts😃😃 Myasthenia Gravis can be a hideous illness at times & it can break you physically & mentally 😢 Personally in some respects it’s been a bit of a blessing in disguise as it has taught me not to worry about things that I use to worry about. Look after yourselves, do NOT feel ashamed to ask for help. MG can & will take you in some dark paths if you are not careful. Thank you @endmuscledisease for allowing me to tell my story. Stay strong @barryprotrainer XX 💪🏻💪🏻💪🏻 #myastheniagravisawarenessmonth #myastheniagravis #autoimmunedisease #autoimmunewarrior #staystrong #focused #motivation #musclemovementfoundation #endmuscledisease #teammgcantstopme #mgcantstopme
#MGAwareness Typically, #MyastheniaGravis patients have difficulty swallowing liquids more than solids. Early intervention with swallow evaluation and speech therapy can prevent aspiration. #DrDeeMD @myasthenia_gravis_awareness @myastheniaorg
I know when your living with #Myasthenia #Gravis (MG) it is hard to sometimes form a smile with your mouth due to the weakness of your muscles but your eyes can smile as well. Smiling can do something great for yourself and for others around you. I love to smile and share my smile. For years I didn't smile because I really didn't love myself and I have been told that I have a captivating and contagious smile and to myself I feel I have a very crooked smile I feel as if my face looks like the face of someone who's had a stroke for one side is lower than the other or one side looks as if it droops and yet I still smile... Smiling for me is like marijuana for others... It gives me a kind of high in life it makes me feel good about myself especially when I know that my smile has made someone else smile... So Smile... It's contagious trust me! <3 #MyastheniaGravis #MG #AUTOIMMUNEDISEASE #INVISIBLEDISEASES #MGAWARENESS #JuneIsMyastheniaGravisAwarenessMonth
Happy first day of Summer!! We have an excessive heat warning in Arizona today soooo I'll be indoors relaxing lol. I'm not the biggest fan of summer because it's too hot and tries to kill me, but I do love pool days with good food and cold drinks!! @esteffehhnie we need to keep our summer pool days tradition going lol let's make plans
New! Wonder Woman necklace with ANY ribbon color @rockyourcausejewelry ! Etsy’s birthday sale is still happening...so check it out! You can copy and paste the direct link here: 🎗 https://etsy.me/2Mao0x0 🎗 #wonderwoman #cancersurvivor #cancersucks #fightlikeagirl #everyribboncolor
Desafio do mês! 💪❄💞 . Dia 20 - Pior parte de viver com Miastenia Gravis: Viver com MG é na maior parte do tempo limitante, o viver em uma eterna montanha russa. . A Fer, do @chronic_survivor soube ilustrar perfeitamente o que é viver com doenças crônicas, no nosso caso: doenças crônicas e raras. Obrigada, Fernanda! . #VivenciandoRaridades #DoençasRaras #VidasRaras #DoençasCronicas #RareDisease #MiasteniaGravis #UnidosPelaMiasteniaGravis #MyastheniaGravis #Miastenia_Gravis #SomosTodosRaros #AwarenessChallenge #MonthMG #MonthChallenge #ChronicIllness #InvisibleIllnes #AutoImmuneDisease #MyastheniaGravisAwarenessMonth
So I don’t normally post a lot of non-running pics, but I wanted to share this one of my “puppy” Harley-Quinn, or HQ for short. She was diagnosed with myasthenia gravis a couple years ago, and thankfully went into remission last year. MG is an autoimmune disease that not only affects dogs, but can also affect humans! It’s important to learn more about this disease because it can be incredibly difficult to diagnose, and some people spend *years* not knowing what’s wrong with them. June is myasthenia gravis awareness month, as well as megaesophagus awareness month, and one of our favorite organizations @uprightcaninebrigade is hosting a calendar contest. HQ has been entered and I’d love it if you voted for her! Go check out my other IG @oofersthewonderdog and click the link in the bio to vote. Thank you for all the love and support! @myastheniaorg #myastheniagravis #awareness #month #june #uprightcaninebrigade #megaesophagus #megae #baileychair #vote #calendar #contest #harleyquinn #dog #dogsofinstagram #dogsofinsta
Mom says whenever I walk "stick-legs" she knows I had a hard day. #BaileyTheMGSuperDog #junemgawarenessmonth #MGAwarenessMonth #MGSnowflakes #myastheniagravis
Actual Bed Head ➿ This is probably my favorite way to wear my hair. Big Fluffy and ready for my close up 😜 Detangled curls are happy curls⭐
Thank you all for joining me during my takeover yesterday and those of you who chatted live with me, it was my first IG live but y'all made it great!! I was a little nervous and rambled on, there's just so much to share. Remember to spread positivity everywhere, you never know what others are going through. Whether its MG, other illnesses, or life issues... together we can lift each other up. Use your voice, share your story, and let's spread awareness!! ❤❄💪 #MuscleMovementFoundation #EndMuscleDisease #TeamMGCANTSTOPME #MGCANTSTOPME #MyastheniaGravis
#Repost @mga_heartland with @get_repost ・・・ Join us between 5-9pm tonight at Pizzeria Locale (11875 W. 95th Street, Unit 220, Overland... to raise a little dough! Mention the MGA and 50% of your dinner purchase will go back to the MGA! Bring your friends! Bring your family! See you there! #mgakc #mga5k #careaboutrare #rarekc #myastheniagravis #mgstrong (95th and Quivira location in Overland Park, only!) Thanks for your support!
Join us between 5-9pm tonight at Pizzeria Locale (11875 W. 95th Street, Unit 220, Overland... to raise a little dough! Mention the MGA and 50% of your dinner purchase will go back to the MGA! Bring your friends! Bring your family! See you there! #mgakc #mga5k #careaboutrare #rarekc #myastheniagravis #mgstrong (95th and Quivira location in Overland Park, only!) Thanks for your support!
The effect of exercise on MG🙌 After Saturday's symptom flare up, I went for a <1km walk with Pablo again today. This is what I look/sound/feel like afterwards. I'm EXHAUSTED but I am always proud and always thankful I get to try. Last year this time I still needed chemo #cyclophosphamide to keep breathing, now I get to take my own breath away. Never stop fighting, living is beautiful 💪 PS. Friday's column on learning to listen to your body is out & you can find the link in my bio 🧡
Verlaat ontbijt! Na een lekker rondje wandelen! Skyr met meloen!!veel eiwitten goed voor myasthenia gravis #myastheniagravis #foodblogger #healthyfood #wandelen #ontbijt #verlaatontbijt
My supplement stack I take every day Amino acids ✅ Garlic ✅ Omega 3,6,9 ✅ Vitamin D ✅ Vitamin C ✅ B12✅ Milk thistle ✅ What do you guys take? #myastheniagravisawarenessmonth #myastheniagravis #autoimmunedisease #health #staystrong #MuscleMovementFoundation #EndMuscleDisease #TeamMGCANTSTOPME #MGCANTSTOPME
Hi everyone. My name is Barry and I’m from London/ UK. Thank you to @endmuscledisease for allowing me to share my experiences living with Myasthenia Gravis. I went to bed January 3rd 2015 and woke up on the 4th not being able to see properly. From there my body rapidly feel apart as MG took its toll on me in a number of ways over the following weeks. At my worst, I couldn’t see properly, breath very well, my arms & legs didn’t function very well, I mentally struggled with day to day tasks and had to have my chest opened to remove a large tumour from my chest. Like most of us, I still have a lot of these symptoms but thankfully they are not as bad now👍🏻 Picture 1 Was taken this morning✅ Pic 2 was 2 months post thymectomy surgery In 2015. I was taking so much prednisone (80mg per day) as well as a ton of mestinon & mycophenolate. I looked and felt horrible. Those who take prednisone will relate , they make you feel numb mentally & drain the life out of you 😢 Pic 3 was taken a few weeks ago after the gym 💪🏻💪🏻 I am firm believer in health & fitness to try & combat the signs of MG. I logged everything I did at the beginning & found / still do certain foods irritated it more. Coming from a health & fitness background for many years pre MG put me in a good position to try & fight it as best possible. Stay strong 👊🏻👊🏻👊🏻 #staystrong #myastheniagravisawarenessmonth #myastheniagravis #autoimmunedisease #autoimmuneillness
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