#invisibleillnesswarrior

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John 16:22 “So you will have sorrow now, but I will see you again; then you will rejoice, and no one can rob you of that joy.” Get Well Soon shows a different outlook on chronic illness and the way people respond to it. Have you read it yet? • • • #medicalzebra #chronicillness #invisibleillness #chronicpain #spoonie #healer #eds #health #spoonielife #invisibleillnesswarrior #ehlersdanlos #getwellsoon #chronic #heal #redeemer #christtheredeemer #edsawareness #mentalhealth #motivation #spooniewarrior #raredisease #pain #lifestyle #spoonieproblems #john16 #christianblogger #faithblog
Posting this to bring more attention and awareness to endometriosis. Some months ago, I had my third laparoscopy where they removed lesions outside my abdomen and an endmetrioma cyst. Since then, right around the time of my period, my belly button began to swell and bleed. At first, my doctor thought it was a clot, although she thought it was very strange for that to happen so late after the surgery. Last night, my center began to bleed again. Called my doctor and she told me to visit the hospital where my surgery took place. I just got back and am trying to cope with the news that I heard. The doctor on call thinks that I could have umbilical endometriosis. I was shocked. "But I just had surgery??!!?" I said. "It can come back quickly," she said. "But I'm on the pill," I said. "We have to explore further," she said. Endometriosis in the belly button? Who knew? And that is why I'm posting this. Pain. If you have pain, serious pain, pain where you can't get out of bed, pain where you feel paralyzed and it is around the time of your period... That is not normal! It's not normal that every time you get your period that you have pain in your ribs, your shoulder or in your belly button. It's not normal that you need a combination of pain killers to get through the day. A cure for endometriosis needs to be found! Not something to mask the pain, to dull it or just to get through the day. We need an end to endometriosis. I don't want my daughters and future female generations to experience this silent and painful disease. 💛💛💛#cureendo #findacureforendometriosis #endometriosisawareness #umbilicalendometriosis #endosisters #endowarrior #chronicpainwarrior #chronicillness #endometriosis 💛💛💛#endometriosispain #endometriosis #cureendometriosisnow #frustrated #deflated #shouldbeonholidayrightnowbutendogotintheway #letstalkperiods #silentillness #invisibleillnesswarrior #spoonielife #1in10 #fightendo #fightendometriosis #supportforendowarriors
Some Saturday night musings. My mood suffers with my deteriorating health. My mental illness feeds off my physical illness. Talking about it with @katierose.warrior.princess I realised it’s because of the way it creates a lack of purpose through lack of stability. I’m sure there will be others who can relate to this: When there is a lack of stability, through poor health or unreliable circumstances etc. there aren’t solid foundations to commit to things that might help the mental side of things. I know currently my psychiatric rut could be helped by some purpose - some study, some work, some more commitments and goals towards a more meaningful life. The trouble is that I can’t trust my body to be able to uphold itself in the face of taking on any further commitments or challenges. Therefore I get stuck in this purposeless plateau where depression steadily sinks in its teeth, cloaking life in an ever present, ever darker cloak. Identifying a problem is a step to solving it though right? So somehow, I’ve gotta do some thinking and talking about what I AM still capable of despite the difficulties of life as it is. I’ve been focusing on the negatives and letting myself be stuck because I haven’t quite made this connection. I might just have to change my perspective a bit but I hope that I can move myself through this. Illness has held me back for too long. I really want to move forward even if things are rough. It might take time to work it out but I feel like this is a start.
"How was I ever going to be a mother? The prospect of not achieving my academic goals was an extremely bitter and disappointing pill to swallow, but this new doubt about my ability to have children was so heartbreaking it overwhelmed me entirely. The devastation was swift and so crushing, I wanted to scream, but my throat constricted and the tightness already in my chest squeezed so hard, it felt like I couldn't get the necessary air into my lungs." -"Gold Star", basically a beginner's guide to catastrophizing.
Hey guys I have made t-shirts and jumpers!!! They are to raise awareness for chronic illnesses and to also help me pay my medical bills xx I hope you love them as much as I do ❤️ click the link in my bio and it will show you the groovy design 😁 . . . #chronicpain #endometriosis #chronicillness #invisbleillness #endometriosisawareness #endowarrior #chronicallyill #spoonie #chronicillnesswarrior #spoonielife #spoonieproblems #autoimmunewarrior #spooniestrong #spooniesunite #autoimmune #invisibleillnesswarrior #chronicillnesslife #illness #pain #needacure #strength #everydaypain #chronicillnessawareness #spooniewarrior #fibromyalgia
Pool time today. I desperately need some aqua therapy.. my joints have been killing me. . The second picture is my favorite flower pot at the pool😊🌺 . Tonight Trevor and I are going to go see Jurassic World 2 in the theater!🎥 .. I’m so excited! I don’t get to go out much to do fun things bc I’m often in so much pain, but I thought this would be worth it😊 . Wish me luck.. hopefully I can last the whole movie🤞🏼 . #pool #pooltime #poolday #summerfun #summertime #flowers #summerflowers #pinkflowers #petunias #daisies #chronicpainwarrior #chronicillnesswarrior #invisibleillnesswarrior #spooniewarrior #fibrowarrior #arthritiswarrior
👉🏼👉🏼Swipe For Carlene’s story.. ❄️⠀⠀⠀⠀⠀⠀⠀⠀⠀ No matter how many of these i read they get me every single time. I love that no matter what all these people go through they all find the strength to be positive & live life to their fullest. This beautiful woman is no different. 😍💙 ⠀⠀⠀⠀⠀⠀⠀⠀⠀ Please take a moment to read her story! ❄️ ⠀⠀⠀⠀⠀⠀⠀⠀⠀ #myastheniagraviswarrior #myastheniagravis #myastheniagravisawareness #snowflakewarrior #teamMGcantstopme #mgisme #facesofMG #weareMG #MGfamily #MGstrong #musclemovementfoundation #mmf #spoonie #chronicillness #invisibleillness #invisibleillnesswarrior #mgfa #endmuscledisease
Back again, I basically live here now haha... not funny... My stomach is turning in side out, couldn't stop dry-renching, vomiting, and coughing, I don't know if it's to do with my fibro? All I know is that it's a pain in the ass! I'm so tired 😭 on a good note at therapy today I got candy 😍🤙 . . . . #chronicpain #endometriosis #chronicillness #invisbleillness #endometriosisawareness #endowarrior #chronicallyill #spoonie #chronicillnesswarrior #spoonielife #spoonieproblems #autoimmunewarrior #spooniestrong #spooniesunite #autoimmune #invisibleillnesswarrior #chronicillnesslife #illness #pain #needacure #strength #everydaypain #chronicillnessawareness #spooniewarrior #fibromyalgia
It's National Selfie Day in America. Most people are going to post pretty pictures which is nice, but not always the most honest representation of who we are. We are living in a very visual society, and this can be both good, and bad, but it's important to remember that we need to treasure ourselves in other ways than in just a visual aspect. Your beauty exists in your heart, mind and soul. You are not just your exterior! #Selfie #NationalSelfieDay #InvisibleIllnessWarrior #LoveYourself #BeautyIsMoreThanSkinDeep #Unedited #Thinking #Aspie #AspieGirl
I dunno. This story makes me sad, because it's about the beginning of my breakdown in college and how scared I was to tell my parents. After dealing with chronic pain on and off for 10 years, I finally lost it when the pain returned after a relatively healthy period, and it's been kinda hard to think of silly pictures to draw about it. But here. Here's a poorly drawn picture of me flailing my tall, awkward body and wearing a unitard. For funsies. ---------------------------------------------------------------------------- "...the underlying insinuation being that the usual form of locomotion for a tall, gangly-looking girl is for her to just flail her limbs like Olive Oyl, which is offensive. I only flail wildly when I try to dance." -Excerpt from "Gold Star". Link in bio.
👉🏼👉🏼Swipe For Retha’s story.. ❄️⠀⠀⠀⠀⠀⠀⠀⠀⠀ I’ve followed this girl since the beginning of my diagnosis. She was one of the first people not in the U.S. that i came across & i was totally obsessed with her little pups she posted lol But i have seen her go through so many more things than MG & even Chemo & she still powers through everyday and sets goals to achieve. She is one motivated & strong woman! 💙 ⠀⠀⠀⠀⠀⠀⠀⠀⠀ Please take a moment to read her story! ❄️ ⠀⠀⠀⠀⠀⠀⠀⠀⠀ #myastheniagraviswarrior #myastheniagravis #myastheniagravisawareness #snowflakewarrior #teamMGcantstopme #mgisme #facesofMG #weareMG #MGfamily #MGstrong #musclemovementfoundation #mmf #spoonie #chronicillness #invisibleillness #invisibleillnesswarrior #mgfa #endmuscledisease
So anyone with fibromyalgia knows that any and everything can affect it, but to me emotions are the worst cause to make it worse. Sunday was the first time anyone has ever broke up with me. I knew it was coming and we ended on good terms, but it still hurt. Then not 1/2 hr later i get a call and 2 more people i know died. Which brought up another in my mind that died in April that i never got the chance to deal with. So all that pluss the stress that comes with any chronicpain disease of people judging you for not being the old you, and the guilt of what the pain has done to me came raining down on me Sunday night. A good friend came over and we talked for a long time. I went to bed thinking i worked through it. Monday i was a little sad, but used the music videos on YouTube to work through the sadness and felt better. Well, now it's Thursday. Life goes on, only now my body keeps randomly getting physical pain moments like aftershocks from Sunday. I know it will pass but it makes it hard to move on when my body not only has a physical reaction, but a delayed reaction that pops up when I'm feeling good. #fibromyalgia #fibropain #fibroproblems #fibromyalgiaawareness #fibromyalgialife #fibromyalgiaisreal #fibromyalgiawarrior #fibromyalgiasucks #chronicillness #chronicpain #chronicpainwarrior #invisibleillness #invisibleillnesswarrior #pain #life #lifeishard #goodbuy #rip #afterwards #justfriends #aftershock #spoonie #spoonielife #spoonies #spoonieproblems #spooniefamily #spooniewarrior #spooniesisters #spooniesupport #problems
we went to the park and phil went down his first slide!!
We are feeling a lot of gratitude on this #ThankfulThursday for Sanjay and his 9 year old daughter Arya who shared her story with Congresswoman Pramila Jayapal and because of her courage during #LupusAwarenessMonth we have a new member of the Congressional Lupus Caucus!
repost- I reposted this because I wanted to salute and acknowledge those living with invisible disabilities, because of the stares, the open mouth judgements, the shaming, and more that goes on when those whose disabilities are invisible act.. well. disabled. To define invisible disability in simple terms is a physical, mental or neurological condition that limits a person’s movements, senses, or activities that is invisible to the onlooker. Unfortunately, the very fact that these symptoms are invisible can lead to misunderstandings, false perceptions, and judgments. Also, just because a person has a disability, does not mean they are disabled. Many living with these challenges are still fully active in their work, families, sports or hobbies. Some with disabilities can work full or part-time, but struggle to get through their day, with little or no energy for other things. Others are unable to maintain gainful or substantial employment due to their disability, have trouble with daily living activities and need assistance with their care. ALSO, some of us are partially disabled, some days, weeks, months and even years we are worse and need help even to shower, and then on better days we can do more things (I call those times waves.... So that's why we need to raise awareness and be kind to everyone.. Everyone we encounter has a battle we don't know nothing about.. BE KIND 😘✌️💪 #spoonielife #spooniestrong #spooniesisters #sticktogether #disability #invisibleillnessawareness #invisibleillnesswarrior #invisibledisability #sponielife #fibromyalgia #endo #cfs #mcs #me #arthritis #pots #lupus #helpriseawareness #rheumatoidarthritis #chronicpain #chronicfatigue #staystrong #keepfighting #notalldisabilitiesarevisible ( #📷 @sp00kysp00n13 ) #mycrazyjourney #takeyourbodyback #chronicillnesshealthcoach
#throwbackthursday to 5 weeks ago. Fresh out of surgery for #crohnsdisease . 35cm of small bowel removed. Bruises, PICCline, staples, tegaderm, stoma mark..etc. Why take pictures? So you can look back and see how far you’ve come! Especially if you feel like you’re not where you want to be with your recovery. #recoveryisnotlinear . Just take things one day at a time or #onespoonatatime 😉 . I’ll post my weekly scar update picture later today 🕑 . . . #lookingback #progress #postsurgery #smallbowelresections #crohnsdiseaseawareness #crohnandcolitis #inflammatoryboweldisease #IBD #autoimmunedisease #chronicillness #invisibleillnessawareness #invisibleillnesswarrior #crohnswarrior #crohnssupport #crohnsadvocatie #spoonie #spooniemom #crohnsmom #spooniewife #crohnswife #surgicalscars #midlineincision #openabdominalsurgery #scars
Chilly out today, so I’m exercising inside with the kitties❤️ . So far, I’ve been doing well back on the verapamil. Hopefully there will be no more problems🤞🏼🙏🏼 . Hope you’re all doing well❤️xoxo . #cat #cats #instacat #catsagram #catsofinstagram #sleepycat #sleepycatsofinstagram #tortiecat #tortiesofinstagram #chronicpainwarrior #chronicillnesswarrior #invisibleillnesswarrior #spooniewarrior
#Repost @jelynneart My mind is a muddled mess right now with life happenings and I’ve noticed when more things like this pop up, I find more excuses to stray from here and not post any art. I almost become afraid or too anxious to post? It’s odd, but if I don’t have a legit excuse I will find reason to put off posting (now isn’t an excuse, some real tough stuff is going down). This is a #WIP of my demonsona Vex. A lot, if not all, of her features are based on my own personal struggles mentally, emotionally and physically. I almost gave her more scarring and black veining due to my pain battles, but I felt that would have overwhelmed her already detailed design. I still have a few ideas pending that I may tack on later, but for the most part this is her completed design until I give her some color. I missed the witchsona event that I wanted to participate in so hopefully I can have a completed piece of Vex before the demonsona event is over. Those shoes are heavily inspired by @zombiepeepshow designs 😍 if I could rock heels that high without breaking a bone; I would. But since I know I’d fall down like a piñata at an 8 year old’s birthday party, why tempt the fates? I’ll leave that high of heel walking to my OC’s. And ya’ll must know, by now, that the necklace is inspiration taken from @bunny_paige who creates stunning works of art in the jewelry department. It’s no secret that the spiked hearts are a personal favorite of mine (that and the eyeball rings which I also tend to constantly incorporate in my characters 🤣🖤👁). At least, here’s something to look at while I go back in to my hidey hole and try to support my mother and abuela, as best as I can, through this really tough time🙏🖤 - #WIP #sickgirlsclub #sickgirlslove #invisibleillnesswarrior #chronicillnessupport #invisibleillnessawareness #selfhurt #invisibleillness
A large part of invisible illness is just surviving. It’s hard to truly live life when being constantly restricted by pain and discomfort. Life can be merciless, and not being understood by others can make it all the more challenging.
And still, I rise. —————— On the darkest of days, if all you accomplish is opening your eyes – that’s okay. I’m here to tell you that you are worthy of the respect and love that you give others. You are enough. 💓
I've been having a rough couple of days- feeling dizzy, nauseous, and out of it. I get tired of feeling bad and being in pain, and just want a day or 2 where I feel "normal"- not in pain, but like a functioning human being. Trying to stay strong all the time is exhausting too. Trying to be gentle with myself today. #depression #anxiety #ptsd #chronicpainsucks #invisibleillnesswarrior #iamasurvivor #ehlersdanlossyndrome #hypermobility #zebrastrong #fibromyalgia #fibroflare #fibrofighter #fragilebutunbreakable #hashimotos #sjogrenssyndrome #gastroparesis #alwayskeepfighting
If you think meditation is beneficial to your overall well-being, and it helps reduce your migraine attacks… let me introduce Focusing. I am a qualified counsellor (MCAP) and migraine sufferer (26 years) and I’ve used many many different therapy modalities over the years. This is the one that stuck with me and has been so incredibly supportive over the last ten years. AND the best part for me, is that once you learn it, you can do it yourself. DIY = free!!! I did this course last year and I’m doing it again this year. I’ve written about some of my takeaways on this page - https://www.migrainesavvy.com/focusing-with-chronic-pain.html I hope you’ll join me. #newmigrainetools #newmigraineskills #migrainecopingskills #migraine #migraines #migraineheadache #migraineawareness #migraineur #migraineattacks #migrainewarrior #migrainecure #migraineproblems #migrainefree #migraineday #thisismigraine #mustfindacure #thefaceofmigraine #migrainesavvy #migrainepain #migrainetriggers #invisibleillnesswarrior #chronicillness #chronicpain #chronicpainawareness #chronicmigraine #migrainesupport #migrainesufferer #migrainefromhell #migrainegoaway #migrainecoach
while we were training in target, phil alerted me, so i went to sit down. he sat patiently, ignoring people as they walked by, staring and reaching out to pet him. one lady came up to me and asked what was “wrong with me” and i simply responded “a lot”. she then proceeded to pet him, and i told her that he was working and she was distracting him. she apologized but continued to pet him. he kept alerting me as my heart rate increased, and she took it as him being aggressive. i told her he was alerting me, and that we needed space, and she SAT DOWN NEXT TO ME. phil was so inpatient and restless at this point, since this lady threw off his training. we left and i almost had a POTS episode when i got to the car. DON’T DISTRACT SERVICE DOGS. IT SAYS IT ON HIS VEST IN BRIGHT RED. • [Image Description: A photo of Phil looking to the left with his tongue slightly out. Only his head and one ear is in the frame. You can see the tiled floor behind him.]
There are certainly worse things to be told than that there are no blaring causes for pain. I do not need an admission. I do not need antibiotics. I do not need surgery. These are good things. I do have to use crutches for the foreseeable future. I do have to follow up with my GP regularly. I will likely have to undergo outpatient treatment or further tests. Another ailment that isn’t going to go away in any hurry is not the best news when I already have a pile of them and feel like I am being crushed under the weight of my failing body; right as I’m trying to claim back autonomy over my mind. ED was busy. Over 10 ambulances came in. We waited and waited and waited. I leave with another pain to manage and an upgrade from my cane. Is that the lesser of the evils? I’m struggling to tell.....
Stay in the moment ✨ it’s ok to still find things about yourself you love. I feel like my body and face are different, my eyes burn and are tighter. I’ll have more symptoms and noticeable weakness as I come off my meds, but overall I’m glad I could be one step closer to getting a diagnosis! ⚡️🌈💫#autoimmunedisease #autoimmunewarrior #invisibleillnesswarrior #chronicillnessawareness #ms #chronicillnesswarrior #chronicpain #mentalillness #dysautonomia #autoimmune #chronicillness #invisibleillness #chronicpain #glutenfree #butyoudontlooksick #fibromyalgia #cleaneating #pain #hashimotos #health #dairyfree #chronicfatigue #healthy #awareness #fatigue #lifestyle #encephalitis #autoimmuneencephalitis
Forgot to post this yesterday, was such a yummy dinner! Steak topped with bbq sauce, bacon and lactose free cheddar. Plus carrots, green beans, parsnip and sweet potato roasted in garlic infused olive oil, basil and oregano 😍 #fooddiary #healthyeating #steaknight #lowfodmap #glutenfree #lactosefree #wellbeingjourney #recovery #endometriosis #adenomyosis #ibs #anxiety #depression #endowarrior #adenowarrior #ibswarrior #mentalhealthwarrior #chronicillnesswarrior #invisibleillnesswarrior #fightlikeagirl
"...my whole body gripped by the dread that the future I had pictured and worked so hard for was slipping away. How was I possibly going to finish college? The past year had been so difficult to manage, but I had found some relief during the spring semester when I was put on a new medication. It seemed to help, and with some amazingly supportive friends, I was able to limp through my classes and make it to summer break. But here we were, not even halfway through July, and the pain was back out of nowhere and not going away." -Excerpt from "Gold Star", a new story up on the website about when I first started to really struggle with anxiety. Link in bio.
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