#invisibleillness

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So yesterday I was getting extreme pain at my picc insertion site and areas around it. Today it had filled (probably from the mass amount of tylenol and ice). After calling my old home health nurse she confirmed it kind of sounded like another blood clot. I wanted to just go to an urgent Care but no urgent Care will GI near a picc line. After work i changed into some pj's and headed to the ER. They were so so understanding. I kept apologizing because I felt like I was over reacting. When I took my sleeve off it was noticeably puffy. One ultra sound later the doc came in and said "you're clear to keep this picc line". I tuned out after that. The nurse came back and reexplained everything. They found a evidence of a clot that looked fairly "fresh". They did A quick xray to double check it hadn't made its way into my lungs. Thankfully, it looks like my body actually had its 💩 together and dissolved about 85% of the clot on its own. We will redo the ultra sound on Friday but I'm in the clear! I'm happy I went in. I feel more confident knowing there is no major issues. I'm thankful for great nurses and doctors who want nothing but the best for their patients. That's Chronic Illness for you. It's an unpredictable little devil.
Did you know at least 1 in 4 people have a mental health concern of some sort. That means it is likely that you or someone in your immediate family is struggling with their mental health. Think of your loved ones, can you image them having to deal with stigma? A stigma that causes people in need of help to keep it to themselves. To put on a happy face when they are hurting so deeply inside. No one deserves that! Dealing with mental illness is extremely hard on it’s own, doing so in silence makes it that much harder.  If you know someone with a mental health concern, reach out and talk to them. Let them know that while you may not understand what they are feeling, you are there for them and are supportive of them. Remind them that they are loved. If you are struggling with your mental health, share this post with your loved on to help get the conversation started.
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Chronic illness is very isolating, even more so when it's invisible. I dread explaining my situation to people who don't already know, so I rarely do it in my offline world. . . Life teaches us so much, but what can be startling is gaining insight into what you least expect. Parenthood was like that, but having Sarcoidosis flipped my life upside down, and inside out. Nothing can prepare you for this, for chronic, devastating illness. . . I know I'm supposed to end on a positive note, or with sage wisdom: I can't because I want to be honest. My only advice is to enjoy what you have now, and savor life. Live in the moment, but not for the moment. That's what I continue to aim for, even when I miss my mark. 💜 . . . . . . . #livingwithchronicillness #invisibleillness #invisibleillnessawareness #butyoudontlooksick #invisibleillnessvisible #strength #mindfulness #liveinthemoment #spoonieartist #spoonielife #spoonie #spoonieproblems #spooniecommunity #sarcoidosis #uveitis #glaucoma #vertigo #migraine #arthritis #chronicpain
Some things may be broken, but that doesn’t mean broken can’t be beautiful too! I found out a few days ago that I have more severe arthritis in my spine ... the latest discovery is my neck area c6 c7. I have suspected it for quite some time, but receiving the diagnosis is never easy. I am beyond grateful for Dr. Matthew Harris, who helps me manage my pain. Living with chronic pain is no walk in the park, but I absolutely refuse to allow it to dictate/ruin my life. So this quote hits home for me. Thank you Dane. I may be broken, but I am still beautiful...... ❤️#dthomasquotes #invisibleillness #invisibleillnessawareness #brokenandbeautiful #neverjudgeabookbyitscover #chronicpain #severespinalstenosis #spinalstenosis #nevergiveup
I didn’t crawl out from the darkness to sit back and not speak my mind and stand up for mental illness. I have bipolar, I wrote a book about it and I’ve studied all aspects of the many different varieties. Some of my friends have it and I’ve met a plethora of strangers with it and they don’t go shooting up schools, beating their spouses or hurting innocent people. Society needs to blame it on something other than being a shitty person. So they do...That’s ok because I’ll spend my entire life fighting stigmas. I’ll take the heat I don’t mind. If you have a mental disorder and you’re a bad person only then is when evil happens....period! #mentalillness #mentalhealthawareness #mentalhealthadvocate #depression #anxiety #bipolar #ptsd #invisibleillness #warriors #silentsoldiers #endstigma #illnevergiveup #savelives #doresearch #unseeableme #writer #writing #spilledink #prose #poet #poetry #igpoets
It was amazing to spend last week in the National Parks of southern Utah with my kids, being reminded that my problems aren’t as big or important as my ego would like them to seem. I don’t think we need to minimize our pain — I think the answer is to always hold it with compassion — but the reminder that my life is such a small part of this grand universe helps me not make such a big deal out of all the things (and then I forget and end up yelling at my kids and have to start over😂). As Anne Lamott says, “100 years, all new people.” What’s inspired awe for you lately??
Just a little friendly reminder from you local neighborhood topshelf mermaid✊ ¤▪¤▪¤▪¤▪¤▪¤▪¤▪¤▪¤▪¤▪¤ #Repost @topshelf.mermaid (@get_repost ) ・・・ Hey guys! I’m really fucking angry! So there’s been a lot on social media about xxxtension cord or whatever the fuck, and I’d like to remind y’all that he beat his pregnant girlfriend to a pulp and held her captive for days while torturing her. He also almost killed his cellmate for being gay and for “looking at him too long”. Loss of human life is always sad, but under no circumstances does anyone have to feel bad for the death of a man who had no respect for human life. His music doesn’t matter. His actions matter. And his actions showed he was a horrible person. He doesn’t deserve a single more moment of our energy. But you know who does?? The immigrant children around the country who are being ripped away from their parents and thrown in cages! The immigrants who are having their religious articles ripped away from them, just like the Nazis took the wedding rings of Jewish people during the holocaust. These kids deserve our energy, these humans deserve our energy. No one is illegal on stolen land. It is never okay to put children in cages. We are going to relive nazi Germany, our friends and neighbors will suffer and you’re all fucking crying about some homophobic abuser just because you liked his music. Bye with that shit 👋 Also #FUJeff your no tolerance policy is causing this. Come for our cannabis, we’ll keep fighting. But how dare you come for the children. #alienavocadobabe #WorldReefers #Spoonie #DabGal #invisibleillness #chronicpainwarrior #CPTSDwarrior #WomenOfWeed #WomenInCannabis #CannablissQueens #BongBeauties #CannaMoms #HerbQueens #Cannabis #StonerMom #Budtender #BudtenderLife #HighSociety #MyMedsMyChoice #ChronicPain This product has intoxicating effects and may be habit forming. There may be health risks associated with consumption of this product. Cannabis can impair concentration, coordination and judgment. Do not operate a vehicle or machinery under the influence of this product. For use only by adults twenty one and older. Keep out of reach of children.
The unknown can be terrifying. I think that's why in many ways, Chronic Illness can be harder than many others. The constant changes, the unpredictability and the mystery if it's progression or regression. . Not knowing what will come on any day or at any moment can be enough to paralyze me or keep me awake all night. Wondering what the next day will bring or whether the next step I take will be the better, or for the worst. . Everything is a guess. And in everything I do, I have to trust in things I cannot see to help me get to a place that I'm not sure even where or what it is. . It's all an exercise in complete faith. And following faith can be downright terrifying sometimes. Because it is human nature to want to be in control, to want to make the choices, to analyse, to collate and form a plan of action. . But in these Chronic Illnesses, patients are forced to put our lives in other peoples hands, to let go of our own demand and need to control and to at some point, trust that something can work and that something can change. . Because I think control is nothing but an illusion. Something our brain makes up to make us feel like things are under control. But to me, the need to control, the need to analyse, and the need to micro-manage our body with our thoughts, can often just lead to more stress, more confusion and more pain. . I sometimes wonder if instead of hunting and analysing and obsessing over what's wrong and trying to go from this and that, and only causing stress and disappointment... If maybe it's not our job to analyse and obsess... Maybe our job is to let go of the illusion of control, of the obsession with micro-managing our body... Maybe our job is to simply shut up our brain and get it out of the way, to allow the body what it does naturally: HEAL. Without the constant interruption and obsession with the need to control. . I truly believe this. Shutting up the brain and it's need to be in control, which it never is, is the key to getting it out of our bodies way and being far better off. I can't heal by trying to control, by getting in the way constantly. I can only heal by letting go my imaginary control, and trusting in my path.
There is genuinely nothing more heartwarming than knowing that your dog is and forever will be utterly OBSESSED with you 🖤 even if it’s after being gone for literally 15 minutes like in this video!!!! also I’m sobbing because I miss Maya’s puppy face and spirit but itS FINE (& don’t you judge my obnoxious voice. I know you all talk to your dogs like this to get them hyped up. You can’t fool me)
💭✨ go with it. Float on. . . . (Repost- @jenmeyerjewelry ✨)
Do you ever have those days where life just feels good, like wow this is what life is all about!! I've been seeing so many blessings happening around me, not to me directly, but to the people who I've got lots of love for and OMG I can't help but smile, have tears of joy, and just be so excited and happy for them!!! Lots of new pregnancies, new jobs, new houses, just tons of new beginnings!! I really am so happy for ya'll, I remember talking to many of you when days were rough and I wished I could do something to change it for you. Life is such a beautiful experience and I know that times get rough, but with lots of love, patience, prayers, and strength you will get through those rough patches and get showered with blessings!! It is not easy, but its possible, I've seen it happen and I've experienced it!! Anyone else experiencing great blessings that you'd like to share??? Lets share positivity, not negativity!!! ❤❤❤
So we finally did the thing! Between the summer heat, being pregnant, and just being sick of my hair not growing in a few spots back there, I finally gave up and let @atl65 shave the underside of my hair! It turned out pretty satisfying considering we're both total amateurs! Yes, I'm aware of the bald spots in the front, but I'm not gonna shave my whole head. Alopecia is a bitch. I don't mind the fact that there's barely any hair left on my legs though! Silver linings 🤷🏻‍♀️😜🤘🏻💇🏻‍♀️ #shave #haircut #undercut #diy #hubbs #amateur #summer #silverlining #alopecia #invisibleillness #becomingnotsoinvisible #bald #hair #home #momlife #LoveAndLight #preggers
Someone yelled at me from inside their car to put clothes on, and I've just got to say that if you spend your free time doing that you should probably get another hobby 👩‍🌾👩‍🏭👩‍🍳👩‍🎨 . Looool . Ps my shirt was inside out and I didn't realize for hours 🤣 . . . . . #donthatetheshake #effyourbeautystandards #hipdipnation #saggyboobsmatter #disabled #gainingweightiscool #disabilibabe #disabledandcute #selflove #bodypositivity #recovery #allbodiesaregoodbodies #latina #selfie #fibromyalgia #arthritis #lupus #invisibleillness #tattoo #recoveryisworthit #bopo #lgbt #love #pride #fashionnova #novababe @fashionnova #nobraclub #freethenipple
Good morning my lovelies! Bit of positivity to start the day! And now I’m going back to sleep 💜 #slimmingworlduk #swuk #eatinghealthy #lupus #healthygoals #healthyeating #fitbit #lupuschick #lupussucks #invisibleillness i#lupusawareness #everydaystruggles #insomniac #everydaygoals #chronicfatigue #lupuswarrior #instalove #instafriends #swfriends #instafamily #swfamilyuk 💜 💜 http://michelleslife2017.wordpress.com 💜
Sorry for being so quiet since my last post but the photo attached shows what my reality has been for the past 5 days. After the day spent with my nephew, I ended up having a really bad migraine attack friday night which resulted in me being bed bound for the past 4-5 days. I haven't been in pain like this for a long time. Another thing is my right eye is constantly droopy with this bad pain. It's terrible. I haven't been able to worry about anything else besides the pain. I've barely been able to get out of bed. It hasn't been fun at all. I'm crossing my fingers that it gets better soon. Even typing this is causing me a lot of pain. I'll hopefully be back to my regular posts soon. #chronicmigraines #chronicpain #chronicillness #invisibleillness #spoonieproblems #spoonielife #chroniclife #weightloss #weightlossjourney #keto #ketogenic #ketogenicdiet #ketodiet #lowcarb #highprotein #weightlossdiary #fooddiary #anxiety #depression
“The good news is that the moment you decide that what you know is more important than what you have been taught to believe, you will have shifted gears in your quest for abundance. Success come from within, not from without.” -R.W. Emerson #star #starpose #sideplank #plank #plankvariation #starbind #halfmoonpose #variations #play #yogaflow #asana #yogadaily #yoga #yogi #yogini #yogagirl #yogabody #stretch #strength #flexible #yogabind #fitness #fitgirl #invisibleillness #spoonie #meditation #practice #balance #yogainspiration
Another quick and delicious dinner thanks to @dreamdinners coconut shrimp with thai chili sauce and jasmine rice!! Seriously makes my day easier when I can just pull a meal out and cook it or throw it in the oven AND the clean up is so easy!! #makeupjunkie #makeupaddict #ilovemakeup #MG #mgcantstopme #mgfighter #fueledbyplexus #latina #beauty #fueledbyplexus #beautifulinsideandout #mommaof3 #wifeymaterial #glam #justAmomLovingLife #ThrivingThirties #VetteGeekyWillBeatMG #invisibleIllness #suckItAnxiety #selflove #selfcare #motivation #inspiration #chasingDreams #dreamsDoComeTrue #myhappilyeverafter #MamaVettesLife #dreamDinners
All kt tapped up and ready for bed. Ankles and the back of my right knee have been killing me. Here’s hoping for some relief. #celiacdisease #celiac #celiacsucks #celiaclife #pcos #pcoslife #pcossucks #hypothyroidism #hypothyroidismsucks #hypothyroidismlyfe #chronicillness #invisibleillness #spoonie #fighter #igotthis #kttape #kttapepro #tapelife
Long day in the car traveling to & from Stanford for a doc appt! We made a pit stop @inandout___ bc traffic was a nightmare 😫 made sure to grab a selfie 🤳🏻 as soon as I got home I threw on a tee 👚 and comfy shorts! Now time to catch up on #90dayfiance with my mom! Definitely a guilty pleasure 😁 You can grab all my accessories by visiting link in bio! Tonight is last night to grab what you want & earn some dot dollars! We only have DD twice a year....so don’t miss out! I can help you w/ your order. Comment or DM ☺️ * * * #stelladot #lookgoodfeelgood #dotdollars #accessories #ootd #jotd #casualwear #stylish #stylist #styleinspo #styleideas #styleblogger #instastyle #instablogger #instafashion #lifestyleblog #lifestyle #selfie #selfiegame #bayareablogger #chronicillness #invisibleillness #stanford #nevergonnagiveup #tpn
You know what blows my mind? ⠀ ⠀ The crazy amount of limitations we put on ourselves. How much we hold ourselves back. The fact that we can’t do things that scare us until we are ready (which ends up being never).⠀ ⠀ It blows my mind because I’m so guilty. I thought I couldn’t move to a new city until I was less scared and couldn’t start a business until I was certified. ⠀ ⠀ I was holding myself back. How can you crack your heart wide open and figure out what you’re made of unless you take the leap? ⠀ ⠀ What if you fail?⠀ ... even better. Let that fire come back and fuel your dreams to the next level. ⠀ ⠀ I’m finding comfort in the unknown. I’m condensing my life down to 3 suitcases & couch surfing until I figure out a permanent home. I’m leaving my family, friends and entire life I’ve built in boulder. ⠀ ⠀ Yes it’s scary and maybe to some a little crazy, but to me I finally feel free.
Hey! My genetics suck, here’s one of the reasons why: Ehlers Danlos Syndrome. Here’s some info on it! #faultygenes . . . . . . The Ehlers-Danlos syndromes are a group of connective tissue disorders that can be inherited and are varied both in how affect the body and in their genetic causes. They are generally characterized by joint hypermobility (joints that stretch further than normal), skin hyperextensibility (skin that can be stretched further than normal), and tissue fragility. . . . S Y M P T O M S . . . . Joint hypermobility; loose/unstable joints which are prone to frequent dislocations and/or subluxations; joint pain; hyperextensible joints (they move beyond the joint’s normal range); early onset of osteoarthritis. . . . . Soft velvety-like skin; variable skin hyper-extensibility; fragile skin that tears or bruises easily (bruising may be severe); severe scarring; slow and poor wound healing; development of molluscoid pseudo tumors (fleshy lesions associated with scars over pressure areas). . . . . . . Chronic, early onset, debilitating musculoskeletal pain (usually associated with the Hypermobility Type); arterial/intestinal/uterine fragility or rupture (usually associated with the Vascular Type); scoliosis at birth and scleral fragility (associated with the Kyphoscoliosis Type); poor muscle tone (associated with the Arthrochalasia Type); mitral valve prolapse; and gum disease. Early-onset osteoarthritis, Osteoporosis Gastrointestinal issues Dysfunction of the autonomic nervous system, Cardiovascular abnormalities such as mitral valve prolapse or aortic root dilatation (enlargement of the blood vessel that distributes blood from the heart to the rest of the body), Pregnancy may be complicated by premature rupture of membranes or rapid labor and delivery (less than 4 hours). . . . #ehlersdanlossyndrome #eds #hypermobilitysyndrome #jointhypermobility #geneticconnectivetissuedisorder #chronicillness #invisibleillness #faultygenes #invisibledisabilities #invisiblydisabled #professionalpatient #chronciallyfabulous
Hey guys! I’m really fucking angry! So there’s been a lot on social media about xxxtension cord or whatever the fuck, and I’d like to remind y’all that he beat his pregnant girlfriend to a pulp and held her captive for days while torturing her. He also almost killed his cellmate for being gay and for “looking at him too long”. Loss of human life is always sad, but under no circumstances does anyone have to feel bad for the death of a man who had no respect for human life. His music doesn’t matter. His actions matter. And his actions showed he was a horrible person. He doesn’t deserve a single more moment of our energy. But you know who does?? The immigrant children around the country who are being ripped away from their parents and thrown in cages! The immigrants who are having their religious articles ripped away from them, just like the Nazis took the wedding rings of Jewish people during the holocaust. These kids deserve our energy, these humans deserve our energy. No one is illegal on stolen land. It is never okay to put children in cages. We are going to relive nazi Germany, our friends and neighbors will suffer and you’re all fucking crying about some homophobic abuser just because you liked his music. Bye with that shit 👋 Also #FUJeff your no tolerance policy is causing this. Come for our cannabis, we’ll keep fighting. But how dare you come for the children. #alienavocadobabe #WorldReefers #Spoonie #DabGal #invisibleillness #chronicpainwarrior #CPTSDwarrior #WomenOfWeed #WomenInCannabis #CannablissQueens #BongBeauties #CannaMoms #HerbQueens #Cannabis #StonerMom #Budtender #BudtenderLife #HighSociety #MyMedsMyChoice #ChronicPain This product has intoxicating effects and may be habit forming. There may be health risks associated with consumption of this product. Cannabis can impair concentration, coordination and judgment. Do not operate a vehicle or machinery under the influence of this product. For use only by adults twenty one and older. Keep out of reach of children.
Good luck getting me to move off the couch for the rest of the evening! The house is clean, dishes all done (well they were before dinner), most of the laundry washed, folded, and put away!! It is a miracle I was able to get it all accomplished. A couple years ago I couldn't even get out of bed to make lunch let alone clean the entire house. My POTS actually flared while in Florida (I hit every major trigger of mine in droves), but I was able to function and continue on with my day! It reminded me of how bad it used to be, and how thankful I am now to be able to go on outings with my family and take care of the baby without issues! So thankful for being able to function again! #girlmom #mom #housework #invisibleillness #POTS #potssyndrome #posturalorthostatictachycardiasyndrome #reallife #fibromyalgia #chronicillness #liveinlife #nomorecouchpotato
Believe this ❤️ Things will and always can get better #nevergiveup #positivethoughts #positivity
{Hello Summer 👋🏻} ~ I have been all consumed by some big projects — on top of regular work, medical & home life 😅 Still getting the blog under way, I’ll master it in time... while working towards a major education & job switch & a million projects at home so things are crazy but starting to mellow out 🙌🏼 Learning to be kind to my body, even though right now it feels like all of my muscles are separating from the bones 😭 A tell tale sign I’m NOT succeeding at listening to my body 🤷‍♀️ . . . . . . . . #fightlikeawarrior #chronicillness #invisibleillness #butyoudontlooksick #raredisease #spoonielife #neveradullmoment #progress #autoimmunedisease #spoonie #healthjourney #wellness #advocate #awareness #justbreathe #takebackyourlifecampaign #peoplehopetribe #overcome #differentnotless #inittowinit #dayinthelife #elhersdanlossyndrome #expecttheunexpected #medicallycomplex #teamhighlightreal #chronicpain #workworkwork #barefootisbetter
Man, I hope this summer isn't gonna be as challenging as I think! I was so looking forward to summer because I thought warmer weather would bring less flares like last year. Instead the humidity this year has my pain levels high 😒😣 #stupidfibro I was trying to rest for more than one day, but the housework piling up was driving me crazy. So I took a combination of herbal and prescription meds and it took a couple hours, but eventually I was functional and motivated enough to get going. Hope tomorrow doesn't suck! Lol ☺ #chronicillnesslife #lifewithchronicpain #invisibleillness #fibromyalgia #fibromyalgiaawareness #interstitialcystitis #painfulbladdersyndrome #scoliosis #osteopenia
Turning tears into warrior paint 💪🏽 sparkly of course 🦄 thanks for all the love the last few days. Literally means the world. What good thing have happened in your lives today? ❤️ #thisisms
Today was a good day. LB got some new gear, including this awesome new @theatomichound bandana; we did a short outing where we had our first rude person trying to touch LB experience which left us with a goal to help LB ignore those people better; and most importantly to me, it’s my 6 year anniversary with my guy, Eddie. He is the person I lean on in tough times, the person I laugh with, and the guy who always finds a silver lining. He wakes up early to take care of our fur babies so I can get a little extra rest, he takes care of the house work, and he tends to my needs above his own - even when I am too stubborn to notice. He has saved my life time and time again and he just makes life better. |1 year old| … … … … … … … … … … … … … … … … … … … … … … … … … #theatomichound #psychiatricservicedogintraining #psdit #sdit #servicedog #iworkforher #imalleyes #togetherweareindependent #invisibleillness #mentalillness #anxietyrelief #depressionrelief #anxietyalert #panicattackalert #betterthanbenzos #tasktrained #respectthevest #dogwithajob #bordercollieservicedog #bordercollie #bordercolliesofinstagram #bordercolliepuppy #redbordercollie
Beyond happy to report that I made it to Tahiti with manageable migraine pain!! 🎉 This is a HUGE accomplishment for me as this was the biggest travel day I’ve had since battling chronic migraine ✈️ There have been so many weeks and months on end where I’ve hardly been able to leave my apartment, so this is not a gift I’m taking lightly at all 💛 THANK YOU to everyone who sent good vibes, they meant so much!!! 💫🤗 #mindfulmigraine #outofoffice #themindfulnessgirl #mindfulliving #mmblog #migraineblogger #travelwithmigraine #migraineawareness #mham #migrainematters #onedayatatime #healing #wellness #migrainewellness #livingwithmigraine #20something #twentysomething #wellnesswarrior #chronicmigraine #chronicmigraineawareness #migraine #notjustaheadache #migrainesupport #helpwithmigraines #migrainerelief #mentalhealthsupport #mentalhealth #anxietysupport #invisibleillness
My reward isn’t here on earth.. but I’ll try to help everyone I can reach #selflove
So I posted about a Paint Nite For Lupus a little while back, and it just dawned on me that I never shared with you all the finished product!!! This is my painting, which turned out well enough that I actually have it hanging on my wall!!! And on top of that....we raised $650 for the Walk To End Lupus Now this fall!!!! A fun night out, and for a good cause! 💜
Big admittance here on IG: I have a major #invisiblechronicillness I flew to Anchorage last Thursday to see a rheumatologist. In Fairbanks we don't rate such specialists. I've long believed my specific disease is fibromyalgia. This was just the first step in getting to bottom of my health issues, but my doctor says it most likely IS #fibromyalgia So. We're doing a bunch of tests, started while I was down there, and continuing up here. It's good, I have to say, to finally get closer to some solid answers. Most doctors won't listen to us #sickgirls They say exercise! Eat better! Get another surgery! Consult another doctor! My rheumatologist said, we'll get the answer. And then go from there. I'm thrilled and I'm scared. I've been needing answers since I was YOUNG, back in the 90's. #answersplease #chronicillness #invisibleillness #ilovemydoctor
ARE YOU TIRED OF FEELING LIKE YOUR WHOLE LIFE IS COMING IN ON YOU? 💙 The stress of health, finances, family, work, and more, can wreak havoc on you in unknown ways. : Listen babe, you are amazeballs, but when your life is off balance due to constant overload, it’s hard to feel that way. 😷 When you add to that the fact that many people, even your doctors and loved ones, treat you like you are faking for attention; Because aside from the bags under your eyes from not sleeping well and your hair up in a ponytail because showering was just more that you could handle today, you don’t “look sick”. 🙅 It all becomes so much that feeling like the whole and balanced person you remember, seems impossible. I know because I've been there. : I just want you to know that there is hope and you CAN live better. 🌟🌟🌟 . . . . . . . . #Mindfulness #Endometriosis #Wellness #Stepmom #Thyroid #Autoimmune #SpoonieLife #Spoonie #Fibromyalgia #IBS #LeakyGut #SecondBrain #ChronicIllnessWarrior #ChronicPain #ButYouDontLookSick #InvisibleIllness #SpoonieSupport #Hysterectomy #ChronicIllnessAwareness #SpoonieFamily #Hashimotos #Thyroiditis #DegenerativeDiscDisease #SpinalStenosis #T1Dmom #MADwellness #PCOS #Mindset #ChronicLife #SpoonieSister
I've been very down, but this weekend we made seafood boil for my dad and my sister and I got deck furniture and some odds and ends. I'm trying not to isolate myself but it's so hard. #depression #mentalillness #invisibleillness #sadness #backyard #summer #seafood #cooking #decorating
Dazzle... The EDS Hive. Ehlers-Danlos Syndrome. We shot this Hive up to the top of the list because so many of the amazing friends and webes we’ve met have requested it. Join Dazzle - Reserve Your HealthFile < link in bio > #humancare #webewarrior #healthbeme #healthfile #ehlersdanlossyndrome BE ORANGE 🐝🍊 @itsapotsielifeforme @bendy.living @chronicarly @chronically.brooke @liesl_thesaltymermaid @chronically.hailey @ehlersdanlosgrl @activelyautoimmune @chronically.me.cassie.marie @the_hunny_pot @chronically.ams @spooniecamochick @carriespins @victonation @chroniczebra
Don't you wish you were an awkward, introverted giraffe like me? Honestly, it's a trust issue. I'm a heart-on-my-sleeve type person. I can't fake it til I make it. I'm just real... and sometimes real fucked up. I have lost everyone in combination of being "too emotional" and "too needy" and when my daughter came out as trans. The times I have really needed people, they failed me. 20+ years of giving in a friendship ended when I truly needed support. It didn't take long for me to be "too much" for people. Now I have a therapist telling me I have to be vulnerable with people in order to be close to them. Fuck that. I've been nothing but vulnerable my whole life. Look where that's gotten me. I trust no one. No one ever sticks to their word and no one ever shows up when you need them. People aren't capable of doing that. I lost faith in friendship a long time ago. So here's a generic excuse for you, and a generic excuse for you... generic excuses for everyone! Cause I don't fucking trust you. I used to trust until given a reason not to. Now I don't trust until given a reason to trust. Am I happy like this? No. #chronicfatigue #cfs #chronicpain #chronicillness #fibromyalgia #fibro #ocularmigraines #chronicheadaches #interstitialcystitis #ibs #pmdd #hormoneimbalance #invisibleillness #spoonie #spoonielife #anxiety #gad #ptsd #generalizedanxietydisorder #depression #insomnia #insomniac #existentialism #existentialist #highlysensitiveperson #hsp #highlysensitive #empath #empathetic #introvert
NEW BLOG POST ALERT! 🔥💪🏼😏 • • • I have a new blog post up in which I talk about my late night thoughts and feelings I have surrounding my upcoming surgery. Give it a read and join the crew to get notifications on new blog posts! Link in bio! XOXO Coco #ibdawareness #ucwarrior #crohnsandcolitis #invisibleillness #ileostomy #jpouch #ulcerativecolitis #surgery #blogpost #ibdblog
Upper body day - my favorite!! 💪🏻💪🏻💪🏻 #checkinforcharity #nevermissamonday
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