#fuckepilepsy My daughter Kennedy has had epilepsy since she was 3 . On Feb 27th she was admitted to hospital with uncontrolled seizures. While there we found she has blockage in her heart. We have to wait for insurance to send us to children hospital in LA for further treatment. She is at home with her brother myself an new furbaby. She is fighter . Keep her in your prayers . #epilepsy#ihateepilepsy#seizures#lovemykids#prayers#nevergiveup
7 days ago022
Had a long appointment with another neurologist who works with my current neurologist. So that would be my 14th neurologist(I think) since 1999. Strangely enough, she was interested in listening to my 10 minute version of my epilepsy story then she followed it up with a long conversation about my life as an epileptic. Anyway, they decided to up my dosage on lamotrigine(lamictal) for this year and next year to reduce the levetiracetem(keppra) in 2019. Ya, takes that long for my body to adjust to just a small increase of 50mg. She also wanted me to take an anti-depressant and see a psychiatrist. I’m quite skeptical about taking an anti-depressant drug so I said no to that, and we are actually going backwards to my plan which was to get my dosage down to the bare minimum because I’m sick of taking so many pills everyday. Anyway I’m also seeing my epilepsy specialist and will arrange for an EEG and MRI scan. #Epilepsy#EpilepsySucks#EpilepsyAwareness#DepressionAwareness#Stigma#IHateEpilepsy#EpilepsyRuinedMyLife
26 days ago214
Attention IG family, @thejagerdiaries (Jager) one of our IG dogs is really sick and needs lots and lots of prayers right now. He is going to have 5 panels of blood drawn shortly to determine if his seizure meds are causing him to be sick or if his ataxia is causing has liver not to function properly. PLEASE stop and say a prayer for this sweet boy and his family. 😢🐾❤🙏🙏#ihateepilepsy#bestrongJager
Dear Lord, I seek for your loving mercy. I ask Thee to put your powerful healing hands over my child. May your hands hold every cell in her body and make them well, may your touch protect her from all sickness. I believe Lord that you are the MOST powerful healer and the most merciful Lord. From a loving mother who is trying to stay strong for all of us with you Lord as our support system please provide us with a plan to heal my child as I ask for help during this time of need. AMEN! #ihateepilepsy#kyleeaspyn#girlfight#wegetthruit#motherdaughter#alwayshaveyourbackbaby#you ~n~I #forever#nevermissedone
What is life when you know it will end? How can you stand to love every second knowing it’s borrowed time.. i can’t believe we are where we are. I don’t want to imagine a world without these babies.. lord knows I’m not ready to live in that world.. it’s a rough night and i just really really really don’t want this to be their reality . I hate epilepsy and it must hate me if it wants to claim the lives of the 2 most precious, most innocent children I’ve ever met. #ihateepilepsy#kcnt1#mmpsi
Tj had 12 seizures in 15 mins but manages to bounce back to a happy kid. His brain is exhausted but how can he sleep when it it’s constantly firing off. Seizures are hard to watch but we gonna keep praying this too shall past. Tomorrow he has a appt let see what changes I recorded 15 mins to show the doctor ...#Epilepsygang#LGSSucks#ihateepilepsy#survivor#warriorfor christ #Godgotthis
3 months ago6014
Not how I planned on starting my day ... Woke up to Richard by my side and me laying on our bedroom floor. Last thing I remember was my alarm going off (an hour earlier) so we assume I got up to wake Richard and O up (he was in his room last night again 😒 a whole other story). My head hurts where I banged it and I’ve got a migraine. My wrist is hurting and my right hand side is in sheer agony. Now lying in bed feeling sorry for myself and guilty for giving the boys a scare. I’m physically and emotionally drained of energy and feel like I’ve had a month long flu I ache so much.
Oscar was the one who found me and went running back into his room where Richard was getting clothes for him shouting ‘mummy gone! Nee Naw!’ What child should have such responsibility at 2!! He is such a clever, caring little boy and I’m so proud of how much he knows already. Even though I wish he didn’t have to, I know he will always be there to help me and know what to do. 😍 😭😭😭😭 Epilepsy you’re cold hearted and ruin so many lives, of those who suffer and their friends and families. .