#gastroparesis

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Hello lovely people. Been a bit of a wipe out day here. One of those days where you feel like you have achieved nothing. I've probably only been awake for two hours. That's twelve hours sleeping. Of course, in reality, I have achieved something. I've listened to my body, and made the decision to do whatever my body needs me to do. The endo pain is bad, but I've managed without any strong pain killers - admittedly sleeping will do that. If you're not awake no meds are needed! My gastroperesis symptoms have been pretty grim again as well, so the small bits I have managed to eat haven't stayed down fully. I'm okay though. I feel okay in the sense that just resting and sleeping is sometimes the bravest decision to make. #endometriosis #endometriosisawareness #endowarrior #endosister #fibromyalgia #fibrowarrior #chronicpain #chronicillness #chronicmigraine #eyemask #migraine #sleep #rest #fatigue #chronicfatigue #gastroparesis #gastro #restandrelaxation #bravery #achievement #smallthings #smallbutmighty #babewithamobilityaid #disabled #disabledandcute #disability #invisibleillness
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I've been referred to a dietician. They want a few things before I see them including a blood test to rule out coeliac disease! Fingers crossed it comes back negative!! #chronicalyill #spoonie #hypothyroidism #asthma #gastroparesis #potsie #pots #eds #hypermobility #zebra #edswarrior #zebragirl #pain #chronicpainwarrior #cripplepunk #hsd #coeliac #bloodtest #dietician
Big day in my fight with #BingeEatingDisorder & #gastroparesis : 200 pounds! (factoid: binge eating is NOT good for a broken stomach.) my stomach feels better now that I eat properly for my diagnosis, but I still have problems with my stomach. (Just last week I needed to eat very little because of the rock in my stomach that wouldn't budge.) Looking healthy has nothing to do with being healthy. #chronicillness #ChronicIllnessFiles
Hello everyone, We are a letter subscription place, and we send out letters to Spoonies. If you or someone you know should get a letter, sign up for one with the link in our bio. Or, just tag yourself and them and I’ll message you about it. —————————— I hope y’all have a lovely day. If you like, you can comment down below about your day, good or bad. ————————————— Also, check out our letter subscription service!! It’s free to apply for and we will send you a handwritten letter to boost your day and perhaps give you some happiness. The link is on our bio! ————————————— Also, instead of sitting in your bed on the phone, even if it’s a flare up, just look around and out your window, maybe even go outside. Be well everybody, Saoirse ////////////////////////////////////////////////// IGNORE TAGS #chronicillness #fibro #fibromyalgia #heds #spoonie #eds #me #zebrastrong #chronicpain #chronicfatigue #asthma #gastroparesis #complexregionalpainsyndrome #crps #posturalorthostatictachycardiasyndrome #pots #potsie #mentalhealth #positiveprescription #positivevibes #positiveaffirmations #positivity #bepositive #bekind #wheelchair
Hello everyone, I wish you the best today. I hope your day is beautiful and bright, with no flare ups. Saoirse. (Tag your bestie so they see this and you encourage them!) ——————————— I hope y’all have a lovely day. If you like, you can comment down below about your day, good or bad. ————————————— Also, check out out letter subscription service!! It’s free to apply for and we will send you a handwritten letter to boost your day and perhaps give you some happiness. The link is on our bio! ————————————— Also, instead of saying no, say maybe(: Be well everybody, Saoirse ////////////////////////////////////////////////// IGNORE TAGS #chronicillness #fibro #fibromyalgia #heds #spoonie #eds #me #zebrastrong #chronicpain #chronicfatigue #asthma #gastroparesis #complexregionalpainsyndrome #crps #posturalorthostatictachycardiasyndrome #pots #potsie #mentalhealth #positiveprescription #positivevibes #positiveaffirmations #positivity #bepositive #bekind #wheelchair
Gastroparesis Awareness Month is coming up!!! August here we come!!!😩😩😩😂😂😂💚💚💚💚💚💚💚 #gp #gastroparesis #gpwarrjor #guthealth #stomachhealth #stomach #stomachpain #paralyzed #paralyzedstomach #illness #chronillness #chronillnesswarrior #chronicpain #chronicpainwarrior #chronicfatigue #chronicfatiguewarrior
Because I am a glutton for punishment I threw together a website that will hopefully answer any questions anyone may have. If you can't find the info you are looking for, by all means ask away. No one is required to order through the site, you can place orders directly. Link is now in bio. ---------- Use the code CAWFRIENDSANDFAMILY for 15% off @cypressavenueworks ---------- Visit my awesome pawtners: @fantastic_fin_fry @helper_dog_fauna @diablo.cinder.rogue_working.k9 @superwoofer_tale_tails @spookypupmulder @daisymaetherattie_psd @helperdogvader ---------- #spoonie #spoonielife #fibrowarrior #fibromyalgia #scoliosis #ankylosingspondylitis #gastroparesis #butyoudontlooksick #invisibleillness #chronicillness #chronicpain #cripplepunk #sdit #servicedogsofinstagram #servicedogpuppy #servicedogintraining #helperdog #workingdog #greatpyreneesepuppy #greatpyreneesofinstagram #greatpyresneesmix #greatpyrenees #bloodhoundmix #bloodhoundpuppy #bloodhoundmix #bloodhoundsofinstagram #pyreneesmountaindog #dogsofinstagram #lifewithpickles #servicedoggear #dogharness
After all of the questions from yesterday’s story, I figured it is time for an awareness post! The white circle on the back of my arm is the sensor for the Freestyle Libre glucose monitor. Rather than poking my finger every five minutes, I can wave the little remote over the sensor to receive a glucose level reading. Each sensor lasts 10 days. Although I do not have diabetes, my conditions cause significant pancreatic involvement. This is a much easier tool to use during flares, providing I get through the next 10 day trial period to ensure my mast cells don’t wig out and have reactions to the needle that holds the sensor to my arm. 😊
Please view our awareness video in which myself & Mohiba talk about our lives & what fundraising means to us! Please like & share. Hugs and kisses ❤😘 https://youtu.be/pXtaWAUbsQQ . . . . #JAM #spreadsomejam #vascularcompressiondisorders #smasyndrome #nutcrackersyndrome #MALS #pelviccongestion #interstitialcystitis #gastroparesis #inflammatoryboweldisease #ulcerativecolitis #esophagealdysmotility #dysphagia #lymediseaseawareness
Stuck in bed. Some days you just have to admit that you need rest. I’ll order some prime now that sounds drinkable or edible with my current stomach situation. As for this headache, I’ll order a little caffeine to help take the edge off. I had plans at 1pm, so hopefully she gets the message that me and my bed have fused for the day. I can’t give into anxiety and guilt. Our bodies are like machines, and if a car ran the way I currently feel? You definitely wouldn’t see anyone trying to drive it! #copingwithbehcets #autonomicneuropathy #neurobehcets #gastroparesis #migraine #chronicnausea
Reality at the moment , this is hard , I’m running on virtually nothing , everything I’ve fought the past year and all the victories are just being robbed from me , all this fighting for what ? My body is weak and tired and quitting would be easy at this point, I’ve been fainting a lot recently , like multiple times a day due to dehydration , my nutritional intake is really ridiculous and not improving no matter how hard I try my intestines aren’t agreeing with much in them at all , these illnesses are robbing me of my days , I don’t know how many more days I can sit back and let it take from me , I’m simply just surviving day to day and this is not a life , seeking for help but being failed by the National heath trust , going to keep my goals realistic and keep myself positive , it’s hard , all of this are hard but I’ve made it this far 🦓 #gastroparesis #intestinaldysmotility #smasyndrome #smas #dtp #gastroptosis #visceroptosis #eds #ehlersdanlossyndrome #zebra #zebrastrong #njtube #nhs
We thank everyone in this community for living by this quote 💙📷: @campsbaygirl #chronicloveclub
Morning coffee & beads...because when a little warrior in your life wants to string his new beads, that’s what you do. ❤️ These are no where near all of his beads , but they are his bead strands with his positive phrases on them...each phrase is a moment that has impacted his life dramatically. His “I AM THE STORM” is dedicated to his survival from emergency life saving surgery on February 11, 2018 when all odds were against him. Each bead color has a meaning of something he has medically endured. #beadsofcourage #gf .me/u/i748dx #ptsdawareness #chronicmedicaltrauma #fbteamriverkai #tadsaw #changeforcebrand #soldiersolutionsllc #catwheelermamaofawarrior #gastricelectronicstimulator #appliedmedicaltechnology #medtronics #mariafarerichildrenshospital #arnoldpalmerchildrenshospital #cincinnatichildrenshospital #weillcornellmedicine #gastroparesis #colonicdysmotility #supertubie #feedingtubeawareness #shandschildrenshospital #ufhealthgainesville #gofundme
Yesterday morning I had my Gastric Stomach Emptying Study at U of M hospital. It was an all day ordeal. It took us over two hours to get there with traffic and construction. ________ Once there, I had to eat within 10 minutes radioactive eggs, toast, and a small amount of water. They then did a gamma X-RAY to have a start image. Then, every hour for 4 hours they did another image to see how fast or slow my body processed the eggs. ________ This is my 3rd gastric emptying study. My first one I emptied too fast, my second one, I emptied slow and was diagnosed with Gastroparesis. My current GI doctor said that is normal for that to happen, the body slows down and it gets worse. ________ I am nervous about the results because they used the Gamma X-RAY's instead of Cat Scans like my previous two tests. I was also standing for the images instead of laying down. I am anxious for the results. I see my doctor at U of M on the 28th next week to go over this test, my positive test result on the Hydrogen Breath Test I had, as well as my appointment with the nutrionist. We will then come up with a treatment plan. ________ Depending on the test results, I may end up in the hospital for him to do Botox injections in my stomach opening during an endoscopy to relax the stomach muscles to allow food to go down. Has any of my fellow Warriors had this done? If so, how did it work for you? ________ Trying to stay positive but I am really struggling lately without my hormones. I have been calling every single day to my doctors to get them. I am just going to go to my doctors before my iron infusion today and demand them. I am just so glad I am finally getting my iron after fighting for it for a month and calling my doctors office every single day for weeks straight. ________ #lupus #lupusawareness #lupuswarrior #lupussucks #fibrowarrior #autoimmunedisease #nocure #needacure #neurocardiogenicsyncope #dysautonomia #piccline #tpn #neurocardiogenicsycopesucks #bladderpacemaker #anemic #godisgood #godonmyside #bethechangeyouwanttoseeintheworld #positivepeople #gastroparesis #ibs #gerd #sibo #uofm #uofmichigan #gastricemptyingstudy #radioactiveeggs
didn’t realize no volume link in bio and below YouTube.This scene got me...the TRUTH...makes me remember what I got through when I was raped multiple times between 12-15...all by older 2 guys 18-24. When this happened it mentally & emotionally damaged me for years! I felt filthy in my own skin, out of place & used as an object for sexual gratification...a vessel if you will. For years I coped by drinking heavily and heavier than the average high school kid to numb, thoughts I had to give guys what they wanted or I’d get hurt again. I kept my secret to myself bc I was ashamed I let it happen to me...that I wasn’t strong enough to get out unscathed. I shut down and shut off just like these women describe. I didn’t tell my mom I was raped until I was almost 21 in private tech college in 2009...when an incident brought every feeling I had back! A man much older than myself was in our dorm hall and he decided to come in my room bc he saw me earlier and pushed himself onto me aggressively forcing with hand on the back of my head hurting me with how tight...just reminded me of their hands forcing me...smothered and choked so I couldn’t breathe and he could control me. So I failed out of college.I drank heavier to the point of being sick for days, didn’t go to classes, didn’t study, slept, grades plummeted and lost any scholarships I had..moved back home to finish college. Went to therapists.... ALSO while in relationships (2 previous guys) was taken advantage of sexually while being so drunk (and on my scripts) that it was apparent there was NO CONSENT whatsoever! I couldn’t speak or move my body...all I could do was cry as these men who were supposed to love me hurt me by anally raping me...I laid there motionless, unable to speak, unable to scream, unable to move...I felt them push inside as streams of tears poured from my face...being grabbed aggressively and rammed till they were good and passed right out! I luckily faded in and out of what was happening....you can’t always control what happens in life but you can control how it makes you feel and your future...awareness and openness about how often it happens to people and you’d never know. #totallyyoutuesday
I am not defined by my circumstances. I want to take time today to tell you a little about my journey... . . My health journey began more that 20+ years ago with extremely painful periods and migraines. Then, came the diagnosis of endometriosis. From there, gall stones and the removal of my gall bladder. Years later, the migraines intensified. Then, the stomach issues started. At first, the diagnosis of IBS. Later, came the diagnosis of Gastroparesis and SIBO. Then, Neurocardiogenic Syncope was thrown into the mix. Finally, a suggestion of Dysautonomia. . . Did I tell anyone about what I was dealing with? No. Although it may have appeared that everything was fine on the surface, my body was really falling apart. Such is the life of a chronic illness warrior... a silent sufferer. Unless you traverse a similar journey, it is so difficult to understand. Your illness along with the countless doctors, medications, and treatment options start taking a toll on you. . . I began to think that this is who I was...my illness. So much of my life was consumed by it already. I was used to having more bad days than good. I was used to being in the bed more than being out of it. I was used to my husband and children taking care of household responsibilities because I did not feel up to it. I had reached the point where I was so tired of being sick and tired all of the time. . . And then there is hope... something began to change for me and my mindset started to shift. I came to realize that my circumstances don't MAKE me who I am. Instead, they REVEAL who I am. The character that is within me. The warrior that has learned to fight. . You can read more of my journey by visiting thehealingfromwithin.com You can click the link in my bio above. . . #chronicillness #migraines #IBS #SIBO #endometriosis #gastroparesis #neurocardiogenicsyncope #dysautonomia #chronicillnesswarrior #hope #character #circumstancesdontdefineme #thehealingfromwithin #healthandwellness #nurse #momoffive
BACK AT IT AGAIN!!!!! We finally made it to our happy place yesterday. After a long recovery I’m feeling practically back to normal. Aside from just some tightness in the chest a bit. I got to try out my smart drive finally and man was it life changing. @jainavanhorne and I could finally stroll next to one another and hold hands. And that means so much to us both. I didn’t have to do any pushing, just grabbing the wheels to make turns. So, that’s immensely helpful to my recovery as to not stretch my scars. We didn’t stay for long cause I tired out really quickly, but it was still so worth it! Disney is always worth it with the positive mental impact it has on me. Atlas was.. a bit rusty. So, I realized now that I’m feeling better, I need to really get back into gear and take him out training. It’s not his fault he was in the house for almost 6 weeks aside from very small outings. I worked with him most of my recovery at the house, but as you know that’s not the same as in public. I’m not worried because everything is moving in a positive direction now that I’m more able. I’m excited to finally be back to life and do what I need to do!♿️🐾🙇🏻‍♂️
Anticipated risks with the TIF procedure include temporary discomforts such as sore throat, shoulder pain, difficulty swallowing, nausea, or vomiting. For more information regarding the risks associated with this procedure.
This old picture is a reminder of the really bad times. Here I was bed bound and a #tubie (fed through an #NGTube ). We had no understanding of why my #chronicnausea meant I could eat nothing solid and no diagnosis of #nervepain and #spinalcordinjury . Things are much much better than this now. Even today which is a really really bad #chronicpain day (I'm travelling to Newcastle to have a little holiday and pass out from pain often in the car) is better than those dark days. My #recovery is slow but evident. As a #spoonie it's often hard to see this positive progression and its hard to be proud of the small achievements so here's a reminder that things will get better. You'll gain a better understanding of your body's limits or your illness will be controlled better. You're doing your best and that is enough 💕💕 #sendingspoons to you all!! 🥄🥄🥄 #spoonie #spooniestrong #spoonielife #spoonies #spoonieproblems #spooniewarrior #NGfeed #wheelchair #wheelchairgirl #wheelchairdontcare #pcos #polycysticovariansyndrome #gastroparesis #anxiety #depression #neuropathy #cyclicvomitingsyndrome #chronicillness #chronicfatigue #chronicfatiguesyndrome
Happy Tuesday everyone!!! It’s so cool. For the second day in a row the Bible app on my phone shared another one of my favorite verses from my favorite book, Isaiah. Today it’s Isaiah 40:31. I find this Bible verse really inspiring and relatable. Even in the roughest times, when you feel like your life is ruined forever and nothing will ever go right, still have faith in God. I know some people don’t believe in God, and that’s certain people’s preferences, and that’s okay. For some people, though, keeping faith in God can help. If I didn’t have faith in God I wouldn’t have any strength or energy, I may not even be alive. Also, without God looking after my mom, brother, and I we don’t know where we’d be. I believe God is who helped me at family court yesterday. Lord, I am so grateful! It proves that if you have faith in God He won’t let you suffer forever. Stay strong everyone!!! I pray you all have a blessed and relaxing day!!! #tuesday #happytuesday #tuesdaymotivation #God #godbless #blessed #faith #grateful #Bible #bibleverse #warrior #abuse #mentalhealth #mentalillness #anxiety #depression #stress #illness #chronicillness #invisibleillness #ibs #ibd #gastritis #gastroparesis #spoonie #motivation #strength #staystrong 😊😄📔🙏🏻💪🏻😍💖
So true.
When you are having stomach and face spasms/twitching and dizziness, white kitty is there to doctor me up.
I’m going to try to make this as short as I can sorry if it’s super long 🤷🏻‍♀️. As a kid I was always sick complaining of a stomach ache or not being able to play like the other kids did, I simply didn’t have the energy. At that age I really couldn’t explain what I was feeling with my heart and my stomach, most people just thought I was being over dramatic or was being “lazy”. This happened for years, until about 9th grade my symptoms started to worsen. I was throwing up almost everyday if not atleast 3-4 days a week I was. No matter how many hours of sleep I was getting I was still so exhausted. This effected my ability to go to school or work, so by junior year I had to leave school and start online schooling. At this point I was working with multiple doctors who honestly were confused and starting to give up on me. I finally got an adult GI who in less then two months diagnosed me with Gastroparesis. Pretty much my vagus nerve which regulates the digestive system doesn’t work. So my stomach can not empty itself very easily, the muscles in my stomach don’t contract so it makes it very hard to eat. With gastroparesis you deal with awful nausea, vomiting, weight loss, embarrassing bloating, and more. So onto why I use weed now to help my illness, I began smoking about 4 years ago it started as something I liked to help my anxiety. Then as I began getting sicker I used it to help my nausea, I would smoke each time before I ate to help with the pain and nausea. Now currently I’m working with a good set of doctors to continue work with my heart, unfortunately Gastroparesis isn’t curable and most treatments aren’t safe. But as time goes on it’s becoming a part of my life that I just gotta deal with. Weed truly helps me so much I honestly don’t know how I’d eat without it. Sorry if this was so long it’s just a lot to explain. Hope everyone has a good day thanks if you actually read all this ❤️🤙🏻 - - - #bongrips #girlswhosmoke #smokesociety #bongs #ganja #ganjagirls #stayhigh #420 #420girls #bongbeauties #weed #weedstagram #gastroparesis
One cbarq for Pickles. He is totally trainable. Its just if he feels like doing anything 🤣 Separation anxiety: It's dangerous to go alone, you might fall on your face. Take me! The attention seeking: he's learned from the cats how to be a pain in the ass to get petted. Stranger aggression: He did try and eat the vet from hell (I counted it even though my trainer said she probably deserved it) ---------- Use the code CAWFRIENDSANDFAMILY for 15% off @cypressavenueworks ---------- Visit my awesome pawtners: @fantastic_fin_fry @helper_dog_fauna @diablo.cinder.rogue_working.k9 @superwoofer_tale_tails @spookypupmulder @daisymaetherattie_psd @helperdogvader ---------- #spoonie #spoonielife #fibrowarrior #fibromyalgia #scoliosis #ankylosingspondylitis #gastroparesis #butyoudontlooksick #invisibleillness #chronicillness #chronicpain #cripplepunk #sdit #servicedogsofinstagram #servicedogpuppy #servicedogintraining #helperdog #workingdog #greatpyreneesepuppy #greatpyreneesofinstagram #greatpyresneesmix #greatpyrenees #bloodhoundmix #bloodhoundpuppy #bloodhoundmix #bloodhoundsofinstagram #pyreneesmountaindog #dogsofinstagram #lifewithpickles
I saw the gastroenterologist (finally) today. I was ready to fight for any tests or care I might need but the doctor was brilliant and super forthcoming with it all. He said I have some sort of IBS for sure but there is probably something else in conjunction with that. I have problems all over my digestive system so he ordered a whole bunch of tests. I'm going to have a gastric emptying study, barium swallow test, abdominal MRI, head MRI, colonoscopy, blood tests and will see a nutritionist. Hopefully this will rule some things out and/or find the cause. The main things we're concerned about right now are the possibility of gastroparesis, Crohn's or a prolactinoma, which is a tumor near the pituitary gland in the brain. I was so relieved to finally be getting help with my digestive system in the hospital that I nearly started crying. I have had such sporadic testing to no avail so the idea of possibly finding some answers is huge and the doctor was so friendly and proactive.
🌱 Waiting on my snack to cook. Chopped spinach is great when you’re highly dependent on #gravity to empty your stomach. Not in #large amounts but just to #snack on throughout the day. It’s the only #green vegetable allowed with stomach #paralysis 💚 . . #spinach #welldone #vegetables #gastroparesis #lupus #itscomplicated #choppedspinach #freshfrozen #energy #vulnerable #organs #autoimmunedisease #jra #foodprep #takeitseriously #curbappetite #dowhatyoucan #delicious #hotfood #tired #of #coldfood #nutrition #looks #nomnom
I saw this awhile back and thought it was pretty funny😂 So anyway, I wanted to update y’all on some stuff happening right now! Yesterday I got a call from my surgeon’s office and the receptionist told me that the surgeon wanted to see me sooner than a month from now so he made some room for me in his schedule and I go in next Wednesday. Honestly that’s kind of scary...what does it mean when the surgeon doesn’t think you can wait very long, you know? Anyway, I’m trying to just stay calm and be positive! On a different note, G (my fiancé) is going today to take a test to move up the ranks in his line of work which is super exciting and I’m so proud of him! He’s honestly so wonderful and I’m very lucky! How are you guys doing? I hope you’re having a low pain day with lots of smiles!💜
“Quiet the mind and the soul will speak.” >>> Last night I woke up at 12:30am. TV was on, lights on, and I was in the confusion state of a bear waking from hibernation. Turns out I had fallen asleep mid-nighttime routine, with a lovely charcoal mask on my face. I’m so graceful these days😂. Needless to say, my body is in need of some quality rest + recovery. I think my schedule has been dictating me, rather than the other way around. I feel behind, like I’m constantly scrambling. Quiet moments like these bring me the most clarity and joy. They reset + recharge me. In a world full of go-go-go, I’m a rest-rest-rest.
When you realize #krispykreme is 15 minutes away from @curaleafnj ... I may not eat much but I'm about to enjoy medicating n munching on a donut #gastroparesis #gastroparesisawareness #gpwarrior #gastroparesiswontstopme #medicalmarijuana #curaleaf #indica #givememylifeback #legalize
Having to live on these is no fun! Especially since all the calories are from sugar. Seriously, it has more sugar than coke! But what else can I do? #gastroparesis #eds #ehlersdanlossyndrome
so grateful! slept until 8AM and didn't feel awful when I woke up 👐😊 #spoonie #chronicillness #gastroparesis #pots #eds #invisibleillness #fibromyalgia
She feels awful (icky sicky) but still cleared her cardio check-up! Her #pots is better (not fully) under control and Melanie won't have to see her cardio for 6 months! This is HUGE for her. Praying this heat doesn't cause flare-ups. #celiac #gastroparesis #abdominalmigraine #ibs #chronicillness #ickysicky #allstars #chucks
So one of the days procedures was to place a camera pill just pass my stomach! The usuall person would swallow the pill but for obvious reasons I can’t do this, so this was placed just before changing the nj tube over. I know have to wait at the hospital for 8 hours whilst this magical pill makes its way to my bowel taking lots and lots of photos!!! It is beyond me how clever and advanced things are! Who ever would have thought you could SWALLOW A CAMERA, and then manage to get loads of photos!!! #spoonie #sponnies #spoonielife #wow #incredible #myfriend #itsback #video #sad #hospital #london #tubie #capsule #fibromyalgia #ehlersdanlossyndrome #eds #Pots #chronicillness #chronicpain #gastroparesis #invisibleillness #fibromyalgiapain #endoscopy #njtube #spoonie #fighter #hEDS #spoonielife #eds3 #feedtubedependant #njtube
New image!! Dysautonomia jewelry for a cause https://m.facebook.com/Dysautonomia-jewelry-for-a-cause-1907029659627578/ https://m.facebook.com/Dysautonomia-jewelry-for-a-cause-1907029659627578/ 15% of sale will go to Dysautonomia Advocacy Foundation, DAF! Help the cause! #TeamDAF   #jewelry #jewelry4acause #jewelryforacause #dysautonomia #dysautonomiaawareness #ehlersdanlossyndrome #mito #chronicillness #teamdaf #invisableillness #mastcell #mastcelldisease #gastroparesis   #sickofbeingsick   #sick #ehlersdanlos #potsie #potsies #potsy #pots #eds #tachycardia #lowbloodpressure #mitochondrialdisease #autonomicdysfunction #salty
Gastroenterologist confirmed intestinal infection. 😤 Next slide: faces my daughter's and nieces make in pictures. What's with the weird mouth gestures? 🥄💜💙#mom #wife #spoonie #chronicillness #chronicpain #spoonie #glbyAlly #lgbtAlly #gayfriendly #NavyVet #Veteran #WomenVets #WomanVet #DisabledVet #hypothyroidism #fibromyalgia #trigeminalneuralgia #ibs #gerd #gastroparesis #reactivearthritis #osteoarthritis #depression #anxiety #bipolar #ptsd
TW. X X X X Just I'm having a panic attack about my weight I know I'll gain a lot cause of something I can't even tell, and I know I'll be fat soon. And I hate it. And I hate myself. And I've no one to understand and how much I'm just a bag of anxiety. X X X Xx #mentalhealth #mentalillness #gastroparesis #edrecovering #pimientos #Hungary #travel_captures #fernwehcollective #fernweh #WANDERLUST #roadtripeurope #budapest
Little man knows I'm not feeling great today so spent some time having cuddles. Best boy. We went to A&E yesterday as I've been unable to eat solid food at all and am very dehydrated as even water is hard to get down despite all of the antisickness medication I've had lately. Unfortunately they didn't take us seriously and refused to admit me or give me any fluids or even pain meds. Apparently my blood was fine so they didn't see me being unable to eat or drink as a problem! Despite the fact that I'm barely passing water (so from every half hour to two or three times in an entire day!). It's beyond frustrating. Unfortunately it could be up to six weeks by the time I have my gastroscopy, let alone another gastric emptying study. I'm at my wit's end! #lokinemo #bsh #littleman #catsofinstagram #kitten #kittensofinstagram #eds #ehlersdanlossyndrome #gastroparesis #intestinalfailure
‼️UPDATE‼️ Well we are slowly transitioning to a clear liquid diet (with little success) we got the pain and nausea under control for the most part. Best part of all though is that I found out that there is a doctor here at UNC now that does the TP/AIT surgery that I have been trying to get done for almost 5 years AND I’m getting a referral to go see him so Lord willing we might be able to get this surgery done and I can take the first step into having a semi normal pancreatitis free life. . . . . . . . . #BecomingTheBuchanans #spoonie #tubie #pancreatitis #anemia #chronicallyfabulous #chronicillness #gerd #gastroparesis #cure #awareness #butyoudontlooksick #invisibleillness #depression #anxiety #spoonielife #selflove #bodypositive #acceptance #confidence #beautiful #bpd #inpatient #psychhospital #recovery #recoveryisworthit #engaged #forever #marriage #Mr &Mrs
Good info..
Morning😶 Last week I couldn’t even sit up, I had to roll sideways into an upright position and cried the whole time, it hurt so fucking bad just getting out of bed. Then I had to crank the AC so I could use my heating pad for a couple hours and burn the pain out of my body while my guts tried to make me puke food from the day before😑 If you’re feeling good, get out there and have a great day and celebrate your health!🏃‍♀️🍃 If you’re feeling bad and need help, ask, don’t be afraid to ask a friend for a hand. I do and they always come through and I will always be grateful🙏 #SickGirlsClub #Costochondritis #Gastroparesis #InvisibleIllness #UlcerativeColitis #Health #Healthcare #SelfCare #ChronicIllness
So being tuneless was only for 24 hrs, but those 24 lovely long hours I embraced a fresh face! I could wash my face normally and I didn’t get caught up in my sleep. However I know have my little friend back 😂 #spoonie #sponnies #spoonielife #myfriend #itsback #fave #sad #hospital #london #tubie #fibromyalgia #ehlersdanlossyndrome #eds #Pots #chronicillness #chronicpain #gastroparesis #invisibleillness #warm #fibromyalgiapain #fibrofighter #happy #endoscopy #njtube #spoonie #fighter #hEDS #friends #spoonielife #eds3 #tubedependant #feedtubedependant #njtube
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