Big day in my fight with #BingeEatingDisorder
: 200 pounds! (factoid: binge eating is NOT good for a broken stomach.) my stomach feels better now that I eat properly for my diagnosis, but I still have problems with my stomach. (Just last week I needed to eat very little because of the rock in my stomach that wouldn't budge.) Looking healthy has nothing to do with being healthy. #chronicillness #ChronicIllnessFiles
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I hope y’all have a lovely day. If you like, you can comment down below about your day, good or bad. —————————————
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Also, instead of sitting in your bed on the phone, even if it’s a flare up, just look around and out your window, maybe even go outside.
Be well everybody,
#chronicillness #fibro #fibromyalgia #heds #spoonie #eds #me #zebrastrong #chronicpain #chronicfatigue #asthma #gastroparesis #complexregionalpainsyndrome #crps #posturalorthostatictachycardiasyndrome #pots #potsie #mentalhealth #positiveprescription #positivevibes #positiveaffirmations #positivity #bepositive #bekind #wheelchair
After all of the questions from yesterday’s story, I figured it is time for an awareness post! The white circle on the back of my arm is the sensor for the Freestyle Libre glucose monitor. Rather than poking my finger every five minutes, I can wave the little remote over the sensor to receive a glucose level reading. Each sensor lasts 10 days. Although I do not have diabetes, my conditions cause significant pancreatic involvement. This is a much easier tool to use during flares, providing I get through the next 10 day trial period to ensure my mast cells don’t wig out and have reactions to the needle that holds the sensor to my arm. 😊
Stuck in bed. Some days you just have to admit that you need rest. I’ll order some prime now that sounds drinkable or edible with my current stomach situation. As for this headache, I’ll order a little caffeine to help take the edge off. I had plans at 1pm, so hopefully she gets the message that me and my bed have fused for the day. I can’t give into anxiety and guilt. Our bodies are like machines, and if a car ran the way I currently feel? You definitely wouldn’t see anyone trying to drive it! #copingwithbehcets #autonomicneuropathy #neurobehcets #gastroparesis #migraine #chronicnausea
Reality at the moment , this is hard , I’m running on virtually nothing , everything I’ve fought the past year and all the victories are just being robbed from me , all this fighting for what ? My body is weak and tired and quitting would be easy at this point, I’ve been fainting a lot recently , like multiple times a day due to dehydration , my nutritional intake is really ridiculous and not improving no matter how hard I try my intestines aren’t agreeing with much in them at all , these illnesses are robbing me of my days , I don’t know how many more days I can sit back and let it take from me , I’m simply just surviving day to day and this is not a life , seeking for help but being failed by the National heath trust , going to keep my goals realistic and keep myself positive , it’s hard , all of this are hard but I’ve made it this far 🦓 #gastroparesis #intestinaldysmotility #smasyndrome #smas #dtp #gastroptosis #visceroptosis #eds #ehlersdanlossyndrome #zebra #zebrastrong #njtube #nhs
Yesterday morning I had my Gastric Stomach Emptying Study at U of M hospital. It was an all day ordeal. It took us over two hours to get there with traffic and construction.
Once there, I had to eat within 10 minutes radioactive eggs, toast, and a small amount of water. They then did a gamma X-RAY to have a start image. Then, every hour for 4 hours they did another image to see how fast or slow my body processed the eggs.
This is my 3rd gastric emptying study. My first one I emptied too fast, my second one, I emptied slow and was diagnosed with Gastroparesis. My current GI doctor said that is normal for that to happen, the body slows down and it gets worse.
I am nervous about the results because they used the Gamma X-RAY's instead of Cat Scans like my previous two tests. I was also standing for the images instead of laying down. I am anxious for the results. I see my doctor at U of M on the 28th next week to go over this test, my positive test result on the Hydrogen Breath Test I had, as well as my appointment with the nutrionist. We will then come up with a treatment plan.
Depending on the test results, I may end up in the hospital for him to do Botox injections in my stomach opening during an endoscopy to relax the stomach muscles to allow food to go down. Has any of my fellow Warriors had this done? If so, how did it work for you?
Trying to stay positive but I am really struggling lately without my hormones. I have been calling every single day to my doctors to get them. I am just going to go to my doctors before my iron infusion today and demand them. I am just so glad I am finally getting my iron after fighting for it for a month and calling my doctors office every single day for weeks straight.
#lupus #lupusawareness #lupuswarrior #lupussucks #fibrowarrior #autoimmunedisease #nocure #needacure #neurocardiogenicsyncope #dysautonomia #piccline #tpn #neurocardiogenicsycopesucks #bladderpacemaker #anemic #godisgood #godonmyside #bethechangeyouwanttoseeintheworld #positivepeople #gastroparesis #ibs #gerd #sibo #uofm #uofmichigan #gastricemptyingstudy #radioactiveeggs
didn’t realize no volume link in bio and below YouTube.This scene got me...the TRUTH...makes me remember what I got through when I was raped multiple times between 12-15...all by older 2 guys 18-24.
When this happened it mentally & emotionally damaged me for years! I felt filthy in my own skin, out of place & used as an object for sexual gratification...a vessel if you will. For years I coped by drinking heavily and heavier than the average high school kid to numb, thoughts I had to give guys what they wanted or I’d get hurt again.
I kept my secret to myself bc I was ashamed I let it happen to me...that I wasn’t strong enough to get out unscathed. I shut down and shut off just like these women describe.
I didn’t tell my mom I was raped until I was almost 21 in private tech college in 2009...when an incident brought every feeling I had back! A man much older than myself was in our dorm hall and he decided to come in my room bc he saw me earlier and pushed himself onto me aggressively forcing with hand on the back of my head hurting me with how tight...just reminded me of their hands forcing me...smothered and choked so I couldn’t breathe and he could control me. So I failed out of college.I drank heavier to the point of being sick for days, didn’t go to classes, didn’t study, slept, grades plummeted and lost any scholarships I had..moved back home to finish college. Went to therapists....
ALSO while in relationships (2 previous guys) was taken advantage of sexually while being so drunk (and on my scripts) that it was apparent there was NO CONSENT whatsoever! I couldn’t speak or move my body...all I could do was cry as these men who were supposed to love me hurt me by anally raping me...I laid there motionless, unable to speak, unable to scream, unable to move...I felt them push inside as streams of tears poured from my face...being grabbed aggressively and rammed till they were good and passed right out! I luckily faded in and out of what was happening....you can’t always control what happens in life but you can control how it makes you feel and your future...awareness and openness about how often it happens to people and you’d never know.
I am not defined by my circumstances. I want to take time today to tell you a little about my journey...
My health journey began more that 20+ years ago with extremely painful periods and migraines. Then, came the diagnosis of endometriosis. From there, gall stones and the removal of my gall bladder. Years later, the migraines intensified. Then, the stomach issues started. At first, the diagnosis of IBS. Later, came the diagnosis of Gastroparesis and SIBO. Then, Neurocardiogenic Syncope was thrown into the mix. Finally, a suggestion of Dysautonomia.
Did I tell anyone about what I was dealing with? No. Although it may have appeared that everything was fine on the surface, my body was really falling apart. Such is the life of a chronic illness warrior... a silent sufferer. Unless you traverse a similar journey, it is so difficult to understand. Your illness along with the countless doctors, medications, and treatment options start taking a toll on you. .
I began to think that this is who I was...my illness. So much of my life was consumed by it already. I was used to having more bad days than good. I was used to being in the bed more than being out of it. I was used to my husband and children taking care of household responsibilities because I did not feel up to it. I had reached the point where I was so tired of being sick and tired all of the time.
And then there is hope... something began to change for me and my mindset started to shift. I came to realize that my circumstances don't MAKE me who I am. Instead, they REVEAL who I am. The character that is within me. The warrior that has learned to fight. .
You can read more of my journey by visiting thehealingfromwithin.com
You can click the link in my bio above.
#chronicillness #migraines #IBS #SIBO #endometriosis #gastroparesis #neurocardiogenicsyncope #dysautonomia #chronicillnesswarrior #hope #character #circumstancesdontdefineme #thehealingfromwithin #healthandwellness #nurse #momoffive
BACK AT IT AGAIN!!!!! We finally made it to our happy place yesterday. After a long recovery I’m feeling practically back to normal. Aside from just some tightness in the chest a bit. I got to try out my smart drive finally and man was it life changing. @jainavanhorne
and I could finally stroll next to one another and hold hands. And that means so much to us both. I didn’t have to do any pushing, just grabbing the wheels to make turns. So, that’s immensely helpful to my recovery as to not stretch my scars. We didn’t stay for long cause I tired out really quickly, but it was still so worth it! Disney is always worth it with the positive mental impact it has on me. Atlas was.. a bit rusty. So, I realized now that I’m feeling better, I need to really get back into gear and take him out training. It’s not his fault he was in the house for almost 6 weeks aside from very small outings. I worked with him most of my recovery at the house, but as you know that’s not the same as in public. I’m not worried because everything is moving in a positive direction now that I’m more able. I’m excited to finally be back to life and do what I need to do!♿️🐾🙇🏻♂️
Anticipated risks with the TIF procedure include temporary discomforts such as sore throat, shoulder pain, difficulty swallowing, nausea, or vomiting. For more information regarding the risks associated with this procedure.
Happy Tuesday everyone!!! It’s so cool. For the second day in a row the Bible app on my phone shared another one of my favorite verses from my favorite book, Isaiah. Today it’s Isaiah 40:31. I find this Bible verse really inspiring and relatable. Even in the roughest times, when you feel like your life is ruined forever and nothing will ever go right, still have faith in God. I know some people don’t believe in God, and that’s certain people’s preferences, and that’s okay. For some people, though, keeping faith in God can help. If I didn’t have faith in God I wouldn’t have any strength or energy, I may not even be alive. Also, without God looking after my mom, brother, and I we don’t know where we’d be. I believe God is who helped me at family court yesterday. Lord, I am so grateful! It proves that if you have faith in God He won’t let you suffer forever. Stay strong everyone!!! I pray you all have a blessed and relaxing day!!! #tuesday #happytuesday #tuesdaymotivation #God #godbless #blessed #faith #grateful #Bible #bibleverse #warrior #abuse #mentalhealth #mentalillness #anxiety #depression #stress #illness #chronicillness #invisibleillness #ibs #ibd #gastritis #gastroparesis #spoonie #motivation #strength #staystrong
When you are having stomach and face spasms/twitching and dizziness, white kitty is there to doctor me up.
I’m going to try to make this as short as I can sorry if it’s super long 🤷🏻♀️. As a kid I was always sick complaining of a stomach ache or not being able to play like the other kids did, I simply didn’t have the energy. At that age I really couldn’t explain what I was feeling with my heart and my stomach, most people just thought I was being over dramatic or was being “lazy”. This happened for years, until about 9th grade my symptoms started to worsen. I was throwing up almost everyday if not atleast 3-4 days a week I was. No matter how many hours of sleep I was getting I was still so exhausted. This effected my ability to go to school or work, so by junior year I had to leave school and start online schooling. At this point I was working with multiple doctors who honestly were confused and starting to give up on me. I finally got an adult GI who in less then two months diagnosed me with Gastroparesis. Pretty much my vagus nerve which regulates the digestive system doesn’t work. So my stomach can not empty itself very easily, the muscles in my stomach don’t contract so it makes it very hard to eat. With gastroparesis you deal with awful nausea, vomiting, weight loss, embarrassing bloating, and more. So onto why I use weed now to help my illness, I began smoking about 4 years ago it started as something I liked to help my anxiety. Then as I began getting sicker I used it to help my nausea, I would smoke each time before I ate to help with the pain and nausea. Now currently I’m working with a good set of doctors to continue work with my heart, unfortunately Gastroparesis isn’t curable and most treatments aren’t safe. But as time goes on it’s becoming a part of my life that I just gotta deal with. Weed truly helps me so much I honestly don’t know how I’d eat without it. Sorry if this was so long it’s just a lot to explain. Hope everyone has a good day thanks if you actually read all this ❤️🤙🏻
#bongrips #girlswhosmoke #smokesociety #bongs #ganja #ganjagirls #stayhigh #420 #420girls #bongbeauties #weed #weedstagram #gastroparesis
I saw the gastroenterologist (finally) today. I was ready to fight for any tests or care I might need but the doctor was brilliant and super forthcoming with it all.
He said I have some sort of IBS for sure but there is probably something else in conjunction with that. I have problems all over my digestive system so he ordered a whole bunch of tests.
I'm going to have a gastric emptying study, barium swallow test, abdominal MRI, head MRI, colonoscopy, blood tests and will see a nutritionist. Hopefully this will rule some things out and/or find the cause. The main things we're concerned about right now are the possibility of gastroparesis, Crohn's or a prolactinoma, which is a tumor near the pituitary gland in the brain.
I was so relieved to finally be getting help with my digestive system in the hospital that I nearly started crying. I have had such sporadic testing to no avail so the idea of possibly finding some answers is huge and the doctor was so friendly and proactive.
I saw this awhile back and thought it was pretty funny😂 So anyway, I wanted to update y’all on some stuff happening right now! Yesterday I got a call from my surgeon’s office and the receptionist told me that the surgeon wanted to see me sooner than a month from now so he made some room for me in his schedule and I go in next Wednesday. Honestly that’s kind of scary...what does it mean when the surgeon doesn’t think you can wait very long, you know? Anyway, I’m trying to just stay calm and be positive! On a different note, G (my fiancé) is going today to take a test to move up the ranks in his line of work which is super exciting and I’m so proud of him! He’s honestly so wonderful and I’m very lucky! How are you guys doing? I hope you’re having a low pain day with lots of smiles!💜
“Quiet the mind and the soul will speak.” >>> Last night I woke up at 12:30am. TV was on, lights on, and I was in the confusion state of a bear waking from hibernation. Turns out I had fallen asleep mid-nighttime routine, with a lovely charcoal mask on my face. I’m so graceful these days😂. Needless to say, my body is in need of some quality rest + recovery. I think my schedule has been dictating me, rather than the other way around. I feel behind, like I’m constantly scrambling. Quiet moments like these bring me the most clarity and joy. They reset + recharge me. In a world full of go-go-go, I’m a rest-rest-rest.
Little man knows I'm not feeling great today so spent some time having cuddles. Best boy. We went to A&E yesterday as I've been unable to eat solid food at all and am very dehydrated as even water is hard to get down despite all of the antisickness medication I've had lately. Unfortunately they didn't take us seriously and refused to admit me or give me any fluids or even pain meds. Apparently my blood was fine so they didn't see me being unable to eat or drink as a problem! Despite the fact that I'm barely passing water (so from every half hour to two or three times in an entire day!). It's beyond frustrating. Unfortunately it could be up to six weeks by the time I have my gastroscopy, let alone another gastric emptying study. I'm at my wit's end!
#lokinemo #bsh #littleman #catsofinstagram #kitten #kittensofinstagram #eds #ehlersdanlossyndrome #gastroparesis #intestinalfailure
Morning😶 Last week I couldn’t even sit up, I had to roll sideways into an upright position and cried the whole time, it hurt so fucking bad just getting out of bed. Then I had to crank the AC so I could use my heating pad for a couple hours and burn the pain out of my body while my guts tried to make me puke food from the day before😑 If you’re feeling good, get out there and have a great day and celebrate your health!🏃♀️🍃 If you’re feeling bad and need help, ask, don’t be afraid to ask a friend for a hand. I do and they always come through and I will always be grateful🙏 #SickGirlsClub #Costochondritis #Gastroparesis #InvisibleIllness #UlcerativeColitis #Health #Healthcare #SelfCare #ChronicIllness