#eds

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How we hypermobiles may like to sit 😝 These are pictures of what NOT to do. Even though they may be really comfortable, it’s important not to sit like this as it could stretch our ligaments!
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I've got an appointment through for my cardiac MRI. It came through so quickly. They want to make sure what's going on with my heart. They found fluid on my heart and maybe some inflammation and other things. I'm so glad I have such a great specialist who is checking it!! Hopefully it comes back OK or the best it can! Has anyone else had this done? #chronicalyill #spoonie #hypothyroidism #asthma #gastroparesis #potsie #pots #eds #hypermobility #zebra #edswarrior #zebragirl #pain #chronicpainwarrior #cripplepunk #hsd #heart #mri
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#cannadifyi 💯💚 Good Monday morning. #WakeBakeAndMedicate #WakeAndBake Up and at it early on #MyMagicFarm . ... I slept for a record over seven hours last night only because I had enough medication to do a super entourage effect #EntourageEffect @entourage__extracts ... @ban_gieloves420 first I had @thecannabomb bath with a #joint #flower #bong I #dabbed before bed #bho but the kicker was three types of #rso ... Probably well over half a gram. ... More than seven hours sleep is I got over an hour of deep sleep which is just unheard of. The West said I would never get sleep (never mind deep sleep) again. Sleep studies are BS. Save your money and time. ... Oh how I’d like to get a room full of doctors together now and tell them all of my findings. Cannabis helps everything from sleep, depression, anxiety, symptoms with #MS #EDS #mthfr #CuresCancer etc .... #Cannabinoids #CannabinoidSystem We are human #50ShadesOfHuman We evolved with #Cannabis So #fuJeff #istandwithalexis
Belgjika mori tri pikët e para në Kupën e Botës pasi mposhti 3-0 Panamanë në ndeshjen e parë të grupit G. Një gol i mrekullueshëm nga Dries Mertens dhe dy gola nga Romelu Lukaku i dhanë fitoren e shumëpritur “Djajve të Kuq”. #eds #eduasportin #boterori2018
We love to see you satisfied! #dnn #dnncms #satisfiedcustomer #bestreview #eds www.easydnnsolutions.com/modules/easydnnnews/overview
Ed, you shouldn't have. 📷 : @davidwma
Touch is healing especially when you feel untouchable. Love bears all most certainly when we feel unlovable. Be present with those around you, life is hard sometimes... most of the time. We cannot imagine what those we love face on a regular basis or what battles they are fighting so love them up right... hold their hand and let them hold yours in return. #lovewins . . . #loveisalwaystheanswer #lovecures #mondaymusings #touchislife #lifeisjourney #lovewins #letsdothistogether #togetherisbetter #suicideawareness #eds #addisonsdisease #ehlersdanlossyndrome #chronicallyliving #spoonielife #livingwell #lovingwell #laughoften #lovewithoutalimit #bethechange #dontgiveuponme
Hurricane horses are out, Riley has replaced them as our new mascot 😍 . . . . . . . . . . . . .#servicedogintraining #eds #edsawareness #polestudio #poledancersofig #polefitness #poledancenation #unitedbypole #likeagirl #polefit #polesport #ripolespace
Let's talk about heat exhaustion and heat stroke☀️I know this isn't a fun topic, but especially during the summer months it's so important to talk about! Dogs can get overheated easily. They've got lots of fur and don't sweat, except through their pads. So if you have an active dog or working dog who is spending a lot of time outdoors, please take precautions! • Heat exhaustion occurs when your dog's body temperature rises to between 103 and 106 degrees Fahrenheit. Anything above that and you dog is at risk for heat stroke, so please call a vet. • Signs of heat exhaustion include heavy or excessive panting, pale or dry gums, less responsive to commands, glazed eyes, excessive drooling, dizziness, lack of coordination, lethargy, or exhaustion. If your dog's gums turn bright red or blue, they have seizures, have diarrhea or vomit, or lose consciousness, see a vet immediately. To cool down an overheating dog, get them into a cooler environment, preferably where there is AC, or take them for a swim in a pool or river where it is cool and safe. Otherwise, use cool cloths or a cooling coat and wet the dog's armpits, neck, between their hind legs, ears and paw pads. If they are willing to drink, provide cool, fresh water. Do not give ice cubes as that may lower the dog's body temperature too quickly and result in shock! If they will not drink, continue to wet the tongue, but do not force drink as it could end up in the lungs. • To prevent heat stroke if you have to be outside, use a cooling coat, find lots of shady areas for rests, give the dog breaks if they are wearing boots as dog's cool themselves down through their pads, and make sure the dog stays hydrated! If you have any concerns about your dog having heat exhaustion or if they reach the danger zone (above 106 degrees Fahrenheit), head to the nearest vet. • With Gnar being so active, we've had to be very careful about preventing heat stroke in the Florida heat! He wears his cooling coat anytime we head outside, drinks tons of water, and we are doing short bursts of activity frequently rather than long sessions to prevent overheating. Be safe and have a fun summer! ☀️🐳
I am a little late to post this because my awesome dad let Caitie and I miss the festivities at home to go to a concert on Father’s Day. My dad made so many pieces of my wedding possible. He helped engineer my brace to make it so he could take the weight of my leg with his hands so I could (with help) walk a little bit and even dance! We danced to unforgettable and it was just perfect as it is our song. In the second picture those were socks I gave him that day as a special momento. The third picture is him wheeling me most of the way down the aisle... then we both were emotional as I got up and fulfilled my dream of walking down the aisle. That dream came true because of you dad. That was all you. Thanks for officiating our vows and rings and for literally always helping me walk through life (and for wheeling me when I can’t.) I love you daddy 💛 #happyfathersday #iloveyoudaddy #fatherdaughterdance #wedding #ashleygreenphotography #livingthechronicillnesslife #livingthevow #amnesiawontwin #spoonie #finallyamrs #marriedlife . . . #rsd #crps #rsdcrps #rsdcrpsawareness #rsdcrps4acure #eds #ehlersdanlos #ehlersdanlossyndrome #edstype3 #dysautonomia #fallrisk #pots #potsie #lifestyle #lifestyleblog #blogger #blog #happiness
#Repost @dyssupport (@get_repost ) ・・・ P is for Pain. The A-Z of Elhers-Danlos Syndroms (#EDS ). These images were created by Sarah, she is sharing her passion for raising awareness for #ChronicIllness . #Ehlers #EDSAwareness Check out her website at: http://ow.ly/D3xD30kcAkd
#latergram It’s down to the last two weeks of the semester and it’s crunch time! When the semester is over I don’t get to make much stuff for a little while, but I guess I can focus on my other crafts. I haven’t been able to work on my other crafts lately (EDS flare-up) but I’m sure I’ll have much more time once class is over. I really need to buy my own wheel someday 😊😊😊
Moja mina rozwala system... Takie zadowolenie 😂😂💓 #Dance #love #happy #discodance #besttime #eds #meds
At the café after physiotherapy. I had to take my son with me today because school was closed but it went okay. My sacroiliac joint is permanently subluxated and my hip keeps subluxating. After the exercises I've been doing since my last physio appointment, my knee has improved. At the moment I'm trying to strengthen muscles to hold my joints together a bit better. I have new exercises to add to my routine and have also been referred to hydrotherapy. In a month, we'll see what the situation is and whether or not I need imaging done on my hips because there is a big lump on the back of my pelvis (probably the sacroiliac joint sticking out in the wrong direction).
Turn it UP! Fuck. OW. FUCK. Trying to keep smiling today, but I'd be lying if I said it wasn't a bit forced. Okay so it hurts a LOT today. Between my womb trying to tear itself to pieces, hips both tottering on the edge of sublaxing, my pelvis not liking being near each other, and my spin curvature aching, honestly I need ALL the heat. (That auto corrected as "head", just in case any of you need a laugh...) My morphine patch is on my right upper thigh at the moment, so I can focus the heat packs and hot water bottles with vague success. Sometimes, when endometriosis, EDS, fibro, and everything else combine, it really does feel that even submerging myself in lava wouldn't be hot enough. #pain #painflare #painsomnia #spoonie #spoonielife #spoons #spoontheory #chronicillness #chronicpain #chronicpainwarrior #lava #heatedblanket #heatpad #heat #painrelief #naturalpainrelief #ow #ouch #hotwaterbottle #elhersdanlossyndrome #fibromyalgia #endometriosis #fibro #EDS #endo #endometriosisawareness #fedup #flareday #painkillers #fire
Been for a walk, went to the park with my friend and her little boy and now back home resting with a bit of Aftersun. I needed to get out and have a move around but I feel like I'm gonna sleep well tonight! 😂  #invisibleillness #chronicillness #fixingfletchie #unchargeable   #spoonie #disabled #spooniesisterhood #thisgirlcan #EDS #ehlersdanlos #fibromyalgia #degenerativediscdisease #ddd #pain #chronicpain #fatigue #spondylosis #chronicillnessfighters #sciatica #butyoudontlooksick #hEDS #FragileButUnbreakable
Late post of this morning’s very early breakfast: Vanilla porridge topped with a banana and @wholeearthfoods almond butter. Lighting was a real challenge this morning because it was so early 😂
Dibuang sayang...xoxo Tetiba kamera dpn blur, eh di usap sm paksu lgsg kinclong. Crta nya paksu test kamera dpn, liat2 gallery nemu. Bustri nya malah update :) gpp lah ya sayang sesekali :* #cintahalalku #2011 #suamiku #EDS #menujusurgabersama #inshaalah 🙏
Foto para el recuerdo de hace unas semanas! Trabajando por segunda vez como asistente y 2do ingeniero en lo nuevo de @gepegepegepe Tremenda experiencia ! Abrazos tremendos a todos los cuculis !! . . #recording #eds #chile #musica #ssl #cuculistyle
Can't beat a bit of finger dislocation! Does anyone have any experience with ring splints? Pinky and pointer are big fans of dislocation so seriously considering getting splint rings to help with the hypermobility. Any input would be greatly appreciated 💗 #hypermobility #zebrasunite #eds #ehlersdanlossyndrome #dislocatedfinger #dislocation #ringsplints #chronicallyill #chronicillness #chronicallyfabulous #chronicpain #spoonielife #spooniesisterhood #spooniestrong #chronicloveclub
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Sleep tests from night 8 pm till 6 pm today and than today night 8 pm till 11 am on the next day. Sexy isn't it? They are 4 tests during the day: sleep for 30 min😴 than wake up and wait than again sleeping for 30 min😴...4 times. Welcome dizziness! So I hope I get a diagnosis and help without judging me! . . @ehlers.danlos @ehlersdanlosuk @ehlers.danlos.syndrome . . #chronicillness #chronicfatigue #chronicpain #invisibleillness #invisibledisability #spoonie #spoonielife #spooniefamily #spooniestrong #POTS #TMJ #HSD #eds #heds #MCAS #mastcell #gastroparesis #dysautonomia #hypermobility #ehlersdanlos  #zebrastrong #ehlersdanlossyndrome #dontjudgeaperson #dontjudge #alwaysfighting #mylife #butyoudontlooksick #spinalfusion #fightlikeawarrior #chroniczebra
#4thsyawal Sebab tak pergi mana2, kasi post satu kali lagi gambar budak tak banyak ragam ni ... 👧 #EDS #Delisha #mygoodcompanion #budakpandaipose #kidstalent
Pan-fried shrimp with rice, salad is grapefruit, cucumber, and greens with homemade sesame dressing. Not a recipe for anyone with a histamine intolerance!!! Stay away from the citrus, shellfish, and vinegars if you're trying to stick to a low histamine diet. Also, I make a lot of my marinades and salad dressings and things with soy sauce, so if you're trying a gluten free diet, make sure to buy soy sauce that is labeled gluten free. . . . . . #glutenfree #glutenfreerecipes #glutenfreeliving #lowfodmap #lowfodmapdiet #fodmapfriendly #cooking #diet #eliminationdiet #pots #posturalorthostatictachycardiasyndrome #dysautonomia #eds #ehlersdanlossyndrome #mastcellactivationsyndrome #mcas #dysautonomia #dysautonomiaawareness
Cardio today so I did Clean Week, didn't want to go crazy as very sore, stiff and tired from the big trip! Beardyface is happy to be back in his own bed after a weekend at the holiday camp for dogs aka the kennels 🤣😊. #workout #cardio #cleanweek #beachbody #spoonie #chronicillness #chronicfatigue #hypermobility #hypermobilitysyndrome #gettingfitter #gettingstronger #plussizefitness #HAES #zebrastrong #chronicfighter #fitfam #noexcuses #noexcusemoms #deathfat #eds #ehlersdanlos #edsathletes #sizeacceptance #fatacceptance #nofatshaming #fatshamingharms #schnauzer
Someone decided to hitch a ride on my lap around the zoo; of course no outing can ever be simple and on arriving we realised my front right wheel had a puncture and deflated. Luckily the amazing people at @zsllondonzoo inflated it for us and it held pretty much for the rest of the day! #whathomeschoolinglookslike #whatunschoolinglookslike #homeschooldays #homeschool #homeschooling #homeed #eds #ehlersdanlosawareness #ehlersdanlossyndrome #wheelie #wheelybrits
💖🌟Another day, another bed selfie! This time post travel back from Mums, and an afternoon hospital appointment #shattered Lovely time in Somerset with my Mum. Glad to have the Boyf home now though 💖😘 #naptime #selfie #sleepy #wornout #smile #hospital #home #recovery #selflovebootcamp #selfloveisthebestlove #selfcare #selflove #behappy #bekind #bopo #bodypositive #bodypositivity #effyourbeautystandards #bodyacceptance #bodyconfidence #disabledandcute #disabled #disability #invisibleillnessawareness #eds #awareness
Chronic illness real time. What having a rough morning looks like. I made it from the bed to the sunroom, sunglasses on my head cause my eyes feel 'weird' at times (bright, not focusing right), it's 71 degrees and I have a hoodie cause warmth seems to sooth my achy joints. I'm dizzy, nauseous, weak and tingly. But I transported myself and put out some wildlife feed so I can get some air and watch the squirrels dig holes in our yard. 😝 Gotta hold onto the little comforts when you're not feeling good. ❤️ . . . #dysautonomia #POTS #posturalorthostatictachycardiasyndrome #eds #ehlersdanlossyndrome #health #healthissues #chronicillness #invisibleillness #chronicallyhopeful #chronicallyfabulous #chronicallyliving #life #spoonie #selfie #nofilter #notfeelinggood #nomakeup #dizziness #weakness #fatigue #migraine #pjs #real #open #honest
Bone density test for #TeenZebra who is almost too big for the table (6'0"). Quick in and out...shouldnt need another until shes about my age. #ehlersdanlossyndrome #EDS #ClassicEhlersDanlos #ClassicEDS #ZebraStrong
Being genuine and authentic can be really hard. It’s so easy to present the positive but leave out the negative in fear of being rejected, misunderstood or judged. . When I posted earlier I left out a few things like how my amazing meal out had reacted really badly with my gut and I’d ended up unwell of the rest of the evening and even today. I also failed to mention the raft of emotions that comes along with this set back. . . Like why do I have to put up with this? Why can’t I be normal? Why is my body so difficult? 😔 How all I want is to drink cocktails and eat cake. But instead I’m stuck between being unwell and a strict (no fun) diet. . . I try to be positive. So here I am today, picking up the pieces, taking my pain relief, eating simply, listening to personal development (mastering your mean girl by @melissaambrosini ) and meditating 🧘‍♀️. . . I guess what I’m trying to say is, it’s ok to feel sad, to feel frustrated and discouraged. Just try your best, silence that inner mean girl and show yourself some self care and self love 💖. . . #reflection #selflove #selfcare #innermeangirl #meditation #mindfulness #authenticity #chronicillness #chronicpain #posturalorthostatictachycardia #ehlersdanlossyndrome #eds #mcas #myownworstcritic #smallchanges #roadtorecovery #daybyday #bekindtoyourself #bekindtooneanother
A new blog post is up today!🙌🏻 It’s a little bit silly, a little bit serious, but 100% honest. The link is in my bio! 😁💚 Committing to plans isn’t always possible with a chronic illness. It may seem manageable on a low-symptom day, but there’s a good chance that might not be the case the day of. In the blog post, I talk about the different reasons why I cancel plans because I don’t *always* use them when I’m explaining I can’t make it to someone. Sometimes saying “something came up” is easier than drawing attention to my illness.🤷🏻‍♀️
Here’s another great movement to help the blood pump back up the legs after long periods of sitting and travel stress on the body. It’s often prescribed for tight calf muscles, Achilles’ tendon issues or plantar fasciitis. I also use it for ankle and foot strength for hypermobility. It’s really important when trying this exercise that you don’t collapse into the heels. Try not to let gravity pull you down but rather control the speed slowly. That’s the way to build strength and resilience as opposed to strain. I aim for ten reps. Always use the bottom step and always hold on. #nopainnostrain . . . . . . . . #pilates #hypermobility #eds #ehlersdanlossyndrome #POTs #pilatesforhypermobility #exercise #stress #footstrength
Does anyone else wake up stressed for no particular reason? I woke up today and felt all moody and tired and fed up. Not helped by an early morning start to have a shower and get dressed before the decorators turned up. Then the hammering and drilling started . . . It felt like it was happening to my head rather than whatever it is they were banging! 🔨🤨. So I took myself here. And it was the best thing I could have done. Calm, relaxing, peaceful. I haven’t got any medical appointments this week, which is rare. So I’m going to try and relax interspersed with some work that I need to do. It’s all about self-care. Sometimes that’s a walk in the park, others times it’s having a favourite cup of tea or sitting in the garden with a novel. Hope you can get some self-care in this week too. . #fibromyalgia #fibro #pots #posturalorthostatictachycardiasyndrome #dysautonomia #autonomic #eds #ehlersdanlos #ehlersdanlossyndrome #hypermobility #headache #migraine #vertigo #vestibular #mcas #mcad #mastcellactivationdisorder #raynauds #ic #interstitialcystitis #invisibleillness #chronicpain #chronicfatigue #chronicillness #spoonie #kewgardens #rose #roses #nature
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What a week it is going to be! Garret Siler Basketball camp is underway and we have our Edible Garden camp at Flowing Wells! #EDS #SummerCamp #Basketball #EdibleGarden
My new GI doc is wonderful! This is my 2nd appt with him. He spent over 30 minutes with me talking about my symptoms and what we can do to help. There aren't many doctors like that anymore. I'm so thankful he is a local doctor. One less specialist that I have to travel to see 💗💗💗 #motilityissues #nausea #opiodinducedconstipation #constipation #jawsurgery #recovery #stillblessed #EDS #MCAS #chronicpainwarrior #chronic #fibromyalgia #IBS #GHSD #hypoglycemia #voiceboxtremor #DDD #degenerativediscdisease #arthritis #spoonie #nomorespoons #bobblehead #occulttetheredcord #ichoosejoy #zebrastrong
Do the best you can and show up. You have a choice. I could just have easily stayed in the bed each morning knowing I can’t push myself like I use to or I can get up and do something that is modified and not as intense. I choose to show up for my #530fitclub and modify my workouts. I am not ashamed I have to drop it down a notch. The weights have to stay on the shelf and the bands came off the hook into my hands starting today. I still will get results with the modification of my new program watch and see. #modification #mondaymotivation #nevermissamonday #choice #resistancebands #homeworkout #showup #nike #justdoit #liift4 #eds #lilfitmom #fitmomover40 #momswholift #iamworthy #NoExcuses #LoveEmpowerInspirethroughFitness
P is for Pain. The A-Z of Elhers-Danlos Syndroms (#EDS ). These images were created by Sarah, she is sharing her passion for raising awareness for #ChronicIllness . #Ehlers #EDSAwareness Check out her website at: http://ow.ly/D3xD30kcAkd
woke up with the WORST stomach pain at like 5AM it's a little better now and I've managed some food too. my little baby is keeping me company 💜 #spoonie #chronicillness #gastroparesis #pots #eds #invisibleillness
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