:: Why Do I Exercise? :: 💪🏾🤷🏽♀️🏋🏾♀️
Exercise is supposed to be an important part of a healthy lifestyle. However, daily exercise isn't an easy task when living with chronic illness. Personally I have always enjoyed fitness as a hobby, but had to re-evaluate the reality of my physical limitations when trying to make exercise a daily task. I currently workout as often as my schedule and health permits. ⏱🚴🏾♀️
About a year ago, I decided I wanted to challenge myself to workout more often. Before that I had... 👩🏾💻Read the Full Post on My Blog, EireneMagnolia.wordpress.com
Winston loves walking on campus because people say he’s cute and stop to give him pets and kisses. Such a ham. #lookatthatface
I am Esther and I’m 14. I have AMPS, CRPS, Scoliosis, IBS, POTS and Endosteal Hyperostosis. Sports used to be my life until I got hit head-on with chronic pain for the first time when I was nine. I began having symptoms in my knee that wouldn’t go away for weeks at a time, and so forth, and then a little later, in between my ribs started to get a terrible pain as well that would last for a week and the only way to get little relief was a back brace. Now in constant pain five years later, my condition is much worse and barely anything brings relief anymore. But I’m not giving up just yet. When I fell into deep depression about a year ago, it felt like I had nothing going for me and that my life was pointless. During that time, I found music, like twenty one pilots, babyblu (specifically carsick), Logic and many more that kept me here and helped me keep going. They’ve helped me grow as a person and learn how to ask for help and to deal with my emotions. I am happy with where I am at the moment, and I hope I don’t move. I look up to people like Tyler Joseph because he stays true to his beliefs, and I look up to Madi as well. She will always be an inspiration to me. I hope she will be to you as well ❤️ (And I live in Thornton Colorado so dm me if we’re close!) #superspoonie #inspiringspoonie
Three new #lectinfreeideas
to try this week:
1. Salmon, Red Onion, & Fennel Roast
2. Thai Cabbage Foodle Bowls
3. Slow Cooker Rosemary Rack of Lamb
Get the recipes at the link in my bio. Have a great #plantparadox
week, everyone :) 🌱🥑🥗
I’m so excited to represent Arizona State University.
This school has given me the opportunity to finish my degree, despite the challenges I faced these past few years.
I was so disheartened when I had to move back home due to illness, from Los Angeles, where I was attending college and in a beautiful sorority.
I remember thinking to myself, this can’t be the end of my academic career. It can’t end like this.
And it didn’t end.
God opened up an incredible opportunity where I could finish my Bachelor’s of Science degree online.
I’m going to be attending my pre med labs in person at a community college soon, but I am so excited that I am so much closer to finishing with a degree.
Because ASU offers online degrees, I was able to do treatment full time and still work towards my degree.
I’m so grateful that technology and education have intertwined into something powerful for our futures.
The longer I attend this school, the better of an experience it gets for me.
I’ve struggled for sure with normal challenges like every other student, but I’ve been able to combat each struggle and overcome each one because of the opportunities I gain from ASU.
And now because of my experience, I am an ASU online ambassador.
It’s so surreal to think my academic life transformed completely into something beautiful, prosperous and meaningful. @asuonline
It’s been a minute since I’ve posted anything in relation to my chronic illnesses— partly because I don’t like to dwell on them, and partly because it can be a “downer” for everyone else. But lately, the pain has been excruciating and I’ve been daydreaming of brighter days. I’ve trained myself to smile through it and not let it show when I am unwell, but if you truly know me, you can see it in my eyes. My POTs (Dysautonomia), Fibromyalgia, and Endometriosis have all been flaring and the immense agony is demanding my attention. So, I will acknowledge the pain and allow myself to feel it. But under no circumstances will I let it overtake me. Still, it has an affect on every aspect of my life, and I ask that you all be gentle with me as I am constantly learning to be gentle with myself. 💛 #spoonie #chronicillness #pots #dysautonomia #endometriosis #fibromyalgia #autoimmune #warrior #cantstopwontstop
What an inspirational story! I truly believe that with hard work, dedication, self-confidence, and perseverance anyone can do anything their heart desires. A lot of the times we get in our own way due to self-doubt and negativity. We can truly do anything we want if we truly want it. My professor told my class that if we really want something and we fail the first time, and the second time, and the third time, we will continue to try until will get it no matter how long it takes. Don’t let yourself get in the way of greatness. #inspiration #spoonie #pots #dysautonomia #perserverance #invisibleillness #strength #struggles #life #spoonielife #autoimmunedisease #Repost @doctor.zg
Dr. Ted Rummel, an orthopedic surgeon in O'Fallon, Missouri, was suddenly paralyzed in 2010. He lost his ability to walk or stand when a blood-filled cyst on his spine burst in. A year of intense rehabilitation later, he was back in the operating room. Dr. Rummel even overcame the hindrance of sitting as he worked by utilizing an ingenious stand-up wheel chair. Now, the tenacious orthopedic surgeon can do virtually everything in the OR he previously could and maintains his physical strength with daily exercise and his emotional strength thanks to a deeply devoted family!
Sometimes I feel bad for not being able to do more with my daughter — take her on more outings, do more exciting activities, show her more new things. But I have to remind myself that she’s 2 years old (well 3 in June). 2! The whole world is exciting! Even just a fire truck going by...something I’m so used to I don’t even notice...makes her face light up with excitement.
Not to mention, we DO cool things when I can manage, but I’ve set my bar as a mom way too high and I don’t give myself enough credit. What I’m trying to do lately, is be more creative and spontaneous instead of feeling like her experiences need to be these big, planned outings that I can rarely manage.
Today I didn’t feel great while we were running errands and kinda wanted to just get home, but as we walked to the car, we passed by the door of PetSmart and I thought, “you know what? I bet she’d love to see some lizards, guinea pigs, birds and fishies!” I haven’t been in there in years, since we don’t own any pets (not allowed in our apartment building). She was thrilled with our little 10-minute visit!
We all need to protect our physical, mental, and spiritual health with boundaries. People-pleasing turns into resentment. 👆🏼 [Image description: small black text in the middle of a plain white background that says “Saying no isn't mean or selfish, it's essential. I cannot do everything a healthy person can, and that's okay. If I try to then my body will experience the consequences. If I do something purely out of obligation or guilt, then I will experience resentment and this will ensure that I won't be giving with the right spirit.“ Belowthat there is a small black line and underneath that it says @strongerthanpots
in a small, capitalized font. Below that there is a small watercolour pink flower.]
I take all my Meds the way I’m supposed to. In fact, I’m SUPER RESERVED at how I take my panic attack medication.
This is both good and bad. It’s great that I am not building up a dependence. However, I put my mind and body through a lot of extra stress because I beat myself up if I need to take one. I take so many other medicines for medical conditions that I just get tired of medication.
I’ve also been taking CBD oil for a few months. I have to say it has helped. But, with anything in life, you do have bad days or weeks. ( i’m also on the lowest possible dose at the moment because I started so tiny because of pharmaceuticals. I think things will get better as I continue to up my dose each month but the cost is astronomical ) 🙏🏻
I am trying everything within my power to get better. That’s why, when the issue of the service dog came up with my psychiatrist, I was on board. I never knew the cost. I went through several foundations, private people, prayers, etc. before I found this one lady and trainer that discounts it so much.
I’m usually the person everyone goes to for help. I love that.The TBI happened and we realized that the brain bleed was actually in the area of the fight or flight area which causes me some more dysautonomia issues as well as other issues such as seizure activity.
I’ve been thinking of starting a new YouTube channel chronicling daily issues with chronic physical illness as well as panic disorder and agoraphobia. Do you think it’s a good idea? Do you think anyone would be interested in seeing what I do want to daily basis? Thank you @aubreys.lyme.journey @watercolor_me_impressed
for inspiration 🙏🏻
( go fund me link in bio )
#gofundme #gofundmedonations #gofundmecampaign #gofundmeplease #servicedogprospect #ptsd #lupusflare #dysautonomia #potssyndrome #agoraphobia #agoraphobic #anxietyqueen #anxiouslywaiting #cbdoil #legalizemmj #emdrtherapy #chronicillnesswarrior #invisibleillness #panicattack #gastroparesis
Saw this great post on @hopeinlyme
I get a lot of people asking me what “spoonie” means so I thought this was a great post.
I usually spend my spoons on basic hygiene, taking my medications and figuring out food. On a good day I use my extra spoons to cook my own food, walk my dogs and do infrared saunas. .
How do you guys use your spoons?? 💚 🥄
There are friends that are there for you, and when you’re really lucky 🍀 there are friends that make sure you dont have to do scary things alone. Yesterday my girl and I had an access issue. While this wasn’t our first, this one cut pretty deep because it was at our church. We’re hoping it was just a misunderstanding, but because of separation of church and state, the church can make any rule they want about where I’m allowed. That isn’t the point though, There are many times people question my girl about needing me because she doesn’t look sick, the stress of proving my medical need can actually trigger dysautonomia symptoms for my girl. We try to promote service dogs and educate whenever we can but sometimes it can wear on you. After hearing about our unpleasant encounter yesterday our friend, fellow potsie and service dog handler @chronicallypersevering
, texted us this morning and told us to get ready because we were going out. It’s easy to want to hide from the world especially when it doesn’t seem to be an understanding place, but it’s also important to have the support system that says “I know it hasn’t been easy lately but I’m going to help you face today.” I don’t like what she has to go through to know what my girl is going through but I thank god they’re not going through it alone. #chronicillness #chronicmigraine #chronicfriends #workingdog #servicedog #turn6into15 #dysautonomia #pots #goldendoodle #friendship #strengthinnumbers
Piper: Undiagnosed~ not diagnosed or having been subject to diagnosis. On medical Mondays so far we have talked about a few of my girl’s chronic illnesses, but today we thought we would talk about something many people with chronic illness face: being undiagnosed. It’s the phase that you go through or are stuck in until you are diagnosed. This phase can vary in length between days, months, and years depending on the person. When you are diagnosed you know what you are up against and have an idea of what should be done, but when you are undiagnosed there is none of that. There are no facts to be learned or treatments to consider. Being chronically undiagnosed has been a theme in my girl’s life. It took years for my girl to find doctors that were knowledgeable in her disorders and still there are symptoms that don’t fit. For this reason although my girl has been diagnosed with many of her chronic illnesses, her doctors believe that there are still more to be discovered. All of the specialists, tests, procedures, emergency room visits, medication trials, and dead ends can be frustrating. While being chronically undiagnosed my girl found two things that made a big difference: being your own biggest advocate and having a great primary care doctor. It is so important to have a primary care doctor who thinks out of the box, coordinates between doctors, and is actively working to improve your health. Having someone on your medical team that you can rely on to fight for you is priceless and at the end of the day will lead to you finding the help you need sooner. It is always important to be your own biggest advocate, but having a helping hand on your team can make a big difference. To all of the chronically undiagnosed: It may seem like an endless lonely journey, but you are not alone. You are seen, heard, loved, and we are routing for you! #servicepuppiper #opietheservicedog #servicedogintraining #vizsla #vizslapuppy #wirehairedvizsla #undiagnosed
I have seen death.
I have known it.
In the lifelong absence of my mother.
In the emptiness that hung, heavy, in the corners of our house, in the crevices of my heart.
In the final stillness of my father; his once Goliath spirit still kicking at the shell of a body that betrayed him.
In the loss of others I have loved, whose last embrace I feel imprinted on my skin.
I have seen death. We are acquainted. But with all my ailments, we have never made peace.
My body still subtlely recoils at the sight of a funeral procession, the ghostly headlights, assaulting, not making any sense in the daytime hour. I avert my gaze, pretending not to see, as I turn the station and distract with the morning news. A nearby church, with its constant parade of black, and steely, stolid hearse encamped at the curb,
seems all too eager to call its flock home. I always hurry by, anxious to leave it in my rearview.
But today, as I passed that church, one of infinite sprints to the hospital, pleading with my heart to gift me that next breath, I paused. There was the hearse; I stared–a showdown–and did not look away.
Today, it looked more peaceful chariot, less implacable spectre. A final ride to a place where I could finally be free. No struggle. No fear. No fighting. No tears. No futile efforts unrewarded. No need for courage.
I squeeze every drop of joy out of every moment allowed me and I will fight for every breath in me every day on this Earth.
I crave life and all its unearthed splendor and infinite magic more than any ill-managed words could ever describe. But if this broken body and oh-so-tired heart should whisper, "It's time," perhaps my screaming lungs and fighting spirit will calmly relent, and drift with open arms into that place where I may finally waive the white, tattered flag of surrender.
#repost #illness #fear #disability #lyme #asthma #chronicillness #grief #exhaustion #despair #pots #eds #ehlersdanlos #loss #home #mastcelldisease #autoimmune #meditation #functionalmedicine #holistic #spoonie #desolation #histamine #hope #mastcell #dysautonomia #suffocation #millionsmissing #breathe #peace
I am clinging to our Lord Jesus as I learn how to live out my faith. Allowing Him to step in and rescue me today and daily. Versus letting fear win (in today's choices).
How will I acknowledge people in real human interaction? And reach out?How will I surrender all, as I take steps done out of faith?
It is all about the power of God and His abilities. It isn't about my own abilities, but what God is wanting to and able to do in and through me, as I step out in faith - trusting the Lord far more than I trust myself.
The God I know is- worthy of trusting and surrendering. So as the song goes, "All to Jesus, I surrender all."
#PowerofGod #Trust #Faith #Dysautonomia #POTS #Fibro #ComfortZone #Anxiety #Surrender #Hymn #Hope #Bible #God
It is well with my soul. Whew y'all today was something else. My throat still hurts something gnarly and nothing is helping except constantly having cough drops in my mouth and even that doesn't give me much relief. I finally gave in and decided to go to a minute clinic, but the closest one to me was a 40 min drive away. So, I hopped in the car with @sophiae.howard
(bc she's a good friend and I didn't wanna go alone) and drove. When we got there it was about 1:13 and I started the little sign in process they have. Shortly after, a lady came out and said they don't take anyone within 20 min before their lunch break but I could come back in an hour and a half if i wanted to. This was incredibly inconvenient and not doable for us so we just turned right around and drove back home. I drank tea, took meds, tried essential oils, the whole nine yards but nothing. I forgot how to read time as well and went to pick up Nicole an hour before she was actually done with school. Then I got my oil changed bc my engine light came on and scared me crazy. Even though this day was kind of a mess, I'm okay. It's nice to be able to go through the weird moments and inconviences of life knowing that there is imeasureable joy up ahead. I can't imagine what God has planned for me, but I do know that today it was a lesson in patience and calmness during calamity. It is well with my soul.
Image description: Abby standing in front of tall grass. She's smiling wide. She's wearing a dark green shirt that says "it is well with my soul" on it and she has a gray baseball cap on backwards. .
shirt with her hair in a bun.
#eds #ehlersdanlos #ehlersdanlossyndrome #chronicillness #chronicallyill #spoonie #rsd #crps #reflexsympatheticdystrophy #POTS #POTsie #tachycardia #pain #disabled #disability #edstype3 #dysautonomia #edsawareness #EDSZebra #migraines #chronicfatigue #chronicpain #100InvisibleDays #wheelchairuser
Lab work day. My veins & blood didn’t want to participate, but we got it done. Hoping the results pinpoint the reason for feeling worse than usual lately. We have a good idea though. 🤕 more than ready to be moving forward.