#dsdn

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Big brothers be like ....
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Oh man!!! Tank, you are getting so close to crawling. I see the determination all over your face. Have I mentioned the wee man is working on standing too?? He is a waze off still, but has gotten much stronger lately. Sitting... well, that's for another day. Still not a fan of that one. Its ok Tank, we're on your timeline.
One of the many fun things about Down syndrome - we meet other amazing families. Gigi, her sisters, and I got to spend time with our New York Ds family today; some fantastic moms and kids we've gotten to know and love. #dsdn #upsyndrome #nothingdownaboutit #theluckyfew #newyorkcity #trisomy21 #downsyndromeawareness #downsyndromelove
Family selfie ๐Ÿคณ๐Ÿฝ
3: NICU. The next few days were a blur. The nurses maintained an encouraging attitude, and maybe we were naive, but it really did feel like any moment they were going to release her from the NICU and into our waiting arms. Then the nights would come, and without fail, weโ€™d be woken from our brief moment of rest with a serious medical decision to face. โ€œWe need your consentโ€, โ€œthe risks are great, but we believe the benefits outweigh them.โ€ And what do you do with that at 1 AM following the hardest days of your life?! You sign the papers and proceed to fall apart the second the doctor leaves the room. The tubes increased in number, more medications were added, she was sedated, then intubated. Each moment brought new treatments, and less access to our baby. But on the fourth day, during daily rounds, the doctor causally uttered a phrase that I hadnโ€™t realized I was desperately needing to hear all along, โ€œsheโ€™s going to be ok...โ€ and even though he followed that up with, โ€œI just canโ€™t say whenโ€, I felt like I could breathe again. Though to be honest, until that moment I was deliriously unaware how paralyzed in fear I had been. - #estellesbirthdaycountdown -
Were you wondering how four point crawling is going? I figured so. ๐Ÿ˜‰ Regan is getting better and faster! Still uses her belly crawl primarily but we are seeing this crawl more often! Go BRV girl! ๐Ÿ™Œ๐Ÿป
Me: smile! Her: ๐Ÿ˜ #warriorprincess #mommyandme #itried ๐Ÿ˜…
May be time for a hair cut... #madscientist
โ€œI hope you never fear those mountains in the distance. Never settle for the path of least resistance... And when you get the choice to sit it out or dance, I hope you dance.โ€
Hay un sentimiento en nuestro corazรณn que no todo el mundo puede sentir es un sentimiento distinto al resto es mas fuerte mas profundo y solo algunas personas tenemos la gran suerte de poder sentirlo๐Ÿ’–๐Ÿ’–๐Ÿ’– #sindromededowncatalunya #sรญndromededown #sindromededown #trisomia21 #trisomy21 #t21 #cromosoma21 #extracromosoma #downrightperfect #downsyndromeawareness #downsindromelove #dowmaddicts #dsdn #capacidadesdiferentes #inclusion
Have a rockin' weekend! ๐Ÿ’›๐Ÿ’™ Repost from @saaabbii. Tag your pictures with #dsdn for the chance to be featured. #downsyndrome #downsyndromeawareness #downsyndromeisbeautiful
The face when you find out youโ€™re going to see Daniel Tiger live on tour. #warriorprincess #itslit #danieltiger #tfw
Everywhere we go people gravitate toward this child. Today at the grocery store so many people stopped shopping to say hi, wave, and try to get him to talk to them ๐Ÿ˜… he is the most popular nugget ๐Ÿ˜Š
***FOOD POST*** Finally a good food day ๐Ÿ˜ one of Ameliaโ€™s little teeth have decided to finally pop through so hoping this means sheโ€™ll be better with food now ๐Ÿคž๐Ÿผ Breakfast was weetabix with cinnamon. Lunch was yesterdayโ€™s left over sweet potato and broccoli with soft cheese. Dinner was a mixture. Sweet potato. Some French stick with butter. Taster of coleslaw. A few cocktail sausages and the pastry off a sausage roll. #weaning #babyweaning #blw #babyledweaning #babyfood #babyblog #instababy #babyspam #downsyndromeawareness #downsyndromeblog #mumsofinstagram #motherhood #childhoodunplugged #lifewithds #theluckyfew #dsdn #changingthefaceofbeauty #xtra21 #bornthisway #baby #babygirl #firstbaby #instababy #blog #blogging #instablogging #mumblog #mumblogging #pbloggeruk #ukparentingblog #daughtergoals
A HUGE THANK YOU to everyone who donated, and who came to walk! Zoeโ€™s squad ended up being in the top 10 for fundraising , #7 to be exact!!! We are so blessed that Zoe has all of you behind her & we love every single one of you!!! Next year we need to get a team pic before everyone leaves!!! #bestbuddiespittsburgh #teamzoe #family #alilsomethingextra #changingthefaceofbeauty #downsyndromerocks #dsdn #theluckyfew #inclusion #downsyndromeawareness
๐ŸŒˆ HAPPY CLOTHES ๐ŸŒˆ Francesca modelling her rainbow leggings.
The term for Lucy that gets thrown around a lot by her doctors and therapists is โ€œmedically complexโ€ kiddo. Raise your hand ๐Ÿ™‹โ€โ™€๏ธ if you find yourself hearing this phrase constantly...? If you do, my heart goes out to you. You are not alone! We currently see 12 specialists for Lucy, yes 12, and are currently in the process of getting more. MORE?.... yup, more. As our doctor appointments seem to be increasing instead of decreasing (like everyone told me they would) I canโ€™t help but complain. But then days like today hit me where I see this sweet girl a million miles ahead of where we were last year, and I know that without all of the HARD Lucy would not be laying next to her sister on a blanket with the cutest little profile ever (but really though look at that cute little face) โค๏ธ. Iโ€™m grateful for the sweet little reminders Lucy brings to my life everyday. Reminders to find joy, be happy, and know that life is good. Iโ€™m so glad you chose to be in our family Lucy bug! I hope this post brings someone out there a little bit of Lucy Joy! ๐Ÿ’— #behappy #downsyndrome #downsyndromeawareness #joubertsyndrome #downsyndromelove #nothingdownaboutit #congenitalheartdefect #openheartsurgery #zipperclub #heartwarrior #sleepapnea #lowmuscletone #t21 #trisomy21 #theluckyfew #dsdn #upsyndrome #changingthefaceofbeauty #bilateralhearingloss #hearingaids #downmagazine #upwithdown
I should lie to you and tell this is a Greek yogurt mustache, but let's be honest - it's blue cheese dressing. #mediocreparenting . #momlife #lunchtime #rockinmom #momblogger #downsyndrome #dsdn #lifewithDS #lifeisbetterwithyou
So. Today is surprisingly, and unexpectedly momentous. Scott has a quick errand to run... Stella usually goes with for some daddy/daughter shenanigans. Today is different. Clara just left with them... as they drove away, i realized it is the first time that Clara has gone in a car without ME. EVER. Obviously, we leave her for a few hours here and there with our great support team... but I have actually not been in our house without her since she came home from NICU nearly two and a half years ago. This isnt because Scott isnt fantastic and capable... its just because. I dont think many people realize how our world revolves around her... and how tethered she and I are. I think sometimes I dont even realize it. Its easy to brush that aside because she so stinking cute... and she does such amazing things... and we are so incredibly busy as a family. But I am taken aback today. Im taken aback by how my life has changed and the entirely different path I am now on as a parent of a medically complex child with special needs. Q I love my peanut. I love who she is and the amazing things she does. I love how she LOVES. I cant deny I hate her struggles and I hate that things are hard for her. BUT, they are a huge part of what makes her HER... and what makes us US. So... daddy/daughter shenanigans are so much more than a quick trip to Menards today. ๐Ÿ’™๐Ÿ’›๐Ÿ’™๐Ÿ’› #claraviolet #tinyfighter #stellarobert #FOURreal #downsyndromerocks #downsyndromeawareness #downsyndromelove #kickinghirschsprungsass #morealikethandifferent #theluckyfew #dsdn #nothingdownorg #2018Ambassadors @claraandcutler
Addi got Her first medal today, and her 2nd 5k in the books with #iowadonornetwork #green5k . ๐Ÿƒโ€โ™€๏ธ๐Ÿƒโ€โ™€๏ธ . We run in honor of addi's grandma Remy, who donated life when she passed. I'm so thankful for the relationship Janet (Remy's donor recipient) has with our family and it's amazing to see Remy living on! . . . . . #motherrunner #checkyes #runner #runthistown #inspiringwomenrunners #getoutdoors #inspire #downsyndrome #theluckyfew #changingthefaceofbeauty #motherhood #ds #dsawareness #dsdn #donate #life #clickinmoms #documentyourdays #makemoments #candidchildhood #girlmom #beautifulconditions
I love when customers reach out because they want a specific style shirt that may not be listed on the website. @focazio_piper wanted a baggy, soft pullover. I donโ€™t have them listed but we found the perfect style! Thanks Marissa for sending the photo and Iโ€™m so glad you love your pullover๐Ÿ–ค Donโ€™t see a style your looking for? Just message me, Iโ€™m sure we could find something you will love๐Ÿ–ค Link in profile๐Ÿ‘†๐Ÿป . . . #alilsomethingextra #ds #t21 #321 #downsyndrome #upsyndrome #theluckyfew #morealikethandifferent #changingthefaceofbeauty #t21love #lifeisbetterwithyou #nothingdownaboutit #t21awareness #rockthe21 #rockin #rockinit #photooftheday #dsdn #dsrocks #downsyndromeawareness #teamds #downsyndromelove #extrachromosome #specialneeds #downsyndromerocks
Lookie what arrived in the mail ๐Ÿ“ซ for this rockstar mini! ๐Ÿ™‹โ€โ™‚๏ธ๐Ÿค˜ Thank you, we love it! @thedsdn @rockin.mom โค #rockinit #dsdn #babymodel #newonesie #littlemoments #downsyndromelove #t21 #lifeisbetterwithyou #seriousface #thankyou #highfiveharvey #rockstarmini #rockinmoms
Just a little blue-eyed handsome man. #dsdn
Woot woot @addisonremy got her 2nd 5k in the books with #iowadonornetwork #green5k . . We run in honor of addi's grandma Remy, who donated life when she passed. I'm so thankful for the relationship Janet (donor recipient) has with our family and it's amazing to she Remy living on! . . . #motherrunner #checkyes #inspiringwomenrunners #getoutdoors #inspire #downsyndrome #theluckyfew #changingthefaceofbeauty #motherhood #ds #dsawareness #dsdn
It's been 1yr now since we were told of Calebs diagnosis. I have reflected upon this over on my facebook blog. (Link in bio) Love this dude and his perfect little smile ๐Ÿ˜ #dsdn #downsyndromediagnosis #downsyndrome #dsblog #trisomy21 #rockthe21 #rockingmum #theluckyfew #itsonlyanextrachromosome #blogger
Practicing her coos this morning #7weeksold #dsdn
Skipped naptime ๐Ÿ˜ช
A lesson for all of us! #presumecompetence โžก๏ธ #blogpost ๐Ÿ”— link in profile.
A lesson on #presumecompetence #blogpost up! ๐Ÿ”— in profile!
Happy FriYAY!!! Great weekend ahead with my boys. ๐Ÿ˜๐Ÿ˜โคโคโค
Want to volunteer for DSDN to help support our mission? Find out more here: http://www.dsdiagnosisnetwork.org/#!about2/c13na #downsyndrome #dsdn #downsyndromeawareness
Itโ€™s The Boy in the Bubble! Yep, just dated myself there... ๐Ÿ˜‚ #downsyndrome #twinswithdownsyndrome #upsyndrome #morealikethandifferent #lifeisbetterwithyou #t21 #theluckyfew #dsdn
Heโ€™s in such a great mood. I would be too if I just woke up from a 2 1/2 hour nap, and had my belly full. #allsmiles #mommysboy #teamtank ๐Ÿ’™๐Ÿ’› #savedownsyndrome #dsdn #nothingdowmaboutit #upsyndrome #theuckyfew #downsyndromeawareness #downsyndromefamily
This is my cousin..she kind of looks like my mom..I love her โค๏ธ
Weeee q rico q es viernes ๐Ÿ˜Š๐Ÿ˜Š๐Ÿ˜๐Ÿ˜ #trisonomia21 #sdpadresenaccion #downpanama #sindromedeamor โค #nothingdownaboutit #dsdn
Princess Vaeh ๐Ÿ‘‘๐Ÿ’ž This girl is the light of our lives ๐Ÿ˜ @donnie_and_his_babygirl67104 #DownRightPerfect #FordTuff #wdsd2018 #dsdn
Halloween 2k17 ๐ŸŽƒ๐ŸŽƒ๐Ÿ‘ป #dsdn
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