Its the night before Davy’s birthday.....and per usual, I can’t sleep. I’m looking through my journal and reliving the last 8 years, both good and bad times. A lot of reflection and mainly thoughts of gratitude. I see this picture of Davy and I see A strong, happy child so full of love. There were definitely times that life felt hopeless and just really hard. Times that she almost didn’t make it. Times that I felt like I wasn’t going to make it. But we did. We survived some tough battles and I’m sure we will survive some more.
Can I just tell you how much I love seeing Davy’s geneticist.... I just love the look on her face when she sees Davy sitting in her office. Her expectations for Dave were soooo low, so bleak. But she’s also the first to say Davy has beat any odds stacked against her and how truly amazing Davy is. She talks, walks and eats by mouth. She smiles, she laughs and she dances. She is so very sweet but has just enough sass to drive a mom crazy.
Happy Birthday Davy girl, I love you so very much.
Please, For Davy’s Birthday, I’d love to read her your comments or DM me a picture to show her. Honestly if she could just FaceTime every one of you all day tomorrow, it would be her perfect birthday😂 Thank you family and friends for being her village.... I get emotional just thinking about it.
#davyturns8 #davyis8 #davyjean #warriorprincess #tubie #1
.p31 #rarechromosomedisorder #heartkid #cleftstrong #dysphagia #hypothyroidism #hypotonia #adrenalinsufficiency #hypoglycemic #growthhormonedeficiency #thefutureisfemale
Alll 📷 by the talented @vanessajanelamb