#clusterseizures

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I had some really really rough moments during my #hospitalstay but in the end it is worth it
My Hero. Seizure cluster is finally over but not without injuries. This is sadly becoming the norm for this poor girl. Bella fought hard and thankfully won this one with a little help of lots of large dose rescue medications. Look at that smile! Despite everything Bella still manages to smile. Her inner strength is absolutely astounding. We only have one more dose of these drugs left so are desperately hoping the drs see sense soon. #bellathebrave #epilepsywarrior #geneticepilepsy #rescuemeds #seizuressuck #epilepsy #dystonia #clusterseizures #fightlikeagirl #pcdh19epilepsy #kcnq2 #pcdh19 #scn9a #thoughshebebutlittlesheisfierce
I got to go to the vet today so they could make adjustments to my medication. I LOVE going to the vet. They sneak me extra treats when mom isnโ€™t looking! ๐Ÿ˜‹ - #dogsofinstagram #chiuahuasofinstagram #sleepypuppy #dogsonbeds #dogbed #happypuppy #puppies #dogs #happyplace #food #adorable #raleigh #mutt #rescue #seriousface ##rescuedogsofinstagram #rescuedog #goodboy #dogvogue #clusterseizures #seizure #nofun #epilepsy #dogepilepsy #dogmedicine #peanutbutter #iphonex @eukanuba
I had another seizure this morning. ๐Ÿ˜” My seizures make me tired for a little bit. My brother, Jackson, always makes sure Iโ€™m okay. Heโ€™ll lay on me or next to me and let my mom know if Iโ€™m about to have another one. Mom says we are both good boys! #dogsofinstagram #chiuahuasofinstagram #sleepypuppy #dogsonbeds #dogbed #happypuppy #puppies #dogs #happyplace #food #adorable #raleigh #mutt #rescue #seriousface ##rescuedogsofinstagram #rescuedog #goodboy #dogvogue #clusterseizures #seizure #nofun #epilepsy #dogepilepsy #dogmedicine #peanutbutter #iphonex @eukanuba
It's been a while so it's about time I get the word out again. I suffer from epilepsy. I have now grown to have cluster seizures. Which are grand mal seizures back to back over a few days. Every month. I never know when or where they are going to happen. It's awful. I am a survivor. Save a life and educate yourself on what to do. #epilepsywarrior #epilepsy #epilepsyawareness #seizure #invisableillness #selfie #momlife #smile #SUDEP #hero #bemyhero #survivor #savealife #clusterseizures #grandmal #tonicclonicseizures #tonicclonic #nocturnalseizures #seizuressuck #epilepsysucks
Hi all! Iโ€™m pretty adorable and I love to have my photo taken all the time. I have a pretty big personality, way bigger than my tiny body! ๐Ÿ•๐Ÿ•๐Ÿ•๐Ÿ•๐Ÿ•Even though Iโ€™m pretty adorable and give my mom lots and lots of love, I also terrify her sometimes. See, I have seizures pretty often and I was diagnosed with epilepsy in June of 2017. I tried to manage the seizures without medicine but, they got to out of hand. I was having 4-5 seizures within a 24 hour period (cluster seizures) and it was starting to really worry my mom and doctors. We decided that I should start taking medicine to help and we are working on finding the right medicine that will help me the best. Every day, twice a day, my mom gives me this spoonful of peanut butter and itโ€™s sooooo yummy!! ๐Ÿ˜‹ After I eat the peanut butter, I feel lots better!! She even gives some to my bigger brother! ๐Ÿ˜ ๐Ÿ•๐Ÿ•๐Ÿ•#dogsofinstagram #chiuahuasofinstagram #happypuppy #puppies #dogs #happyplace #food #adorable #raleigh #mutt #rescue #seriousface ##rescuedogsofinstagram #rescuedog #goodboy #dogvogue #clusterseizures #seizure #nofun #epilepsy #dogepilepsy #dogmedicine #peanutbutter #iphonex @eukanuba
Feeling a bit upside down tonight. I had a bit of an emotional day that lead to two seizures and Iโ€™m not sure if itโ€™s my new diet or stress or just life in general but I hate the feeling after having a seizure. I can jump right back into the conversation I was having seconds before but I canโ€™t help but feel crappy... I get in my head about it and question everything. I overthink these little episodes which makes me have more, so itโ€™s a terrible cycle. Spinning and spinning around... Iโ€™ve realized that music can definitely be a trigger which is interesting. I try not to get upset or embarrassed and move on in the moment but itโ€™s exhausting and mentally draining. Gotta keep fighting and praying ๐Ÿ™ ๐Ÿคฏ๐Ÿ˜•๐Ÿ’œ #seizures #travelingwithepilepsy #epilepsy #epilepsyfighter #epilepsyawareness #epilepsywarrior #dejavu #spaceout #handstanding #upsidedown #practice #trustingod #sundayz #complex #brains #strength #endepilepsy #purplepower #cbd #medicatio #clusterseizures
Today started off horribly. A 4am wake up with a very high temp, followed by vomiting an entire NG feed and all meds. Fever with shivering and chattering teeth. A 1.5hr nap that is unheard of followed by a 20 min cluster of seizures. An ambulance ride to hospital, observations for 4 hours. Being discharged when V starts a new cluster of seizures, this time they last 70 mins! Two lots of rescue medications are given and V has fallen fast asleep. Exhausted from so many seizures. We are staying in for observations and I think we will have a long night ahead. More seizures may start when she wakes up, they have IV meds ready to administer if needed. When Violet was diagnosed with cerebral palsy we were told epilepsy and seizures were common and she may experience them. Since Jan 2017 Violet has had 6, the last 4 in the last 6 months. They are getting worse each time. V has been on epilepsy medication since January this year but the fever today has meant seizures have still broken through. This is a new scary journey for us. Until today the longest had been 12 mins. To jump to a cluster of at least 100 mini seizures in 70 mins is an incredible shock to be honest. #cerebralpalsyawarenessmonth #epilepsyawareness #petitmalseizures #clusterseizures #cpwarriorprincess
I love my little guy. He is doing much better since his cluster seizures 3 weeks ago. Now I am getting him the TLC he needs to extend his quality of life. Thanking God. . #pitbull #pitboxermix #clusterseizures #picofday #dogoftheweek #lovedogs ๐Ÿถ #dogparks #dogwalk
I cant even begin to say how happy I am to be home in LA and no longer a โ€˜Canadian refugeeโ€™ . . No offense Canada, but you canโ€™t keep me. Lol. . . My Canadian hostage situation brought to you by my awesome seizures ๐Ÿ™ƒ
Part of spreading Epilepsy Awareness is Telling you the Hard Truths without apology. There is no growing out of it!!! #1in26 #epilepsy #clusterseizures #dravet #doose #jeavons
Today is off to a rough start....12 Petite Mal/Myoclonic Clusters in 60 seconds of feed. ๐Ÿ˜ฆ Cannabis keeps the dangerous ones away but the truth is; these pesky clusters are the culprit to the larger #grandmal seizures.... Current Mantra- NOT every day is good but there is GOOD in every day!
This sweet angel had a very bad night last night and we were worried it was going to be his last. #canineepilepsy sucks and is a very scary disease. Felix had #clusterseizures and was out for about 10-15 minutes before he went into the #postictal phase. It was by far the worst #seizure activity he has had. Iโ€™m so thankful he came to and did not go to the hospital. Today is a our recovery day filled with extra love, snacks, and snuggles.
I've seized the shit out of this day, so far I'm 8 seizures in, 1 giant lump on the back of my head, bent glasses, a carpet burn on my face and a bruised forehead... However, that aside this isn't a sad post, it just is what it is. #epilepsy #epilepsyawareness #epilepsywarrior #epilepsyfamily #momswithepilepsy #seizuressuck #seizure #epilepsysucks #ihateepilepsy #purple #awareness #seizetheday #fuckepilepsy #weneedacure #clusterseizures #fml #wtf #health #chronicillness #invisibleillness
Mia-bean post seizures. Like it never happened. Sheโ€™s still getting used to her new meds and sheโ€™s anxious as hell but we are working on it. ๐Ÿ™๐Ÿป #seizure #dogsofinstagram #mutt #dog #mybaby #clusterseizures #clusterseizuressuck #phenobarbital #postseizures #getbetter
Hans went in to the vet for more testing today. He had an abdominal ultra sound, results came back great! He had to have a doggie Brazilian for it so heโ€™s a little rashy right now #thestruggle #grasswasabadidea ๐Ÿ˜‚... he also had more extensive blood work done, urine analysis, cortisol, thyroid, bile I think.. so now we wait to see how that looks.. we will know tomorrow. Based off of that, if itโ€™s inconclusive, we will schedule his MRI and spinal tap.. which we are most afraid about because he has to be put under anesthesia... and we are afraid of the results.. if everything comes back normal, then he will be diagnosed with #idiopathicepilepsy , which at this point iโ€™d rather it be that then something worse. For now he is on #Keppra for seizures and we are doing some intense detective work trying to rid the environment of any triggers that we can control.. heightened anxiety, loud noises, fragrance, chemicals, treats, spices, our parrots bird seeds, canceled our Orkin subscription.. weโ€™re trying! We are also giving him a little cbd on the gums and I recently got some organic #frankincense #ylangylang and #lemongrass because I read that they help with seizures, but I just read something else that ylang ylang is toxic to them so Iโ€™m conflicted! If you guys have any tips on #dogseizures weโ€™d love any help we can get cause we are such nervous wrecks! We havenโ€™t left him alone because the cluster seizures can be really dangerous and we want to make sure someone is always with him, which is HARD with our busy schedules. That being said we will be bringing them to work a lot more now so if you guys donโ€™t mind for the time being, we ask that you donโ€™t bring your kids with you to your appointments or your dogs because unfortunately our pups arenโ€™t to be trusted with them! Thanks for everything guys!
Positive energy needed!!! Bruiser has had a rough couple of days and has started having cluster seizures in the last 24 hours. Weโ€™re back at the vet. I just want him healthy ๐Ÿ˜ข * * * * #foster #fundraiser #kittenadvocate #catadvocate #catsofinstagram #kittensofinstagram #adoptdontshop #rescuecats #adopt #rescue #rescueisthenewblack #bruiserkitty #fosterkitten #helpbruiser #sickkitty #gingerkitten #livershunt #bruisersbattle #youcaring #helpcats #vetbills #bucksforbruiser #seizures #clusterseizures #positiveenergy #sendlove #goodthoughts
Twas a very long night. At least she's lying here snuggling and purring now for the moment. #seizuresuck #PandaBear #fosterkitten #clusterseizures
Cooling down Koa after a tough night of seizures. No matter how many hundreds or thousands of seizures he has, it's never less terrifying or heartbreaking. Love this guy so much ๐Ÿ’™ and hope he's feeling better soon. #k9epilepsy #epilepsy #dogs #ilovedogs #cbd #puppy #nosleep #postictal #clusterseizures
Holding this little lubbin extra close today. Thank you to family and friends who fielded my panicked phone calls and to VSES for getting our coconut shrimp the best care possible !! ๐Ÿ–ค๐Ÿฆ๐Ÿค #rexmanning #epilepsy #clusterseizures #ragdoll #ragdollsofinstagram #scarymommoment
๊ณ„์†๋˜๋Š” ๊ฒฝ๋ จ์œผ๋กœ ๋ชธ์ด ๋งŒ์‹ ์ฐฝ์ด์ธ๋ฐ... ๊ทธ๋ž˜๋„ ๊น”๋”์Ÿ์ด์ธ ๋„ˆ๋ฅผ ์œ„ํ•ด ์”ป์–ด์•ผ์ง€. ๋„ค๊ฐ€ ์ข‹์•„ํ•˜๋Š” ์ƒดํ‘ธ๋กœ ์”ป์ž. ๋น„๋ˆ„๋ฅผ ๋” ์ข‹์•„ํ•˜๋Š”๋ฐ ๊ทธ๊ฑด ์ฒœ์ฒœํžˆ. ๊ธธ์–ด์ง€๋ฉด ๋„ค๊ฐ€ ๋” ํž˜๋“คํ…Œ๋‹ˆ๊นŒ... ๋ชฉ์š•์„ ์‹œํ‚ฌ ์ˆ˜ ๋ฐ–์— ์—†์–ด์„œ ๋ฏธ์•ˆํ•ด. ๋„ค ๋งˆ์Œ์„ ์ž˜ ๋ชฐ๋ผ์„œ... ๋Œ€์‹  ์•„ํŒŒ์ค„ ์ˆ˜ ์—†์–ด์„œ ๋ฏธ์•ˆ. ์šฐ๋ฆฌ ๋˜ฅ๊ฐ•์•„์ง€ ํž˜๋“ค์–ด๋„ ์–ผ๋งˆ๋‚˜ ์  ํ‹€ํ•œ์ง€โ™ก . . . . . #์„ค๋ฆฌ #์žฌํŒจ๋‹ˆ์ฆˆ์Šคํ”ผ์ธ  #๋ชฉ์š• #๊ฒฝ๋ จ๊ทธ๋งŒ #clusterseizures #canineseizures #spitz
After nearly three months seizure-free, Edna had another cluster of seizures the other night that landed her in the hospital. She is now home safe and sound, resting and eating like a champ. We were wondering if any of our IG friends have experience with canine epilepsy. This is all very new (and confusing and scary) to me and we need all the advice we can get!
Eu nรฃo ligo de trabalhar na folga se for para liberar o paciente bem, controlado e seguir a recuperaรงรฃo em casa! ๐Ÿค“๐Ÿ™๐Ÿป๐Ÿถ #clusterseizures #epilepsy #dogneuro #veterinarianneurology #vet #medvet #veterinaria #amorpelaprofissao #frenchie #bulldogfrances
When the phone rings half way through your root canal procedure at the dentist and it's the dreaded call to say Bella's in an ambulance on her way from school to hospital. Yup that's a little stressful when you've just had the drill inside your mouth, your tooth is opened up and you have 3 files sticking inside your tooth ๐Ÿ˜ณ Needless to say I tried to run out of the dentist and made them stop mid procedure. I jumped out of that chair so fast I almost left with the goggles, bib and that crazy wire thing over my face and arrived at the hospital shortly after with a Miami pink temp filling, a mental ring cemented around my tooth and a very sore face BUT it's nothing compared to how Bella is doing right now. The dental procedure is clearly not finished but it can wait, my girl is far more important. This is unfortunately the life of an Epilepsy family. You are on call 24/7. You need to be on stand by at all times as anything can and will happen at any given moment in time. Bella has been having daily seizures since she left hospital only days ago. Despite yesterday's seizures she was doing ok and we thought she was winning BUT unfortunately the Epilepsy monster had other ideas. Please hold Bella close in your hearts as she is a midst another cluster and continuing to have seizures even from her hospital bed. Will there be a day, just one freaking day she doesn't have a seizure and our family can actually get a real break? I'm so sad for how much is stolen away from my little girl. When will she actually get a real chance at a childhood? #chronicillness #clusterseizures #ourherobella #nolifeforachild #livingwithepilepsy #reality #hospitallife #epilepsyawareness #pcdh19 #mentalillness #emumlife #givethisgirlabreak
Whilst Bella has once again been having seizures this afternoon and this evening I am thankful they are only short seizures today. I am all so thankful that my girl has been enjoying cuddles with the mumma AND even managed a few smiles too, despite the seizures scaring Bella and her needing a lot of reassurance. It is very rare during the frequent times Bella is having cluster seizures that she is awake and conscious between them. Most of the time her seizures are so severe Bella does not recover between each seizure and if not wiped out or postictal she is usually unconscious or experiencing a medical emergency whilst still seizing. Today however is one of those very rare times she has still been experiencing seizures but they are short enough not to completely steal my girl away. Bella even finally managed to try school today and it's looking likely this amazing girl will be attempting a full day at her special needs school tomorrow too! I know it's likely just down to pure luck and I still so desperately wish Bella would catch a real break from it all BUT we have to look for the positives when ever they arise and today despite it all Bella is winning! Epilepsy 0 - Bella 1 #bellathebrave #ourherobella #clusterseizures #epilepsywarrior #epilepsyawareness #seizures #reality #neurologicalcondition #braindisorder #ambulatorycare #specialeducation #chronicillness #specialneedsparenting #medicalmommy
This stud is Firewater. He's a 4 yr. old big puppy who just loves everyone. Fire is blind in one eye & does suffer from "cluster-seizures", however, his medication has been quite helpful & has kept him at ease. This pup loves to run, eat, play with his toys, & snuggle. Fire is great with other dogs & kids. He would be such a perfect addition to the right family whose willing to keep him comfortable & constantly loved. For more info. on Firewater contact Greyhound Pet Adoption Northwest in Portland, OR.
G'day fur friends! Let me tell you, I've had THE WORST DAY๐Ÿ˜ฟ๐Ÿ˜ฟ my morning began around 5 AM with half a dozen multiple seizures in a row that I just could not seem to pull myself out of. My poor mommy @janineleclair did her best and even pushed some Valium up my little bum, but I was still sick. ๐Ÿ™€So she rushed me to the Emerg vet. They put me in this awful place called the ICU, they dared insert a needle in me for my catheter, and doted on me like you would never believe. ๐Ÿ˜ปBut I simply hate the hospital and I let them know that!! I'd been pumped full of muscle relaxants and sedation, but eventually mommy decided I had had enough and so we are back home. My blood work was great, and before I left I decided to be a good boy. So I stopped screaming bloody murder for the first time in 10 hours and fell asleep on the floor on top of mommies hand. I've had seizures my whole life, and me daily medication zonisamide helps, but I'd never had #clusterseizures like this ๐Ÿ˜ฉ๐Ÿ˜ฟ๐Ÿ™€ Thank God for the Emerg vets and technicians and criticalists and specialists! And for everyone's prayers! I love you! #meow #lilbill #specialneeds #cerebellardisease #specialkitty #whitekitty
Wanted to give everyone a little update on #Rocky ; I know it's been a little while. He had a set of #clusterseizures yesterday during the late morning, with two occurring only five minutes apart. ๐Ÿ˜ž He had four #seizures in less than two hours and was completely drained. Thankfully, he had no more for the rest of the day and has maintained all day today! (It's not quite 9pm) Even more pretty #goodnews is that his last set of clusters was in mid-June - about a month and a half ago! He's been in his monthly routine since Thanksgiving and I'm so glad he seems to be doing better! These #episodes were pretty rough, however. He urinated during three of the four, something he hasn't done since the clusters began. He also lost all four of his legs, rather than just the back two like normal. He still loses his sight each time, but I'm wondering if he loses his hearing during some of them since sometimes he stays calm and listens to me and sometimes he's wild and doesn't seem to know I'm with him. I appreciate everyone who has helped with and been a part of this ride with us so far! Thank you!! And because she's gorgeous and is an amazing and caring #sister , here's some #Adrian to brighten up your day! โ˜€๏ธ #talesofalab #mydog #goldenretriever #goldenchow #chowchowmix #epilepsy #twins #brotherandsister #siblings #epilepsyawareness #furbabies #mykids #dogmom
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