I always try to see the bright side to everything in life. I’m a firm believer that there is always a silver lining. For me, one of the only foods I can tolerate is chocolate if I suck it (and no bits) and ice cream!
The past months I live on my feeds down my tube and ice creams! You know times are tough, when mum and dad encourage you to have one for breakfast 😂😂. @magnum
have really helped me through a very tough few months! Especially the raspberry double to go! We must have bought around 50 boxes of thee (hubby has taken a liking to them to). Not only can I manage to get them down, but the seem to settle my stomach! (I guess the milk neutralises the high acid content). Unfortunately I don’t always keep it down, but at least I’m getting some calories down!
have also been great, and I only v v recently found these beautiful icecream@on
sticks!!! Unfortunately I am not able to eat the nuts off the peanut butter crunch, but can work round it! (And the hard work is sooo worth it) But the salted caramel is to die for!!!! Downfall with eating these however is, I eat VERY VERY VERY slow, that it is usually a sloppy mess by the end as it melts before I eat (but I have that sorted and half way through change to a bowl and spoon!!!) #food #drink #peanutbutter #icecream #foodporn #foodie #foods #foody #foodgasm #foodphotography #drinking #drinks #raspberry #chocolate #yum #yummy #saltedcaramel #funtimes #shopping #mint #spoonie #spoon #chronicillness #chronicpain #cream #photooftheday #brown #frozen
The power of determination will make you unstoppable! 💪
Pet Peeve: having to take opiates after 5pm. They help with the pain but they make me buzz like I’ve had too much red bull and then the question “what is sleep?” Does this happen to anyone else or am I just odd?
Today was a better day. Still feels unproductive and I am hella anxious about weigh in, GP, and Shrink tomorrow but I need to able to appreciate that, in context, today WAS a better day.
I’m finally starting to get used to the crutches and even managed some thrifting which is always fun. I was pretty defeated by 4pm and stayed curled up in a ball of pain while the fam were at church. Didn’t have meds until 7pm hence the fact I’m now on a high and not so looking forward to an anxious night with little sleep.
Positives, however: This morning was great; I went thrifting; I got my chores done; I ate pizza without crying or bp; I have meds to help with the pain whether they keep me awake or not. I am grateful. Tomorrow will bring what tomorrow will bring and I will face it with authenticity.
Won’t lie, I’m feeling pretty FREEEEEE having decided to quit the shackles of ‘one pic, one quote’ here on Insta 🤣🤣🤣🤣 Anysways- did you know I run a FB Live Guided Relaxation every Sunday @8pm
And did you know that hundreds of folks tune in to help them sleep?
I get many messages every week from lovely peeps telling my they fall asleep using the process, or use it to get back to sleep if they wake early 💤
And you might not know that there are many layers to what I do.... To keep it simple, I pack the relaxation tracks I produce full of helpful suggestions to help you deal with overwhelm, get sleep, and manage the curve balls of you life more like a happiness ninja than a human just getting by!
Please tune in if you can’t sleep, are stressed or just want to begin to thrive in life! 🧘♀️💗✨ It feels great, it’s free, and you don’t even have to leave the comfort of your own bed to enjoy it 😻
Hope to see ya there -just head to my FB Page to enjoy- and please tag a friend in need of some #selfcare
💕💕💕 With so much love,
Weekend so far. This pain med change has been harder than expected. I was very optimistic and open minded going into it, and now I'm just not sure I can pull it off. That said, through my flare, I feel like I'm still crushing it! I worked on a chapter of my novel today from the new comfort of my power chair. 💻 I played Magic the Gathering with my husband (and beat him 2 out of 3 games)! 🤩 Last night I enjoyed some Face Chat time with my mama. 💜 I'm trying to find solace in the fact that it's a bit of a relief to be so used to feeling bad in that I can still find some good in bad days. It took a long time to be able to come that far. Obviously, there are the days when none of this is possible, but today wasn't THAT bad. Really hoping this flare calms down soon. 😒
[ID: image 1 is April with a laptop on her lap while sitting in her power chair. Image 2 is April turned to look at the camera with white cards in her hand, and her husband Drew in the background with a bunch of Magic the Gathering cards in between them on the couch cushion. Imagw 3 is a close-up of Drew with two dice covering his eyes, one dice with a number 2 on it and the other was a number 0 on it. It also has April with a dice with the number 0 on it placed on her forehead. Image 4 is a picture that is a screenshot of FaceTime that shows April mom and April with cat filters over their faces.
Some days are more painful that others. I like to read, watch tv, play video games, knit, and try out my different lipsticks in bed because some days my body is too sensitive, sore or weak to get out of bed. The weak days really scare me because I walk around and my legs actually shake and I fall in walls trying to remain standing. A lot of people in my life don’t actually know how bad my condition and or side effects of the medicine I’m on is. I’ve never liked to tell anyone about the problems my body has. I sometimes feel like a failure because my body isn’t up for everything I want to do. I don’t want to be seen as weak or in pain. But it’s not really my choice how sensitive my illnesses are. I hope to one day be able to keep up to my family and friends; and go out and do all the things that I can’t right now. I hope my future will be brighter and less painful. The last vacation we had basically nothing went as planned be I was in a lot of pain and I feel like I let my mamie down because we weren’t able to do anything but the restaurants she had wanted to go to, so that was very tough. #chronicpain #chronicillness #tryingtogetthroughit #thebestlaidplans
Fibromyalgia pain can be a bitch, if anyone had a wheelchair I would happily borrow it today!
The pain in my legs goes from my hips all the way down to my feet making my legs feel like lead! I’m hoping a hot Epsom salt bath might relieve some of the pain I’m experiencing.
OMG! We did it!
That number will surely fluctuate. Regardless, even if just for a few minutes, we did something pretty cool 😍
Thank you for standing by me these last few weeks especially. I've been having a tough time with a fibro flare up, depression kicking in, and anxiety. It's been rough to say the least.
But we stick together, cuz that's what we do 💜🙌
We need and deserve acceptance, understanding and support. We didn't ask to live in constant unrelenting pain and we didn't bring this on ourselves so please try to see things from our point of view.
For the careless, fun loving person I used to be,, i pushed myself this weekend.
Don't get me wrong, I still rested... ALOT.
But I cleaned the house up, went to a party for a bit, AND went on a half day car trip to see snow.
I was completely exhausted the whole time, but managed to walk and run around throwing snowballs at my husband for 20 ish minutes. We walked across a log to cross a river, and when it was time to go back, I was too tired to balance, so we walked the longer way so I didn't fall in, then called it a day.
When we got home, I completely crash and have only just woke up.
Let's hope I don't regret it all tomorrow.... fingers crossed🙏🏻 And yes. I'm wearing my husbands onesie... I've completely given up on fashion. It's allllll about comfort now.
#exhausted #invisibleillness #chronicpain #autoimmunedisease #autoimmune #chronicfatigue #chronicillness #arthritis #tired #snow #nap #free
Delighted to share this article with you from the Mail On Sunday today. Living with chronic pain, anxiety and stress can be so debilitating. You can make positive change to help yourself manage your pain and feel so much better. #dailymail #dailymailuk #mailonline
Not feeling too shabby today!!! Me, the children and the dogs might just take a trip to mama and Nigel’s today 🤗 I appreciate days like this where I feel able to wake up fully, where my body doesn’t ache, sting and feel like breaking. I can breathe, I don’t have to hold it in because of the agony. I don’t need to pretend, lie, try. I am just Toni. I feel like the mum/person I am, not a disease. I appreciate this British weather, the murky sunshine, the children being loud and how it doesn’t affect my noise sensitivity, I can just laugh along, play. I wait for days like today, where I am thankful, happy, the bitterness I have toward this disease it lessened and I feel strong, I wait for tomorrow to be the same as today. I’m EXCITED for tomorrow, it WILL be the same as today, I will be bouncing around like the person I am. I am not this disease, it won’t win, especially on days like today. It will get better 🤟🏼#mctd #raredisease #mctdsucks #iam #sjogrens #sjogrenssyndrome #sjogrenswarrior #ehlersdanlossyndrome #ehlersdanlos #ehlersdanlossyndromeawareness #hypermobility #hypermobilitysyndrome #circumstantial #chronicillness #chronicpain #chronicfatigue #methotrexate #pregabalin #hydroxychloroquine #diazepam
💊 #painpatch #melatonin #spoon #spoonie #spoonieproblems #getup
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