#chronicillness

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This vest did not fit Xochitl properly, despite being listed as her size. Not wanting to deal with mailing yet another vest back, I completely disassembled it, cut it down to her size, and reassembled it with her new patches. She is officially my Service Dog in Training. Special thanks to @a.kid.and.his.hero for proving to me that it was worth it to take a former stray/rescue dog and train them to become something amazing. Xochitl and I have a long road ahead. I will be setting up her own Instagram account so that those who want to can follow her journey (that way I don't totally spam this page with training pics and videos). #ptsd #cptsd #posttraumaticstressdisorder #complexposttraumaticstressdisorder #generalizedanxietydisorder #anxiety #panicdisorder #panicattack #agoraphobia #vertigo #ibs #chronicdepression #chronicillness #spoontheory #spoonie #notalldisabilitiesarevisible #servicedog #servicedogintraining #sdit #medicalertdog #psychiatricservicedog
Today's lunch was lemon herb chicken on top of a bed of all my favorite vegetables! . . The past few days have been tough for me because I ran out of my supplements for histamine intolerance, my antimicrobials and my digestive enzymes! #uhoh #iknow 🙈 . . So now I'm back to nausea, throat pain, headaches, feeling feverish, fatigue, severe bloating, body aches and abdominal pain. It's amazing what a difference some things make and I didn't realize how well it was working for me until I've had to go without it! . I'm waiting as patiently as I can for my supplements to arrive. With no sick leave and being in between insurances after being hired, laid off and rehired again, I feel a bit at a loss for what my resources are. It's been a bit chaotic... . What would you do if you were in my shoes??? . . #help #sibo #scd #lowfodmap #histamineintolerance #digestiveenzymes #enzymes #pain #sick #chronicillness #sos #notfeelingwell #patience #bloating #nausea #feverish #gut #digestion
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My skin is burnt and raw from showering so much to help me digest just water and to stave away the nausea. My face especially. It burns to cry (which I've been doing a lot because of pure exhaustion). I cannot smoke weed for the foreseeable future which helped with my IBS, pain and depression. I am living off of baby food and because of the fruit my stomach is feeling acidic usually. I can only sleep 3-5 hours max. My apartment smells of mildew and garbage and cat litter. My elevator is broke and I live on the fourth floor so I haven't done laundry in almost a month. I've used all my towels and am now using a sheet to dry off. I am fucking miserable. After getting to sleep 4 hours just now, I had a small apple and a packet of baby food and sipped water. I went to get my mail for the first time in a week and had to take my phone in case I passed out. paced my apartment while talking to my mom for the 100th time this week because I'm all alone and scared of passing out all the time. I'm so beyond tired and exhausted, I just want to be able to sleep without severe stomach pain. I've missed so much of my job and am afraid of losing it. I'm just so worn down and want to give up. #chronicillness #gastroparesis #ibs #sick #help #mentalhealth #depression #selfie
My Lupus diagnosis changed a lot about me. This fueled a handful of insecurities. I’ve learned how to hide them and keep them a secret. You wouldn’t know about them unless you ask or are really good at noticing change. This week on my blog, I’m diving deep and sharing the insecurities that arose after my diagnosis. . . . . . #lupus #lupusawareness #lupusawarenessmonth #chronicillness #invisibleillness #lupusblogger #styleblogger #fashionblogger
Working out gives me the positivity I need to get stuff done. I mark more things off my to do list right after a workout than I do the entire rest of the day (maybe I should start working out in the morning...🧐). I never even thought I'd be able to work out with my chronic illness but I started out small and I keep getting stronger week by week and I'm loving the endorphins, positivity, and self confidence it brings! #cantstopwontstop #workout #chronicillness #chronicbadass #chroniclymedisease #lymedisease #fightlyme #MS #multiplesclerosis #fightms #spoonie #lymedontkillmyvibe #invisibleillness #lymie #choosejoy #dontworrybehappy #motivator #influencer #motivateme #thankgod #dontgiveup
Steamed rutabaga / parsnips, “meat loaf” (ground beef, carrot greens, onion, zucchini, tumeric, cinnamon, cumin), and my green sauce I’ve been eating incessantly! I blend steamed greens, usually arugula, spinach, &/or kale with olive oil, lemon, and spices. I love adding butternut or spaghetti squash to the mix to give it a thicker consistency and depth of flavor. Yum! Breakfast every day - steamed veggies and da green sauce with extra cumin💘 collagen tea on the side. . . . #paleolife #paleobrunch #paleocommunity #paleobreakfast #steamedveggies #blender #soupie #meatloaf #aip #aipdiet #aippaleo #aipbreakfast #whole30 #cleanse #guthealth #digestivehealth #spices #cumin #tumeric #healthyfoodie #flogger #foodie #healyourself #nutrientdense #candida #hashimotos #ebv #chronicillness #foodjournal
This...... Tried to get into my primary care this week, but she is out of town this week.. feeling very overwhelmed and defeated recently. The headaches are better since coming off the beta blockers, but I feel awful in general now. #EDS #ehlersdanlossyndrome #fibromyalgia #endometriosis #gravesdisease #sjogrens #POTS #posturalorthostatictacycardiasyndrome #chronicpain #chronicillness #migraines #lifeofascienceexperiment #adventuresofascienceexperiment #periodiclimbmovementdisorder #defeated #overwhelmed #flaring #howmuchisacoma #comasoundsgoodrightnow
What you see: An IndyCar flying down the front straightaway at @indianapolismotorspeedway. - What I see: Hope. - If you’ve never heard of Sam Schmidt, you’re missing out on an incredible story. He owns that car rocketing down the front straightaway. He founded his race team, @spmindycar , following a practice crash in 2000 that left him paralyzed from the neck down. - You might also not know of another incredible story about a company right down the road from me in Colorado. A few years ago, @ArrowElectronics engineered a car that can be driven by people with disabilities using mouth and head movements to control the car. They needed a driver though. - They called Sam. - So, while you may just see a car speeding down a track, I see a racing team built from the sheer determination of one person who refused to give up when life took an unexpected turn. I see a company using technology to help people whose lives have taken an unexpected turn. I see sources of inspiration as I continue to figure out how to make my idea become reality. - I see hope.
Two years difference. - I have yet another throat infection. This is my fifth infection in 6 weeks. The doctor took my temp and it was 39.8! Wow! - I broke down in the doctors office and said I'd rather be dead than be so unwell all the time. He said I'm clearly very ill and just doesn't know what to do. The infections just don't stop currently. I came home and sobbed and sobbed. - There is nothing wrong about needing to cry it out sometimes. We are human. We can't be positive and strong 24/7. - I've read that these reoccurrence of infections are very common for #MECFS patients. It just seems like my body and immune system are stuck and on fire. - Whereas I was very emotional earlier I am also still staying strong. My body may be letting me down and broken but my mind is not broken. I am strong and so are you. We are in this together. We can cry and then pick ourselves back up. This illness is truly wicked. 🙏🏼 #myalgicencephalomyelitis #mecfswarrior #mecfsawareness #sick #chronicillness #chronicpainwarrior #chronicallyill #chronicpain #spoonie #spoonieproblems #spooniewarrior #invisibleillness #staystrong #positivevibes #dontgiveup #hope
Bio Trace Ion-Power Electrolyte concentrate is new in store today! It enables you to easily and affordably turn your plain water into a convenient electrolyte drink full of minerals and trace elements. Link in bio #chronicillness #invisibleillness #hydration
This is probably one of the most detailed/informative articles (link in bio) on ECT (electroconvulsive therapy) that I’ve come across, written by a Singaporean whom, like myself, underwent ECT for treatment-resistant depression. . His experience pretty much mirrors mine, other than that I haven’t had as many ECT sessions done, and that my depression symptoms differ from his (I don’t have any bouts of crying/feel sad; I mostly just feel exhausted/empty). . For any treatment-resistant depression sufferers out there who haven’t tried/are reluctant to try ECT due to all the negative portrayals on it in the media or that it sounds scary, it actually isn’t that bad. . I too had not wanted to consider it all along until last year when I reached a state of desperation to get relief from my depression symptoms. And after the first session (I did a course of 6 sessions), for the first time in years, I finally felt like myself (note that typically it takes at least 3 sessions before patients experience the positive effects). . However, do note that it’s not a miracle cure, and the positive effects will wear off (from what I read, it’s typically a month, but for me unfortunately it only lasted approximately two weeks). Also, that there are side effects that come with it (as mentioned in the article). . But still, it’s worth discussing with your doctor for when all other treatments/therapy/medications don’t work and you’re desperate for relief. . I echo his following statements: . “Mental health patients are just like you too, and not any less of a person; please treat them like how you would any others. . It's common in Singapore to dehumanise the mentally ill, which results in ostracising and stigmatisation. This makes the suffering hurt even more, and is something I hope I can change within my lifetime.” ••• #youlookokaytome #dysthymia #chronic #depression #fibromyalgia #fibro #fibrofighter #chronicpain #chronicfatigue #invisibleillness #chronicillness #spoonie #spoonielife #spooniestrong #spooniesunite #spooniesister #mentalhealth #mentalhealthawareness #mentalhealthmatters #mentalhealthday #depressionrecovery #ect #electroconvulsivetherapy #electroshocktherapy
One of the things I hate the most is being overwhelmed, being overwhelmed over nothing is even worse. I know it's gonna be a rough day when I wake up feeling like I can't get out of bed without having a panic attack like today. It seems like it happens way to often and it's not like I have a whole lot to be overwhelmed about, but sometimes the simple steps of getting up and waking up for the day is like climbing a steep hill, and I'm not even good at climbing the little ones 🌟 On days like this I try to remind myself that no one is rushing me. I have no expectations for the day so I should be able to relax, right? So just light a candle, put on some good music or tv and take out my paints and lose myself in the paper for a while and hope that the feeling of being rushed starts to fade. It usually doesn't but sometimes I can get a few things done and feel a little better; I have to remind myself to be gentle and take things slow on days like today 🌟 Weed usually saves the day 🌟 🌟 🌟 #spoonie #mentalillness #chronicillness #artist #pdxartist #actuallyautistic #autistic #anxiety #therapy #depression #ptsd #vent #quantumthinks
When you grab your PM pill sorter, only to realize that you were too busy playing with makeup, napping, and rereading a novel based on the life of Anne Boleyn yet again to remember it was pill sorting day . . . #majordepressivedisorder #depression #treatmentresistant #1in20pmdd #pmdd #chronicillness
I got so out of the groove of posting that even now that I really want to post again, I keep forgetting to! I keep taking all of these adorable pictures of Beau and thinking to myself, “Oh my gosh, I can’t wait to post that!” and then I never do!😂 ◦ So to make it up to you for the recent lack of pictures that I promised, here is a video! I love this because it lets y’all see a glimpse of Beau’s silly side when he is “off-duty” and being a complete goober at home!😋
Can I ask if you RELATE to any of these feelings?? ▪️Tugging at clothes, refusing to wear tight shirts or dresses because you feel BLAH in your own skin? ▪️Gut bloat and fatigue? ▪️Feeling sad more often than you're happy? ▪️Feeling frustrated because you've "tried everything!!" ▪️ Binge eating when you're stressed (or tired, lonely, bored, sad, etc.)?? That's a big YES to all four for me. That was until I realized that I was the only person who could change how I felt and so I did. No secret sauce BUT this is the low down 💛 I drink Shakeology daily (No, this is not a gimmicky protein or weight loss shake. Yes, this is a quality superfood supplement that helps my body get the nutrients it's lacking). 💛 I do 30- 60 minute workouts in my unfinished basement. 💛 I read at least 30 minutes of personal development a day & constantly listen to podcasts instead of the radio for my MENTAL health. It's nothing fancy but done consistently over time, it friggin WORKS and I'm inviting you to try. Click the link in my bio for more information. 😃❤✌
• E M P O W E R • Yesterday someone left the saddest but most heartfelt comment on my post and it made me reflect on what fitness is really all about. . This person mentioned that she saw an Instagram story from a well known fitness professional who filmed someone walking on the treadmill in a gym saying something along the lines of 'why bother, what a waste of time, just go home.' I. WAS. SHOCKED. . Back in January all I could do was walk on the treadmill, in a gym, for all of 10 minutes before the pain in my back became excruciating and I had to go home to lie down. Even doing those 10 minutes took effort and courage while everyone around me was working up a sweat, doing sprints and lifting weights. I couldn't imagine how I'd feel if I was unknowingly being recorded!!! . Sometimes we are so quick to judge people and call them lazy without actually knowing their story. If anything we should be giving people a big pat on the back for making the effort to move their bodies in whatever capacity they are capable of👏. I've always believed that my purpose in life is to empower people to move, eat and live well. However, that doesn't exactly fit the mould of 'fitness' that we're sold of perfectly sculpted bodies. . But I'm ok with that. I know the values I stand for. You'll never see me do or prescribe a 12 week body transformation or a detox diet because it's just not constructive for people's mental or physical health🙅‍♀️. Instead I'm all about slow and steady progress, celebrating the wins, and getting people to feel confident in their bodies and enjoy exercise. . So today if you're struggling or feeling 'less than' because you just can't keep up with the fitness fiends doing burpee box jumps I'm here to give you a high five. Because I can't either right now, but it doesn't mean that you or I aren't fit or healthy! . Don't ever let somebody judge the chapter of your life they walked in on. You do you and be proud! Healthy comes in all shapes, sizes AND abilities. Tag someone who needs to hear this today👇
I have to sit down and take breaks a lot when we go out. Luna is always so sweet about it. . . . . . . . . . #luna #bordoodle #medicalalertdog #diabeticalertdog #type1diabetic #endometriosis #ptsd #anxiety #tachycardia #spoonielife #chronicwarrior #spoonie #chronicillness #sidekick #bff #target @target
Do you want to hear my Origin Story in regards to fitness, physical therapy, and nerdiness? LINK IN BIO. The force is strong with this podcast. ⠀ #Repost @tmd_themovementdocs with @get_repost ・・・ NEW PODCAST UP! This week we had the pleasure of sitting down with William Mills ( @docmills.dpt ) aka WIII MIIIs II to nerd out about rehab, lifting, Star Wars, zombie outbreaks, and the perils of plane rides. Click the link in our bio to listen on iTunes, SoundCloud, Stitcher and Player FM.
REVIEW: @itcosmetics Anti-Aging Armour - Super Smart Skin Perfecting Beauty Fluid 🔸For starters, it has the worlds longest name! 🔸It’s a universal skin tint w/a physical, broad spectrum sunscreen w/SPF 50 🔸It protects you from the sun plus hydrates & helps to even skin tone 🔸The SPF protects skin/collagen from damage/hyper-pigmentation by protecting you against UVA & UVB rays 🔸It offers sheer coverage yet still makes your skin look beautiful if you like a glowy no makeup makeup look 🔸Does contain blurring technology 🔸I would be hard pressed to believe this would work on skin tones deeper than medium as it does have a bit of the stereotypical SPF white cast but it does blend away a bit 🔸Only complaint is that it’s so sheer, a light concealer pairs best w it but me & insomnia are bffs so... 🔸Physical SPFs are known to clog pores so make sure to wash this off at night if you have sensitive skin 🔸Depending on your oil level, may want to set face or use mattifying primer 🔸Review: 4.5 ⭐️s 🔸$38 . . . #makeuplove #makeuptutorial #makeupaddiction #makeupartist #skincareluxury #skincareblogger #makeupaddict #makeupjunkie #skincareaddict #makeupblogger #makeupguru #luxurybeauty #makeupreview #makeupreview #skinprotection #makeuplovers #luxurymakeup #ultabeauty #crueltyfreebeauty #beautyreview #skincarejunkie #mac #makeuptips #makeupspray #sephora #highlighter #primer #highlight #review #sunprotection #itcosmetics
About to list this gorgeous Lularoe “Joy”. First time thrifting any Lularoe at all, I found two pieces, and I can’t wait to see how they sell! 🎉
This is the other flag in my apartment (the first one I posted was the bisexual pride flag). I'm adopted and didn't grow up knowing my heritage. About a year ago I got a DNA test and discovered that I am nearly half Nigerian. I'm proud of who I am and who I'm becoming, but being Nigerian and African American is some of what makes me most proud. 🇳🇬 . . . #fitfam #healthyisthenewskinny #motivation #fitness #health #edsurvivor #survivor #recovery #eatingdisorder #warrior #weightloss #majorweightloss #fibro #fibromyalgia #chronicpain #chronicillness #biracial #africanamerican #black #womanofcolor #poc #woc #nigeria #nigerian #adopted #adoption #23andme
Lyme fact, did you know... there are no tests available to prove that the bacteria that causes Lyme Disease has been eradicated or that the patient is cured after treatment. @lymediseasechallenge 🍋 kicks off each May for Lyme Disease Awareness Month, this is something I support and want you all to join in on their challenge! ~Bite a lime while taking a photo/video of it, post it on social media with a fact about Lyme Disease, and keep the campaign going by challenging 3 other people! I’ll be posting their readymade fact images this month, they have them all available on their website! All proceeds of their campaign go to @projectlyme Feel free to share and take the challenge! 💚 As always anyone that would like to share their Lyme story feel free to message me, or visit the link on my page to remain anonymous. 🦋 #lymediseaseawareness #takeabiteoutoflyme #lymediseasechallenge
SPEAKING of patios, I was already planning this post before I visited a pretty epic one earlier (see last post). This is actually a more realistic depiction of what my current patio looks like. The good and bad and ugly and plain. I do realize that a lot of apartment balconies are not super cute but it was part of my happiness project to create a porch oasis. ** So I am looking for any of your tips on how to make this homier and cuter. We will be getting plants, many of them. I was hoping to get a couple of affordable decor items to bring it to the next level. I was thinking something to decorate the blank wall separating us from our neighbours, potentially some lights to string up and maybe some sort of statue thing. Any ideas? ** Conversations around our porch decorations brought up a difficult subject: money. We are living on one income (his) because of my chronic illnesses and we are making do with his savings but our already pretty (newly) frugal lifestyle is not sustainable. I'm hoping when I heal from my surgery that perhaps in the next few months I can find some sort of part-time income to ease myself back into the workforce. But in case that doesn't happen for a while, we need to make changes without completely sacrificing our sanity. ** Do you have any tips for living on a budget and being able to afford small things or activities that make you feel a little more lively? For me, I spend most of my time at home so it is important for me that I feel a little more excited to spend time here.
For a quick second, This was actually going to be a vegetarian dinner for me. • Bad pre-planning coupled with an ultra busy (in a super fun way) day and I thought, "Hey, Ill just roll with it. " • I actually just spent the day with a vegetarian friend of mine and was thinking, "If she can do it, why not? No biggie." • And then I went into panic mode and threw in some frozen beef at the last minute. • Hey, I love me my meat🐄🐔 #itried#drmccombscandidaplan #candida #invisibleillness #autoimmune #Chronicillness #eatingclean #antifungal #whole30 #naturalhealth #cleaneating #naturalwellness #candidaplan #leakygut #candidacleanse #sugarfree #glutenfree #mycrazycandidalife #candidadiet #hypothyroid #fibromyalgia #brusselsprouts #detox   #keto #grassfedbeef   #naturalmedicine #holistic
OHMYGOSH! I don’t think I’ve shared this new piece with y’all yet! 🤦‍♀️ We worked foreverrrrr to get the perfect balance of warmth and sparkle and daintiness in this special piece, and I am so. in. love with how it turned out! The message 🙌 The cause 🙌 The cuteness!🌻 I’m excited to hear: WHAT DO Y’ALL THINK???
And here it is: my new best friend, The Alinker, the walking bicycle! @the_alinker_world I’ve only used it one day and already I’m in love! I was able to “walk” 1.5 miles!!! Like what?!?! When I first saw this a few months ago, my first thought was “this is so cool!!” As I learned more, I realized what a strong tool it is in the adaptive walking world, for many reasons. For one, you’re sitting up, not staring at butts! Two, you’re still moving your legs, strengthening those nerve pathways to remember the movement. Third, you’re doing this safely, while seating, saving energy. And so many other wonderful things. The Alinker gives me hope!! I’ve only just started my relationship with Barbara, the architect, and her team. But just the fact that they exist enlightens my hope. People care! People want to enrich lives and make it better! People are creating cool shit for people like me, like us. It literally warms my heart just thinking about it. Check out the company, they have cool videos, check out my insta for a brief overview, and stay tuned as I continue to learn how to use this in my day to day life! There is hope loves!!! #thisisms
I often hear that I'm sick because I don't exercise. LoL Exercising can be damaging to my body which will only progress my illness. K thanks . 🥄🤕🥄♿🥄🤓🥄🌻🥄💜🥄 . #spoonie #zebrasister #ehlersdanlossyndrome #arthritis #warrior #health #fibromyalgia #disability #adrenalhyperplasia #scoliosis #wellness #bepositive #lovelife   #zebra #medicalzebra #disabled #californiaadventure #rare #disease #awareness #chronicillness #chronicpain #fragilebutunbreakable #genetics #chronicfatigue #invisableillness #icarebecauseimrare
That chronic illness life. It certainly has its own agenda! Sometimes your body just doesn’t feel like doing what your mind wants it to do. So you acknowledge the need for physical rest and obey it the best you can in the hopes to recover enough to do something tomorrow. . . . #chronicillness #ehlersdanlossyndrome #chronicpain #strengthtomakeitthrough #neverstopfighting
#transformationtuesday vibes! The first picture was taken over a year ago; I was unable to use stairs, unable to perform self-care, unable to walk more than a block, & unable to stand for too long. At the time I had 13 ish broken bones, 5 of which were my ribs making it hard to breath. I broke my ribs by simply laying on my stomach on the floor, I broke my feet wearing heels, my knee was fractured and I don’t even know how, I broke my arm by simply over-extending it. My bones were breaking from literally doing nothing. I had no muscle tone weighing 87 pounds. After over a year of listening to body much better and getting help from the best specialists plus all the support from my family, I’m happy to say I’ve been able to recover some what. (Shown in pic #2 10 Pounds heavier than the first pic) 💪🏻 • • • Recovery & transformation take time, it takes patience and dedication. Don’t push yourself too hard, always listen to your body and don’t be afraid of getting help. It doesn’t matter how fast you go either as long as long you keep going. AANDD never give up. • • • also, REMEMBER that every body is different!! What works for one person might not work for you. I used to compare myself to others all the time, which put a dent in my life and helped me reach the point I was at the first pic. So yeeah... just do you 💋 • • • One last thing: my fatigue and nausea have been bad lately causing brain fog. Hence why this long ass caption is all over the place 😅 #brainfog #iapologize • • #rambling #chronicillness #chronicpain #invisibleillness ##strength ##chronicfatigue #mentalhealth #depression #Spoonie #fitfam #motivation #fitnessinspiration #nevergiveup #healthjourney #healthlyliving #surgery #fighter #maximcovergirl #girlswithtattoos #girlswithpiercings #blondehair #andTheresArchie
Bribed myself with ice cream to get some fresh air! I’m having extreme exhaustion and a lack of appetite but being outside makes me feel better mentally, even if I have to wear my mask. #chronicillness #chronicpain #chronicfatigue #cfids #cfs #fibromyalgia #eds #ehlersdanlossyndrome #raynauds #spoonie
First Bronchitis which triggered my Asthma..the meds for my asthma triggers my Migraines..the migraines make me nauseous and sick to my stomach..what a vicious cycle..when will it end! I'm so sick and tired of being sick and tired dammit! So unfair..for me and my family! So grateful for all the love and support from all my family and friends! I love you guys so much..Words dont seem enough! #sickandtiredofbeingsickandtired #chronicillness #chronicpain #poorimmunesystem #eds #asthma #bronchitis #antibiotics #prednisone #steroids #puffers #painmeds #feelingshitty #viciouscycle #suckstobeme 😢😢😷😷🤕🤕💩💩
those who have power over their imagination can survive more than they know 🌸🎨🐠🌵🔮 decorate your world - whether it’s at your fingertips or the only world you currently know is the 4 walls of a room
When I had my Cholecystectomy they said they hadn't met anyone diagnosed with EDS before but they learned about it in school. LoL I'm sure most EDS patients unfortunately are not diagnosed. . 🥄🤕🥄♿🥄🤓🥄🌻🥄💜🥄 . #spoonie #zebrasister #ehlersdanlossyndrome #arthritis #warrior #health #fibromyalgia #disability #adrenalhyperplasia #scoliosis #wellness #bepositive #lovelife   #zebra #medicalzebra #disabled #californiaadventure #rare #disease #awareness #chronicillness #chronicpain #fragilebutunbreakable #genetics #chronicfatigue #invisableillness #icarebecauseimrare
My diet has consisted of baby food, the occasional protein shake, and scattered (small) "real" snacks for weeks now. I can only eat bland things, with no additional sugar, no artificial sweeteners, nothing spicy or acidic, and nothing too high in carbs or fiber. I'm also off of my normal pain meds & more-or-less without pain relief because I had what I suspect was a mild GI bleed & *SO* much pain earlier this week. Now I think I might be impacted...I still get sick most days & the nausea and heartburn are overwhelming. I'm so bloated all the time & it's unbearably comfortable. I always feel full, even 10+ hours after I've eaten. My stomach isn't digesting. I've had these symptoms for sooo long, and I'm still awaiting diagnosis. Every day I can eat less and less, and I have to work harder and harder just to keep the minimum down. Do you have any tips for seeking diagnosis? How did you cope while waiting for someone to listen? What tricks have you used to manage #gastroparesis ?? . . . #foodjournal #babyfood #gastro #chronicillness #chronicallyill #spoonie #chronicpain #eds #edsawareness #ehlersdanlossyndrome #enby #queer #theythem #nonbinary #zebra #followforfollow #shareyourstory #advice #community #disabilityadvocacy #disabled
“It’s really quite simple: our bodies run on food, water and energy. If you give your body the healthy food and water it needs, while also creating emotional conditions in your life that lead to an abundant flow of energy in the body, you will be well on your way to health.” #wholefoods #guthealth #cleaneating #ketodiet #keto #ketotransformation #cancer #metabolic #gravesdisease #autoimmunedisease #chronicillness
So in love with my new pill case from @portandpolish It’s so chic and I love the matte finish. It’s got a big mirror inside the lid too so it can double as a compact. #portandpolish #pillcase #medicine #spoonie #spoonielife #minimalist #chronicillness #chronicallyfabulous #travelcase #portable #bestoftheday #beautiful #picoftheday #chic #fashionable
Check out this NEW (old) DESIGN in the Lyme Lives Here shop! ✨ ••••••••••••••••••••••••••••••••••••••• I actually designed this shirt 2 years ago to sell to friends and family as a fundraiser, but it has been so popular over the past couple of years that I decided to add it to my shop! ••••••••••••••••••••••••••••••••••••••• Swipe right to see additional styles! ➡️ •••••••••••••••••••••••••••••••••••••••
Ehlers Danlos Syndrome Awareness Month Day 21 Whats The Worst Part of EDS? Its taken my ability to walk far because of my constant ankle dislocations. Getting fitted for AFOs soon for mainly the right ankle. #EDS #heds #ehlersdanlossyndrome #ehlersdanlos #raredisease #chronicillness #chronicpain #pots #cci
We got ourselves a bleeder....💉🤖 I put a filter on this one to make it more...pretty?!? Do I change it or see if it’ll still work? #t1dlookslikeme
In case you're wondering how I got my grade 2 calf strain, I got it while I was clubbing over the weekend because I am trash. 😂 . . . #fitfam #healthyisthenewskinny #motivation #fitness #health #edsurvivor #survivor #recovery #eatingdisorder #warrior #weightloss #majorweightloss #fibro #fibromyalgia #chronicpain #chronicillness #injury #calfstrain
I haven’t shopped at a vintage store that isn’t @ozziedotsvtg in forever. The connection I had with John... we were kindred spirits from the moment we laid eyes on each other. His friendship made me want to come to the store every Saturday, buying amazing vintage was always just a plus. I didn’t know that I would ever find a shop I felt good in again after his passing on Halloween last year, didn’t think I’d ever meet a shop owner I’d have that instant connection with again .. but I think I may have 😊. After the fire three months ago @luv.mylife went in to see the owners of @crashtheparty_ to try and get me a little something to re start my collection. After hearing my story Mel went out of her way to send me an amazing care package to jump start the vintage vibes again and I sobbed like a baby. Someone I’d never even met .. it took my breath away. Last week I finally went in to give Mel the hug I so desperately owed her and the girl crush sparks flew 😍. I walked away with some goodies, my first real vintage buys since Ozzies, but best of all I walked away with an amazing new friend 😊 Mel is amazing. Take the time to visit her store and find out yourself. Cheers to new friendships 🤗 Purse and snake bracelet purchased from @crashtheparty_
There’s a lot happening here. This is the first time I’ve tried to record anything since my hands and lungs stopped working right. There are a ton of mistakes. I wanted to share the whole thing specifically to show those mistakes. My fingers don’t do what I want them to anymore. My lungs and vocal chords aren’t cooperating. But I’m really, really trying again. The song is called “Poke” and it’s by one of my top three bands, Frightened Rabbit. I learned about them the first time I went to Scotland back in 2007 (which makes sense...since they’re Scottish). A couple of weeks ago, the lead vocalist went missing, after posting “I’m away now. Thanks.” on his Twitter account. Shortly thereafter he was found in the water by the Forth Road Bridge, a location mentioned in a song about “saving suicide for another day.” I could go on and on about their music and mental health, but for now I’m learning more of their music. It feels important. His second to last message ended with, “Please, hug your loved ones.” May is mental health awareness month. Be safe and love each other. . . . . . #staysafe #mentalhealthawareness #frightenedrabbit #scotthutchison #tw #suicide #cover #poke #ukulele #ukulelecover #ehlersdanlossyndrome #ehlersdanlossyndromeawareness #silverringsplints #asthma #spoonie #spoonielife #actorslife #bicoastalactor #chronicillness #chronicpain #heds #connectivetissue #edsawareness #eds3 #hypermobility #hsd
Pictured with my beloved celery juice 🌱🌱 I discovered @medicalmedium some time ago and quickly became enamored by all of the information I was reading via his posts on social media sites. I really felt drawn to his protocols and was particularly interested in his book “Life changing Foods” – so much good information in there, wow!! 🌱🌱 It’s no secret I have been battling thyroid disease for many years. After being ejected from a car and nearly losing my life, I began to experience very debilitating symptoms that continued to linger. It wasn’t until I moved to California in 2015 that an ND, who became a friend of mine, discovered my thyroid was hanging on for dear life. I am religious about getting my thyroid checked and it is always functioning at a subpar level – even while I was on natural thyroid medication. Long story short, I decided to implement the celery juice into my diet a few months ago, along with other healing foods recommended in medical medium’s book. Guys . . . I received my thyroid labs yesterday and was shocked!! My t3 is in optimal range AND my TPO antibody levels went down 900 points!! Happy dance! 💃🏻 Also, my digestion is the best it has ever been, energy is great, and my hair is no longer falling out! 🌱🌱 This journey has been humbling to say the least and at times it can feel discouraging. I struggled greatly with accepting my limitations and sharing about my health for fear of being viewed as weak. It took me a while to break down my walls and be vulnerable, which is a sign of strength - not weakness. Plus, it has provided me with the opportunity to connect with so many wonderful people. 🌱🌱 It is important to remember that the human body is incredibly resilient and seeks balance – mind, body & spirit - and is my job to give it the tools it needs to restore balance. As most of you know, healing is not easy – it is a fulltime job. But once you begin to notice positive changes, the drive to push forward becomes greater and greater. Thank you, @medicalmedium for so freely sharing your knowledge. You are a gift to many 🙏🏻 - - - - #healthyfood #fitness #instagood #hashimotos #foodporn #chronicillness #wellness #healthy #wellness #juicing
Come out and support Casey at the Limestone 10k race in Kingston. It’s always fun watching the #dystoniacheetah zoom by! MacDonald Park @ 5pm📍⏱ Support Casey’s Dyfing Dystonia challenge by signing up at: https://bit.ly/2qZvnzg #dystoniaawareness #dyfyingdystonia
Did you know yoga has shown to be beneficial in dystonia management, chronic pain & anxiety! Don’t forget to join the Edmonton Support Group on April 30th for a FREE yoga session 🧘‍♀️ 🧘‍♂️ For more information head to: https://bit.ly/2qZKRSP #dystoniaawareness
5️⃣ weeks left until the Chuck's Run, Walk and Wheel for Dystonia - 5km run! 🏃 🏃‍♀️ Register today and save over 20% on registration! Visit the link in our bio to sign up and become a part of a great cause ! #dystoniaawareness #chucksrun2018
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