#chronicillness

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Last Saturday wandering around Alnwick gardens and castle whilst trying and failing to avoid sunburn. Given this was also day 1 of my period I'm amazed I managed to do as much as I did. Thanks to @bekahforsythe and @gomukuma for a lush birthday trip #goth #grownupgoth #paleandinteresting #altgirls #piercings #plugs #weekend #curvy #thickthighssavelives #endowarrior #endometriosis #chronicpain #chronicillness #paindisorder #poorly #cramp #alnwickcastlegardens #birthdaygirl #bestfriends #dayout
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Rocking the 70s look! Can’t wait to go shopping again. I always hated highwaisted pants but no one will be able to see my bag in these 👌🏻💜 • Credit to my 14 year old baby sis for letting me try on her clothes. She’s 100X more stylish than I am 🙊😍 . . . #70sfashion #highwaist #longhair #chronicillness #chronicpain #girlswithguts #ibd #ibs #spoonie #interstitialcystitis #invisibleillness
“Why are you are complaining about your joints now? You are young! Try getting older!” Sadly this is one of the hurtful things I hear quite regularly. Yes, I am 27 years old, and yes I suffer with a condition which many people do not understand. Most days are a struggle with simple tasks most of us take for granted such as mobility. I do worry about getting older because like you say, what am I going to be like at the age where joints are expected to hurt? My job is a challenge even though I love it so, and I tell myself that I cannot give up on my dreams now because why should I have to sacrifice all the pleasures in life? I refuse to let something I have no control over control me completely. It already takes my sleep and even my happiness at times, but I refuse to let it take my entire future happiness. Be kind, always. You never know someone’s battle. Thank goodness for Tramadol, Naproxen & most importantly the support of loved ones. ❤️ #eds #jhs #jointhypermobilitysyndrome #ehlorsdanlossyndrome #chronicillness #chronicpain #awareness #bekind
Looky what came! There was a bit of a scare because I was have a nickel reaction which really annoyed me because I though I could trust sterling silver, but alas I think it was just a coating so we should be safe! Yay 🎉 let’s see how much they help • • #eds #ehlersdanlossyndrome #posturalorthostatictachycardiasyndrome #pots #chronicpain #chronicillness #dislocation #spoonie #braces #silversplints
cake, for no reason, in bed, on a cold afternoon #heaven 💃😄😄😄🙊 #littlejoys #littlemoments #littlethings #whataworld 🙏
Did you know Kale can detox the DNA?! Amazing info from @medicalmedium 🙏🏻💚🙏🏻💚🙏🏻🌱🌱🌱 #kale #detox #dna #chronicillness #autoimmune #healing #medicalmedium #drnicolegalante #healinginseattle #primrosecottage #wellnessintegritywisdom #scottealey
Read this on @christian twitter and loved it. You create your own reality and choose how you want to act in that reality. Any day we wake up automatically gives us a positive to roll with if everything else that happens is negative. You are you. Be confident in that person and stay strong as we all got your back💜💜 #epilepsy #epileptic #dystonia #epilepsywarrior #epilepsysucks #dystoniaawareness #epilepsyawareness #depression #pnes #chronicillness #chronicfatigue #chronicpain #invisibleillness #migraine #mentalhealth #mentalillness #depression #anxiety #ptsd #christiandelgrosso
And the weekend is here!!!! Seemed to take forever this week. Might have been the heat- made time seem to move slowly. But I made it through - Looking forward to a day of fishing and crabbing tomorrow #gofish #gonefishing #lovemymmjlife #pnwonderland
Honestly having this injury AND having CF can be taxing. Today was one of those days. I haven’t been feeling well and on top of that I can’t do much for myself at the moment. I’m always talking about making moves forward but sometimes we just need to sit. I need to get better at that I guess. Taking the time to appreciate the recovery process. It’s going to be a long 6-9 months but I hope it’s filled with many lessons, miracles, and blessings. That’s what I’ll try to focus on.
Interesting to know how oxidative stress can effect our lives. Keep an eye oi ur to learn how to naturally fight oxidative stress.
My socially awkward weirdo 😂😂 . . Image description: Waffles laying facing away from me at the dog park, watching the other dogs play but not joining in. Then a pic of her intensely sniffing the butt of a small dog. . . Follow our pawtners in our bio highlights! . . @cypressavenueworks 15%off CAWFAMILYANDFRIENDS . . #servicedogsofig #servicedog #workingdog #workingdogdofig #working #dogswithjobs #dogsofig #dogsofinstagram #tollersofinstagram #tollersofig #toller #cptsd #ptsdawareness #ptsd #chronicmigraine #chronicillness #chronicillnesswarrior #spoonlife #spooniestrong #spoonie #dogpark #dogparkfun #weirdo #awkward
Do you hold expectations for your healing journey? . When I was new on my healing journey I had the expectations that as soon as I ate this or took that or did such and such that all of my problems would go away and that I’d be back to my old self. . My experience has taught me otherwise though. . I’ve heard a saying that “expectations = future resentments”. This saying always used to piss me off because I like to look forward to things and get excited. . I learned though that what this saying really meant was to not get too attached to my expectations and to be willing to accept whatever actually happens. . I don’t want this to discourage you on your healing journey ~ rather I want it to do just the opposite. If you’re feeling like your healing is not meeting your expectations, don’t get down or give up. . Instead, Come to a deeper understanding of what healing actually looks like, be open to the journey that presents itself to you, get support for any difficult days, and above all don’t forget to have faith. 😇💖🙏🏻🕊
We went to a new burger place tonight and something spooked us. We don't know what, but my mom, Waffles, and I were all on edge and super uncomfortable. We ended up taking our (delicious) food to go because we were so freaked. After a while she calmed down while we were there, but it was just... weird. . . Image description: Waffles in her gear laying by my feet, by a restaurant booth, and partly under a chair looking uncomfortable. . . Follow our pawtners in our bio highlights! . . @cypressavenueworks 15%off CAWFAMILYANDFRIENDS . . #servicedogsofig #servicedog #workingdog #workingdogdofig #working #dogswithjobs #dogsofig #dogsofinstagram #tollersofinstagram #tollersofig #toller #cptsd #ptsdawareness #ptsd #chronicmigraine #chronicillness #chronicillnesswarrior #spoonlife #spooniestrong #spoonie #weird #scary #wtf #creepyvibes
Good morning and happy weekend! 🌞☕🐝 I feel a little bit better today, thanks for all your love! 🙇😘😘😘💙💕 Guten Morgen, meine Lieben! 🌞☕ Die letzte Nacht war nicht unbedingt gut, aber mir geht's etwas besser! 🙆 Danke für eure vielen lieben Worte, ich wünsche euch ein besonders schönes Wochenende! 🌞🌞🌞🌞🌻 Auch wenn für einige ein wunderschöner Urlaub zu Ende geht @gisibg 😎 und andere am freien Wochenende plötzlich arbeiten müssen @der_kleine_hannes 😕 Ich denke an euch alle! 💋🐝🌻 #lchf #keto #paleo #healthy #naturelover #nature_perfection #naturfotografie #natureshot #natur #macro #justforfun #landleben #motivation #goodvibes #colorful #insectofinstagram #picoftheday #photography #fotografie #enjoy #fibromyalgia #chronicpain #chronicillness #fibrowarrior #love #happy #summer #bumblebee #hummel #insect
Hey gang! If you’re new to the #endoactive #girlgang , you may not know a thing about what we’re about. EndoActive is a registered Australian Health promotion charity, raising awareness of #endometriosis . My name is Syl Freedman and I co-founded EndoActive with my Mum Lesley in 2014. I have endo (obvs) and am so passionate about talking about it non-stop as it is a disease that’s been ignored and misunderstood for far too long !! . Check the ‘About Syl’ video above in Highlights to learn a little more about who I am and why I do what I do! Syl ❤️❤️ #endometriosis #endo #chronicillness #chronicpain #endoactive #endogirlgang #fatigue #endofatigue #endometriosisawareness #laparoscopy #guthealth
Does anyone know (fellow spoonies, lymie’s) where I can buy an inexpensive IONIC foot bath that’s also very good quality #ionicfootdetox #spoonie #chronicillness #chroniclyme #babesia #bartonella #detox ——-/ there’s a $60 one at Walmart. But is that one good enough? Thoughts? Opinions?
A very common side effect of chronic illness is chronic fatigue and this is definitely something I struggle with. Normal day to day activities can be quite exhausting, so when I have a really productive day (work, laundry, walk dogs, clean) I’m often wiped for 2-3 days afterwards. And when I get worn out, all my symptoms/pain flare too. It’s basically like having a bad hangover without the fun of getting tipsy the night before. Nowadays, weekends are my time to recharge/refuel so that by Monday, I can have the energy to be functional again. So depending on how my week went I may end up just sleeping the whole weekend away which can raise a few eyebrows. After a certain age, people start looking down on others who still sleep late on the weekends. I know I’ve definitely gotten a lot of grief for doing so. But to best understand where I’m coming from, just imagine getting the flu on a Monday. Now imagine you’re not able to call in sick so you go to work everyday feeling weak and worn down. Now imagine how you would feel by Friday- probably about ready to keel over, jump into comfy clothes and dive straight into bed. That scenario is what it’s often like trying to have a functional life with chronic illness. Obviously some weeks are better and some worse. But if you know someone with chronic illnesses and hear about or witness how much they sleep or lie around on the weekends, just know that it’s something their body’s NEED to do. It’s definitely not laziness! • Ps- when I post things like this, it doesn’t it always reflect how I’m feeling at that moment. Like this week wasn’t too bad for me energy wise. . . . #spoonie #interstitialcystitis #ic #pelvicfloordysfunction #pfd #endometriosis #endo #ovariancyst #pelvicpain #chronicpain #gerd #chronicillness #gastroparesis #painfulbladdersyndrome #spoonies #nervepain #bladderproblems #spoonielife #anxiety #depression #mentalhealth #insomnia #spoonieproblems #chronicpainwarrior #migraine #butyoudontlooksick #sibo #pcos #lookgoodfeelgood #invisibleillness
Trying something new. Gorilla Glue #4 . 93% thc concentrate. So far, I am really liking it. I feel relaxed and my hip pain is actually gone. #420 #gorillaglue4 #nice #painrelief #cannabis #weed #pot #chronicillness #mentalhealth #relax #medicated #medicalmarijuana
I LOVE #marktwain and after reading the news, dealing with my health insurance, and the new restrictions on my pain medications at the Pharmacy I really do like this little girl more than 80% of humans and that is after she destroyed the comforter. #pug #quoteoftheday #theeverygirl #risingtidesociety #marriage #relationshipgoals #snarky #sarcasm #spoonie #ehlersdanlos #chronicillness #invisibleillness #disabled #selfcare #eds #chronicpain #prorecovery #pots #dysautonomia #fibromyalgia #raredisease #spooniestrong #sickandtiredofbeingsickandtired #disability #wellnessblogger #chronicillnesswarrior #spoonielife #fatigue #sickgirl
#repost from @rebelthriver I have to admit, although I have worked hard to develop much moderation in certain areas, I am still an extreme kinda girl. And when I connect, love, care....I do so DEEPLY. I’m so glad that for all my efforts to tame it throughout the years, my heart has remained deeply wild and free. I always knew it was something beautiful and special, deep down, but because it opened me up to being hurt deeply as well, I’d be lying if I didn’t say there were times I saw it as a curse. But I hadn’t learned yet how to own it while still keeping balance, how not to lose myself in it, and maintain healthy boundaries etc... btw, I know, as some have made comments to the fact, that some that read our posts unfortunately question my sincerity. For example, just had someone the other night, for our nightly goodnight post, say that they think I’m “full of shit” & they “don’t believe I actually care”. I think of all posts, having people question our sincerity with that one, is tough to swallow, because of the enormous effort made for over 5 years, to ALWAYS post them, no matter what. There have been times I was posting it from the hospital, after surgeries, during loss & grief, personal struggles, severe illness/pain, depression, anxiety etc... All I can do is keep doing my thing sincerely, I know my truth, and those that vibe with me are my Tribe, and I love you. When I speak, I speak from the heart, and I lay everything on the table. I’m an open book, for better or worse :) ♥️Leila #anaisnin #lovedeeply #depth #rise #warriorspirit #inspirationalquotes #chronicillness #rebelthriver #encouragement #mentalhealth #wordstoliveby #instadaily #empath #brave #soulwork #goodvibes #healing #lightworker #chronicpain #love #anxiety #hope #loveandlight #survivors #domesticviolence #peaceandlove #ptsd #spirituality #yoga www.facebook.com/rebelthrivers
#repost from @rebelthriver “You are so brave and quiet I forget you are suffering.” ~Ernest Hemingway I know many of you can relate. I just want to send you love, understanding, blessings and remind you that you’re not alone. When you’ve honored me with a glimpse behind the curtain, I have not forgotten, and I recognize your incredible strength and bravery; I see you! ♥️Leila #ernesthemingway #hemingway #quietbravery #sufferinginsilence #suffering #rise #warriorspirit #chronicillness #rebelthriver #mentalhealth #instadaily #empath #brave #soulwork #goodvibes #healing #lightworker #chronicpain #love #anxiety #hope #loveandlight #survivors #domesticviolence #peaceandlove #ptsd #spirituality #yoga www.facebook.com/rebelthrivers
Another fun beach day in the books. It was a beautiful overcast day making it possible for me to stay on the beach longer. I love sitting and talking with Thomas. He even went and got me Thai food for lunch and we ate it on the beach. Yummy. I hung out with these two wile the rest of the group went wave jumping. I love how good Coby is to Ashlyn. He even turned her into a mermaid. Hayden rushed in to tell me there was a group of sting rays swimming with them. Hayden loved wave jumping with Uncle JD and Jake in the waves. And I loved holding McKenna on the beach. She’s a doll. Although Ashlyn made sure that Thomas was there strictly for her not the baby. She loves Uncle Thomas. We rounded out the evening with Dummy Rummy, Five Crowns, and Skull King. Then lots of talking with my siblings. So fun. But I’m exhausted. Praying for sleep as I haven’t received much lately and I desperately need it. Going on being awake (other than 15-20 mins here or there) for almost 64 hours. My body won’t relax and calm down. So I’m praying tonight is the night. Regardless, I’m so grateful for these precious moments. I’m loving being with my family.
"Не хочется вставать. На всё пофиг. Не мотивируют даже самые заветные мечты. Мне не совсем паршиво, не так, как в самые темные дни. Я слышу пение птиц, чувствую утреннюю прохладу, но такое впечатление, что между мной и этими вещами железная стена, и мы никак не взаимодействуем. Вот он мир, он живет своей жизнью, и вот я, живу своей, и у нас нет ничего общего. Как в том анегдоте: летели два крокодила, один зеленый, другой на север. Я заставляю себя встать с кровати, но это всё равно, что болтать ногой, сидя на стуле: на время занимает, но не приносит никакого результата. Что человек в депрессии может рассказать людям, находящимся по другой стороне баррикад? Кроме того, что ему постоянно хочется спать. Я наблюдающий, а не участник. Я стою возле забора высотой более 3 метров, а за ним - жизнь. Но мне туда нет пропуска. Иногда я туда попадаю по чистой случайности. И тогда я беру максимум. Всё, что могу унести. Всё, что поможет мне и другим думать, что моя жизнь не такая уж и унылая. Но большую часть времени я просто стою за забором. Стою и смотрю." 29.03.18 из личного дневника Постить ещё личные записи и наблюдения? #siesta_unfiltered #siesta_mha #депрессия П. С. А на фото роскошная пустыня Эйлата "урожая" 2017 года. Тоже как нибудь расскажу, очень необычный опыт был, много озарений и веселые приключения. "Тебя будут спускать," - говорили они, - "не переживай." А потом отвесная скала высотой в 70 метров. И нам вниз. И пути назад нет. И по скале я должна спускаться сама. То есть, "спускать" не означало, что меня замотают в какое-то хитрое снаряжение и аккуратненько отправят вниз, как мешок с... Ну, как я себе представляла. А я не то, чтобы не спортсменка... Хотя, если отлеживание боков и скоростной просмотр сериалов назвать спортом, то здесь я стопроцентный чемпион... Продолжение писать? 😊 #tbt #weekend
“You are so brave and quiet I forget you are suffering.” ~Ernest Hemingway I know many of you can relate. I just want to send you love, understanding, blessings and remind you that you’re not alone. When you’ve honored me with a glimpse behind the curtain, I have not forgotten, and I recognize your incredible strength and bravery; I see you! ♥️Leila #ernesthemingway #hemingway #quietbravery #sufferinginsilence #suffering #rise #warriorspirit #chronicillness #rebelthriver #mentalhealth #instadaily #empath #brave #soulwork #goodvibes #healing #lightworker #chronicpain #love #anxiety #hope #loveandlight #survivors #domesticviolence #peaceandlove #ptsd #spirituality #yoga www.facebook.com/rebelthrivers
From "A Hour with George Müller". ♥️A short, but insightful book.
So blessed to know this lady and call her my friend... so nice to spend time with her when she came to visit Alaska#friendship #alaska #alaskaismyhome #chronicillness #autoimmunedisease
I’m so sick and tired. Dreaming of these babies tonight🌀🌀🌀. #mecfs #spoonie #myalgicencephalomyelitis #chronicfatigue #chronicillness
Morning everyone. I wanted to post this as a little bit of weekend motivation for all the spoonies. All week I drag my butt out of bed for work and then look forward to Saturday when I don't have to get up to the alarm. That's the dream anyhow! I had one of those nights, which I have had for as long as I can remember now, where I woke up at least 4 times to go to the loo, then it take ages to go back to sleep and my brain is too active, I don't even know what its thinking about! The last time I wake up I feel exhausted and think well its light out so must be a reasonable time to rise and its only 530am. Most people would go back to sleep but if I do that I will pay for it even more and feel so much worse for it. So I have to get up and battle the chronic fatigue that comes daily which has been worsened by lack of sleep and have that horrible groggy feeling like I have a really bad hangover! However this is now a daily thing and I should be used to it but it doesn't make it any easier. I will keep fighting though, I am made of tough stuff and I won't let this beat me! To all of you out there struggling with the same, remember you are strong and you got this! #cfs #cfsme #chronicillnessawareness #chronicillnesswarrior #chronicillness #chronicfatiguesyndrome #sleep #weekend #butyoudontlooksick #meawareness #staystrong #selfcare #lovelife #mindful #motivationalquotes #strongwomen #battle #sleepy #hugs #chronicpain #illness #spoon #spooniewarrior #spooniesupport #spoonieawareness #fights #yougotthis #lifequotes
Thankful for a day surrounded by love and beauty ☀️
Celebrating the end of another brutal#migraine flare up with decaf #coffee in a #mug my sis got for me! #grateful #hawaiimug #chronicpain #chronicillness #migrainessuck #spoonie #turtles @preciousdass
Take breaks, take naps, enjoy life! Life is so fast nowadays, people are under so much pressure to be faster, do more. It is ok not to belong to a club, not to belong to a team, not to have a million hobbies and interest. It is actually important to be able to take a break! Do not feel pressured, it doesn’t make you a better person to have your complete day planned through!! My dream is to help others through their battle, hope to succeed! I am a fighter, life is worth it!!! 💪🙏😇💕 @ericastraveling Never give up!!! Life is too beautiful!! #crohnsdisease #crohns #crohnswarrior #flaws #ileostomy #ostomy #smile #jokes #instadaily #ulcerativecolitis #spoonie #healthylifestyle #ibd #ibdawareness #disease #health #invisibleillness #stoma #chronicillness #perfectlyimperfect #fighter #strong #cancer #cancersurvivor #blessed #life #nevergiveup #icandoit #believe #instahealth
GIVE ME ALL THE FOOD 🍴 • • Met up with mahhh insanely gorge sissssta for lunch today (swipe ⬅️), catching up on some much needed sissy time & • IT • WAS • SIS BLISSSSSSSS 👯‍♀️ • • Loads of chit chat, loads of sissy therapy & most importantly, loads of sweet potato fries 😜😂 • • I got a burger but without the bun 🙈 turned out I didn’t need it, because it was mouth watering without it!! Soak it up babes... crispy pork belly, pickled carrot, rocket, melted gouda cheese, bacon & onion chilli jam, topped with mustard mayonnaise 👅 • • School goes back on Tuesday & I’m resetting #BBG1 on Monday!! NO excuses 🙅🏼‍♀️NO backing out🙅🏼‍♀️. So today was kinda like the last supper 😂. Hope all my gorge fitfam are having a brilliant weekend 💗✨xx • • • • • #makemefree #bbgbabes #bbgplussize #bbgover40 #WOMP #bbgmums #sweatwithkayla #kaylaitsines #deathbykayla #chronicillness #gravesdisease #bipolar #mentalhealth #clubmeds #conquerthecankles #thickthighsaregoindown #strongnotskinny #thickthighswontapologise #soberlife #soberaf #cleanliving #addictionrecovery #recoveryrocks #sobriety #onedayatatime #bodypositivity #selflove
I promise not to tell you to get over this shit because the worst feeling in the world is when you feel like you are alone, no one understands you and you finally reach out and someone tells you to get over it. Those are not your people. Choose those who choose you. 💕 I will hold your hand and sit with you in the dark. 💋💋🤞🏼🤞🏼🤝🤝 #thisischronicillness . . . (@thugunicorn )
THIS @themightysite @janellesilver 💙 _ Regrann from @themightysite - Sending you this loving reminder from @janellesilver today. She says, "Know you’re not alone, you’re not failing or useless, you’re human! I’ve spent so much of my life feeling this way and still have to consciously check in, that’s why I’m sharing in the hopes we can remind each other and check in together. You are loved." ••• Tag someone and remind that they are enough, just as they are. ♥️ ••• #invisibleillness #mentalhealth #mentalhealthawareness #chronicillnesswarrior #mentalhealthmatters #mentalhealthday #chronicfatigue #chronicillness #spoonie #spoonielife #mentalhealthwarrior #fibromyalgia #fibro #lupus #PTSD #cancer #disability #ehlersdanlossyndrome #potssyndrome #endometriosis #endowarrior #depression #anxiety #themightysite
. Potatoes❤️ An allie when fighting #chronicillness They fend off Liver disease, strengthen your kidneys, soothe your nerves and digestive tract, reverse #crohnsdisease #colitis #ibs and even peptic ulcers. . WOW!!! In addition they are antiviral, antifungal, antibacterial, and assist you with stress.😱 . #potatoes are #brain #food and help keep you grounded and centered. . If you’re fighting a chronic illness in your life and haven’t had a potato in a long time because of their bad rap, give these bad boys another try. Pick #organic when selecting your potatoes. . Tonight I attempted to make a ‘dip’ or ‘sauce’ for the potatoes. Baked some carrots, sautéed some mushrooms and we have the final piece. . Then my daughter wanted a potato. Ketchup and avocado. 🤔hmmmmm after mashing my potato up I decided to add the other half of the avocado....HOLY SMOKES BATMAN!!! Took this sexy potato over the top. . Why haven’t I ever had #avocado on my potato?? Why? I mean 🤯 on the flavor!! Went great with my sweet and spicy green sauce😜 . #vegan #vegetarian #medicalmedium #paleo #keto #healthy #foodporn #foodie #healthyeating #healthyfood #love #sexy #healthymeals ❤️❤️❤️
From "A Hour with George Müller". ♥️A short, but insightful book.
I know we all feel this way...... #chronicillness
#Repost @jenniesallen (@get_repost ) ・・・ This is our purpose. This is God's plan. Go crazy with it. Become the expert on it. Love God and love the people around you wildly. Who has shown you this in your life?
My family has the love language of gift giving. ♥️
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