#chiari

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Il sole bacia i belli la pioggia bagna i mitici. Stasera a Chiari (Villa Mazzotti) domani Palazzolo (Piazza Roma). #gasom #determination #pota #figa #gia #dellinofarmer #bioband #adoss #brescia #chiari #swapfest
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"La vera amicizia consiste nel poter rivelare all'altro la verità del cuore". Grazie davvero per l'accoglienza e per l'affetto dimostratomi. Siete speciali! #CitPapaFrancesco #Serataconclusiva #FineGrest #Grest2018 #AllOpera #6settimanedioratorio #Animatori #Samber #Chiari #Salesiani #Shadega #Serataatema #Personaggifamosi
——THE GODS—- ———Parfum—— Poseidon (Poseidone), Dio dei mari e dei cavalli, rappresenta la bellezza maschile in tutte le sue forme; #bello #forte #giovane #e #possente dominava tutto ciò che stava in acqua. Il suo #profumo è l’esplosione della giovinezza e della freschezza- (aromatico, fiorito, ambrato), #parfum #natural #profumeriaartistica #profumeriemakeup #fragrance #bergamotto #lavanda #menta #albicocca #fresia #mughetto #muschio #favatonka #legni #chiari #profumeria #profumeriaartistica #esclusiva #marche ##profumeriemacheupcivitanovamarche #portorecanati #ancona #jesi
Every two years, Dis-ease tries to take something else. I’ve noticed a siginificant downward shift in terms of my capability-a solid 360 degrees and down spiral. Yet, I know deep down that if I didn’t fight to function continuously while (resistantly) learning to balance rest-but not resign to it-I’d already be bed-bound or dead. I can feel its disappointment whenever I choose to walk-even though I have to think more than any one should need to in order to do it some days (but nobody can tell), or my bones feel broken and I don’t get how they’re still moving. I can smell its tears-like I’m arm wrestling it into submission every time I cook or make something with hands that feel weak and I don’t know how I’m gripping anything between fumbling it. It gets cold feet each time mine are ice blocks or on fire with dying nerves-whether I’m looking for new auditions from my bed or I’m at one in person. I can feel its knees buckle when mine Dance though they shouldn’t be bouncing. And damn, I can feel it get more confused than I am every time I choose to write despite the fog and the feeling that my brain is melting and I don’t know how I’m thinking. Part of him goes away whenever I go away to another city or country and prove that if your world feels like it’s falling apart, all you have to do is make it bigger-find a new shell and keep crawling. A piece of him dies every time it tells me that I want to die, but I make another goal for when I’m 30 or visualize who I’ll be when I’m 60 instead. This dis-ease is trying to take more of me away this week, and I’m not going to let it. I just don’t know If that means I should listen to my body and rest or defy it and go, go, go. 💚 Photography: @eflx.3791 Activity: healing Location: Sedona, AZ
Hi y’all, I are selling T-shirts to raise money for my upcoming #surgery in Maryland. The shirts are $25, and proceeds go towards travel, medical, and other needed expenses. Those of you w/#chronicillness , #ehlersdanlos , and/or #raredisease know the struggles of traveling for medical treatment. Unfortunately, Texas is no different. No specialists, have to travel. Please #buy a shirt, #share this post, and help me get to Maryland! Link is in my profile #fundraiser #fundraising #ehlersdanlossyndrome #osteogenesisimperfecta #addisonsdisease #avascularnecrosis #butyoudontlooksick #chiari #dysautonomia #gerd #invisibleillness #invisibledisease #mcad #mcas #nervepain #reynauds #spoonie #spoonies #spooniestrong #tmj #vertigo #zebra #zebrastrong #zebras
Bedridden today in debilitating pain could use prayers please missed my pain management appt this morning cuz can't move let alone drive can barely post but really need prayers thx 🤕☹️🙏🏼🙏🏼🙏🏼 #chiarimalformation #chiarisucks #chiari #pain #pray #prayers #brainsurgery #invisibleillness #syringomyelia #brain #spine #nocure #prayforacure #miracle #prayforamiracle #healing #sotired #bedridden #chronicpain #chronicfatigue
It's either drink coffee or cry... and crying makes my head hurt worse (what is this? Day 16 of my Chiari/pressure head pain???). Just feeling so overwhelmed by the number of new people I have connected with and who I can now call my friends... I have found my tribe! Seems like a lifetime ago since I first started having health issues in 2012. I've both lost and gained friends, but more importantly I've gained perspective about life and what I truly value. I believe there's a reason for everything and even those things that seem bad at the time can turn into blessings you would have never imagined for yourself. God is so good! . . . . . . . #coffeeorcry #coffee #blessed #chiari #chiarimalformation #chiarisucks #chiariwarrior #chronicillness #chronicpain #headache #SweetT #strongwomen #strokesurvivor #ehlersdanlos #EDS #ihavefoundmytribe #tribe #Godisgood #brainsurgerysurvivor #zipperhead #saved #spoonies #igotonespoonleft #beautyfromashes
He takes really good care of me. He cooks, cleans, does laundry, takes me to doctors appointments, carries me, makes me smile, and more. We were only dating for 2 months before I got sick. And he stuck with me the whole time 💙💚 also the night I got sick he told me he loved me so we joke that I got love sick and never got better 🙈 This isn’t the life we wanted but we’re trying to make the most of it and hope for better days to come.
@beardbros_pharms @village_flora @theramu4u always coming in clutch saving my ass when i need relief with the fire pre July 1st packaging I have been holding on to. #truemedicine 💯🔥👩‍⚕️👨‍⚕️. What these guys have done for me I am truly grateful. I don't know where I would be without @beardbros_pharms The respect I have for these guys and what they have done for our #veterans the sick and #disabled is 2nd to none. Thank you also @village_flora @theramu4u @cannariginals @thecad33 for all you do for patients. #pharmaceuticals #chiarimalformation #fibromyalgia #spinalrefusion #pseudoarthrosis #dystonia #medicalmarijuana #marijuana #growyourown #grateful #nobigpharma #potnotpills #fuckpainpills #cannabis #pain #thc #cbd #prop215 #chiari #medicalcannabis
... aaaaaaand she's a frosty bitch again! Inky has a/c .... I saw the clutch hiccup twice on low.... but it's perfect on high but then didn't do it again in on any speed. Hmmmm... maybe it was just engaging? Fingers crossed Even if the clutch goes on it eventually, Ashy and I had fun working on it, and it's good practice for finally replacing the a/c all together 🤣😂 #InkyTheSubaru #TeamWorkMakesTheDreamWork #ShesNotPerfectButShesMine #subie #subieflow #subaru #subaruladies #prettygirl #chickswholovecars #MyBaby #ButYouDontLookSick #Chiari #mampp #781 #617 #GetLiftedStayLifted   #SubieChics #stonerchicks #girlswholoveweed #girlswholovecars #marijuanababe #stonerqueen #subiedistrict #subiehunters
I had to have my shunt tapped for the first time yesterday. Was so proud of how well Mason handled himself to have to watch them do that. They have to put a needle in between the ribs, enter the shunt, then run it down to my spine. He checked the pressure, which was high. So he pulled csf off to bring the pressure down and collect a sample. The pain became so severe low in my spine. He is finally listening to the geneticist concerns that the cord is tethered. He finished up, then went over a bunch of tests he wants to order. He looked back at Mason to ask him "are you doing ok buddy" as I lay getting cleaned up, I'm kind of glad at that moment him and I couldn't see each other. Mason tells him he is fine, and Dr. responds "I really hope your mom's going to be ok too" my heart sank. He never says stuff like that. I have only seen that look on the doctors face now for the 3rd time. It's always been when a tornado is hitting. I sit up to a low pressure, spinal headache from the procedure. The 2 hour drive I had to then make, feeling so sick, and a 12yr old in the passenger seat. He wants new mri's, xrays, swallow study, and so on. New diagnosis added of a Neuro form of sleep apnea. #thisiswhyourstoriesmatters #shuntlife #shuntales #chiari #syringomyelia #eds #awareness #keepsharing #nomoresilence
So some of you know I've been dealing with some serious pain and more for over a year. It's been quite the ride and I don't expect to get off it anytime soon. I'm at Stanford's pain management clinic getting an epidural blood patch to treat a suspected cerebral spinal fluid leak by one of the top CSF specialists in the country. 🙏😬Fingers crossed. Endlessly thankful for the love and support I am so lucky to receive from family, friends, peers, and professionals. Thank you for being patient w me, for sharing your strength with me, for listening to me and allowing me to be vulnerable. You know who are you, and I hope I can be as good to you as you've been to me. #csf #chiari #neurologicallydisordered #invisibleillnesses #fuckitheregoesnothing
Feliz dia del amigo!!! #Benja #chiari . @its_carorojas los quiero! 💋💋
Camicie uomo da €30 Pantaloni uomo -50% Polo uomo -50% Maglioni uomo -50% #supersconti #saldiestivi #viazeveto42 #chiari #botteghedichiari #negoziincentro
•Welcome to Al Tatami• ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ #sushi #sushirestaurant #japanesefood #chinesefood #italy #chiari #newopening #restaurant #altatami #tatami #fresh #comeandtakeit #jappo #china
Happy 3 year #brainsurgery anniversary! So crazy to me. 3 years ago I weighed 125 lbs, I was so small and weak. Could barely take care of myself and was at the lowest point in my life. I thought my life was going to be over. Even though they took some of my skull, some stuff around my brain and removed part of my vertebrae...you better believe I’m still kicking! Today I weigh a HEALTHY 160lbs and I’m stronger than I’ve ever been. DO NOT let anyone ever tell you that you cannot so something or overcome life changing obstacles. Cuz you got living proof right here! #chiariwarrior
Proofs from my brain (or more neck modelling) yesterday. Upright neutral, extension and flexion positions. I joke about brain modelling because people have stolen pictures of my MRI and used them for other purposes including claiming their pictures of their own brain. So I consider my brain a worldwide model... #chiari #eds #ehlersdanlos #ehlersdanlossyndrome #ehlersdanlosawareness #chiarimalformation #uprightmri #cci #cranialsettling #craniocervicalinstability #instability #chronicillness #invisableillness #hypermobile #hypermobilitysyndrome #heds #syringomyelia #pots #posturalorthostatictachycardiasyndrome #ist #dysautonomia
Chi dorme non piglia... PROMO! 🤩😂 La settimana sta per finire, ultimi giorni per avere la pico e la aio box scontate del 30% {Nessun cane è stato maltrattato per questa foto, giuro che non l’ho obbligata a dormire 😂 } #svapando #sigaretteelettroniche #pico #aiobox #eleaf #joyetech #NalaGallorchio #goldenretriever #puppy #mascotte #promo #summer2018 #rovato #chiari #vape #chillandvape #chill #sleepingbeauty #dogsofinstagram #vapore #svapo #svapoitalia #vapeitaly #eliquid
I felt like I was in #dumbanddumber this morning when I put my #mio flavor this morning #imadeafunny #chiarimoments #ihavebrainproblems #chiari #brainfog #pots ...
Yes, I let her pick up the "berries" but not eat them. She then brings them to me. And I let her, because she's independent, and it helps her work on dexterity and figuring out how to do things on her own (in this case, how to army crawl carrying them). #spinabifida #hydrocephalus #chiari #clubfoot #tubie #LOVED
Not 10k steps, but getting there. #7ksteps #chiari #walking #ididit #goodjob
InRhythm is proud to sponsor the NYC4CSF event benefiting the Chiari and Syringomyelia Foundation. Thank you for letting us be a part of this amazing cause! #lovewhereyouwork #nyc #newyorkcity #nycevents #chiari #csf
Check out the great articles for the latest edition of Excellence Magazine! I wrote an article inspired by @kl.haynie in which I discuss Chiari Malformations. You can read the wonderful articles here🖌 http://www.nutshellsquarebiz.com/excellence-magazine.html ❤️Like always, THANK YOU ALL FOR YOUR SUPPORT! 😘 @realdealfitnessllc #reporter #health #wealth #wellnessmagazine #magazine #chiarimalformation #overcome #obstacles #chiari #chiariawareness
Check out the great articles for the latest edition of Excellence Magazine! I wrote an article inspired by @kl.haynie in which I discuss Chiari Malformations. You can read the wonderful articles here🖌 http://www.nutshellsquarebiz.com/excellence-magazine.html ❤️Like always, THANK YOU ALL FOR YOUR SUPPORT! 😘 @jlearbonnefitqueen #reporter #health #wealth #wellnessmagazine #magazine #chiarimalformation #overcome #obstacles #chiari #chiariawareness
The other day I attempted to interview a patient. He immediately started laughing and said, “You? Is this a joke? You are my doctor? You have tubes sticking out of your chest and all over you. You should be in the hospital. You aren’t healthy. I don’t want you to be my doctor. You look like you are dying”. • I must admit after my attending took over, I made my way to the bathroom and cried. I cried like I never have before. I cried bc after almost 8 years of fighting for my life to be someone’s future doctor one day, I was automatically dismissed in an instant by how I looked. • For a couple of days after this incident and many others, I found myself disconnecting myself from my tubes. When others look at me they sometimes ask if I am dying. But in reality, I am living bc of them, for without them, yes, I would die. • So today for the first time in a while I found myself genuinely smiling from ear to ear. These past 4 weeks of clinicals have been filled with absolute pure exhaustion in trying to meet the same expectations as my classmates with no accommodations despite my disabilities, but at the end of the day I am here. I am living. Bc of these tubes, sir, I am living.
Starting my 30 day challenge. Are you ready to start yours? Don't forget to go get a smoothie or some coffee or some yummy juice. #NowOrNever #chiari #chronicpain #hereigo #CBD
Sorry for my sudden flight and absence! Life is always changing, and real life can take up all your time! But here I am, quacking back into the social media world to help, educate, support and inform you humans of the world about Chiari Malformation! I hope all my birds of a feather and Human friends have been living well and having a fun summer! #ziptheduck #duckietales #cmduckie #gonebutnotforgittenabout #triumphantreturn #okaynobigdeal #duckiedays #reallife #chiarimalformation #type1 #chiarilife #toomuchbraintocontain #chiari #zipperhead #brainsurgery #survivor
Gorgeous day ❤ Replaced the a/c compressor #bearing in #InkyTheSubaru ... #AmadorVehicleRecovery giving me a hand with the fucking bearing being stuck. Missing 2 bolts for the pulley arm but I'm on the hunt in the AM and we'll finish it tomorrow. [LA is the only one who touches my car other than me or @subaruofwakefield , highly recommend both if you're in my area 🖤🖤] Ashy helped me in the fight with the bearing removal before LA got here with the perfect size socket, I love that she's 8 and helping me already 🖤 maybe I can pass #InkyTheSubie down to her in 8 years when she's 16 ... [Inky just had 150k and she's a 2005.... soooooooo, we'll see!!] #InkyTheSubaru #TeamWorkMakesTheDreamWork #ShesNotPerfectButShesMine #subie #subieflow #subaru #subaruladies #prettygirl #chickswholovecars #MyBaby #MommyDaughterTime #ButYouDontLookSick #Chiari #mampp #781 #617 #GetLiftedStayLifted   #SubieChics #stonerchicks #girlswholoveweed #girlswholovecars #marijuanababe #stonerqueen #subiedistrict #subiehunters
I’ve been a bit inactive lately, but I have some updates. I started my second session of summer classes a few weeks ago and they’re going as good as can be expected. I’ve been extremely fatigued which is not so conducive to academic excellence, but I’m doing my best. I was quite ill yesterday and for some reason I have been dealing with constant nausea despite lots and lots of Zofran. Anyway, I’m still alive...it just takes a lot of energy to keep up with social media sometimes!! Tell me how your week has been so far! I’ve been watching #GreysAnatomy all week.
The “I’m Too Old For This” Starter Pack: your guide to surviving the day after a concert, sporting event, or other event you said YES to when you definitely should’ve said no. :: The first step to recovery is to sleep until at least ten. Then, you can roll out your neck with this nifty roller (actually designed for feet 💁🏻‍♀️). Then, rub on some Deep Relief. Finally, as you get to work for the day, make sure to down some caffeine-filled electrolyte water. We also suggest headphones as a reminder of why you listen to @spotify instead of seeing your favorite bands live :: In all seriousness though, Ive been using CBD oil for several months and recently switched over to these gel capsules from @ecosciencesco. And while I’ve found the biggest CBD benefits to be on my focus and concentration, I do think taking hemp oil has helped with quicker recovery after overdoing it. :: So tell me, what do you keep in your recovery toolkit? :: #plantsasmedicine #hempheals #ecosciences #healthyhemp #ambecosciences #ambcollab
The poverty chronicles continue: Bench 4x6, top set 61kg/134lbs OHP 4x6, top set 35kg/~5 bone-in hams Not shown: upright row 3x8, lying ez bar pull over 3x8
Built on the back of dying aids patients. This plant is #medicine end of story. #prop64 all bullshit. Snitches, clout chasers, so much outdoor #boof , no compassion for the sick and disabled that really need these meds and light dep greenhouse and poison for the people is what #prop64 is. No #compassion for us that really depend on this plant for our #health and daily life and people are still going to jail for this plant. My future isn't Here in cali just have to be patient best thing I can do for my dtr get her he fuck out of #California and for myself. #cannabiscommunity #cannabis #pain #thc #cbd #prop215 #chiari #chiarimalformation #fibromyalgia #spinalrefusion #medicalmarijuana #marijuana #growyourown #nobigpharma #weed #fucklightdep #fuckfreshfrozen
Ecco il nostro staff tecnico al lavoro 😍 #gamefree #chiari #videogames #tecnici #lavoro #flipper #estate #noleggio #work
When Darth Vader shows up and you guys do a Peace ✌🏾 dance. Symbolizing a truce for one of your ICU little buddies. ▫️ ▫️ ▫️ #neurosurgery #vader #picu #icu #physicianassistant #patientadvocate #pa #doctor #hydrocephalus #cancer #chiari #nurse #jedi #happy #darthvader #children #starwars #theforceisstrong @hospital_friends @journey_to_pa_school @img_med @doctortribe @ryanseacrest @theellenshow
Ci sarà da fidarsi del capo alla griglia ?😂😂😂#grigliata #salamina #paneesalamina #lamacelleriacurti #chiari #
Hemma igen efter en fantastisk USA-resa. Tro det eller ej men jag har blivit mycket bekvämare i min egen kropp å allt vad det innebär. Såg flertalet personer som hade shorts och ortoser/skenor, något jag aldrig någonsin vågat mig på på grund av alla konstiga blickar jag får. Men mina fötter och ben behöver skenorna, mycket mer än jag egentligen vill erkänna. Jag blir mycket rörligare och risken för att bryta något minskar avsevärt. Så under tiden jag var där såg mina ben ut såhär merparten av tiden. Nu ska jag bara våga göra det här i Sverige, mina komplex för benen blir inte direkt bättre av att alla ska stirra...#slutastirra #skenor #legbraces #fuckkroppsideal #kroppskomplex #traveler #instalife #wheelchairgirl #anxietywarrior #angest #anxiety #disabled #ventriculostomy #brainsurgery #brainsurgerysurvivor #neurokirurgi #spinabifida #spinabifidawarrior #hydrowarrior #hydrocephalus #chiari #chiariwarrior #sweden #swedishgirl #fangirl #directioner #psykiskohälsa #loveislove #lgbtqsupporter
What day was it yesterday???... I loose track. Day 14 or 15 of this instense Chiari pressure headache??? And then this one thinks she can help by sitting on my face! Lol! At least I got 3 specialists Dr visits coming up (thanks to two really good friends and a neuro doc I work with) and I'm feeling optimistic! . . . . #SweetT #chiariwarrior #chiarimalformation #chiarisucks #chiari #ehlersdanlos #ehlersdanlossyndrome #strongwomen #strokesurvivor #catsofinstagram #getoffmyface #getoffmyfacecat #feelingoptimistic #lifeisbetterwithfriends
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