#cfwarrior

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My CF doc said I need to get my lungs working harder for airway clearance... so, I tried until I got the 12 ft wall three times in 30 seconds. 😊 #ninja #anw #ninjatraining #cysticfibrosis #cfwarrior #ninjaforacfcure #airwayclearance #endurance
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This has been my friend for 11 days now, I am tired of you now, you are boring, You never leave my sight, so I can return to the gym and my work....and worst of all You are a lier, you said you only would be stay for 10 days and now you are staying 14 days. I lie if I said I will miss you💜🦋#rosephaline #intralipid #antibiotics #cfwarrior #missthegym #cysticfibrosisaware #cystiskfibros #cystiskfibros #cysticfibrosis #65roses #allthatmatter #breath #cysticfibrosisvideo #lovelife #iamstrong #sayyestolife
Good luck to everyone running the @londonmarathon today, especially those running for the @cftrustuk 👶🏻💛💛💛💛💛💛☀️☀️
Good luck to everyone running the London Marathon today! A special shout out to Mary Donnelly, Catherine Kingston, Liam Mc Hugh and everyone running for cystic fibrosis and @raysofsunshinecc 💪 have a good day and just remember, pain ends so keep going through each barrier with the same determination you had on mile 1 🙌 #LondonMarathon #cysticfibrosis #TeamSunshine 📷 @paulfearsphoto
MY LIFE IS PRICELESS - ORKAMBI NOW// Orkambi is back on PBAC agenda for July. This time we need a positive result. Make sure you are following @cfaustralia to keep up-to-date with all the ways to get involved to make sure we are heard - 4th time lucky 💜 ⠀⠀ #cysticfibrosis #sixtyfiveroses #cfawareness #cfwarrior #cfprincess #weneedorkambi #cysticfibrosisawareness #65roses #billierose #billiebebrave #bebrave #strong #staysalty #empowerwomen #curecf #fucf
MY LIFE IS PRICELESS - ORKAMBI NOW// Orkambi is back on PBAC agenda for July. This time we need a positive result. Make sure you are following @cfaustralia to keep up-to-date with all the ways to get involved to make sure we are heard - 4th time lucky 💜 ⠀⠀ #cysticfibrosis #sixtyfiveroses #cfawareness #cfwarrior #cfprincess #weneedorkambi #cysticfibrosisawareness #65roses #billierose #billiebebrave #bebrave #strong #staysalty #empowerwomen #curecf #fucf
MY LIFE IS PRICELESS - ORKAMBI NOW// Orkambi is back on PBAC agenda for July. This time we need a positive result. Make sure you are following @cfaustralia to keep up-to-date with all the ways to get involved to make sure we are heard - 4th time lucky 💜 ⠀⠀ #cysticfibrosis #sixtyfiveroses #cfawareness #cfwarrior #cfprincess #weneedorkambi #cysticfibrosisawareness #65roses #billierose #billiebebrave #bebrave #strong #staysalty #empowerwomen #curecf #fucf
Ok so I’m pretty sure I have the best sister in the world. This invitation just came in the mail for her bday party and instead of gifts she wants donations to the #cysticfibrosisfoundation ..... in honor of @michaelmunoz_ I literally just bawled. Thank you @tiffanybrieske you’re my hero. #cffighter #cfwarrior #cysticfibrosisawareness
Evi giving the “ready, set, GO” command to all the 25k and 50k runners at Georgia’s SweetH20 25k and 50k this morning!!!! . . . . . . #sweeth2050k #irunforevelyn #Irun4evi #irunformichael @ir4michaelofficial #trailrunning #CFWARRIOR
Fantastic time at the Great Strides Walk today!! Thank you to everyone that supported us! We surpassed our goal and t-shirts are in so if you ordered I’ll be getting them out this week #cfmama #cfwarrior #cfawareness #cysticfibrosisfighter
First ever athletics meeting for the girls representing Barnet - Twins the U11s, Amy U13s. 🥇 for Holly in the sprint, 🥈 in the 800m, Meggy 🥉 in long jump and vortex, Amy🥉 in discus and nice leg in the relay.....#cfwarrior #teamlight #sisters #athletics #vertex #orkambicampaign #middlesexyoungathletesleague
Our Mother’s Day pop-up event is only 3 weeks away! This means late nights for our dear VLF volunteers who help us prep, mix, and pour our soy candles by hand. We have some delightful new scents coming your way! 100% of the profits from our VLF booth products support those living with Cystic Fibrosis and the quest for a cure. ............................................................................. . . . #handpouredcandles #handpouredcandle #soycandles #soycandle #candlemaking #candles #candle #truckerhat #coffeemug #cysticfibrosis #cysticfibrosisawareness #cysticfibrosisfundraiser #cf #fightforacure #weneedacure #nonprofit #popup #vintage #vivisvintagemarket #vintagestyle #vintageinspired #curecf #endcf #65roses #sixtyfiveroses #cfwarrior #cfprincess #cfcommunity #shoplocal #vintagegoods
Baby’s first birthday party. And it was Harry Potter themed 😍. Happy Birthday Brynn! @smilingaggie #babywearingforthewin #cf #cysticfibrosis #cfwarrior #cfmama
Supporting some of our team members in their fight for a cure for Cystic Fibrosis #cysticfibrosis #cfwarrior #findacure #perspective #cff #takeabreathforcf #ivysleague
I love it when @apexclimbinggym gets new obstacles! This was my first time on the circuit board. 😊 #ninja #anw #ninjatraining #cysticfibrosis #cfwarrior #ninjaforacfcure
She may have had a health scare yesterday but today she came back fighting.... #cfwarrior #thisgirlcan #cfwontbeatthisgirl #danceexams #cysticfibrosis #awareness
Was in the loft the other day and came across these two relics 😂 the first one, the big black box, was the very first nebuliser I every had back in the 90s! It made such a loud noise that my mum had to put a cushion underneath it and, it pumped air continuously so that everyone I used it, it would fill the entire room with my antibiotic 😆 it would take around 15-20 minutes for the chamber to be clear! In the 00s I used the second nebuliser, the blue one, smaller than the first but still made a noise however this time, it didn't continuously pump air into the room, it timed to your own breath so that none of the antibiotic was wasted! This time it took around 5-10 minutes. NOW I use the Ineb which is a hand held nebuliser, small, hardly makes a noise, times to my breathing & can be easily taken to places! This takes about 2-3 minutes to empty the chamber of my antibiotic! It's crazy to think how far technology has progressed in the last 30 years which makes a long term illness that slightly more manageable! I'm excited to see what the future holds in terms of technology and medicine for CF! #Nebuliser #Ineb #AdvancementsInTechnology #Technology #Antibiotics #BlackBox #CF_Superhero #CysticFibrosis #CF #CFSuperHero #CFWarrior #Fitness #Health #Life #Journey #Cardiovascular #Lungs #LungFunction #Respiratory #Medicine #Treatment #Weight #Goals #MaintainHealth #ImproveHealth #Sheffield #UK
I seriously just want to cry when I look at this! ❤️❤️❤️ #curecysticfibrosis #cfwarrior #cf
A-Z of Cystic Fibrosis R = Recovery Living with Cystic Fibrosis there are a lot of hospital admissions. You spend quite a lot of time in hospital wether you have had a tune up, sinus operations or even the Big One Transplant. Lucas one day will need a transplant and I hope there will be an organ donor available when that time comes. #azofcysticfibrosis #Recovery #CysticFibrosis #NotJustLungs #WeNeedACure #OrkambiNow #65Roses #CFwarrior
Happy organ donation awareness month!!💛💙 Everyone’s experience is different and mine was a lot of back pain and insane discomfort. One thing that really bothered me once I got my transplant was not being able to get comfortable. I literally was not able to get comfortable for about a month and then some. It wasn’t my incision that bothered me as much, It was my back. It’s something I didn’t think about pre transplant as something that would be an issue once I got the surgery. Probably not something people that are needing a double lung transplant think about too much. The amount of hours you are laid out on a table stretched out apparently can cause months long of pain. We tried everything to get me comfortable but failed. So this was an attempt to find some relief. I sat in a chair bending forward a little in order to stretch some of my back muscles because of laying in bed on my back the whole time. I wasn’t able to lay on my sides. 😣♻️💜 . . #lungstoryshort #cysticfibrosis #cfawareness #cff #cfirl #65roses #cfwarrior #posttransplant #doublelungtransplant #newlungs #transplant #lungs #donatelife #donatelifemonth #organdonation #recycleyourself #hospitallife
Ma belle bleue est de retour du garage 😁👍 Une petite peinture de capot et l'aile réparée et la voilà encore plus neuve que neuve héhé 😉 #picoftheday #pics #car #cars #seat #seatleon #seatleoncupra #cupra300 #metalicblue #mycar #passion #fitness #fitfamily #fitfam #sport #teamhalfbody #cysticfibrosis #cffighter #cfwarrior #passioncar #frenchie #french #frenchcar #instacar #volkswagengroup
I do 5 nebs a day and I'd say Hypertonic Saline is by far my desert island neb of choice. 🏝️💨 What's yours? . . . . . . . . #cysticfibrosis #nebuliser #cfawareness #curecf #orkambinow #cfwarrior #cffighter
GOODY BAG 💊 Today I had my cystic fibrosis clinic appointment and it was awesome _ Not perfect by any means and not all incredible results, BUT I had some amazing conversations with my physios and doctors and felt 100% listened to and understood. They answered all of my questions and adjusted a few of my prescriptions to make them as manageable as possible. _ What an amazing, amazing NHS we have ❤️ wouldn’t be here without them. _ Here I am with my goody bag of prescription items that I am genuinely (oddly) excited about. A few new + adjusted items that, with consistency, I hope will contribute some little improvements 👊🏻 _ And, to top it off, mum and I discovered a beautiful bluebell wood right by our car park 👌🏻 _ Hope you’re all enjoying the beautiful sunshine ☀️
FEELING HONOURED - I’ve always said how one of the things I love about having cystic fibrosis is that I get to meet some incredible people on my journey. The team over at @raysofsunshinecc do some unbelievable work with terminally ill children including some with cf. - So when they asked me to be an ambassador, it was something I just couldn’t refuse. - It’s been one exciting Friday and I can’t wait to attend some of their events in the very near future! Have a great weekend all ☀️ #TeamSunshine #Ambassador - - - - - #motivation #fitness #fitnessmotivation #cardio #workout #fit #cysticfibrosis #beatcf #justbreathe #cfwarrior #goals #inspiration #beastmode #fitspo #instafit #fitfam #fitfamuk #feelgood #train #getfit #scar #scars #life #lifegoals #charity
After almost 5 years doing this fitness thing, I figured I would make a page just dedicated to this lifestyle and my progress. Because why not right?! 😋💪🏼
This is the furthest I’ve run without stopping in YEARS and today is my last day of IV antibiotics. Imagine what you can do if you let go of the limits you’ve placed on yourself! . I contribute this to being in a good place mentally as I look forward to new opportunities ahead and absolutely beautiful weather that could not have been more perfect for this run. Running is more than just physical for me. It’s a mental and spiritual experience and I am so grateful for everything it does for me. . #cf #cysticfibrosis #nikerunplus #cfwarrior
Singer-Songwriter Tyler Stenson will be gracing us with his elegant folk music from 11:30-2:30 at our Mother’s Day pop-up event. Everyone loved his tunes at our holiday market; we just had to have him back! Come grab snacks, let the kids romp the playground, enjoy the entertainment by @tylerstenson and shop for a good cause. See you May 12th @redberrybarn .............................................................................. . . . #singersongwriter #elegantfolk #livemusic #cysticfibrosis #cysticfibrosisawareness #cysticfibrosisfundraiser #cf #fightforacure #weneedacure #nonprofit #popup #vintage #vivisvintagemarket #bettertogether #vintagefurniture #justbreathe #vintagestyle #vintageinspired #breathe #curecf #endcf #65roses #sixtyfiveroses #cfwarrior #cfcommunity #vintagefinds #happyhoarder #homedecor #shoplocal #vintagegoods
Anyone know a good 5-6 week program? I'm putting the weight on but im losing my abs and still have little arms. Any advice? #cysticfibrosis #Behappy #Cfwarrior #Iwantabsandkababs #needtogettothegym #hesstillskinny
Figure 4 lock offs on the floating pegs! This was my first night on this obstacle, so I was super pumped to get so close to completing it! One more to go! #ninja #anw #ninjatraining #cysticfibrosis #cfwarrior #ninjaforacfcure
‪For all you CF Warriors out there in this blistering heat... Don’t forget your salt tablets 👌 #cysticfibrosis #24hrs4cf #sunshine#heat
Thanks to @shazzles_writing I’ve been tagged to list the movie (or movies) that define me. Except I don’t feel I have a movie that defines ‘me’, although I do have several I have watched multiple times. What I do have is a song (or ten) that define me. Rules were made to be broken, so here is the #1 song that defines me. Am I Here Yet? (Return to Sender) by Billie Myers. It’s one of my funeral songs (I have 4 funeral songs all up – so either bring your dancing shoes or noise canceling headphones – your call - but note there will be an audience participation singalong 🎶) But I digress. From the first moment I heard this song, I felt like Billie had been peaking inside my head. In particular: “Sitting around in my imagination using someone’s else’s logic – for loose change.” “My emotional bends are doing somersaults My head is where my feet should be, on the ground I chose the path of most resistance Had to be different, made my mark but then I crossed the lines You read between” And “I've been told I'm exceptionally ordinary.” While I’ve never written a letter to my future self asking for directions, it sure seems like something I would do. And I’m pretty sure if I had, it would have bounced back.
Today they are going to change my needle at the hospital so I get to be needlefree för 4 houres😄 Lucky me💜🦋#cflife #cffighter #cflifestyle #cystiskfibros #cysticfibrosis #cfwarrior #65roses #cffitness #rosephaline #antibiotics #cysticfibrosisvideo #venport #missthegym #lovelife #breath #sayyestolife
Oakley is very very chesty today so we're going to keep him very busy today with lots of exercise! Hoping this weather helps 🌞🌞🌞🌞 #oakley #oakleys65roses #cf #cfwarrior #cysticfibrosis #cftoddler
Siempre hay objetivos por cumplir o marcar, si fracasaste en uno, vuelve a intentarlo, ir marcado demuestra estar luchando por ello. . Apunta, concentrate y consíguelo. 🎯🎯🎯🎯🎯🎯🎯🎯🎯🎯🎯🎯🎯🎯🎯🎯🎯 #fibrosisquistica #fibrosispulmonar #cysticfibrosis #cysticfibrosisawareness #lung #pulmon #digestivo #digestive #sport #deporte #cfwarrior #donantedeganas #dona #donante #cflife #lifewithcf #lungfibrosis #turespirassinpensaryosolopiensoenrespirar #losbesosmasdulcessabenasal #mifuturoyaesposible #cysticfibrosissucks #chronicillness #mucoviscidose #discapacidad #cfirl #cffitness #paintball
Tempo run tonight to wrap up this weeks training. The run felt great and I'm very happy with where my training is at compared to last year at this time! Tonight's tempo run: 10 min warm-up (very easy pace) 20 min constant pace (8 min/mile) 12 min alternating between fast and slow pace with 1 min going fast and 1 minute going slow. Fast pace (6.5 min/mile) 6 minutes total Slow pace (9.5 min/mile) 6 minutes total 9 min cool down at easy pace (8.5 min/mile). Resting tomorrow and doing my long run on Saturday! I'm shooting for a run between 10-13 miles! Let's do this💪 #runner #running #run #runnersofinstagram #runningman #runnerslife #runnershigh #runtoinspire #halfmarathontraining #lovetorun #distancerunning #temporun #cardio #exercise #breathe #justbreathe #breathedeep #breatheeasy #cysticfibrosis #cysticfibrosiswarrior #cf #cfwarrior #65roses #determinedtosucceed #motivated #persevere
A little #tbt to when Mila was just 5 days old, and we were living in the NICU at CHOP.
107/365 Climbing in the afternoon after some checkups in the cf clinic. Weather is getting brighter everyday and there's nothing better than climbing in the sun, enjoying the day, being in nature, being near water, strengthen the relationships with friends and just being thankful after climbing some good yet challenging routes. My diet was a little bit off the past few weeks, I got a little bit off track, dropped the ball so to say and lost some weight, but I'm not perfect and everybody drops the ball from time to time. But that doesn't mean that I failed my goals, as long as I decide to recommit to my goals. Fail, recommit, fail, recommit, fail recommit, life is not linear, it's cyclical and just as there's winter and summer, there will be stronger and weaker days. And if you decide to recommit on your deathbed, then you're a success. Remember, a phoenix also burns himself before he's reborn again. #projectsport365 #climbing #klettern #recommittment #nature #natur #kraxln #sommer #wasser #klamm #cf #cfwarrior #cfking #cysticfibrosis #mukoviszidose
Hearing test ✅ blood draw ✅ ENT appt ✅ work while I wait ✅. Productive day. #cff ##cfirl #cysticfibrosis #cfwarrior #cfawareness #65roses #mutlitasking #cffighter #curecf
Awesome video of Nathan (@semiseriouschefs ) “doing treatments in Homer. If you're going to have to do 'chores' at least we have a view!!!!” Share your photos or videos with us by tagging us with #AffloVest . . . . . . . . . . . . . . . #CysticFibrosis #CF #CFLife #CFAwareness #CFWarrior #COPD #Bronchiectasis #CPT #ChestPhysicalTherapy #CureCF #Vest #VestTherapy #Treatments #TreatmentTime #CfProbs #CfResearch #Chronic #ChronicDisease #Fighter #CelebrateLife #outdoors #breatheeasy #cysticfibrosisawareness
I’ve accomplished all I can at my current ability level, and it’s time to train seriously for strength and endurance so I can make more gains! Tonight, I maxed out how many times I can hit a 7.5 foot lache without falling. 😁 #ninja #anw #ninjatraining #flyingninja #cysticfibrosis #cfwarrior #ninjaforacfcure
Hi there! Thanks for checking in on my ninja training and progress. I'm grateful to be able to participate in such an intense physical activity despite fighting CF's effects on my body. To learn more about my daily life with Cystic Fibrosis or to donate to our fundraising efforts, please check out the link below! http://fightcf.cff.org/goto/amberdawkins #ninja #anw #ninjatraining #cysticfibrosis #cfwarrior #ninjaforacfcure
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