#cfwarrior

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Mom @lindad4.lr and I Rockin the @healthbeme shirts all day today on my trip back home for the weekend 🐝🍊 #webewarrior #fucf #cfwarrior #cfstrong #justbreathe #godogood #healthbeme
Going up🙏😜⬆️
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Webe Warrior! Two questions we get a lot... Q1 : WTF is a webe? Q2 : Can anyone be a webe? A1 : Webes are leaders of their Hives. Webes are empaths, warriors, and adventurers. •Empaths... 🕺🏽💃🏼Webes are open and caring people who turn feelings into action. Sympaths won’t cut it. Webe helping people. •Warriors... 🤺Webes use their knowledge and experience to fight for themselves and others. Webe fighting together •Adventurers... 🚀 Webes are creative and innovative. They aren’t just willing to accept the healthcare experience as it is. Webes are helping to carve a new path toward a better health experience for all. #humamcare Webes loving the journey! 🗺 . Webes ARE NOT ambassadors for @healthbeme they are warriors with HealthBeMe. The goal is create the most tightly connected and highly knowledgable group of warriors on ‘The Gram’ @instagram and off. . We don’t anoint Webes... they already have it in them. We just unite them with an awesome name and lots of fun! .... Being a webe IS NOT a chronic illness popularity contest but we do hope all Webes become chronically popular from all the good they’ll be doing as part of The HumanCare Movement. -• A2 : No. See A1. Ref last post. #webewarrior #cfwarrior #mswarrior #autoimmunewarrior #lymewarrior #wellnesswarrior #mentalhealthwarrior #type1warrior #healthbeme BE ORANGE 🐝🍊
2 days old and already a pro model and actress 👶 Can you be so versatile?
Perfect hiding place! 😁
Finally a set I am extremely happy with!! Think I will blow my old PR out of the water in a very short period of time!! Wanted 10 but still can’t bring myself to push threw the pec once I feel it start to stretch a little!!! Prob just paranoid!! #cfwarrior #strongman #fitness #cysticfibrosis #strongmantraining #cfstrong #cf #deadlift #cardio #fitnessmotivation #justbreathe @granitebarbellny @dbabcock36 @steeleworkstraining thanks for the video brother!! @dragonpharma_llc first day using your pre workout and I must say I love it!!!
A little progress each day adds up to big results 💪💜 . . This morning I start my first personal training class in approximately 5 months!!😅 Okay counting that out kind of scared me a bit I won't lie! . . I'm really excited to get the lungs burning and a release of all those lovely endorphins again. It's been far too long 💜 . . #CFWarrior #cysticfibrosis #65roses #cfawareness #CFWarrior #gymgirl #workout #pt #personaltraining #mytime #gainz #physiotherapy #bondi #lifeunlimited
😱😱Llego el gran día! En unos minutos empieza Javier Prieto su Everesting Challenge!➕ Javier, te deseamos toda la suerte del mundo. Es un reto muy complicado, imposible para el más común de los mortales. 💫Pero sabemos que tu alma de #arnasafighters te llevará a culminarlo.💪💫 ➡️Javier, gracias por tu dedicación a Arnasa Araba… Ha sido una suerte que te hayas cruzado en nuestras vidas… 🍀🍀🔶️Como siempre decimos, la FQ ha traído cosas horribles a nuestra vida, pero también nos sirve para conocer la mejor parte de la gente. 🔶️Besos Salados y ánimo. Eres nuestro #arnasafighters . ➖➖➖➖➖ 😱😱Eguna iritsi da! Gaur gabean Javier Prieto Everesting challenge erronka hasiko du! Zorterik oberena opa dizugu Javier!!➕ Oso erronka zaila da, ia ezinezkoa. Baina badakigu zure #arnasafighters arimak erronka burutzera eramango dizula!💪💫 ➡️Eskerrik asko Javier zure dedikazioarengaitik Arnasa Arabarekin…Zorte bat izan da gure bizitzan elkar gurutzatzea…🍀🍀🔶️Beti esaten dugun modura, FK gauza oso txarrak ekarri digu gure bizitzara, baina baita ere pertsonen gauzarik oberenak erakutsi digu. 🔶️Musu gazi Potolo bat eta adore. Gure #arnasafighters zara. ➖➖➖➖ 😱😱Today is the day!!! This night Javier is beginning his Everesting Challenge!! Javier, we wish you luck!! ➕It is a very complicated challenge, impossible for almost everyone. ➕But we know that your #arnsafighters soul will help you to win!💫💪 ➡️Javier, thanks million for your support to Arnasa Araba. We have been very luck to bump into you…🍀🍀🔶️ As we usually say, the CF has brought terrible thing to our lives, but in the other hand we are able to meet amazing people, like you. 🔶️Salty Kisses and cheer up! You are our #arnasafighters #fibrosisquistica #fq #dandoalientoalosbesossalados #arnasaaraba #ORKAMBIya #besossalados #deporte #arnasafigthers #everestingchallenge #bicicleta #fibrosikistikoa #FK #musugazieiarnasaematen #musugaziak #ORKAMBIorain #kirola #cysticfibrosis #CF #blowingencouragementtosaltykisses #saltykisses #CFlife #cysticfibrosisawareness #cfawareness #ORKAMBItnow #cfwarrior #sports #bicycle
🌹🌹Gracias a @eroskioficial por su donación de alimentos y bebidas para el pintxopote del Everesting Challenge!! 🍗🥂➕Eroski es un mercado de confianza que apoya a causas solidarias como esta! ➕Los #arnasafighters os lo agradecemos con todo nuestro corazón salado!❤ ➡️Os esperamos mañana a partir de las 12:30 en la sociedad Bombalatxi de Peñacerrada! ⭕El 100% de los beneficios se destinará para derrotar a la FQ: para el pago de sesiones de fisioterapia respiratoria y para inversión en investigación⭕. FQ: vamos a por ti!! Go go #arnasafighters !💪💪 ➖➖➖➖ 🌹🌹Eskerrik asko Eroski gurekin parte hartzeagaitik Everesting Challengeko pintxopoterako janari eta edariak emanez!! 🍗🥂➕Konfidantzako merkatua horrelako ekintzekin beti euskarri izanez!! ➕#arnasafighters benetan bihotz bihotzezez asko eskertzen dizuegu.❤ ➡️Bihar itzoiten zaituztegu Urizaharaako Bombalatxi elkartean!⭕ 100% onura arnas fisioterapia eta FK-ari irabazteko ikerketarako erabiliko dugu!! ⭕Go go #arnasafighters 💪💪 ➖➖➖➖ 🌹🌹Thanks to Eroski for the food and beverages donation for the Everesting Challenge pintxopote!! 🍗🥂➕A trustful market which supports charity initiatives like this!➕ Our Salty #arnasagihters hearts are very grateful!!❤ ➡️We will be waiting for you tomorrow from 12:30 am in the Sociedad Bombalatxi in Peñacerrada! ⭕The 100% of the benefits will be destined to fight the CF: for the respiratory fisioterapy payment and to support investigations. ⭕CF: we are after you! Go go #arnasafighters !💪💪 #fibrosisquistica #fq #dandoalientoalosbesossalados #arnasaaraba #ORKAMBIya #besossalados #deporte #arnasafigthers #everestingchallenge #bicicleta #fibrosikistikoa #FK #musugazieiarnasaematen #musugaziak #ORKAMBIorain #kirola #cysticfibrosis #CF #blowingencouragementtosaltykisses #saltykisses #CFlife #cysticfibrosisawareness #cfawareness #ORKAMBItnow #cfwarrior #sports #bicycle
It’s hard to avoid negativity in our lives, and it can be even harder to release that energy. But as I’ve learned from @mindbodycole , those energies really do affect so many aspects of our lives. With CF, there is already so many things our bodies already have to fight off, so I try to not let negativity be another one of those things. So I choose to let it go, and accept all the positive energy that is waiting for me ✌🏼☀️ . . . . . . . #curecf #cysticfibrosis #cf #justbreathe #breathe #65roses #saltysquad #saltmates #giveback #donate #fundraiser #handmade #handcrafted #bracelets #beads #artisan #thesaltyartisan #handmadejewelry #sickfightsback #untilitsdone #cysticfibrosisawareness #lxv #CFWarrior #warrior #mindfulness #positivevibes
Если бы не этот отважный человечище с бургером🍔 в исцарапанных руках, я бы не справилась. Завалилась бы под один из питерских мостов и ждала бы там скорую или хотя бы вечернюю прохладу. Но маленькая твердая ладошка меня нехило так поддержала сегодня. Вообще, #Мирка забавный и очень милый, не потому что мой сын, а сам по себе🤣🤣🤣. Уступил место дедушке в автобусе, за что получил воздушный поцелуй, играл с незнакомцами в слова, вернул парню забытый на сидении телефон, пытался дать денег всем, кто поет-играет в переходах и у метро, успел помахать толпе проплывающих мимо туристов и попозировать им для фото на мосту, и даже поучаствовал в танцевальном батле с уличными танцорами. 🕺💃🕺 Я так удивилась, когда он вышел, что забыла, куда тыкать, дабы снять для потомков кувырки на асфальте. (что успела - в сторис) Итог дня впечатляет. Мы умудрились забрать все посылки/заказы, а точек сбора у нас было 5 (5, Карл, а мы пешком!) Какие там шмотки/игрушки/цацки? Регидранты, дезинфицирующие средства и антибиотики, вот что вызывает нездоровый блеск в глазах у мв-шопоголика. К тому же были на вокзале, выкупили билеты в купе в вагоне для людей с ограниченными физическими возможностями, про это, конечно, надо отдельно пост, ибо дабыть вожделенное место оказалось не так просто, как хотелось бы 😁😂 Но, надеюсь, РЖД не подведет и усилия стоят будущего комфорта в дороге. Теперь надо собраться в кучу и собрать в кучу вещи. Пока я на стадии составления списка и он уже такой длины, что руки сами тянутся к валокордину. Вычеркиваю свой гардероб, освобождая место в чемоданах для стерилизаторов, ингаляторов и коробок с лекарствами. Поеду в шортах (в Питере жарко неимоверно) и дождевике (в Курске обещают грозы). На этом, видимо, все. 🤔😂 #сынок #муковисцидознеприговор #муковисцидоз #мв #какобычно #ниминутыпокоя #детимуки #cf #cysticfibrosis #cfwarrior #65roses
‼️PLIS RHANNU‼️ Codi arian ar gyfer yr Uned Plant #Systigffibrosis yn #Ysbytyrheath 🌟 Gwahoddir PAWB i fynychu ein digwyddiad #3K4CF Dydd Sul yma. 🤗 Mwy o wybodaeth mewn posts blaenorol 💜 • • • ‼️PLEASE SHARE‼️ Fundraising for the Children’s #CysticFibrosis Unit at the #HeathHospital 💜 EVERYONE is invited to attend our #3K4CF event this Sunday 🤗 More information in previous posts 💜 • • • • #RBCDN #norwegianchurch #redbalwncoch #cavuhb #cardiffandvale #cfwarriors4life #cfwarrior #cysticfibrosisneedsacure @walesonline @cardiff_blogs @madeincardifftv @healthcharity @busnewswales #llanedeyrn #pentwyn #pontprennau #cardiffandvalehealthcharity #cardiffbay #baecaerdydd #cysticfibrosisawareness
The term ‘WARRIOR’ is becoming an identifying symbol for many with chronic illness, and rightfully so. . Is calling ourself a Warrior the same as embodying what it means to be one? No. From our experience, true warriors do ONE THING completely different than those who just use the term. They have the Warrior mindset. ... ‘True warriors embrace the fight as something bigger than their own struggle.’ This mindset allows inspired warriors persevere from the inside, out... they desire growth, not victory. We grow by failing, by listening, and by teaching. Warriors are warriors even when they have no more obstacles to overcome because being a warrior means you fight even when it’s not your fight. Warriors grow because they know that life is an un-winnable game. Warriors fight for the values the deem important and for others who share those values. Warriors fight, they don’t compete. . ... Competing makes you a champion. Champions become irrelevant when the stop winning. They are easily forgotten. Warriors are always relevant because warriors always fight for something bigger than themselves. 💪🏼 So do you have the heart of a champion or the heart of a warrior? Do you want a trophy 🏆 or will you embrace the opportunity to keep playing the game that inspires you 🍊? The obstacles change but the mindset remains. #mswarrior #webewarrior #cfwarrior #mentalhealthwarrior #type1warrior #edswarrior #dysautonomiawarrior #cancerwarrior #wellnesswarrior #lymewarrior #chronicillnesswarrior #humancare #healthbeme
The next best thing to solving a problem is finding humor in it. Today I had to get a pulmonary function to monitor how my lungs are handling some recent sinus infections. Might as well have fun and be silly while I wait for the test to begin. I’ve been through very uncomfortable, risky, painful, and scary medical procedures, surgeries, and treatments. I think one of the most helpful coping skills I’ve gained is a sense of humor. My close friends and family know how easily I can make jokes about situations. The reality is that there’s no cure for cystic fibrosis, for diabetes, or for lymphoma. Lung transplantation is not a cure and there are no guarantees in life. Sometimes you just gotta laugh about things and not take things so seriously. Don’t worry, I won’t be sampling my jokes via Instagram. Not everyone finds my dark humor amusing 😉but I usually get a good laugh out of my doctors, nurses and surgeons. Every now and then I make my mom or Adam or a friend really really laugh and that’s the best!!!!!We all need comic relief every now and then. #lungtransplantsurvivor #donatelife #CFirl #cysticfibrosis #cfwarrior #cancersucks #snapchatfun #keepsmiling #findthefunny #liveandbreathewithme
My cardiopulmonary routine is paying off in muscle tone! Whipping my little lungs and body into shape! #CFwarrior
Feeling a bit unwell 🤒 but nothing can beat a comfortable bed with Tipping Point on the TV 😂 (showing my age and how excitable I am 😐) #apology #livinglifeontheedge #ill #bed #recovery @itv #itv #itvtippingpoint #tippingpoint #cysticfibrosis
It takes a village. Penny, Adam and I are so thankful for ours 💗. Hand smooches for Nana and Papa are all the evidence you need 😘. . . My dad, on the right, quit smoking after 40+ years when Penny was diagnosed. It was incredible. Obviously, smoking is a huge no-no around Penny. Under advice from her respirologist, we avoid any smoking at all costs (yes, I’ve ran through a parking lot to get through an unavoidable cloud quickly 🤷🏻‍♀️). If friends or family do smoke, we ask that they shower, change their clothes, and wash their hands prior to handling Penny. It always feels AWKWARD talking about this to our loved ones who do smoke! We’re not here to judge their choices or hinder their enjoyment of an event. BUT making sure Pennys lungs are as protected as possible for as long as possible simply has to be priority number 👆🏼. . . Any other CF parents or CF adults out there? Thoughts on the smoking battle?? . . #cysticfibrosis #cfparent #sixtyfiveroses #65roses #cfstandsforcurefound #pennyspeeps #smokingcessation #cfwarrior #ittakesavillage #raredisease #cfwarrior #saltykid #saltygirl #cflife #pennymaureen #breathebravely #justbreathe
Friday Tip!! Before I started on my health fitness journey all I drank was ice tea & soda 😫 horrible sugar drinks. I allow myself now to have 1 a week to treat myself. I KNOW how important #water is for my body. Stay hydrated by drinking about half your body weight in fluid ounces. Drinking water is so important it can: 💧banish headaches 💧improve your mood 💧relieve fatigue 💧boost your energy levels 💧relieve constipation 💧boost your immune system I see a HUGE difference in my body since drinking ALL water. My lung function increased & because I struggle with chronic fatigue water helps boost my energy 😊 I also lost weight just by drinking water 👍I challenge YOU to drink lots of water today! #fitnessjourney #water #cysticfibrosis #soimportant #healthy #waterintake #healthyliving #cfawareness #energybooster #soimportant #chronicfatigue #cfwarrior #nutrition #healthtip #h20 #positivemindset #yesyoucan #teamfitwithfaith
"The more you celebrate your life, the more there is in life to celebrate" -Oprah Winfrey 🙌🏼 . . This Friday evening was spent celebrating the plain & simple achievement, of feeling a little bit like 'old Aoife' again 😊❤ . . A little bit hesitant to get my hopes up, but the past 48 hours, my head space and mood have been the best that they have been in 4-5 weeks. . . I'm so grateful for this wonderful feeling, even if it is to be short lived (which hopefully it isn't!) . . Take a moment over the weekend to be grateful for even just 1 thing that you have. It can help to retune you from those stressful times and keep your outlook positive, even in the most difficult situations. 💖 . . . . #BeatingCF #CFWarrior #65roses #cysticfibrosis #cfawareness #mentalhealth #positivity #grateful #celebratinglife #everydaycounts #fridayfeeling #CureCF #justbreathe #lifeunlimited
More like CLINIC DAY to-do list...my #fibros and #cysters ...y’all feel me?! 😅😓😩 • Let me start by saying THANK YOU THANK YOU THANK YOU to each and every one of you for the love and support and, most of all, PRAYERS. I am truly speechless and my heart is so touched by the kindness I’ve been shown. I love you all so very much. • I am back home...but only because I BEGGES my doctor not to admit me 😅😅 She came to the conclusion that even being admitted would not allow the tests to be done fast enough so she ordered everything STAT and I got them all done in 5 hours which was great because I could go home and sleep in my own bed (although I couldn’t sleep from pain and coughing—my lungs started baaaaadly flaring on Monday on top of everything with my pancreas so that’s lovely). Just waiting on results now. Thank you again for all the prayers...keep them coming 💜 • #cysticfibrosis #cfwarrior #custicfibrosiswarrior #Godisgreater #chronicillness #cureCF #CFstrong #staysalty
‼️PLIS RHANNU‼️ Codi arian ar gyfer yr Uned Plant #Systigffibrosis yn #Ysbytyrheath 🌟 • Gwahoddir HOLL TEULUOEDD A FFRINDIAU ac CYHOEDD i fynychu ein digwyddiad #3K4CF Dydd Sul hwn! Rydym yn garedig ofyn am noddwr/rhodd o £10. Mae gennym ni tatŵau a gwallt gwyliau yn rhad ac am ddim i'r plant cyn y daith gerdded ac mae gennym boteli dŵr am ddim a thrin melys i bawb sy'n cymryd rhan. Croeso i gŵn🤗 • • • • ‼️PLEASE SHARE‼️ Fundraising for the Children’s #CysticFibrosis Unit at the #HeathHospital 💜 • ALL FAMILIES, FRIENDS & the PUBLIC are invited to attend our #3K4CF event this Sunday! We kindly ask for a min sponsor/donation of £10. We do have facepainting tattoos and festival hair free of charge for the children prior to the walk and we have free bottles of water & a sweet treat for everyone taking part. Dogs welcome! 🤗 • • • • • #RBCDN #norwegianchurch #redbalwncoch #cavuhb #cardiffandvale #cfwarriors4life #cfwarrior #cysticfibrosisneedsacure @walesonline @cardiff_blogs @madeincardifftv @healthcharity @busnewswales
I blessed the world with my arrival exactly 15 months ago 😊🎂
🔊Fundación Vital sigue apoyando a los Besos Salados!! 🎊Nos dejará mobiliario para la sede en Peñacerra del Everesting Challenge!😮😮 Molaaaa! 😎Esto marcha!!💪 Fundación Vital, que suerte tenemos de contar con organizaciones como vosotros de nuestro lado!!❤❤ FQ: ESTÁS SOLA!!! VAMOS A POR TIIIII!!!💪💪 ➖➖➖➖➖ 🔊Vital fundazioa gure musu gazien sostengua jarraitzen egongo da!!🎊 Arku bat utziko digute Jaiverrek hortik bueltak emateko!!😮😮 Hau martxan dabil!!😎 Vital fundazioa, zelako zortea daukagun gure alde beti egotearren!! ❤❤FK, BAKARRIK ZAUDE!!! ZURE KONTRA GOAZ!!!💪 ➖➖➖ 🔊Fundación Caja Vital are still supporting to the Salty Kissess!🎊 They will lend us furniture for the Everesting Challenge point!😮 Wow!! This is working!😎 Fundación Vital, we are very lucky for having you by us! ❤❤FQ: you are completely alone! We are after you!💪 #fibrosisquistica #fq #dandoalientoalosbesossalados #arnasaaraba #ORKAMBIya #besossalados #deporte #arnasafigthers #everestingchallenge #bicicleta #fibrosikistikoa #FK #musugazieiarnasaematen #musugaziak #ORKAMBIorain #kirola #cysticfibrosis #CF #blowingencouragementtosaltykisses #saltykisses #CFlife #cysticfibrosisawareness #cfawareness #ORKAMBItnow #cfwarrior #sports #bicycle
I’m 15 months old today! Make mine an apple and apricot 😄 🥂
Sad faces for missing footy the next two weeks especially tomorrow for the pink round 😭😭 ♡♡♡♡♡ DAY 1 of Ayden's admission at @ladycilentochildrenshospital starts today 💪 #teamchriso4CF #borntofight #65roses #invisabledisease #cureCF #fucf #CFwarrior #livesbeforeprofit #cflivesmatter
🎊Otro comercio que dona su talento y esfuerzo al Everesting Challenge!! ➡️ @fitnessdigital  asesorará a Javier Prieto sobre nutrición para estar a tope antes, durante y después de la prueba y le proporcionará los alimentos específicos que necesite!! 🔝🔝Qué decir, Finess digital… que además de ser un referente europeo en el sector del fitness, tiene un saco lleno de solidaridad y se la regala a Arnasa Araba y Javier Prieto!!💎 Mil gracias por estar ahí y cuidar de nuestro Javier. 💎Animaros a conecerles!! ➖➖➖➖➖➖ 🎊Beste salerosketa batek beraien talentu eta esfortzua ematen diguna Everesting Challenge-rako!!➡️Fitnessdigital.com Javier Prieto aholkatuko du nutrizio partetik. Topera egon dadin lehenik, tartean eta probaren ondoren, beharko dituen elikagai konkretuak emanez!!! 🔝🔝Zere esan dezakegu fitnessdigital.com buruz, punta-puntako salerosketa dela eta elkartasun bete zaku daukala!!! 💎Eskerrik asko hor egoteagaitik eta gure Javier saintzeagaitik. 💎Anima zaitezte eta ezagutu fitnessdigital.com ➖➖➖➖➖ 🎊Another Company donates their talent and effort to the Everesting Challenge! ➡️Fitneesdigital.com will advise to Javier Prieto to be fit before, during and after the challenge and they will give him specific nutrional supplements to be 100% ready! 🔝🔝What to say Fitneesdigital.com. you are not only an incredible company, you also have a bag full of solidarity! 💎Thanks million to be there and take care of our Javier. 💎Come on guys, meet them! #fibrosisquistica #fq #dandoalientoalosbesossalados #arnasaaraba #ORKAMBIya #besossalados #deporte #arnasafigthers #everestingchallenge #bicicleta #fibrosikistikoa #FK #musugazieiarnasaematen #musugaziak #ORKAMBIorain #kirola #cysticfibrosis #CF #blowingencouragementtosaltykisses #saltykisses #CFlife #cysticfibrosisawareness #cfawareness #ORKAMBItnow #cfwarrior #sports #bicycle
Look at this adorable AffloVest @semiseriouschefs made for Baby Sea Otter! Now "no one has to do treatments alone in their house!” Thanks again for sharing! Share your photos or videos with us by tagging us with #AffloVest
My last hospital visit! Willow visits her Papa every time he's admitted for a CF excerbation. And yes this is how she poses for pictures lol!! #tbt #wilow #cfwarrior #cfawareness #smiles #inkedguy
DID YOU KNOW: That we have Canadian Celebs that champion the cause of #cysticfibrosis ? 🍋 @benmulroney is the National Ambassador, @celinedion is Canada's Celebrity Patron & Country Music artist @tenillearts devotes her time and talents as a tireless advocate. Check out her performance of 'Breathe' on iTunes. All proceeds go to @cfcanada. 🍋 . . . . . #cfwarrior #cassidyslemonadestand #nonprofit #nonprofitorganization #cfambassadors #aworldwithoutcf #advocacy #ohcanada #ownyourstory #createsomethingbeautiful #sixtyfiveroses #cfcanada #champions #invisibleillness #invisibleillnessawareness #youngentrepreneur #bebrave #bettertogether
A good cf clinic visit !! 💜. Hard work and constant treatments payoff.
No progress is made in your comfort zone. The last 4 sets (350kg’s) of today’s session hurt but that’s what this journey is all about. It’s not going to be an easy challenge. If it was, it wouldn’t be worth it and it certainly wouldn’t be a world record. The road to 1 Million Kg’s continues...💪 #RoadTo1Million #1MillionKiloChallenge #24hrs4cf - - - - - #motivation #fitness #fitnessmotivation #cardio #workout #fit #cysticfibrosis #beatcf #justbreathe #cfwarrior #goals #inspiration #fitspo #instafit #fitfam #fitfamuk #train #getfit #physiquue #core #tattoo #inkedmen #inked #tattoos #inspiration
We have been traveling so much seeing new places and connecting with family and friends. But now I am sick. Bit of a fever, small coughs, and runny nose. Day one of increased airway and I am not happy about it. #quinntessentialcure #cysticfibrosis #cfwarrior #homesweethome #grumpy
We had a great session with our favorite little songwriter working on a very special song called “The way I see the world” ... ❤️ you little warrior #cf #cfwarrior #cysticfibrosis #awareness #support #writingforacause #song #songwriter #soulfood #love #enjoyeverymoment #artforlife #respect #individúo #individuo #individuomusic
Pleased coming out the Outpatient clinic appointment today. After hard work of exercising every day. Making sure my adherence to my medical schedule was back on track and eating more 😋 I’ve got my lung function to 92% #cysticfibrosis #cfawareness @cfaware @cftrustuk @cf_foundation #cfwarrior #fight2breathe #cysticfibrosisfighter #getfit #goodhealth #chronicillness #raredisease
https://youtu.be/Ip9eV0MuiF8. Link in our bio 🔛Vídeo en en el canal de Javier Prieto Pedales Solidario con entrevista a nuestro presidente. ➕FQ:Vamos a por ti. Los #Arnasafighters están preparados.➕ ➖➖➖➖➖ 🔛Vídeo in Pedales Solidarios YouTube Channel from Javier Prieto. There is a interview to our president. ➕CF: we are after you. The #arnasafighters are ready!!!➕ #fibrosisquistica #fq #dandoalientoalosbesossalados #arnasaaraba #ORKAMBIya #besossalados #deporte #arnasafigthers #everestingchallenge #bicicleta #fibrosikistikoa #FK #musugazieiarnasaematen #musugaziak #ORKAMBIorain #kirola #cysticfibrosis #CF #blowingencouragementtosaltykisses #saltykisses #CFlife #cysticfibrosisawareness #cfawareness #ORKAMBItnow #cfwarrior #sports #bicycle
AffloVest Tutorial Series: Our next video shows you how to clean and maintain your AffloVest after use. For more videos like this check out our YouTube Channel (Link in bio)
“The lights go out all around me One last candle to keep out the night And then the darkness surrounds me I know I'm alive but I feel like I've died And all that's left is to accept that it's over My dreams ran like sand through the fists that I made I try to keep warm but I just grow colder I feel like I'm slipping away After all this has passed, I still will remain After I've cried my last, there'll be beauty from pain Though it won't be today, someday I'll hope again And there'll be beauty from pain You will bring beauty from my pain My whole world is the pain inside me The best I can do is just get through the day When life before is only a memory I'll wonder why God lets me walk through this place And though I can't understand why this happened I know that I will when I look back someday And see how you've brought beauty from ashes And made me as gold purified through these flames After all this has passed, I still will remain After I've cried my last, there'll be beauty from pain Though it won't be today, someday I'll hope again And there'll be beauty from pain You will bring beauty from my pain Here I am at the end of me (at the end of me) Tryin' to hold to what I can't see (to what I can't see) I forgot how to hope This night's been so long I cling to Your promise There will be a dawn After all this has passed, I still will remain After I've cried my last, there'll be beauty from pain Though it won't be today, someday I'll hope again And there'll be beauty from pain You will bring beauty from my pain.” —Superchick • • • Headed to the hospital for my clinic appointment as I type this. Wasn’t scheduled to go until August 2, but my doctor moved me up since my condition is deteriorating rapidly. This song came on the radio as I was getting ready to leave and it touched me so profoundly. I hope it can speak to you this morning, too. God’s working. He’s still there. He’s moving mountains we can’t see, friends. Just know He’s there. He’s carrying us. All we need to do is LET HIM carry us. • Prayers appreciated as I go into this appointment. Prayers for some answers as to why I have declined so severely so rapidly. And prayers for me to feel Him near. 💜
Family pic on our way to camp lastnight for my boys to run free for a few hours!! #cfwarrior #cysticfibrosis #cf #pitbull #pitbullsofinstagram #boxerpuppy #boxersofinstagram #justbreathe
Getting a home visit from my nurses and they are late! #impatient #grumpy #tired #snapchatfilters #cfwarrior #icouldbesleeping #iwashedmyhairforthis #bored
🌙DREAMS🌟 Have you ever dreamt something that felt so real and seemed so real that you were unsure if it was really a dream or not???? These past 2 weeks my dreams have been abosulety nuts! It's like they are guiding me and telling me what's to come...Big shifts are happenng in my life right now and maybe that's why my subconscious has decided to talk to me so much lately. I think it doesn't want me forget things that are vital to my journey. Or maybe its genetic??? My mom is someone whose dreams always spoke to her and she has very good intuition. Whatever it is I'm digging it! Anyone log their dreams down??? I'm gonna start!!! This posture is the product of one of my dreams. I never thought in a million years that my body or mind would be able to accomplish this...but I dreamt it, tried it and it happened. Our dreams are visionary and powerful maybe listed to them🙏❤
"Strength does not come from winning. Your struggles develop your strenghts. When you go through hardship and decide not to surrender, that is strength." - Arnold Schwarzenegger Throwback to my graduation. #graduation #grad #postgrad #throwbackthursday #tbt #strength #growth #university #cheerleading #cheer #practice #pride #strong #support #balance #hardwork #consistency #grind #northwest #southafrica #cronicillness #cysticfibrosis #cfwarrior #cflife #cysticfibrosisawareness #photography #photooftheday
Napping with daddy
🚵‍♂️Gracias al @eltallerdeasier por participar con nosotros en el Everesting Challenge!!!🔷️ El Taller de Asier en la calle Paraguay nº 1 cuida de nuestras bicis y nos las pone a punto!!🔷️ El próximo 21-julio estará en Peñacerrada para ayudar a Javier Prieto y su bici a poder continuar con la prueba al 100%! Asier, gracias por ese corazón tan grande, Arnasa Araba te manda mil Besos Salados ❤❤ y te desea el mayor de los éxitos a tu negocio.💎 ➖➖➖➖➖➖ 🚵‍♂️Eskerrik asko el taller de Asier gurekin parte hartzeagaitik Everesting Challenge erronkan!! 🔷️El taller de Asier Paraguay num 1 kalean aurki dezakezue, gure bizikletak zaindu eta konponduz!!🔷️ Hurrengo Uztailak 21ean Urizaharran egongo da Javier Prieto laguntzen, bere bizikleta zainduz erronka oso irten dadin. Eskerrik asko Asier bihotz hain haundi edukitzeagaitik❤❤, Arnasa Arabatik milaka musu gazi ematen dizikizugu!!💎 ➖➖➖➖➖ 🚵‍♂️Thank you to the Taller de Asier for participating with us during the Everesting Challenge.🔷️ The Taller de Asier in 1 Paraguay Street takes care of our bicycles. The next 21stJuly he will be in Peñacerrada to help Javier Prieto and his bicycle to be able to complete the challenge! 🔷️Asier, thank you very much for this big heart, ❤❤Arnasa Araba sends you one million of Salty Kissess and we wish you the best of the success in your business.💎 #fibrosisquistica #fq #arnasafighters #dandoalientoalosbesossalados #arnasaaraba #ORKAMBIya #besossalados #deporte #arnasafigthers #everestingchallenge #bicicleta #fibrosikistikoa #FK #musugazieiarnasaematen #musugaziak #ORKAMBIorain #kirola #cysticfibrosis #CF #blowingencouragementtosaltykisses #saltykisses #CFlife #cysticfibrosisawareness #cfawareness #ORKAMBItnow #cfwarrior #sports #bicycle
Heute steht mal wieder mein Quartalcheck an. Bin schon etwas aufgeregt was die aktuellen Werte angeht ... naja aber gerade ist erst mal warten angesagt ... mir ist langweilig 🤣 . . . . . #hamburg #meinhamburg #meineperle #Mukoviszidose #cf #cysticfibrosis #cfwarrior
So happy I have some more pics from my childhood finally I have 9 pics total now, it's all I have...always cherish and appreciate what u have #cffighter #cfwarrior #cfstrong #fucf #cysticfibrosis #cysticfibrosisawareness #appreciate #tbt ❤️
Webes. The influencers and do gooders of the @healthbeme community. We now have Webes from 4 Continents • 15 Countries and 25 US States but it’s rare that we get to hand deliver our Webe Kits. It makes days like today special. Great to meet you @merandas83 in the flesh. You are an incredible person. I’m proud to know you. #webewarrior #healthbeme #humancare #cfwarrior BE ORANGE 🐝🍊
Tonight I showed Stella how to set up her pump for her tube. She did almost all of it by herself. I’ve been trying to let go and let them be more dependent on themselves when getting their treatments set up and when getting their meds ready to take. Of course I supervise, but I realize that I won’t always be there to do this for them and this is something that they are going to have to do for the rest of their lives. I just want them to be knowledgeable about their cf care and to know how important it is. #stellaviolet #cysticfibrosis #feedingtube #cfwarrior
Happy 17 months to miss Emi J! I realize I haven’t been keeping track of her development since she turned 1, and I just want to remember this stage. I absolutely love her age, she is my forever bestie! Emi says (some in her baby way): Bella Doodle Ball Dog Meow Hi Hey All done Buh bye Thank you Momma Daddy Grandpa Duck Uh oh Baby Fish Emi loves all animals and calls them all ga ga gy. Emi LOVES her dogs, and cuddles them all day. I truly believe this is her source of affection. They say kids with dogs learn empathy and compassion and it’s written all over her! She is sooo affectionate and LOVES giving hugs and love pats. Emi waves to everyone. Emi loves to sing and dance! She has the cutest booty shake ever! We have daily dance parties so she can always have dancing and music as a way to cope! Who doesn’t love a booty shake?! She sings along to several nursery songs. Emi is wild and crazy, fearless and independent. She can play in her room for hours alone if I let her. She climbs everything and loves to sneak on the kitchen table any second I turn away. Emi will sit through a movie; her favorite is The Secret Life of Pets. She watches it daily during her breathing treatments. Emi loves swimming and loves the water. Emi seems to enjoy sports already and will pick up any type of ball and throw it. Emi’s favorite food has always been and still is tomatoes. She isn’t picky and loves garlic and blue cheese crumbles! She eats onions raw, and all veggies!! My little gal living with CF has had ONE cold with ONE ear infection and has been put on antibiotics once! Emi is vocal but friendly. Any and all love her. She loves going to Sunday school and she loves the nurses at our IVF clinic and will sit with them forever; this is a plus for me 😃 I love my little girl! I needed to stop and reflect on who she is/ is becoming. Time slow down please. Props anyone who read this far! #emiisone #cfwarrior #ilovemydaughter
These nine-year-old siblings share the same birthday, a hospital room and a daily battle with cystic fibrosis. Both wished for a tablet of their very own. “The tablets have provided amazing support with helping Janet and Christian cope with their daily treatments, dressing changes and long hospitalization.” – Sophie, Little Wishes™ Coordinator. #cysticfibrosis #cysticfibrosisawareness #cfwarrior #twins #littlewishesorg #makingadifference #goodmedicine #pediatrics #childrenshospital #coasttocoast
Happy Birthday! Her fight is tough, her strength is amazing, and her smile always shines. #yourfightisourfight #anotheryearolder #cfwarrior #amazing #sheismyhero
Tonight God reminded me to BE STILL. As tomorrow approaches my anxiety runs high. I have my 3 month cystic fibrosis check up. I fill my mind with truth because God is in control of every aspect of my life. I am learning to trust in him, all his ways are good. I know I've come along way. Months ago I would lay awake all night worrying about my pfts, my results. (Generational sin) I know God created me in his image & I am wonderfully made. He also knew I have the strength to battle this not because of my strength BUT because of his STRENGTH ❤ 1 Peter 5:7 Cast all your anxiety on him because he cares for you. #cysticfibrosis #cfawareness #generationsin #faith #devotions #truth #overcomeworry #cfwarrior #God #hope #overcomeanxiety #lungdisease #mediport #cflife #strength #positivemindset #cfadult #determined #fitnessjourney #trustingod 🙏#cfadvocate #believe #breathe
Conquered the wainui water tower today. Havnt done that walk in iver 10 years. Beautiful view. Stopped 3 times tho so upwards from here. #wainuiomata #watertower #bestviewsinwellington #cflife #fucf #igotthis #cfwarrior #familywalk #dreamitbelieveitachieveit #30 %lungs #cfwontholdmeback
Say hello to the California recipient of an AffloVest in Colton Legacy Foundation’s 50 AffloVests in 50 states project, Buster! REPOST: @coltonslegacy Yesterday, Colton invited 5-year old Buster to join him on the red carpet at the $50K Charity Challenge basketball game in Los Angeles. Then, he revealed that Buster is the Legacy Project recipient for California and presented his AffloVest. Buster's family is fighting hard for good health and research for a cure. We'll share more of his story soon! • • • #LegacyProject  #AffloVest #LegacyDonationDrive #50KCharityChallenge
First axle press and extremely excited!!! Think November will be my first show back with @dbabcock36 , need this axle back to competition weight!! #cfwarrior #cysticfibrosis #cf #cfstrong #justbreathe #strongman #strongmantraining #fitnessmotivation #fitness #overheadpress #axlepress
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