#butyoudontlooksick

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Home and tucked in bed after gallbladder surgery. Everything went well with the surgery. Yay! 🎉Thank you for all of the well wishes! — There was one rocky part when POTS just had to let itself be known, which was pretty awful. I had to go to the bathroom and a nurse comes in and monitors you while you show them that your bladder is working after the anesthesia. Well, my bladder worked and then my POTS came on full strength - feeling like I was going to vomit, sweating, and feeling like I was about to faint/starting to faint. The nurse pulled the emergency button and we ended up with 5 nurses, a wheel chair, and a very awful-feeling me. Once I laid down, got some IV fluids and cooled down, I was fine, but the nurse said I scared some of the other nurses. Oh, that’s just life with POTS. 🤷🏻‍♀️ #potsie #potslife #dysautonomia #chronicillness #chronicillnesswarrior #invisibleillness #invisibleillnesswarrior #butyoudontlooksick #ehlersdanlossyndrome #spoonie #gallbladder #surgery #recovery #hospital #scars
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Hello everyone!💜 Today has been busy what with going to the mall for a new swimsuit and shoes for my fiancé! But I’m home resting now, thank goodness🙌 I always notice that whenever someone speaks a harsh word, even if it’s not directed at me, it really bothers me. It makes me feel bad and upset, in a way. Does that make sense? This is why I’m resolving to completely stop using any harsh language- including curse words! I can’t expect others to only speak kind words if I don’t! I also find that when I’m speaking harshly, it makes me feel worse in general. With chronic illness, we need a heavy dose of positivity to help us deal with the negativity of being ill. I’m also trying to be more Christ like! Sending love to all of you and please let me know if you need prayers or anything. My DMs are always open💜
I remember sitting on the 3 step deck we had that ran the length of the mobile home I was born in. I was so excited when it was built. Living in a one track home, stairs were a big deal to me. I’d let my little legs dangle & imagine what my life would be like when I was old, which meant 18 & all grown up. I imagined myself, purse & keys in hand, ready to hop into my car & go wherever I wanted. I knew I wanted to live somewhere with stairs & I also knew I wanted to be independent, even at 6. 30 years later, I am double the age I once considered “old” & far from “independent” yet I still feel like that little girl, sitting with feet dangling (because they literally still do) and imagining what life would be like with purse & keys in hand. Sickness has coursed me down a road I never thought I’d travel. It wasn’t a journey I was prepared for. It’s changed me. But that child like hope never dies. That one who dreams of “what ifs” & hopes “tomorrow maybe”. I’m not sure if this kind of hope is a gift or curse. Depends on the day I suppose. It’s definitely not solid hope anyways. But yesterday I was given a birthday gift. One only God would know how much would mean to me, and that was to grab my purse & keys in hand & take myself to the doctor, swing by the pharmacy & then head home..all by myself. A healthy person would consider that scenario a pretty crappy birthday present. I, on the other hand, consider a gift. And that’s the biggest gift illness has given me, thankfulness for the things I wouldn’t have considered gifts otherwise. “Maybe 36 will be a better year?” the little girl in me whispers. I’ll let her make her wishes today and if she doesn’t get them, at least she gets to walk 16 steps upstairs to a pretty freaking comfortable room, an amazing husband & 2 knucklehead cats. Thank you to those who have been kind enough to join me in this virtual sea. Some of you have made what seems to me to be a very cold place a little bit warmer.
#fridayfacts #lupusawareness #autoimmunedisease One thing I struggle to get my family and friends to understand is the #fatique I feel. I often get made fun of for needing naps which is hurtful and embarrassing. Before you judge educate yourself. #invisibleillness #lupuswithlupus #educateyourself #nokidsbutstilltired #dontjudge #bekind #butyoudontlooksick
Listen here, buddy, pal, fam, hahahhaihavecripplinganxietyhahaha. . . . (Repost- @sourpsycho )
Hello luvies! 💗 I hope you are all having an amazing day and I wanted to just share this picture with you because it was bringing me a lot of joy when I saw it. : In addition I wanted to give you all an update. I was able to see a neurologist yesterday and we sat there going through all of my crazy symptoms but have been driving me nuts for so long. He was able to give me an actual diagnosis for many of the symptoms that I have that I thought were completely unrelated. 🌟 It turns out that I have dysautonomia. Now this is a dysfunction of the autonomic nervous system. My body has somehow forgotten how to regulate properly when it comes to normal everyday functions such as breathing, heart rate, temperature, and so many other fun things that I used to take for granted. : So what does this mean for my future? Well it means a lot of research. Which as most of you know is great for you, because I share all of my research so that you can be more informed in finding your own diagnosis and living with your own chronic illnesses. 💜 I look forward to updating you soon on new things that I learn. But in the meantime I am going to spend some time learning how to treat some of the symptoms and make my hypothalamus start working the way it's supposed to again. : I will talk to you all very soon and I love you all. Keep being the badass amazing women that I know you are. ❤💛💚💙💜 . . . . . . #Mindfulness #Endometriosis #Wellness #Stepmom #Thyroid #Autoimmune #SpoonieLife #Spoonie #Fibromyalgia #IBS #LeakyGut #SecondBrain #ChronicIllnessWarrior #ChronicPain #ButYouDontLookSick #InvisibleIllness #SpoonieSupport #Hysterectomy #ChronicIllnessAwareness #SpoonieFamily #Hashimotos #Dysautonomia #DegenerativeDiscDisease #SpinalStenosis #T1Dmom #MADwellness #PCOS #Mindset #ChronicLife #SpoonieSister
Earlier today we went to my kid's appointment! It was a pretty good day. I took bunches of pictures on my camera and I'll hopefully be posting some of them in the next 24 hours! Sorry in advance if I'm posting too much! . . . . . #selfiechallenge #selfieaday #selfie #greeneyes #gamermom #Gamer #InvisibleIllness #bipolardisorder #celiac #sciatica #aspiesofinstagram #fibromyalgia #butyoudontlooksick #sickofbeingsick #chronicallyfab #cbd #cbdoil   #420friendly  #colorfulgoth  #zenpagan #queer #pansexual #demigirl #polyamorous #ohm #namaste #creepy #piercedandtattooed
I posted a poll about this on my story (which is currently a mess). This is a Japanese knot bag. I merv to modify my pattern a bit where I have seen allowance room. Anyway, it's totally reversable and I can make the fabric waterproof. What do you guys think of this idea? Small ones for poop bags and larger ones for treats? go vote please. ---------- Use the code CAWFRIENDSANDFAMILY for 15% off @cypressavenueworks ---------- Visit my awesome pawtners: @fantastic_fin_fry @helper_dog_fauna @diablo.cinder.rogue_working.k9 @superwoofer_tale_tails @spookypupmulder @daisymaetherattiesdit @helperdogvader @pumpkin.the.servicedog @muttbenji ---------- Visit the Goatdog Gear models too! @domino_and_dixie @toby_the_sdit @daisymaetherattiesdit @captain_morgan_celebripup @atlas.in_training @daily_service_dog_post -------- #spoonie #spoonielife #fibrowarrior #fibromyalgia #scoliosis #ankylosingspondylitis #butyoudontlooksick #invisibleillness #chronicillness #chronicpain #cripplepunk #sdit #servicedogsofinstagram #servicedogintraining #helperdog #workingdog #greatpyreneesofinstagram #giantbreedlovers #greatpyresneesmix #greatpyrenees #bloodhoundmix #bloodhoundmix #bloodhoundsofinstagram #pyreneesmountaindog #dogsofinstagram #lifewithpickles #goatdog #servicegoatdog
Boozy ice cream isn’t typically a part of my low histamine lifestyle... but tonight it is. 😋💜
Been struggling a lot with anxiety and feeling overwhelmed recently. For someone who spent the last decade in and out of doctor's appointments, treatments, and a state of severe depression, anxiety, and PTSD it's a lot to take in trying to normalize my life. __ I know it is easy for me to go at a million miles per hour these days. Existing and functioning is such a new and foreign concept for me. It can be hard to understand because most people have a 9-5, active social life, travel, and handle family, financial, and other obligations while still being able to come home and drink a glass of wine or beer at night without a sweat. __ Tonight, I'm sitting down and mindmapping to try and declutter my head, so I can figure out what my actual priorities are. Learning to be okay with where I'm at, but it's hard AF. I just want to be free 🕊️ __ Does anyone else put everything on their list as the most important? Comment below with ways you manage your priorities and list of to do's 🤓
There is no need to run around after them, so how do you get them to come to you with so little time?? Add a 😋 in the comments if you would like to know! #ahps #AHPsinaction #weareAHP #publichealth #aging #globalhealth #prevention #wellness #4patients #butyoudontlooksick #healthcare #doctor
Friend: “Chels, you’re a trip” Me: “I’ve been around the world”
Earthing: To put it briefly, when your bare feet or skin comes in contact with the earth, free electrons are taken up into the body. These electrons could be referred to as nature’s biggest antioxidants and help neutralize damaging excess free radicals that can lead to inflammation and disease in the body. The Earth is a conductor of free electrons and so are all living things on the planet, including us. The body is composed mostly of water and minerals which in combination are excellent conductors of electrons for the Earth to provide via direct skin contact or some other conductive channel in order for them to flow through. Basically - Take your shoes & socks off, then go walk around soaking in all the amazing ness for at least 30mins a day. Grass, dirt, sand, as long as it’s natural earth. See how quick your body starts to naturally release stress, toxins and many body pains start to naturally ease. 👣🌎🌈 #themoreyouknow #earthing #barefoot #walkabout #naturalremedies #healyourself #mothernature
Saw some pretty flowers and couldn’t resist. Ended up doing A LOT today. It’s like I was gifted spoons in my nap from 8am- 11:30AM. I sorted out two forms for my insurance claim and I booked flights for my grents for my sisters wedding. But wait, there is more. I walked the dog TWICE. I went swimming AND shoe shopping AND dinner. Insane!!!! It’s crazy when I have days like this and have a peek into what I could be like if I was healthy. Though I won’t be dwelling on that as it will do nothing to change my circumstances for the better. Sleepy now, hope everyone had a wonderful day! Here’s hoping I’m not dead tomorrow after all this activity 😐💜🔮 . . . . . . . #tellmesomethingidontknow #fibromyalgia #fibrowarrior #fibromyalgiaawareness #invisibleillness #motivation #chronicillness #chronicpain #chronicfatigue #disabled #disabledmemes #spoonies #spoons #spooniesisters #spooniebrothers #spoonielife #spoonieliving #adulting #sickgirl #memes #surviving #chronicpainsucks #instadaily #instagood #butyoudontlooksick #relatable #selfie
A lil cbd vape sesh in bed. #hempbombs vanilla cupcake 🎂 and crushed🍍
The only thing wrong with me wearing a mask in public is other people’s negative reactions or responses. I love wearing my @vogmask outside because it helps me breathe on days like today when the air quality is poor and there’s tons of allergens floating around. My mask shields my upper respiratory system from viruses, bacteria and pollen which helps me stay healthy. (Plus I’m a very high risk for Valley Fever and I’m 100000000% not interested in contracting it.) So before you say a comment like “oh that’s sad” or make a disappointed face at me like what a shame it is, take a moment to be empathetic and see how amazing this mask is from my perspective. It enables me to continue living my life outside and it gives me a better quality of life! Plus you can never go wrong with rainbow 🤷🏻‍♀️🌈😊 #chronicillness #invisibleillness #hypogammaglobulinemia #specificantibodydeficiency #primaryimmunodeficiency #immunedeficiency #juvenilearthritis #fibromyalgia #iamrare #careaboutrare #zebrastrong #thinkzebra #butyoudontlooksick
Sittin Pretty with my #RustyTrustyCane at my monthly #PainManagement appointment this morning. I had my first round of #TriggerPointInjections in my back. The procedure itself wasn’t bad but I’m pretty sore now, so I’m taking it easy, in bed with ice packs on the injection sites. #WithPainComesStrength 💪🏾 #EffYourBeautyStandards #HospitalGlam #InvisibleIllness #ButYouDontLookSick #Spoonie #SpoonieLife 🥄 #ChronicPain #Neuropathy #ImmunodeficiencyDisorder #Lupus 💜 #AutoimmuneDisease #AutoimmuneWarrior #LifeIsBeautiful
Exactly what I’m trying to do under the circumstance 💕☀️🌸 find that light
Thank you to our friends at @diversability & all who participated in #MarchingWithMe for this year’s #DisabilityPrideNYC ! 📸: @storyandgoldphoto [Image Description: Group of 11 people posing around the Diversability banner on the streets of New York City at the Disability Pride Parade]
Managed a shower today! 🎉 Legs are stiff and achy, but I'm cleeeeean! Exhausted & happy. So grateful for a better day after 2 days flaring - even tolerated light today and could have the curtains open! What are you grateful for today? --------------------------------------------------- 🌟 Chronicallyhopeful.com --------------------------------------------------- #pwme #MEcfs #MillionsMissing #Spoonie #chronicillness #SpoonieLife #ChronicLife #disability #chronicpainwarrior #InvisibleIllness #lowbattery #StrongerThanYouThink #chronicillnesswarrior #ButYouDontLookSick #housebound #SpoonieBlogger #UKblogger #FaithBlogger #ChronicIllnessBlogger
🎶 All the mocha lattes, you gotta do Pilates🎶 ( Kanye West’s song ‘The New Workout Plan’ is one of my faves). I particularly like those lyrics because I love my mocha lattes...er...mocha frappes and I need Pilates in my life or I feel like my body is falling apart!👯‍♀️🍫☕️ . I finally feel strong enough to do Pilates on a consistent basis, so I’m totally stoked about that! After a few months of 🔪 pain in my gut, ‘rhea, and extreme gurgling and bloating, it’s about time!🙏🏼💜 . I started my last 30 day cycle of Uceris today and have definitely noticed an improvement in symptoms since I’ve been taking the med. I’m so thankful for that! I still have to be super careful about what I eat, but the threat of crapping my pants is no longer imminent at the moment, so I’m happy!!👍🏼💩 . I hope you all have a wonderful, rejuvenating weekend!!🙌🏼🤗 . ✌🏼💕😀💩 . . . . . . . . . . #crohnsdisease #crohnswarrior #pilates
I picked this picture for this post bc it’s a topic I wanted all of you to read & it was colorful & pretty unlike what I am about to speak about. ⭐️ All this time we put off testing my husband for everything, more like he put it off-but I was the sickest so a lot of the focus was on me & while he has mold toxicity he didn’t feel much physically besides fatigue. Recently we got a new primary physician & I insisted the doctor test my love for Lyme & co-infections, EBV, etc through Labcorp since it’s covered by our insurance. I knew the answer, we were told the answer by another doctor but he still didn’t think he had Lyme. ⭐️ Labs always make you feel a certain way-it eliminates that speck of hope or doubt that you have. Needless to say it was all positive, even on the western blot! IgM & IgG. It came to question today about how he magically got Lyme & all the same exact co-infections as me and all the same reactivated viruses. I put my head down in shame, as I know the answer to that too. The sweet man that he is, he hugged me and told me it was ok, that he loved me & we were in this together. ⭐️ So...Don’t listen to doctors who blindly say that Lyme cannot be transmitted sexually-They are wrong. It’s also congenital. I’m living proof-I have given this illness to the people I love the most & it sucks. Be cautious & protect the people you love & lust for, it’s common courtesy. If I had known I would of, even all this time we have used protection just in case my husband didn’t have it, and I am not a big fan of condoms guys, at least not with him. That doesn’t sound right but you know what I mean. 🤦🏻‍♀️ Nor did I feel awesome about it when we went shopping for them, I felt dirty & awful but I knew that I had to be strong & do it for his protection. I know this is raw but it needs to be said. Many of you are young, and will someday be in a relationship so it’s something you need to prepare for, it’s not pretty but it’s true, and if your person loves you-and you them, which I hope is the case if this is a topic, it will be ok, promise. If not well then that’s another lesson in choices but regardless please be aware! Xoxo P
Listen to that little voice! We will never give up our quest for better health! Together, we can do this! 📷: @livelikeitsthewknd #chronicloveclub
Unpopular truth: there are certain people, places, and belief systems you will have to distance yourself from to get better. . . Specific ties that must be severed, behaviors and patterns that must be surrendered, and layers of your identity that you must shed. . . Relationships with unhealthy dynamics that will need to be forsaken if you want to heal. . . Attachments to narratives, dogma, and ideologies that must be relinquished in order to make way for transformation. . . In order to get better, you must break with influences that are intrinsically unhealthy, cultivate a home and community that facilitates health, and divorce yourself from people who detract and denigrate rather than encourage and support you. . . In order to flourish, the people who inhabit your space must feed the flames of your passion, rather than extinguishing the fire within you. . . In order to hold space for renewal and regeneration, you must honor yourself enough to know when it's time to let go. . . . . . . . . . . . . . . . #risesisterrise #divinefeminine #empoweredwomen #goodvibetribe #consciouscommunity #mindbodysoul #holisticlifestyle #yoga #mantras #affirmations #selflove #bodypositive #spirituality #intuitiveeating #soulhealing #highvibrations #chronicillness #butyoudontlooksick #spoonie #autoimmunedisease #ehlersdanlossyndrome #potssyndrome #holistichealth #naturopathicmedicine #healthcoach #fxmed #paleo #fitfam #autoimmunepaleo #vegan
Hi y’all, we are selling T-shirts to raise money for my upcoming #surgery in Maryland. The shirts are $25, and proceeds go towards travel, medical, and other needed expenses. Those of you w/#chronicillness , #ehlersdanlos , and #raredisease know the struggles of traveling for medical treatment. Unfortunately, Texas is no different. Please #buy a shirt, #share this post, and help me get to Maryland! Link is in my profile #fundraiser #fundraising #ehlersdanlossyndrome #osteogenesisimperfecta #addisonsdisease #avascularnecrosis #butyoudontlooksick #chiari #dysautonomia #gerd #invisibleillness #invisibledisease #mcad #mcas #nervepain #reynauds #spoonie #spoonies #spooniestrong #tmj #vertigo #zebra #zebrastrong #zebras
Hanging out with sweet old Satchel. . Got a chest x-ray today to hopefully clear up some odd patterns that were on my breathing test. Then lots and lots of bloodwork needs to get done later this week. . In better news I am getting involved with a local theater working on stage productions with my bff @iliketshirts !! . . . #posturalorthostatictachycardiasyndrome #chronicallyill #chronicillness #invisibleillness #butyoudontlooksick #pots #potsie #dysautonomia #spoonie #chronicillnesswarrior #peoplehopetribe #gastroparesis #chronicpain #chronicfatigue #chronicallyfabulous #chronicloveclub #witchesofinstagram #wicca #vintagevamp #vintagegoth #gothic #1940s #1940sfashion #pinupalternative #gothgirl #vampire #witch #halloween #blackcat #blackkitty
Another day, another ward, another hospital trip. I’ve got high hopes this time but... 🤦🏻‍♀️ I mean law of averages right?? It’s bound to work out! #colitis #crohns #spoonie #ibdwarrior #butyoudontlooksick #crohnsandcolitisuk
There are so many obstacles we face in life that can defeat us. We may view each of these struggles as a roadblock with no way around it. Our journey in life is never easy. We want it to be though. . . Do you know that the things that are most difficult in our lives, showcase our strength? We may feel defeated. We may feel as though we cannot move forward. We may think that we will not make it through. However, it is these very things that allow us to rise above and showcases who we really are. . . You can come out of what you are facing today. You have strength and courage that will allow you to be an overcomer. . . . . . #defeated #defeat #obstacles #roadblock #lifeishard #journey #stuck #notgoingtomakeit #riseabove #showcaseyourstrength #strength #courage #youareanovercomer #youhavewhatittakes #youarestrong #strengthinside #chronicillness #butyoudontlooksick #baddays #gooddays #fatigue #northcarolinamom #encouragement #uplift #positivity #thehealingfromwithin
Nature graciously put me on a personal light show earlier today. (#nofilter - its ALL #light !) This was too incredible not to share - the sun's reflection was dancing off the water and into the trees. (just posted an up-close view on my IG Story - it was SO stunning!) --- --- #ringgold #chatt #nooga #business #ga #tn #naturelovers #sun #nature #adventure #mountain #tgif #summer #love #life #tennessee #tn #mountains #wander #explore #weekend #chill #relax #naturelover #tree #trees #eno #enohammock #friday
We’re just 5 weeks away! Help our #CRPS Community get on camera during the game! Tag everyone you want to invite to our 2nd Annual CRPS Awareness Day & Fundraiser at Dodger Stadium below! Tickets are available now & will close soon! Remember to wear your orange or incorporate CRPS awareness with your Dodgers gear! Please visit http://www.crpsforum.com/crpsawarenessweekend to purchase tickets. We’re excited @oskawellness is donating an incredible gift basket & everyone who purchases a ticket in our group will automatically be entered to win! You must be present to win. We’re also thankful for @californiapainmedicinecenter ’s continued support & donating CRPS Awareness rally towels to the first 100 ticket purchasers & we’re doing the same w/ our CRPS Awareness temporary tattoos! Thank you for your support! Add our Facebook effect by visiting our verified Facebook page, Facebook.com/crpsforum, then click on our event page for our 2nd Annual CRPS Awareness Day & Fundraiser at Dodger Stadium! #crpsawareness #crpswarrior #rsd #butyoudontlooksick #raredisease #chronicillness #chronicpain #chronicpainwarrior @themightysite @globalgenes @us_pain_foundation @laweekly @latimes @latimesevents @latimes_entertainment @colortheworldorange @rsdsa_official @burningnightscrps #dodgers #letsgododgers #dodgerstadium #losangeles #california #mlb #itfdb #losangeles #california
We’re just 5 weeks away! Help our #CRPS Community get on camera during the game! Tag everyone you want to invite to our 2nd Annual CRPS Awareness Day & Fundraiser at Dodger Stadium below! Tickets are available now & will close soon! Remember to wear your orange or incorporate CRPS awareness with your Dodgers gear! Please visit http://www.crpsforum.com/crpsawarenessweekend to purchase tickets. We’re excited @oskawellness is donating an incredible gift basket & everyone who purchases a ticket in our group will automatically be entered to win! You must be present to win. We’re also thankful for @californiapainmedicinecenter ’s continued support & donating CRPS Awareness rally towels to the first 100 ticket purchasers & we’re doing the same w/ our CRPS Awareness temporary tattoos! Thank you for your support! Add our Facebook effect by visiting our verified Facebook page, Facebook.com/crpsforum, then click on our event page for our 2nd Annual CRPS Awareness Day & Fundraiser at Dodger Stadium! #crpsawareness #crpswarrior #rsd #butyoudontlooksick #raredisease #chronicillness #chronicpain #chronicpainwarrior @themightysite @globalgenes @us_pain_foundation @laweekly @latimes @latimesevents @latimes_entertainment @colortheworldorange @rsdsa_official @burningnightscrps #dodgers #letsgododgers #dodgerstadium #losangeles #california #mlb #itfdb #losangeles #california
I mean- look how cute they are! And they match my cane perfectly 😊 As good as I feel today, I’m also in a lot of pain. I wanted to go with Mom on her spontaneous errand and I’m about to go on a last minute sibling date to celebrate things seeming to move forward instead of backwards for once 🎉🤞🏻 I know I should be laying on my heating pad and medicating like I do every night, but I feel like pushing it today is worth it. Do you ever feel that way? It’s just so nice to feel/look closer to ‘normal’. Hope you’ve had a little fun today too 💜
IVF CYCLE 2 - DAY 1 OMG I just did my first injection all by myself!! During our first round hubby had to do all the injections because I just couldn’t bring myself to do one. But last night I kept waking up and stressing about it and having dreams about it and it was driving me crazy so I got up early while hubby was still asleep and just did the bloody thing! Ok well I sat there for about 15 minutes with the injection in my hand while I built up the courage but I got there in the end haha! New skill unlocked! 💉😆 . . . #IVF #ICSI #ivfcycle2 #ivfjourney #infertility #realfaceofendo #endo #endometriosis #endosucks #endowarrior #endostrong #endosister #endometriosisisreal #endoawareness #helpusfindacure #chronicpain #chronicillness #invisableillness #butyoudontlooksick #spoonie #endobelly #endobloat #painsucks #womensupportingwomen #femalehealth #endoaustralia #1in10 #fightlikeagirl #mystupidendo
#RepostSave @officialcarrielane with @repostsaveapp ・・・ Thank you so much to @miramonteresort for such a fun weekend! It was incredibly refreshing & relaxing to get out of town for a few days! You can check out the rest of my trip on my last IGTV 😎👙 - - - #miramontemoments #palmsprings #curvemodel #allbodiesarebeautiful #plussizemodel #naturalmodels #invisibleillness #butyoudontlooksick #bikinibody #loveyourbody #effyourbeautystandards
Yo! You ready for my best tips for eating out ? _ Ok here goes nothin 😘 _ Real quick tho , I used to only eat out 😂until a couple years ago. _ I LOVED eating out. So I get the emotional ties and the fun of eating out. _ I also get the addiction to eating out , big time. _ But, now I love eating at home & making my own food. _ 1. I changed my mentality about food. Everything that goes into my body is for the purpose of healing and nourishing my body with as many fruits, veggies, herbs & wild foods as I can possible get. I want everything to be packed with nutrients, vitamins, minerals, antioxidants, glucose & phytochemicals. 2. So with this in mind I always make sure eating out is not something I do often because —I can make yummier healthier stuff at home, I save so much 💵 & that I don’t risk getting food poisoning. 3. So when I do eat out — it’s if traveling or if I want to meet a friend and enjoy their company. _ Ok so now that we have talked about my mindset we can talk about my tips 😊 _ 1. I Don’t go in starving. I always make sure I’ve been snacking all day and be sure to have a snack like dates, apple, or some kind of fruit before. (This way I’m in control not my hunger.) 2. I like to also call ahead or do my research and see what the restaurant has available or if they can make accommodations - like oil free steamed or baked potatoes and veggies. 3. I also take oil of oregano 🌿 and get raw onion on my food — food poisoning is so common and can really mess us up. (Learned this invaluable info from @medicalmedium ) 4. If I don’t get enough food at the restaurant, I just eat when I go home or have some dates. _ These are just some basics. _ also let’s be honest I can’t buy this yummy smoothie bowl out. 😂 nobody makes better smoothies for me, I know just what I like & they cost a fraction 💵 _ LMK if this helped and LMK your eating out tips 👇🏻I love learning from you guys!
Bitch it’s Friday, don’t be bringing all that negativity over this way 🙅🏻‍♀️ #nope #nottodaysatan #notinmyhouse
"When we are no longer able to change a situation, we are challenged to change ourselves." — Viktor Frankl Photo capture from #peoplehopetribe by our friend @wanderercreative !
OMG 🤤😍 I know what you’re thinking- you can’t afford to go shopping today girl, but they’re on mega clearance and my mom was nice enough to gift them to me 🙏🏻 I’ve been so excited about gaining my weight back- I was at 95 lbs for about 6 months, and now I’m up to a comfortable 110 🎉- but then I saw on the tag that these are a juniors 0 🤦🏻‍♀️ I clearly have a ways to go, but it’s so nice to have curves again (however small they may be) 💜 @kohls
Bedtime playtime
Tonight at midnight MST is your last chance to take advantage of the Dewdrop Duo Premium Starter Kit from @younglivingeo ! You will get 13 of the most popular and frequently used essential oils plus not 1, but 2 diffusers. You also immediately gain access to our incredible community, endless information on how to use the kit, and an exclusive new member class I am hosting at the beginning of August! • Check out my stories for more information and comment below or DM me for information on an exclusive deal for anyone who signs up as a member today. Sign up through the link in my profile! • #youngliving #yleo #essentialoils #wellness #natural #holistichealth #lifestyle #healthylifestyle #chronicillness #chroniccondition #spoonie #invisibleillness #ehlersdanlos #butyoudontlooksick #ehlersdanlossyndrome #rheumatoidarthritis #autoimmune #overcome #warrior #adversity #strength #hope #naturalmedicine #naturalremedies #naturalliving #cleanliving #toxinfree #wellnessjourney #healthandwellness #healthyhome
Tonight at midnight MST is your last chance to take advantage of the Dewdrop Duo Premium Starter Kit from @younglivingeo ! You will get 13 of the most popular and frequently used essential oils plus not 1, but 2 diffusers. You also immediately gain access to our incredible community, endless information on how to use the kit, and an exclusive new member class I am hosting at the beginning of August! • Check out my stories for more information and comment below or DM me for information on an exclusive deal for anyone who signs up as a member today. Sign up through the link in my profile! • #youngliving #yleo #essentialoils #wellness #natural #holistichealth #lifestyle #healthylifestyle #chronicillness #chroniccondition #spoonie #invisibleillness #ehlersdanlos #butyoudontlooksick #ehlersdanlossyndrome #rheumatoidarthritis #autoimmune #overcome #warrior #adversity #strength #hope #naturalmedicine #naturalremedies #naturalliving #cleanliving #toxinfree #wellnessjourney #healthandwellness #healthyhome
I had my second IVIG infusion this week. We upped the dose and even though the infusion was tougher, I made it through. I’ve only noticed one major “side effect” from IVIG so far which I’ll be sharing more about tomorrow . I also recently found out I have nerve damage to my digestive tract (no wonder it doesn’t work!), am probably mostly in remission from Lyme, and I still haven’t been able to get my growth hormone covered by insurance. Want all the details on my health, including everything I’ve discussed with my GI doctor in the last 2 follow ups? I just posted a health update video! . Click the link in my bio to watch it or visit my YouTube channel (also linked in my bio) . Have any of you with POTS or some form of Dysautonomia dealt with major digestive issues? Would love to hear your experience! . . . . . . #lyme #potssyndrome #mastcellactivationdisorder #lymedisease #butyoudontlooksick #mcas #dysautonomia #chronicillness #chronicillnesswarrior #lupus #spoonie #invisibleillness #fibromyalgia #endometriosis #multiplesclerosis #cidp #cfs #chronicfatigue #immunedeficiency #IVIG #autoimmunedisease #ptsd #hashimotos #ibs #healingthegut #mentalhealth #chronicpain #guthealth
Chronic illness means living in the past ALOT, what you used to do, when it wasn't so bad, how you used to be. ⠀⠀ Today I'm looking forward and I'm positive about a CURE 🌈 More research, more media coverage, more belief in patients. Like holidays, it's coming 💜 ⠀⠀ #chronicfatiguesyndrome #ms #fibromyalgia #rheumatoidarthritis #ehlersdanlossyndrome #epilepsy #endometriosis #sjogrens #connectivetissuedisease #undifferentiatedconnectivetissuedisease #spoonielife #hypermobility #butyoudontlooksick #lymedisease #spoonies #scleroderma #invisibleillness #raynauds #pots #migraines #lupus #anxiety #crohnsdisease #colitis #autoimmunedisease #addisonsdisease #depression #chronicillness #cysticfibrosis #chronicpain
The invisible illness chronicles 😂. Whatever it takes to make my babies happy. It's still comical to me that people look down on me because I don't "look sick". #disneyfamilia #myheartbeats #disney #hollywoodstudios #POTSie #iwillnotletmyillnessdefineme #somanydirtylooks #butyoudontlooksick
Progress is hard, the hardest thing you will ever do because it hurts and it's a lot easier to just lie in bed. I recently tried rock climbing with my sister, and sadly it brought the realisation that I am even weaker than I previously believed. Walking and lifting things at work are activities I do everyday although I once had to work hard just to be able to do these. But I haven't recently been doing any further activity to build up my muscle strength. The other people we went climbing with could not believe I was that weak, and I was climbing the easiest routes! But I realised when I was writing to the disability department at university a few days ago that I have now been ill for 12 years! When I think about it I have never done any sports or physical activities, but I want to change that. I want to be strong and capable. I am never going to be cured, everyday for the rest of my life will be a fight to beat ME and fibro, but I am determined to make positive changes. #positivevibes #positivepost #positivity #positvequotes #rockclimbing #fibromyalgia #fibro #me #cfs #mecfs #cfsme #chronicfatiguesyndrome #myalgicencephalomyelitis #chronicillness #chronicpain #invisibleillness #butyoudontlooksick #endometriosis #motivationalquotes #determinationquotes #determined #successfulwomen #strongwomen #biggerthanmyillness #shebelievedshecouldsoshedid
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