So today is post-op day 9 and recovery has been quite the roller coaster— complete with more allergic reactions, blown veins, and fatigue than I ever thought possible. My MALS pain is gone(!!), but the Gastroparesis is still hanging on.
These past few days I have realized just how little by body can do on its own, and it was a huge eye opener for me. My GJ tube is gone because Dr. Hsu couldn’t get to where he needed with it in place. I always had this thought in the back of my mind that I could totally live without it, but I never truly realized exactly how much it was keeping me alive and functioning— not only for nutrition, but also for meds. My home doctors were right. I guess I took it for granted.
I lost IV access for a few days so no fluids or dextrose infusions to keep me going. No meds to take away the pain. Nothing. My body was essentially left to its own devices and it did not fair well. Recovery from a pretty big surgery on top of the removal of my medical supports was absolutely terrifying for me. For the first few days I was just getting sicker and weaker, until an amazing nurse said enough was enough and called my surgeon at 3am and got me back on the saline and dextrose infusions. I had been “living” on a few Cheerios and a cup of applesauce TOTAL for 5 days. I’m not even kidding. I had never been so weak in my life. The infusions helped and I was able to make a little progress, but yesterday started by taking a phenergan with one sip of water and subsequently vomiting said phenergan and water. The nurse came in to give me IV nausea meds, but my vein blew from the initial flush before I could even get the meds. That was my last good vein... nurses and PAs from all over the hospital had tried, even with the ultrasound, with little to no success.... and the surgeon wouldn’t allow them to place a more durable line.
So, for the past 24 hours my stomach was allowed to rest. All meds, well as many as possible, have been IM. I’m starting on one or two pills today and my determined nurse is going to try to place an IV himself.
Baby steps are still steps, I know, but I can’t help but get upset when I have been here double the average MALS hospital stay.