After reading countless autism posts, I feel I need to say something to all the parents with young kiddos. My son is 25 years old. He’s labeled “non-verbal with severe autism”. He will need 24/7 care for the rest of his life. Autism has also been my career for close to 20 years. There is a truth that is never talked about, and I want you all to take this with an open heart and open mind. Sometimes, life does not get easier. You learn to adapt. You learn to cope. You learn to embrace your magically unique circumstances. You learn to adjust to your “new normal”, but the perception that life will get easier is not always the case. Regardless of how amazing you are as a parent, regardless of the hours of therapy, or the dietary changes, or the IEPs, life, at times, is very, very, very challenging. The reality is, as your child ages, society will start to lose interest in helping. Newer, fresher, cuter kids are being diagnosed every second, so as your kiddo reaches middle/high school, they will get less. Less attention, less support, less compassion, less therapy...less. Unless you are independently wealthy, the burden of care will fall on your shoulders. Doctors don’t want to even see your child because “autism is out of there scope”. Therapists feel it’s “too late” for any progress to be made. Medical professionals just want to throw medication at your kiddo to get you to stop trying. Schools don’t have training and ability to deal with the critical needs of so many. The government will find each and every excuse to cut/defund programs that care about your kiddos success. Regression still occurs with your child. New behaviors still pop up. Reactions to food, medication, environment control your day. Puberty is a whole new world, and it’s like starting with a clean slate. What you thought you knew, now needs complete relearning. I say this with love. Please, please, please make your vote count during elections. The state of your child’s future depends on it. This is not to say that your child won’t improve. They will, but nothing about the hurdles you face will “get easier”. I don’t say this to scare you. I say it as a warning because our kids matter!!!!
Sesetia mamah, benda ini menemani.
Terima kasih banyak, teruntuk seorang wanita yang kuat dan hebat. Menjadi lebih baik dari sebelumnya memang berproses.
"Akan ada masanya..."
Kalimat itu yang selalu membuat kita berprasangka baik, dikala yang lain melihat kita dengan sebelah mata karena efek penghijrahan.
Yap.. akan ada saatnya, yang mengejek kita nanti malah mencari kita.
Akan ada masanya, yang sinis kan menjadi manis.
Akan ada masanya yang modus jadi tulus.
Akan ada masanya yang bermaksiat jadi bertaubat.
Akan ada masanya yang membuka aurat, nantinya jadi menutup rapat.
Yang terpenting jangan pernah berhenti menyebar..
Karena islam.. adalah rahmatan lil'alamin☺