#Hypermobile

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So we’re assuming my lyrica is causing my rapid weight gain which isn’t good for multiple reasons 1. I’ve struggled with an eating disorder and body image issues for quite a while, so mentally gaining weight especially at a rapid rate for no reason dosent exactly make it any easier to smile. 2. Weight gain will cause more stress and pressure on my joints which in turn will cause more pain of all types 3. It’s very difficult for my body to lose weight, so I have to try about 3 times as hard as anyone else would 🤦🏻‍♀️ So we’ve reduced my dose from 150mg twice daily (300mg daily) to 150mg morning and 75mg at night (225mg daily) and oh has that been hell. I made the mistake of taking 75mg at night and waking up around 5 in unbearable pain unable to get back to sleep. Now that I take the 150 at night I get a proper sleep (for me) and even though I may struggle during the day I can still manage to distract myself sometimes from the pain! So far my weights stopped increasing which I’m thankful for, but then again my nerves are painful as fudge 😂 #nervepain #nerve #spinalcord #injury #lyrica #eds #chronicillness #chronicpain #chronicmigraine #chronicallyill #disabled #disabledandcute #pain #illness #nerveblock #doctor #invisibleillness #pots #posturalorthostatictachycardiasyndrome #bulgeddisc #ehlersdanlossyndrome #hypermobile #gastritis #gerd #fibromyalgia
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Thinking back to this moment 7 years ago when I walked 26.2miles in 8 hours and 8mins despite all the odds. I fractured my foot on the 13th mile and walked on it for half the race. Prior to my training I had only ever walked about 2miles because of my Ehlers-Danlos syndrome. This race of my life taught me lessons I will never forget: 1. I came nearly last that day out of thousands of people, yet I felt like the biggest winner. Winning doesn’t matter, taking part does. 2. It is possible to walk on the strength of your mind and that can carry you anywhere you want to go, but you need to listen to your body and respect the condition you have 3. My fuel was the love and support of all those around me and without it I don’t think I would have made the preparation, let alone the race. 4. We are all capable of so much more than we think. 5. I wouldn’t recommend a marathon for anyone with EDS, but I would recommend creating your own finish lines every day and showing yourself how even the small things can make you feel like you achieved something wonderful. 5. And my final thought is summed up by the words of another: “Everything you ever wanted to know about yourself you can learn in 26.2miles” - Lori Culnane I hope more dreams were made today and that everyone who crosses the line feels like the hero they are 🏅 You can watch the documentary ‘Issues with my Tissues’ that followed my journey and raised awareness of EDS for free on my you tube channel. Link in the bio 🙌🏻
We were thrilled to hear EDS UK’s appeal broadcast on BBC Radio 4 this morning at 7.55am; all with the aim to raise money to expand our helpline hours. The helpline is open three days a week and receives more calls than can be taken during this time. People often have to wait several days to have their calls returned and the average length of calls has increased over the past year. When our helpline advisor is away, the helpline has to close. We want to open the helpline more frequently to reduce the time people have to wait for advice and support. Our lovely supporter Toni Madigan tells her EDS story and explains how the helpline made a difference. Click the link in the bio to listen!
Hello! So this is me! I’m 17 and live in the US. I currently am not diagnosed with anything but anxiety, depression, hypersensitivity and hyper mobility but suffer from chronic pain all over my body and from speaking with other people it looks like I might have CRPS or fibromyalgia and ehlers-danlos syndrome. I am not diagnosed for the fact my parents don’t understand the extent of my pain. So anyways this is going to be a little space for me to share my struggles and hopefully meet some new friends • #chronicillness #chronicpain #chronicpainsucks #hypermobility #hypermobilitysyndrome #pain #snapchat #crps #crpsawareness #eds #ehlorsdanlossyndrome #complexregionalpainsyndrome #fibromyalgia #hypersensitive #hypersensitivity #newaccount #spoonie #hypermobile #anxiety #depression
Getting more obvious now...HOLY OUCH. Anyone have any tips on dislocated ribs? Please! #crps #hypermobility #hypermobilitysyndrome #dislocatedrib #hypermobile
I know the feeling mate!! #henrytinker has had a tough day. He's had to roll about in the garden, lick his butt and cry for food. I channelled my inner cat today (I slept in the garden for 2.5hrs) becasue I stayed up drinking and (gently) dancing until 3am at my cousins hen party. I'm feeling it today but sometimes you just have to introduce caution to wind. . . . .#eds #ehlersdanlos  #nhs   #jointhypermobilitysyndrome #hypermobility #hypermobilitysyndrome #hypermobile   #zebrastrong #spoonie #medicalzebra #dysautonomia #ehlersdanlosawareness #chronicillness #chronicpain #myalgicencephalomyelitis #chronicfatigue #chronicfatiguesyndrome #posturalorthostatictachycardiasyndrome #spooniewarrior #disabled #disability #disabilityawareness #invisibleillness #butyoudontlooksick   #reynauds #disabodyposi #wheelchair #wheelchairaware
My hubby & me at the #TheGoatFarmAtlanta a few years ago with my cousin Niki taking the pic. It was a great few days with the sweetest #cousins on earth! One, a #livingkidneydonor back in the 80s. A pioneer! •••✌🏻️❤️♻️••• Register to #DonateLife at www.RegisterMe.org ✔️Registered organ donor since 1994. •••🌀••• #OrganTransplant #GiftOfLife #RecycleYourself #MakeLifePossible #Transplant #UNOS #LiveLifeGiveLife #Save8 •••🚑••• #GIDysfunction #JTube #ESLD #POTS #OrthostaticIntollerance #Hypermobile #ChronicPain #ChronicWellness #PatiencePatient #Tubie #Spoonie #Episkey
Hey chocolate face, I missed you.
This is something I am struggling with, accepting that I need to rest, instead I try and carry in past this point. This weekend i don’t have much in so I am going to try and have a good think about all the activities I am currently doing and work out what I should take a step back from and what I need to save energy for x . . . #chronicpain #chronicasthma #chronicwarrior #chronicillness #spoonie #spoonielife #spooniewarrior #asthma #sciatica #ibs #fastheartbeat #nausea #depression #anxiety #ptsd #autism #asd #quotes #nurishnotpunish #fibromyalgia #fibromyalgiaawareness #fibrowarriors #fibrofog #hypermobile #hypermobility #me #cfs #myalgicencephalomyelitis #chronicfatiguesyndrome
It's been a busy couple of days in this weather keeping madam happy and not too hot. We have gone out twice in the chair with someone to help us (thanks @lady_marybeth and @sazmiles16 and jon) for making it possible. Even though I can travel with Sienna on my lap I don't feel very safe so looking for some solutions so we can go out on our own in the chair as it makes a massive difference to my pain and energy levels the more I use it #eds #ehlersdanlossyndrome #hypermobile #spinalfusion #spondylolisthesis #backpain #disabledlife #disabled #disabledmummy #wheelchair
Such a beautifully sunny and warm day to sit outside and soak up some vitamin D 🌞 🌞 🌞 #springhassprung #spring #relax #spoonie #selfcare #spoonieselfie #spoonielife #eds #ehlersdanlossyndrome #ehlersdanlos #hypermobility #hypermobile
Thanks for sending in so many ace submissions for issue two yesterday 💖 sorry if you haven’t had a reply yet, some of us are at Manchester Punk Festival this weekend. If you were working on something but missed the deadline yesterday. Send it over by tomorrow aft to still be considered. Ps MPF is really good but my legs hurt. #ink #pendrawing #poorlypunk #vans #mpf #zine #zines #draw #art #artist #fibro #endo #eds #hypermobile #writers #zinefest #submit #alt #cartoon #diy #potd #ig
Sooo much hair 🤗❤️ So today I’ve tidied the flat, been to the garden centre and done my first bit of kitchen top gardening 🤫🌷🍏🌸 and now Nanny and Grampy are going to come visit! My health has been a bit better this week but I’ve got myself into a bit of a shit patch atm in general and my tube is worse than ever so I’m going in to hospital 🏩 at some point early next week to see the team and hopefully get things moving! #praisethelord ❕ I do absolutely love love love living on my own but the constant anxiety of worrying how my health is going to affect things is difficult and so is doing grown up things but it’s life and it’s what I want to do so I’m going to give it my all and enjoy it ⭐️🏡🌈 #chronicillness #posturalorthostatictachycardiasyndrome #gastroparesis #tubie #pegj #fibromyalgia #ehlersdanlossyndrome #type3 #hypermobile #redhairdontcare #homealone #productivity #family #myfabulouslife
THIS is MY Downward dog. No, I know my form isn’t great, but it’s what my body is able to at this current moment. It has been a slow progress to get to this point. I have hypermobile elbows which stacks at the joints when I straighten my arms making downward facing dog, vinyasas, chatarangas, and any arm balances difficult BUT I am slowing trying to rewire my body into making the appropriate adjustments a “habit”. Also, I struggle with tight hamstrings as you can tell. But to me this is just where I need to be. 😊🧘🏽‍♀️ #trusttheprocess • • • • #healthyish #loveyourbody #wellnesscommunity #wellness #mymotivation #womenshealth #wellbalanced #hypermobile #yoga #cantfeelmylegs #health #crossfitmom #strongwomen #strongnotskinny #progressnotperfection #yogalove #yogi #girlgains #girlswholift #downwarddog #progression #downdog #yogapose #sorehamstrings
#twinning @eloisecumberland 👯‍♀️ ⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀ ⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀ #juststrong #girlwholifts #ehlersdanlossyndrome #hypermobile #eds #health #fitness #bodybuilding #vegan #training
Day two on #disability from my employment. Feeling a bit #lonely & really hoping that #healing can happen. I picked up a #crochet project I had on hold to try and pass the time with... •••✌🏻️❤️♻️••• Register to #DonateLife at www.RegisterMe.org ✔️Registered organ donor since 1994. •••🌀••• #OrganTransplant #GiftOfLife #RecycleYourself #MakeLifePossible #Transplant #UNOS #LiveLifeGiveLife #Save8 •••🚑••• #GIDysfunction #JTube #ESLD #POTS #OrthostaticIntollerance #Hypermobile #ChronicPain #ChronicWellness #PatiencePatient #Tubie #Spoonie #Episkey
😴 ⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀ ⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀ #juststrong #girlwholifts #ehlersdanlossyndrome #hypermobile #eds #health #fitness #bodybuilding #vegan #training
Doing my best "under" while under a booth. There were 4 adults seated there too which sadly we couldn't get a pic of but I did fabulous as always. Mama went to lunch with her coworkers to #gatorsdocksideoflakemary and mama says the food was delicious. I was rewarded afterwards as usual for being such a good boy and helping mama ♡ #servicedog #servicedogs #servicedogsofig #shepardmix #adoptdontshop #dogsofinstagram #sdit #disability #multiplesclerosis #ehlersdanlossyndrome #eds #hypermobile #pots #migranes #fatigue #musclespasms #Dysesthesia #dysautonomia #insomnia #ibs #chronicpain #spoonie #chronicillness #msawareness #mswarrior #mssucks #advocate #invisibleillness
it's a #ringsplints kind of day #eds #hypermobile
Finally got through to my parents about needing to go back to the dr 🙌🏽 got an apt on Monday at 2:40 👨🏼‍⚕️ . Hopefully the dr can help me with the horrible pains which my current meds aren’t helping, also with the horrible nausea, as well as the weakness and muscle twitches. . Any tips on how to talk to drs ? . . . . #chronicpain #chronicasthma #chronicwarrior #chronicillness #spoonie #spoonielife #spooniewarrior #asthma #sciatica #ibs #fastheartbeat #nausea #depression #anxiety #ptsd #autism #asd #quotes #nurishnotpunish #fibromyalgia #fibromyalgiaawareness #fibrowarriors #fibrofog #hypermobile #hypermobility #me #cfs #myalgicencephalomyelitis #chronicfatiguesyndrome
Hands up if you’re hypermobile 🙋‍♀️ ——— This is Steph and she is all kinds of hypermobile. . Working with someone who is, or think you might be? Here’s what you need to know: • What is it? It’s excessive laxity of a joint, (can be born with it or caused by repetitive motions) . How does it effect training protocol? . ✔️You need to train for stability. Put focus on isometric and eccentric work. Develop greater motor control in a ROM that is safe. MEANING: creating tension is key - muscle stress not joint stress, feel me? . ✔️This also means you will need to be cautious about end ranges. (think hyperextended elbows when doing push ups. They will need to stop just shy of their end range. . ✔️Static stretching, for the most part, is a no go. You can be hypermobile and still feel “tight”. What you’re experiencing is a body mechanism called protective tension. Your body is trying to create tension where there is lack of stability (aka where your joint is more lax) MEANING: static stretching might feel good in the moment, but for long term health it is, no bueno. . ✔️Hypermobility can often mean poor proprioception (awareness of the position of your body) MEANING: closed chain movements are often safer, allowing for more stability and control. ———— Got questions? Or curious if you might be hypermobile? DM me, I got a quick test you can take to find out! . Happy weekend friends, stay ambitious and stay spicy 🤙 . . . . . . . . . . . #torontopersonaltrainer #mobility #stability #hypermobile #trainer #weekendvibes #clientspotlight #clientneeds #dancerlife #downtowntoronto #personaltrainer #selflove #strongwomen #strengthcoach #strengthtraining #growth #trainbetter #happyfriday #toronto #entrepreneur #thankyoutoronto #learning #clientprogress #trainerlife #gymlife
Back in my favourite city in the world with my favourite person in the world. After a long flight and two back to back meetings we headed to St James Park and for the first time, in a very long time, we were able to lay in the sun and fall asleep and CHILL!! It was pure bliss. Now I am watching Christina doing her thing on stage in The Grinning Man. I think I could watch this show every night and still not get bored. There’s nothing better than watching the person you love doing the thing they love and were born to do. I’m looking forward to a weekend filled with sunshine, family and some chill out time. Happy Friday lovely people 🙌🏻☀️❤️
Today is Volunteer Recognition Day and we'd like to say a huge THANK YOU to all of our amazing volunteers! Without a dedicated team of volunteers we would not be able to support members at a local level or be able to make a difference to many. We have over 50 committed volunteers and Area Coordinators, those who run local support groups, all giving up their time for free to help those living with EDS and their families. Thank you to all involved for helping to make our invisible visible and supporting others. #StandUp4EDS
Sun is shining 🌞and the birds 🐦are singing. Spring is almost here 🌸🌳 Time to meditate to the beautiful sounds of nature!! #meditation #meditate #mindful #mimdfulness #eds #ehlersdanlossyndrome #ehlersdanlos #spoonie #healingjourney #hypermobility #hypermobile
Erin the #Riveter . We can do it! WE CAN increase the number of registered organ donors and YOU CAN help! In a confusing world, this makes sense. Be a #hero and sign up today! XO •••✌🏻️❤️♻️••• Register to #DonateLife at www.RegisterMe.org ✔️Registered organ donor since 1994. •••🌀••• #OrganTransplant #GiftOfLife #RecycleYourself #MakeLifePossible #Transplant #UNOS #LiveLifeGiveLife #Save8 •••🚑••• #GIDysfunction #JTube #ESLD #POTS #OrthostaticIntollerance #Hypermobile #ChronicPain #ChronicWellness #PatiencePatient #Tubie #Spoonie #Episkey #WeCanDoIt #NationalDonateLifeMonth #RosieTheRiveter
Do yoga they said. It helps pain and hypermobility they say. *dislocates shoulder doing triangle pose with a 4 year old* #yoga #trianglepose #dislocatedshoulder #chronicpain #invisibleillness #invisibledisability #fibrowarrior #kidsyoga #fibromyalgia #hypermobility #hypermobile #whatthefuck
Hey everyone! I am a university student in my third year and I am writing my dissertation entitled "Is thers a Bias against Ehlers-Danlos Syndrome Patients from Medical Professionals?" To collect data, I have been asking for people with EDS to complete my survey, which is here: https://docs.google.com/forms/d/e/1FAIpQLSedtWZ6ke4eyxLvqQzVkPmTdiXU4cQE-VSsSHELYF6vec7tKA/viewform If you could only do this with a confirmed diagnosis I would appreciate it. Also, if you are here for a child feel free to answer it as if you were them. I am so grateful, this is my final push now before I finish writing it up! Thanks! #ehlersdanlossyndrome #eds #ehlersdanlos #heds #hypermobileeds #hypermobileehlersdanlossyndrome #hypermobile #ceds #veds #classicalehlersdanlos #classicalehlersdanlossyndrome #vasculareds #vascularehlersdanlossyndrome
I believe in having a little #magic ✨ accompanying me to the #doctor . Today, I doubled up on the #charms . #Episkey #ExpectoPatronum ✨ •••✌🏻️❤️♻️••• Register to #DonateLife at www.RegisterMe.org ✔️Registered organ donor since 1994. •••🌀••• #OrganTransplant #GiftOfLife #RecycleYourself #MakeLifePossible #Transplant #UNOS #LiveLifeGiveLife #Save8 •••🚑••• #GIDysfunction #JTube #ESLD #POTS #OrthostaticIntollerance #Hypermobile #ChronicPain #ChronicWellness #Tubie #Spoonie
Sometimes the thing that we are relying on the most is the very thing that is hindering growth. I express myself a lot with my hands, so in this stretch I tried to isolate them in order to work on expressing myself in other ways. Growth is often uncomfortable because it is outside of our comfort zone, but we should continue to push ourselves if we ever want to see change. #yogaeverydamnday #yogalooksgood #fitover40isthenew20 #fitover40 #yoga #spoonieyogatribe #ehlersdanlossyndrome #stretch #hypermobile #badassmovement #rare_mutant_fighting_to_survive #yogachallenge #yogaflow #isolationpractice #dance #musiclover #expressyourself #movement #namaste #hands #connectivetissuedisorder #positivevibesonly #destress
Annnnnd I’m finally going home! It’s been a long but very successful trip. I’m looking forward to some sunshine at home and seeing all my loved ones 🤗 I wish I could say I was going to chill when I land but I am rushing straight from the airport to another meeting, here’s hoping for some leg room on the flight so I can rest! 🙏🏼
Today has actually gone pretty well 🙂 I managed to go out to a jobs for a couple of hours which although being boring was an achievement lasting the whole time. This evening I am going to an autism social club which will be exhausting but fun x . . . . . . #chronicpain #chronicasthma #chronicwarrior #chronicillness #spoonie #spoonielife #spooniewarrior #asthma #sciatica #ibs #fastheartbeat #nausea #depression #anxiety #ptsd #autism #asd #quotes #nurishnotpunish #fibromyalgia #fibromyalgiaawareness #fibrowarriors #fibrofog #hypermobile #hypermobility #me #cfs #myalgicencephalomyelitis #chronicfatiguesyndrome
You’re talking to a girl who owns her own crutches. I have had these for years, but they regularly come in handy so I keep them around. I had my second Lupron shot yesterday. They put it in a small muscle near the hip and ass. I have a rare, extreme response where I cannot really bear weight on my shot leg for about a week. Last time I laid in bed and limped. This time I am going to try to be a little more mobile with a crutch. Hurts like all hell, but at least I was prepared this time. The Lupron is a temporary stop gap while I wait for my surgical consult to discuss a hysterectomy with oopherectomy in 4 weeks. It feels a little extreme, but I can’t spend two weeks every month in a endometriosis/hyperpots/dysautonomia/gastroparesis/constipation/dysmotility/connective tissue flare because my hormones fluctuate. I have lived like this for 20 years. I am done with it now that I know options exist. Here is to more progress and people listening. #pain #hysterectomy #oopherectomy #surgery #help #invisibleillness #chronicillness #dysmotility #endometriosis #dysautonomia #gastroparesis #POTS #hypermobile #california #queer #girlswhosmokeweed #weedismedicine #legalize #pot #pothead #ganja #ganjagirl #420 #medicalmarijuana #mmj #marijuana #stoner #high #cannabis #cannabiscommungity
I have different #sketchbooks where I #draw different things. Today, I picked up my #animals book. In this book, I draw quick #sketches to get the essence. Today I did a #Crane . •••✌🏻️❤️♻️••• Register to #DonateLife at www.RegisterMe.org ✔️Registered organ donor since 1994. •••🌀••• #OrganTransplant #GiftOfLife #RecycleYourself #MakeLifePossible #Transplant #UNOS #LiveLifeGiveLife #Save8 •••🚑••• #GIDysfunction #JTube #ESLD #POTS #OrthostaticIntollerance #Hypermobile #ChronicPain #ChronicWellness #Tubie #Spoonie #Episkey •••🎨••• #Art #ArtTherapy #D0n8LifeDesigns #Pencil #WatercolorPencils
Best surprise and way to spend my last day here. Happy 8 months baby Belle 💕👶🏼💕 #auntiejulie ⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀ ⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀ #juststrong #girlwholifts #ehlersdanlossyndrome #hypermobile #eds #health #fitness #bodybuilding #vegan #training
Heartbroken today. Our beautiful Queen Sophia shuffled off her mortal coil last night, surrounded by her family. She brought such incredible love to our lives. She’s a goddess now, stalking through the cosmos, screaming at anyone and everyone. Oh my beloved Yaya. We will miss you forever. I love you, my sweet fur butt. #cat #cats #catsofinstagram #death #furbaby #invisibleillness #chronicillness #dysmotility #endometriosis #dysautonomia #gastroparesis #POTS #hypermobile #california #queer #girlswhosmokeweed #weedismedicine #legalize #pot #pothead #ganja #ganjagirl #420 #medicalmarijuana #mmj #marijuana #stoner #high #cannabis #cannabiscommunity
🏳️ And so today brings about a new chapter. Time to focus solely on my health and put my employment on the back burner. So many mixed emotions... But keeping purpose in mind. This view is a lovely one to have. May the short term disability gods be kind. •••✌🏻️❤️♻️••• Register to #DonateLife at www.RegisterMe.org ✔️Registered organ donor since 1994. •••🌀••• #OrganTransplant #GiftOfLife #RecycleYourself #MakeLifePossible #Transplant #UNOS #LiveLifeGiveLife #Save8 •••🚑••• #GIDysfunction #JTube #ESLD #POTS #OrthostaticIntollerance #Hypermobile #ChronicPain #ChronicWellness #PatiencePatient #Tubie #Spoonie #Episkey •••🙈••• #NewChapter #ShortTermDisability #MixedEmotions #BeKind #GoodView
Current mood! Lol. It's been a busy week already. Went with mama to her wheelchair eval appointment on Tuesday. I'm so popular in the office that mama couldn't even snap a pic of me working lol! So sorry we have been slacking on posts but we've actually been very busy! I assisted mama while she tried some wheelchairs out though and although the process will be a long one we pray all goes well. It was funny to see all the staff keep poking their heads into the PT room just to ask "wheres Buddy" lol. I love them too ♡ hope everyone's having a good week. Xoxo. #servicedog #servicedogs #servicedogsofig #shepardmix #adoptdontshop #dogsofinstagram #sdit #disability #multiplesclerosis #ehlersdanlossyndrome #eds #hypermobile #pots #migranes #fatigue #musclespasms #Dysesthesia #dysautonomia #insomnia #ibs #chronicpain #spoonie #chronicillness #msawareness #mswarrior #mssucks #advocate #invisibleillness
It's hard, sometimes, knowing how far behind I am from where I'd like to be in life. And I'm often literally trailing behind people when we go out places. But I've realized that it helps me really notice life as it goes by. As other people talk about blinking and missing life because they're so busy I realize I'm blessed to be able to take things a little slower and really soak it all in. #spoonie #spoonielife #healingjourney #eds #ehlersdanlos #ehlersdanlossyndrome #hypermobility #hypermobile #chronicillness #chronicpain
What a privilege to work with these wonderful people #teamzebra
Tried to use my keyboard as exercise for my hands today to tackle joint stiffness in my fingers and wrists. Managed to write my own break down to this song in doing so. :) #keyboard #musician #eds #hypermobile #chronicillness #positivevibes
Let’s talk 💩. I currently have pretty much unmanaged pain when I need to go to the toilet, anyone else been in this position with fissures/prolapses etc? My doctors don’t want me on opioids because “opioid gut” but I can’t cope without them at the minute as the pain is awful. Annoying when your illness causes a barrier to recieving pain relief when you’ve spent your whole life being denied it because pain is “chronic” ugh. #chronicillness #poop #chronicallyill #spoonie #disabled #disability #prolapse #ehlersdanlossyndrome #eds #ehlersdanlos #gastroparesis #dysmotility #dysautonomia #hypermobile #hypermobility
I guess my joints aren't the only thing that are hypermobile.. #looseskin #readytogotothegym #gymtime #workout #fitness #hypermobile #tattoo #inked #backday #shoulderday #gymsharkwomen
Had a blood test today and they had to take 6 vials of blood. Turns out I'm a lil allergic to the tape as you can see by my new zebra stripes Bahahaha. Starting Pilates next week to begin strengthening myself. #zebra #eds #ehlersdanlossyndrome #hypermobile #hypermobility #mcas #spoonie
Overhead press day. 75 lbs 3 reps and I don't know exactly how many sets... 5 or 6? Showing one of the last sets (and worst) first.... because I think it's hilarious that I start reverting back to ballet and go on releve 🤣I don't try to do it... believe it just happens! Like my legs naturally extend my ankles and I go on my toes 🤷🏽‍♀️ My long ass arms and hyper extension don't help the situation either. . Leggings and top from @gracedbygrit 😊 #whentwoworldscollide #dancerswholift #longarmsandlegs #dancerlegs #hyperextension #hypermobile #balletdancer #girlswholift #strength #overheadpress #shoulders #ohnotonthetoes !
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